Search
Search
About
Log in
Join
Experiences with
Antihemophilic factor
Posts
Communities
1,607 public posts
Filter results
B12 150 or 190 lower limit?
My B12 at 178 is way above the lower limit? Or is it? Hi there. I asked the Doctor to check my B12 because of some symptoms I was having, eg tiredness, joint pain, mostly knees, and lower back, involuntary biting of tongue, and inside cheeks (really weird), and my mother and father were both diagnosed
My B12 at 178 is way above the lower limit? Or is it? Hi there. I asked the Doctor to check my B12 because of some symptoms I was having, eg tiredness, joint pain, mostly knees, and lower back, involuntary biting of tongue, and inside cheeks (really weird), and my mother and father were both diagnosed
jointpain
in
Pernicious Anaemia Society
6 years ago
Intrinsic Factor test can it be wrong?
Hi, I had my Vit B12 Result say 299 in 2015. It was in range but on bottom . My dr put me on Vit B12 Sublingual for 2 weeks and next visit she gave me an injection of B12, she then sent me over to lab and had me get Intrinsic Factor and Gastric Partial tst. The test said Positive for IF test, and Equivical
Hi, I had my Vit B12 Result say 299 in 2015. It was in range but on bottom . My dr put me on Vit B12 Sublingual for 2 weeks and next visit she gave me an injection of B12, she then sent me over to lab and had me get Intrinsic Factor and Gastric Partial tst. The test said Positive for IF test, and Equivical
Oberley
in
Pernicious Anaemia Society
6 years ago
Have I missed a trick?! Intrinsic factor testing without gpc antibodies test
I had a rushed but good conversation with GP. He says my b12 has been about 200 since 2015!! I didn’t even know it had been tested before. In December 2017 b12 was 175. Since I have autoimmune thyroiditis I asked to be tested for PA. He agreed and ordered intrinsic factor antibodies test. Is testing
I had a rushed but good conversation with GP. He says my b12 has been about 200 since 2015!! I didn’t even know it had been tested before. In December 2017 b12 was 175. Since I have autoimmune thyroiditis I asked to be tested for PA. He agreed and ordered intrinsic factor antibodies test. Is testing
Saya85
in
Pernicious Anaemia Society
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pottasium Levels
I have posted on here before, as I was diagnosed with a B12 deficiency in 2011 - had every symptom under the sun: Brain fog, dizziness, fatigue, sore lips, sore tongue, burning sensation - pins and needles in hands and feet, really dry skin, memory problems, speech problems, hair falling out in shower
I have posted on here before, as I was diagnosed with a B12 deficiency in 2011 - had every symptom under the sun: Brain fog, dizziness, fatigue, sore lips, sore tongue, burning sensation - pins and needles in hands and feet, really dry skin, memory problems, speech problems, hair falling out in shower
Hayley31
in
Pernicious Anaemia Society
6 years ago
High Homocysteine levels
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Jan87
in
Pernicious Anaemia Society
6 years ago
Could methotrexate actually be working???
Hi, Let me preface this by saying I am in the US, so I take 1mg of folic acid every day. Every US based website I have reviewed said that patients may begin to see improvements within 4-8 weeks, I know I have read on here somewhere between 8 & 12 weeks. I have taken my 4th week of pills this past Saturday
Hi, Let me preface this by saying I am in the US, so I take 1mg of folic acid every day. Every US based website I have reviewed said that patients may begin to see improvements within 4-8 weeks, I know I have read on here somewhere between 8 & 12 weeks. I have taken my 4th week of pills this past Saturday
Jesscap
in
NRAS
6 years ago
SO annoyed with myself.
I saw my GP this morning to tell him I had increased my Levo dose from 75mcg to 100mcg since the beginning of December as all through November my usual hypo symptoms had returned; fatigue, spaced out, foggy brain etc. During October I’d seen another GP to discuss my intrinsic factor antibodies and asked
I saw my GP this morning to tell him I had increased my Levo dose from 75mcg to 100mcg since the beginning of December as all through November my usual hypo symptoms had returned; fatigue, spaced out, foggy brain etc. During October I’d seen another GP to discuss my intrinsic factor antibodies and asked
Hyposucks
in
Thyroid UK
6 years ago
recommended to come here from pernicious anaemia community
hi I am new, my first post is on the pernicious anaemia community page. I tested positive for intrinsic factor antibodies. I am being treated for hypothyroid diagnosed in 2012 and I take 25mcg levo. a list of my symptoms are below. swelling in neck and in lymph glands difficult swallowing dry skin feeling
hi I am new, my first post is on the pernicious anaemia community page. I tested positive for intrinsic factor antibodies. I am being treated for hypothyroid diagnosed in 2012 and I take 25mcg levo. a list of my symptoms are below. swelling in neck and in lymph glands difficult swallowing dry skin feeling
LVO51
in
Thyroid UK
6 years ago
first post on healthunlocked - some low thyroid symptoms as well?
hi how often does b12 need to be injected if suffering symptoms of b12 deficiency. I tested positive for intrinsic factor antibodies and my haematologist has said b12 injections once every 3 months is enough. my first one was done june 2017 and gp surgery has had difficulty fitting me in for every 3
hi how often does b12 need to be injected if suffering symptoms of b12 deficiency. I tested positive for intrinsic factor antibodies and my haematologist has said b12 injections once every 3 months is enough. my first one was done june 2017 and gp surgery has had difficulty fitting me in for every 3
LVO51
in
Pernicious Anaemia Society
6 years ago
?RA
Hi. Newbie here. I've got a rheumatology appointment on Friday as GP suspects I have some sort of inflammatory arthritis, possibly RA (it runs in the family) My anti ccp is 198, rheumatoid factor positive and my ESR and CRP are four times what they should be. Can I ask how likely you think it'll be
Hi. Newbie here. I've got a rheumatology appointment on Friday as GP suspects I have some sort of inflammatory arthritis, possibly RA (it runs in the family) My anti ccp is 198, rheumatoid factor positive and my ESR and CRP are four times what they should be. Can I ask how likely you think it'll be
Mags22
in
NRAS
6 years ago
Excellent source of information
I have just come across a German website B12-Vitamin.org ( http://www.b12-vitamin.com/ ) It makes interesting reading and appears to be very well researched and referenced. It suggests that for normal maintenance a dose of 500micrograms daily by mouth will allow sufficient passive absorption to meet
I have just come across a German website B12-Vitamin.org ( http://www.b12-vitamin.com/ ) It makes interesting reading and appears to be very well researched and referenced. It suggests that for normal maintenance a dose of 500micrograms daily by mouth will allow sufficient passive absorption to meet
Dewbuc
in
Pernicious Anaemia Society
6 years ago
Help please
Hi I am from the Thyroid UK forum as I have untreated hypothyroidism. Could someone please advise if I need to push for more tests into pernicious anaemia. I have tested negative once for intrinsic factor antibodies but positive before that. A list of my symptoms from the B12 deficiency site are below
Hi I am from the Thyroid UK forum as I have untreated hypothyroidism. Could someone please advise if I need to push for more tests into pernicious anaemia. I have tested negative once for intrinsic factor antibodies but positive before that. A list of my symptoms from the B12 deficiency site are below
Klairey
in
Pernicious Anaemia Society
6 years ago
Pathology Lab refused to do MMA or recent B12 test - a bit of a moan, sorry!
Hi all, I hope you had a lovely Christmas. I had blood taken for an MMA test at the beginning of December, and blood for a B12 test taken on 19th December. I've been chasing both for a few days with the GP surgery, only to be told today that the Pathology lab refused to do both tests as they were considered
Hi all, I hope you had a lovely Christmas. I had blood taken for an MMA test at the beginning of December, and blood for a B12 test taken on 19th December. I've been chasing both for a few days with the GP surgery, only to be told today that the Pathology lab refused to do both tests as they were considered
HappyKatieA
in
Pernicious Anaemia Society
6 years ago
Think I might be infertile
Hi there, Me and my partner have been TTC for 6 months. I know it's not that long in the scheme of things. However I have this horrible gut feeling there's something wrong and I'll need intervention. I have heavy periods with clots and they can be very painful. However they're very regular, every 26
Hi there, Me and my partner have been TTC for 6 months. I know it's not that long in the scheme of things. However I have this horrible gut feeling there's something wrong and I'll need intervention. I have heavy periods with clots and they can be very painful. However they're very regular, every 26
GirlAfraid23
in
Fertility Network UK
6 years ago
Do I have endo?
Hi there everyone, I've suffered with painful periods for years, however they weren't as severe as recently when I was a teeenager and in my early 20s. Now I'm 28, they're much worse. My main symptoms are bowel related, I get severe pain when opening my bowels just before or during a period. It feels
Hi there everyone, I've suffered with painful periods for years, however they weren't as severe as recently when I was a teeenager and in my early 20s. Now I'm 28, they're much worse. My main symptoms are bowel related, I get severe pain when opening my bowels just before or during a period. It feels
GirlAfraid23
in
Endometriosis UK
6 years ago
Really need advice on self injecting
Hi, I really need advice as I self inject due to the fact that my GP thinks that one injection every 3 months is enough, and that I don't need it anymore as I didn't test positive for intrinsic factor antibody and my levels are okay. What I do know is that my symptoms recur (badly) when I have not had
Hi, I really need advice as I self inject due to the fact that my GP thinks that one injection every 3 months is enough, and that I don't need it anymore as I didn't test positive for intrinsic factor antibody and my levels are okay. What I do know is that my symptoms recur (badly) when I have not had
Hayley31
in
Pernicious Anaemia Society
7 years ago
Really don't know what to do about B12
Hi I was diagnosed in 2011 after years of symptoms getting progressively worse with no explanation. My B12 level was 154 and I felt horrible. I didn't test positive for intrinsic factor antibody, they found no cause for my B12 deficiency. I had loading doses (6 injections over 2 weeks) and felt SO much
Hi I was diagnosed in 2011 after years of symptoms getting progressively worse with no explanation. My B12 level was 154 and I felt horrible. I didn't test positive for intrinsic factor antibody, they found no cause for my B12 deficiency. I had loading doses (6 injections over 2 weeks) and felt SO much
Hayley31
in
Pernicious Anaemia Society
7 years ago
GP appointment
Hi so I saw the GP tonight as an emergency appointment. He was appalled to see how low my vitamins and minerals are and that my endo could reduce my levo from 150mcg and 2 quarters of T3 to just 25mcg levo. I have got a blood test booked for Friday morning for thyroid at 8:30am since I have passed the
Hi so I saw the GP tonight as an emergency appointment. He was appalled to see how low my vitamins and minerals are and that my endo could reduce my levo from 150mcg and 2 quarters of T3 to just 25mcg levo. I have got a blood test booked for Friday morning for thyroid at 8:30am since I have passed the
Ally29
in
Thyroid UK
7 years ago
Doctor withdrawing treatment
I have been receiving injections for the last year after finding out i was deficient in b12. I have them every 8 weeks at the advice of a private haematologist because I struggled to function on every 12 weeks. I tested negative for crohns and caeliac disease and tested negative for the intrinsic factor
I have been receiving injections for the last year after finding out i was deficient in b12. I have them every 8 weeks at the advice of a private haematologist because I struggled to function on every 12 weeks. I tested negative for crohns and caeliac disease and tested negative for the intrinsic factor
Katiea100
in
Pernicious Anaemia Society
7 years ago
GP reluctant to give injections
Hi, I have been on regular b12 injections previously but when I moved to a different area of the country these were not continued. In the summer, feeling very tired and listless, I had a blood test in France and the b12 score was 112 so I supplemented with sub lingual b12. When I got back to the UK
Hi, I have been on regular b12 injections previously but when I moved to a different area of the country these were not continued. In the summer, feeling very tired and listless, I had a blood test in France and the b12 score was 112 so I supplemented with sub lingual b12. When I got back to the UK
carolen
in
Pernicious Anaemia Society
7 years ago
1
...
46
47
48
...
81
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
857 results
Thyroid UK
255 results
NRAS
153 results
View top 10 communities
Sort by
Most Relevant
Newest