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Antihemophilic factor
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Recent Bloods Help
Hello, I’m hypo after Graves’ disease (2003) currently taking 150mg Levo the last few years. My June 2020 bloods results below ( pic). I was feeling very tired and weight gain after complaining to GP he then referred to an Endo who was really understanding and did the relevant bloods to tick others
Hello, I’m hypo after Graves’ disease (2003) currently taking 150mg Levo the last few years. My June 2020 bloods results below ( pic). I was feeling very tired and weight gain after complaining to GP he then referred to an Endo who was really understanding and did the relevant bloods to tick others
yolobrass
in
Thyroid UK
4 years ago
Anyone having blood pressure issues following IV Avastin injections?
Hi everyone; I hope all is well. I'm nearly six weeks post first intravitreal(IV) Avastin injection and ten days post second IV Avastin injection. My BP is pretty high(160/90's) and nothing else could explain it other than perhaps some chronic dehydration. I was mildly elevated at times(pre Avastin therapy
Hi everyone; I hope all is well. I'm nearly six weeks post first intravitreal(IV) Avastin injection and ten days post second IV Avastin injection. My BP is pretty high(160/90's) and nothing else could explain it other than perhaps some chronic dehydration. I was mildly elevated at times(pre Avastin therapy
Edman777
in
Macular Society
4 years ago
Side effects of injection
Hi guys! Sorry for all the questions I just want to feel better! I got my first injection yesterday. I felt fine after and then a few hours later I was extremely dizzy. I had some lightheadedness as my main symptom to begin with but nothing like this. Is this a side effect of the injection? Does this
Hi guys! Sorry for all the questions I just want to feel better! I got my first injection yesterday. I felt fine after and then a few hours later I was extremely dizzy. I had some lightheadedness as my main symptom to begin with but nothing like this. Is this a side effect of the injection? Does this
CDALY474
in
Pernicious Anaemia Society
4 years ago
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Does anyone get head pressure after injecting Cytamen daily as a loading dose
Hi there I’ve just joined the PA society. I’ve had the same issues as many on here of symptoms not being taken seriously just because my B12 is not low enough for them. Even though the trend is down from 390 4 yrs ago to 250 last week. They won’t test for intrinsic factor. I have been ill now for approx
Hi there I’ve just joined the PA society. I’ve had the same issues as many on here of symptoms not being taken seriously just because my B12 is not low enough for them. Even though the trend is down from 390 4 yrs ago to 250 last week. They won’t test for intrinsic factor. I have been ill now for approx
Serenity182
in
Pernicious Anaemia Society
4 years ago
What were your Anti Parietal Cell Numbers?
What were your Anti Parietal Cell Numbers? Mine is right on the borderline of positive. Trying to figure out I have b12 of 422 and a slightly elevated MMA. I also have a negative Intrinsic Factor Antibody test
What were your Anti Parietal Cell Numbers? Mine is right on the borderline of positive. Trying to figure out I have b12 of 422 and a slightly elevated MMA. I also have a negative Intrinsic Factor Antibody test
Max1777
in
Pernicious Anaemia Society
4 years ago
Desiccated pigs stomach
My sister recently read research from 1930s and I was wondering if anyone knows anything about eating desiccated pigs stomach. By doing so they ingested pigs intrinsic factor. I will try and find the article and add it to the post.
My sister recently read research from 1930s and I was wondering if anyone knows anything about eating desiccated pigs stomach. By doing so they ingested pigs intrinsic factor. I will try and find the article and add it to the post.
PhilAB
in
Pernicious Anaemia Society
4 years ago
Medichecks testing
I have decided to take matters into my own hands and order an Intrinsic Factor test from Medichecks. I know to have it done towards the end of my B12 injection. I have requested a nurse to come to the house as I don't know anyone that can take the blood. Do you have to receive your test first and
I have decided to take matters into my own hands and order an Intrinsic Factor test from Medichecks. I know to have it done towards the end of my B12 injection. I have requested a nurse to come to the house as I don't know anyone that can take the blood. Do you have to receive your test first and
Rocky
in
Thyroid UK
4 years ago
Something I noticed
In my opinion, in the minds of doctors, there is a big difference between being B12d and having Pernicious Anaemia. For some reason people who are B12d seem to get fobbed off by the medical staff .... but if you have PA, it is seemingly a legitimate medical condition and they can't do enough to help
In my opinion, in the minds of doctors, there is a big difference between being B12d and having Pernicious Anaemia. For some reason people who are B12d seem to get fobbed off by the medical staff .... but if you have PA, it is seemingly a legitimate medical condition and they can't do enough to help
Tubbylardo
in
Pernicious Anaemia Society
4 years ago
This sounds like PA, right?
Several years ago I would occasionally get short of breath. I realized it might be B12, and specifically PA because I eat a lot of meat, and started getting B12 injections. I would get an injection, go several months without symptoms, start getting short of breath again, get another injection, etc. I
Several years ago I would occasionally get short of breath. I realized it might be B12, and specifically PA because I eat a lot of meat, and started getting B12 injections. I would get an injection, go several months without symptoms, start getting short of breath again, get another injection, etc. I
nikaoo
in
Pernicious Anaemia Society
4 years ago
Help with blood results please: B12, ferritin and D.
Hi all. Having had a very low B12 result back in February I got sick of waiting for my GP to re-run the tests I'd had done privately, and paid to have them done again. My results are now in and I'd appreciate your input. Background: I'm vegetarian (though not vegan and eat a lot of dairy), hypothyroid
Hi all. Having had a very low B12 result back in February I got sick of waiting for my GP to re-run the tests I'd had done privately, and paid to have them done again. My results are now in and I'd appreciate your input. Background: I'm vegetarian (though not vegan and eat a lot of dairy), hypothyroid
distractonaught
in
Pernicious Anaemia Society
4 years ago
Presence of a lupus anticoagulant may explain prolonged activated partial-thromboplastin time in COVID-19
MAY 6, 2020 Presence of a lupus anticoagulant may explain prolonged activated partial-thromboplastin time in COVID-19 By Denise Baez NEW YORK -- May 6, 2020 -- A prolonged activated partial-thromboplastin time (aPTT) should not be a barrier to the use of anticoagulation therapies in the prevention and
MAY 6, 2020 Presence of a lupus anticoagulant may explain prolonged activated partial-thromboplastin time in COVID-19 By Denise Baez NEW YORK -- May 6, 2020 -- A prolonged activated partial-thromboplastin time (aPTT) should not be a barrier to the use of anticoagulation therapies in the prevention and
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
4 years ago
I'm sure its lupus
Please advise me, my background is sero negative APS diagnosed at St Thomas' in 2004, positive anti ro same time so told SS. Diagnosed fibro 1997. Though I've always had more lupus symptoms than SS. I get raised itchy blisters on wrists and lower legs, mouth ulcers, arthralgia, multiple spine fractures
Please advise me, my background is sero negative APS diagnosed at St Thomas' in 2004, positive anti ro same time so told SS. Diagnosed fibro 1997. Though I've always had more lupus symptoms than SS. I get raised itchy blisters on wrists and lower legs, mouth ulcers, arthralgia, multiple spine fractures
Daisy1962
in
LUPUS UK
4 years ago
As injection schedule decreases, symptoms are returning!
So as some of you know (Seth12345), I was diagnosed with b12d about 8 weeks ago. My loading doses were: once a day for 7 days, once a week for a month and once a month for a year. I just completed the once a week for a month, with the last injection being one day late, on the 8th day. Two days later
So as some of you know (Seth12345), I was diagnosed with b12d about 8 weeks ago. My loading doses were: once a day for 7 days, once a week for a month and once a month for a year. I just completed the once a week for a month, with the last injection being one day late, on the 8th day. Two days later
HopetoB12better
in
Pernicious Anaemia Society
4 years ago
HAIR CARE
One of you ladies mentioned Nioxin #3 Shampoo for thinning hair. I would like to order this shampoo but would like to know if it actually stops the hair from falling out. I don't want to spend money on it if my hair is going to fall out anyway. Someone else also mentioned Nizoral Shampoo and Conditioner
One of you ladies mentioned Nioxin #3 Shampoo for thinning hair. I would like to order this shampoo but would like to know if it actually stops the hair from falling out. I don't want to spend money on it if my hair is going to fall out anyway. Someone else also mentioned Nizoral Shampoo and Conditioner
viennagirl
in
SHARE Metastatic Breast Cancer
4 years ago
Intrinsic factor antibody test
Hello, My GP has agreed to test this antibody. I have Hashimoto's/hypothyroidism and take 150 mcg levothyroxine along with low dose naltrexone (currently 1 ml daily, titrating up 0.5 ml every two weeks), methyl-B12, methylfolate, vitamin D, ferrous fumarate, vitamin B6, zinc, magnesium and selenium.
Hello, My GP has agreed to test this antibody. I have Hashimoto's/hypothyroidism and take 150 mcg levothyroxine along with low dose naltrexone (currently 1 ml daily, titrating up 0.5 ml every two weeks), methyl-B12, methylfolate, vitamin D, ferrous fumarate, vitamin B6, zinc, magnesium and selenium.
Zazbag
in
Pernicious Anaemia Society
4 years ago
Worried Son
I'd like to know if other members have had B12 injections taken away from them by their GP? My Mum was diagnosed with Pernicious Anemia over 20 years ago and was told that she will need B12 injections for the rest of her life by the Consultant in Haematology. Last year, her GP took them away from her
I'd like to know if other members have had B12 injections taken away from them by their GP? My Mum was diagnosed with Pernicious Anemia over 20 years ago and was told that she will need B12 injections for the rest of her life by the Consultant in Haematology. Last year, her GP took them away from her
IPM1970
in
Pernicious Anaemia Society
4 years ago
Pernicious anemia symptoms returned after loading dose of B12!
Hi Everyone, My last loading dose injection of B12 was on 10th June after testing (twice) for a positive intrinsic factor, and slowly my symptoms have return. This weekend I feel awful, with xtreme tiredness, lack of energy, feeling faint, headaches and tinnitus. Please can anyone recommend anything
Hi Everyone, My last loading dose injection of B12 was on 10th June after testing (twice) for a positive intrinsic factor, and slowly my symptoms have return. This weekend I feel awful, with xtreme tiredness, lack of energy, feeling faint, headaches and tinnitus. Please can anyone recommend anything
Iheart_TS
in
Pernicious Anaemia Society
4 years ago
Intrinsic results back
Hi all.I just got my intrinsic factor test results back. Antibodies 3.47 AU/ml^2 (range 1.2-1.53) Positive. Any tips on what to do next appreciated. I’ve got my endo appointment on the 08/July for the Addisons diagnosis So obviously I’ll need to update him on this result. I’m back to self injecting
Hi all.I just got my intrinsic factor test results back. Antibodies 3.47 AU/ml^2 (range 1.2-1.53) Positive. Any tips on what to do next appreciated. I’ve got my endo appointment on the 08/July for the Addisons diagnosis So obviously I’ll need to update him on this result. I’m back to self injecting
Hidden
in
Pernicious Anaemia Society
4 years ago
Possible B12 deficiency, looking for recommended test list before B12 shot
I ran across someone posting on Reddit who has symptoms that might be from B12 deficiency... tingling, fatigue, etc. He's vegan, his serum B12 tested high, but he's taking daily B12 supplements so his serum test might not be accurate. I recommended trying a B12 shot to see if it helped, but then I
I ran across someone posting on Reddit who has symptoms that might be from B12 deficiency... tingling, fatigue, etc. He's vegan, his serum B12 tested high, but he's taking daily B12 supplements so his serum test might not be accurate. I recommended trying a B12 shot to see if it helped, but then I
genesurf
in
Pernicious Anaemia Society
4 years ago
Private Intrinsic Factor Testing recommendations
Could anyone recommend a company for IFAB testing please? I've been looking all day, I can only find Medichecks.
Could anyone recommend a company for IFAB testing please? I've been looking all day, I can only find Medichecks.
Bunny12345678
in
Pernicious Anaemia Society
4 years ago
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