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My 1st anniversary
Well I'm a couple of days late with this post, Friday marked the first anniversary of my heart attack that prompted a fasttrack journey through the NHS cardiac system and an experience of a number of cardiac procedures. In summary I had 2xPCI a year ago tomorrow. An echo prior to discharge led to AVR
Well I'm a couple of days late with this post, Friday marked the first anniversary of my heart attack that prompted a fasttrack journey through the NHS cardiac system and an experience of a number of cardiac procedures. In summary I had 2xPCI a year ago tomorrow. An echo prior to discharge led to AVR
Survivor1952
in
British Heart Foundation
1 month ago
Diet Advice for ET please
I was diagnosed three years ago with ET and started on hydroxycarbamide. The doctor told me very abruptly that I had a blood cancer and would have to take chemotherapy for the rest of my life. She went on to say that I should never eat red meat and that I should not take any breakfast cereal which
I was diagnosed three years ago with ET and started on hydroxycarbamide. The doctor told me very abruptly that I had a blood cancer and would have to take chemotherapy for the rest of my life. She went on to say that I should never eat red meat and that I should not take any breakfast cereal which
Jelbea
in
MPN Voice
1 month ago
HDT b1 PROTOCOL
She mentions two
anticoagulants
but not asperine. However, here in France, my nurses consider asperine to be an anticoagulant. Can anyone help me on this please? I would be really grateful. Thanks in advance, Dan.
She mentions two
anticoagulants
but not asperine. However, here in France, my nurses consider asperine to be an anticoagulant. Can anyone help me on this please? I would be really grateful. Thanks in advance, Dan.
FoieGras
in
Cure Parkinson's
11 months ago
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Update on Covid/AF
Hi all, Last week I reported that despite my daily dose of medication (60mg x 2 Diltiazem) I was consistently going in and out of AF due to COVID. I increased my Diltiazem by 60mg as (PIP) to try and eliminate/reduce the episodes. However, I found despite helping, this was exacerbating my AF - episodes
Hi all, Last week I reported that despite my daily dose of medication (60mg x 2 Diltiazem) I was consistently going in and out of AF due to COVID. I increased my Diltiazem by 60mg as (PIP) to try and eliminate/reduce the episodes. However, I found despite helping, this was exacerbating my AF - episodes
Fight-the-good-fight
in
Atrial Fibrillation Support
1 month ago
Yet another issue
It is hoped the
anticoagulants
will help dissolve the clot and I'll be having another scan in a few months time to check. To say I'm worried about the latest diagnosis is an understatement!
It is hoped the
anticoagulants
will help dissolve the clot and I'll be having another scan in a few months time to check. To say I'm worried about the latest diagnosis is an understatement!
BagelBuffet
in
British Heart Foundation
18 days ago
Choosing medication for PV/early MF
Hi Guys, I was diagnosed with PV in January and a BMB showed I have stage 1 Fibrosis on the bone marrow so I have been diagnosed with PV/early MF. My spleen is enlarged but up until very recently my bloods were normal. Now my hematocrit has risen slightly. I had portal and splenic vein thrombosis
Hi Guys, I was diagnosed with PV in January and a BMB showed I have stage 1 Fibrosis on the bone marrow so I have been diagnosed with PV/early MF. My spleen is enlarged but up until very recently my bloods were normal. Now my hematocrit has risen slightly. I had portal and splenic vein thrombosis
DarcyShepp
in
MPN Voice
1 month ago
Detecting undiagnosed AF
I'm a stroke lived-experience person since 2016 and, I've had atrial fibrillation / flutter that started years before that. Intially paroxymal, later becoming permanent. I was the subject of a paper (available on the Internet) on pulmonary toxicity (aka cryptogenic organising pnuemonia) secondary to
I'm a stroke lived-experience person since 2016 and, I've had atrial fibrillation / flutter that started years before that. Intially paroxymal, later becoming permanent. I was the subject of a paper (available on the Internet) on pulmonary toxicity (aka cryptogenic organising pnuemonia) secondary to
john-boy-92
in
Atrial Fibrillation Support
1 month ago
Watchman or not?
I was diagnosed with Afib about 3 yrs ago. I sometimes wonder if I do have Afib because I am not aware of any symptoms. I take Losartan and Diltiazem and Xarelto . Just recently was taken off of Propranolol. My cardiologist is proposing to implant a Watchman device. I have reservations about undergoing
I was diagnosed with Afib about 3 yrs ago. I sometimes wonder if I do have Afib because I am not aware of any symptoms. I take Losartan and Diltiazem and Xarelto . Just recently was taken off of Propranolol. My cardiologist is proposing to implant a Watchman device. I have reservations about undergoing
JantheNana
in
Atrial Fibrillation Support
1 month ago
Pain Relief
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
Anticoagulation treatment stop
I’m 72 ,I have had persistent slow AF now for 9 years I have been taking warfarin now for the last 10 years I have moderate weakness of the heart muscles ,enlarged heart ,my ejection fraction was 40% last year . I have received a letter saying my consultant wants me to stop taking warfarin straight
I’m 72 ,I have had persistent slow AF now for 9 years I have been taking warfarin now for the last 10 years I have moderate weakness of the heart muscles ,enlarged heart ,my ejection fraction was 40% last year . I have received a letter saying my consultant wants me to stop taking warfarin straight
jsheard
in
Atrial Fibrillation Support
1 month ago
anticoagulation after successful ablation
Barts AF have an interesting article today - lots of ongoing big studies but basically they do not know for certain whether the general advice of ACs die life despite successful ablation is correct. Clearly correct for some, but for all? In the article is also says that if you have no AF after a year
Barts AF have an interesting article today - lots of ongoing big studies but basically they do not know for certain whether the general advice of ACs die life despite successful ablation is correct. Clearly correct for some, but for all? In the article is also says that if you have no AF after a year
OldJane
in
Atrial Fibrillation Support
2 months ago
Weird bruise on my big toe
I take presugrel, aspirin and Atorvastatin after my heart attack back in December. Ive been recovering pretty steadily . We travelled up to Criccieth by train yesterday for our holiday and I was wearing my walking boots all day which i didnt take off til about 7:30in the evening. When i was having
I take presugrel, aspirin and Atorvastatin after my heart attack back in December. Ive been recovering pretty steadily . We travelled up to Criccieth by train yesterday for our holiday and I was wearing my walking boots all day which i didnt take off til about 7:30in the evening. When i was having
BaronFrankenstein
in
British Heart Foundation
2 months ago
blood thinners and anemia
Hi All Did anyone have anemia from aspirin and ticagrelor(blood thinners ). Facing that issue . Not sure if that is due to the blood thinners
Hi All Did anyone have anemia from aspirin and ticagrelor(blood thinners ). Facing that issue . Not sure if that is due to the blood thinners
Cchhabra
in
British Heart Foundation
2 months ago
Eliquis and AF symptoms
Hi all, I've been following the posts on this forum and have received helpful feedback re blood thinners and AF. I was recently diagnosed with AF and was put on Eliquis, which I've not yet started because of what I heard about the side effects. I have bradycardia and experience flutters and lightheadedness
Hi all, I've been following the posts on this forum and have received helpful feedback re blood thinners and AF. I was recently diagnosed with AF and was put on Eliquis, which I've not yet started because of what I heard about the side effects. I have bradycardia and experience flutters and lightheadedness
Calypso76
in
Atrial Fibrillation Support
2 months ago
Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
2 months ago
Was it a TIA?
Hi all, recently had a suspected TIA nearly 3 months ago. I got home one night and went to lock the door and I couldn’t get the key in the lock. I had no pain, no disorientation or confusion, no blurred vision, no pins and needles or numbness, no slurred speech, my left arm just felt a bit heavy. I immediately
Hi all, recently had a suspected TIA nearly 3 months ago. I got home one night and went to lock the door and I couldn’t get the key in the lock. I had no pain, no disorientation or confusion, no blurred vision, no pins and needles or numbness, no slurred speech, my left arm just felt a bit heavy. I immediately
DonnaA
in
British Heart Foundation
2 months ago
Tuesday
Ralph as cheerful as ever. Said a Dr from ENT came this morning and said we have a plan and walked out, lol. Not the consultant. I asked the nurse, she said yes he said keep going with the tracheotomy and take down to the next size. No idea what consultant thinks or even if he's seen the film yet. I
Ralph as cheerful as ever. Said a Dr from ENT came this morning and said we have a plan and walked out, lol. Not the consultant. I asked the nurse, she said yes he said keep going with the tracheotomy and take down to the next size. No idea what consultant thinks or even if he's seen the film yet. I
Hidden
in
British Heart Foundation
2 months ago
Another day
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
Hidden
in
British Heart Foundation
2 months ago
Slow AF
I have slow AF and recently started on blood thinners. What symptoms do people get?? My only symptom I get his an heaviness on my chest, like an elephant sitting on my chest and unable to take a deep breath. Very rarely I feel palpitations. I started off with intermittent AF but I’m. Is in AF 24/7 😡
I have slow AF and recently started on blood thinners. What symptoms do people get?? My only symptom I get his an heaviness on my chest, like an elephant sitting on my chest and unable to take a deep breath. Very rarely I feel palpitations. I started off with intermittent AF but I’m. Is in AF 24/7 😡
Pottsgene
in
Atrial Fibrillation Support
2 months ago
watchman
I seem to be not able to tolerate ‘blood thinners’ and a watchman has been suggested, any advice from someone who has one? Thanks
I seem to be not able to tolerate ‘blood thinners’ and a watchman has been suggested, any advice from someone who has one? Thanks
Eastwick
in
Atrial Fibrillation Support
2 months ago
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