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MsM Prostate Cancer Study seeks you
Enter the COMPASS Study here: https://malecare.org/compass-study/
Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer The purpose of this study is to develop a sexual function survey specific for men who have sex with men (MSM
Enter the COMPASS Study here: https://malecare.org/compass-study/
Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer The purpose of this study is to develop a sexual function survey specific for men who have sex with men (MSM
Darryl
Partner
in
Prostate Cancer And Gay Men
2 years ago
MsM Prostate Cancer Study seeks you
Enter the COMPASS Study here: https://malecare.org/compass-study/
Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer The purpose of this study is to develop a sexual function survey specific for men who have sex with men (MSM
Enter the COMPASS Study here: https://malecare.org/compass-study/
Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer The purpose of this study is to develop a sexual function survey specific for men who have sex with men (MSM
Darryl
Partner
in
Advanced Prostate Cancer
2 years ago
MsM Prostate Cancer Study
Enter the COMPASS Study here: https://malecare.org/compass-study/
Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer The purpose of this study is to develop a sexual function survey specific for men who have sex with men (MSM
Enter the COMPASS Study here: https://malecare.org/compass-study/
Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer The purpose of this study is to develop a sexual function survey specific for men who have sex with men (MSM
Darryl
Partner
in
Active Surveillance - Prostate Cancer
2 years ago
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What Do You Make of This?
https://www.redjournal.org/article/S0360-3016(22)03349-1/fulltext I had a Gleason 4 tumor (2 cm x 1 cm) with a PSA in the 20's. Is this saying that targeted treatment with no or limited ADT would have been sufficient, especially if HDR brachytherapy were used with IMRT?
https://www.redjournal.org/article/S0360-3016(22)03349-1/fulltext I had a Gleason 4 tumor (2 cm x 1 cm) with a PSA in the 20's. Is this saying that targeted treatment with no or limited ADT would have been sufficient, especially if HDR brachytherapy were used with IMRT?
ADTMan
in
Advanced Prostate Cancer
2 years ago
cardio and cramp
I wonder if anyone had any advice on calf cramps. My husband 51, with aPC is on Daralutomide and ADT and just finished 6 cycles of docetaxel, is keen to ramp up his cardio and weight training. The problem is whenever he tries to run or play tennis or even go on cross trainer he gets a cramp in his
I wonder if anyone had any advice on calf cramps. My husband 51, with aPC is on Daralutomide and ADT and just finished 6 cycles of docetaxel, is keen to ramp up his cardio and weight training. The problem is whenever he tries to run or play tennis or even go on cross trainer he gets a cramp in his
Hopeful129
in
Advanced Prostate Cancer
2 years ago
Rising PSA after salvage radiation
Diagnosed March 2018 (Gleason 7), prostatectomy July 2018. PSA rose to 0.1 by September 2020 which triggered salvage radiation and 6 months ADT. This year PSA began a slow rise from <0.01 to 0.02 to 0.04 and now is 0.06. Wondering if this is worrisome? Also, I changed my atorvastatin dose from 20mg
Diagnosed March 2018 (Gleason 7), prostatectomy July 2018. PSA rose to 0.1 by September 2020 which triggered salvage radiation and 6 months ADT. This year PSA began a slow rise from <0.01 to 0.02 to 0.04 and now is 0.06. Wondering if this is worrisome? Also, I changed my atorvastatin dose from 20mg
Bcmariposa
in
Prostate Cancer Network
2 years ago
Transdermal low dose patch Estradiol for ADT S.E.
Use it at all? start using it right away with Casodex/Lupron initial treatment or wait to see if you are having S.E. ? Does primary doc do this or ask RO/MO team?
Use it at all? start using it right away with Casodex/Lupron initial treatment or wait to see if you are having S.E. ? Does primary doc do this or ask RO/MO team?
runtrails
in
Advanced Prostate Cancer
2 years ago
I am trying to decide if at the end of my ADT treatment in Dec 22 if I need to go on something else or just wait and see if PSA increases.
Has anyone else just had RT to prostate + pelvic lymph nodes with 2 yrs ADT no other added therapy yet? This is my first post on this site. PSA tests as follows: 5/21/21 one month post RT .5 11/21 .19 6/22
Has anyone else just had RT to prostate + pelvic lymph nodes with 2 yrs ADT no other added therapy yet? This is my first post on this site. PSA tests as follows: 5/21/21 one month post RT .5 11/21 .19 6/22
rozjr
in
Advanced Prostate Cancer
2 years ago
ART Do-Over List for PCa Patients - What Would You Do Different if Only you Could; My Personal Journey
1. Loyalty; you don’t owe your doctor any. If you sense a need to change providers strike out. 2. 2d 3d 4th n 5th Opinions; get as many doctors to review your case as you can. Don’t stop until you are satisfied you have [u]3 doctors telling you the same thing[/u]. Insurance will pay for this. 3.
1. Loyalty; you don’t owe your doctor any. If you sense a need to change providers strike out. 2. 2d 3d 4th n 5th Opinions; get as many doctors to review your case as you can. Don’t stop until you are satisfied you have [u]3 doctors telling you the same thing[/u]. Insurance will pay for this. 3.
RMontana
in
Active Surveillance - Prostate Cancer
2 years ago
Antidepressants and ED
I've been on ADT for 4.5 years. Lupron and Zytiga. We all know the sexual health problems with that. I was getting depressed quite badly at times so I started Citalopram a few days ago. It's already helping but I have noticed a bit more ED. Maybe I have to give it some time to see. There are other anti
I've been on ADT for 4.5 years. Lupron and Zytiga. We all know the sexual health problems with that. I was getting depressed quite badly at times so I started Citalopram a few days ago. It's already helping but I have noticed a bit more ED. Maybe I have to give it some time to see. There are other anti
gsun
in
Advanced Prostate Cancer
2 years ago
Vit B12 extremely high
So, I have stage 4 de novo prostate CA. On Lupron, in between 5th & 6th docetaxel chemo. Had to stop abiraterone due to elevated bilirubin & will try restarting after chemo is over. Recently diagnosed with MGUS (Monoclonal gammopathy of undetermined significance) which is unrelated to the prostate.
So, I have stage 4 de novo prostate CA. On Lupron, in between 5th & 6th docetaxel chemo. Had to stop abiraterone due to elevated bilirubin & will try restarting after chemo is over. Recently diagnosed with MGUS (Monoclonal gammopathy of undetermined significance) which is unrelated to the prostate.
rsgdmd
in
Advanced Prostate Cancer
2 years ago
Another vacation?
MO wants to take me off ADT after 5 mos PSA down .07 from 3.14 June - October Before the treatment began, the PSA had a 2 mo slope, for the first time. This would be my 3 rd vacation, and beginning of 4th year since 2018 salvage robot prost. I was put on degarelix after 6 mos biological recurrence
MO wants to take me off ADT after 5 mos PSA down .07 from 3.14 June - October Before the treatment began, the PSA had a 2 mo slope, for the first time. This would be my 3 rd vacation, and beginning of 4th year since 2018 salvage robot prost. I was put on degarelix after 6 mos biological recurrence
kainasar
in
Advanced Prostate Cancer
2 years ago
Dad has PC in pelvic nodes ? Is he on correct treatment
Dad is now 73. Lives in Sydney, Australia. Ethnicity is Caucasian. PC history below: 2020 May: PSMA test and rising PSA at 4 give rise to biopsy. Reveals Gleason 4+3 stage 2b. 2020 June: Ends up getting robotic RPC. In post surgery biopsy PC did just breach Prostate capsule. But margins negative.
Dad is now 73. Lives in Sydney, Australia. Ethnicity is Caucasian. PC history below: 2020 May: PSMA test and rising PSA at 4 give rise to biopsy. Reveals Gleason 4+3 stage 2b. 2020 June: Ends up getting robotic RPC. In post surgery biopsy PC did just breach Prostate capsule. But margins negative.
Jbooopin
in
Advanced Prostate Cancer
2 years ago
Cabazitaxel Versus Docetaxel
Hi, I joined my father this week for his most recent appointment. He is 5 years post diagnosis and his PSA has started to rise after 2.5 years of stability on enzalutamide and before that 6 rounds of doxetaxel + ADT. His recent scans have showed some enlargement of pelvic lymph nodes which is most
Hi, I joined my father this week for his most recent appointment. He is 5 years post diagnosis and his PSA has started to rise after 2.5 years of stability on enzalutamide and before that 6 rounds of doxetaxel + ADT. His recent scans have showed some enlargement of pelvic lymph nodes which is most
fmoser
in
Advanced Prostate Cancer
2 years ago
2 yr since DX
Today is one of those dates a person remembers but really doesn't want to remember - it was 2 years ago today when my urologist's nurse called me to say "you have mets. I'm sorry". those two small sentences are burned into my memory, i can remember exactly where i was, what direction i was facing,
Today is one of those dates a person remembers but really doesn't want to remember - it was 2 years ago today when my urologist's nurse called me to say "you have mets. I'm sorry". those two small sentences are burned into my memory, i can remember exactly where i was, what direction i was facing,
Tonwantonga
in
Advanced Prostate Cancer
2 years ago
My Onco says he only looks at the PCa, bone health is not his department, I say he couldn't be more wrong.
I am now 54, dx Dec 2019 PSA 160 and up to 300 by March 2020. Extensive bone Mets. Started ADT with Zytiga and Prednisone, marvelous results. PSA down to 0.03 in 8 months, and has stayed very low since . Onco recons everything is going great, disease under control, no further action is needed, just
I am now 54, dx Dec 2019 PSA 160 and up to 300 by March 2020. Extensive bone Mets. Started ADT with Zytiga and Prednisone, marvelous results. PSA down to 0.03 in 8 months, and has stayed very low since . Onco recons everything is going great, disease under control, no further action is needed, just
CSHobie
in
Advanced Prostate Cancer
2 years ago
Workouts and ADT
I typically swim, bike, run 3 days a week and lift 3 others. For example Saturday I ran 6.2 mile race and today I swam up and back 30 laps (our gym pool is not olympic sized). Lifting is where I need help, Specifically related to ADT. I have PSMA test coming in a couple weeks, then ADT/Radiation. I
I typically swim, bike, run 3 days a week and lift 3 others. For example Saturday I ran 6.2 mile race and today I swam up and back 30 laps (our gym pool is not olympic sized). Lifting is where I need help, Specifically related to ADT. I have PSMA test coming in a couple weeks, then ADT/Radiation. I
runtrails
in
Advanced Prostate Cancer
2 years ago
ADT Holiday Unexpected Consequences
After stopping Lupron and then, 5 months later abiraterone/dexamethasone, I began to experience what I believe to be arthritis joint pains. Not only in my hips (previously diagnosed with degenerative osteoarthritis) but other joints as well. I did a two week taper-off from the dex but I believe, and
After stopping Lupron and then, 5 months later abiraterone/dexamethasone, I began to experience what I believe to be arthritis joint pains. Not only in my hips (previously diagnosed with degenerative osteoarthritis) but other joints as well. I did a two week taper-off from the dex but I believe, and
6357axbz
in
Advanced Prostate Cancer
2 years ago
PSA is relatively low, but I am having bone pain in my pelvis and spine
So here is my background: Dx in May 2020 Stage 4 with widespread mets from skull to knees, Gleason 9. PSA in the 800s. Started out with Firmagon and 5 rounds of Taxotere. PSA went to 0.1. We switched from Firmagon to Orgovyx in August 2021. In January 2022 we added Nubeqa. PSA has held pretty steady
So here is my background: Dx in May 2020 Stage 4 with widespread mets from skull to knees, Gleason 9. PSA in the 800s. Started out with Firmagon and 5 rounds of Taxotere. PSA went to 0.1. We switched from Firmagon to Orgovyx in August 2021. In January 2022 we added Nubeqa. PSA has held pretty steady
Pianodude
in
Advanced Prostate Cancer
2 years ago
Current PCa treatment options in the UK do NOT include Triplet Therapy!
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Benkaymel
in
Advanced Prostate Cancer
2 years ago
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