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Vertebral Fractures [VF]
New study from the Netherlands, below [1]. One would expect bone issues with ADT, since near-zero testosterone equates to near-zero estradiol. When estradiol goes below 12 pg/mL (my limit, based on old non-PCa studies), bone loss can be rapid. But this study looked at men who were about to start ADT
New study from the Netherlands, below [1]. One would expect bone issues with ADT, since near-zero testosterone equates to near-zero estradiol. When estradiol goes below 12 pg/mL (my limit, based on old non-PCa studies), bone loss can be rapid. But this study looked at men who were about to start ADT
pca2004
in
Fight Prostate Cancer
2 years ago
I am in need of treatment advice for my Prostate cancer
Ive been in treatment at Shaw Cancer Center in Edwards, CO for metastic prostrate cancer. After a year of hormone therapy, radiation and chemo, my first PSMA scan revealed adenocarcinoma in my prostrate with seminal vesicle and perineural involvement. I have a PSA score of 0 and have had a history of
Ive been in treatment at Shaw Cancer Center in Edwards, CO for metastic prostrate cancer. After a year of hormone therapy, radiation and chemo, my first PSMA scan revealed adenocarcinoma in my prostrate with seminal vesicle and perineural involvement. I have a PSA score of 0 and have had a history of
Thedawg
in
Advanced Prostate Cancer
2 years ago
Covid-Induced Holiday
A week before Christmas, both my wife and I tested positive for Covid and it was the first time for both of us. My Primary Care wanted to put my on Paxlovid for 5 days but was concerned about interactions with my Orgovyx and Lipitor. Both should be stopped during the 5 days on Paxlovid and then for 7
A week before Christmas, both my wife and I tested positive for Covid and it was the first time for both of us. My Primary Care wanted to put my on Paxlovid for 5 days but was concerned about interactions with my Orgovyx and Lipitor. Both should be stopped during the 5 days on Paxlovid and then for 7
jcarey79
in
Advanced Prostate Cancer
2 years ago
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muscle and ADT issues and questions
A question about side effects and Zoladex (goserelin) - I am into the third month of Zoladex and two previous months prior to this on Bicalutimide (casodex) following a MRI and biopsy Gleason 9 (T2cN0M0) last august after HIFU for G7 only 8 months prior didn’t stop PSA rise. Just completed 20 sessions
A question about side effects and Zoladex (goserelin) - I am into the third month of Zoladex and two previous months prior to this on Bicalutimide (casodex) following a MRI and biopsy Gleason 9 (T2cN0M0) last august after HIFU for G7 only 8 months prior didn’t stop PSA rise. Just completed 20 sessions
SimMartin
in
Prostate Cancer Network
2 years ago
Father’s MO now recommending adding Zytiga
Hi all, my dad is nearly three years from diagnosis of Gleason 9 with evidence of spread to local lymph nodes (see profile). Has had IMRT concurrent with 3 years of lupron. Latest PSA 0.03, <0.02 6 months prior. Original plan from MO was to do Lupron for 3 years which would end 2/23. His recent appointment
Hi all, my dad is nearly three years from diagnosis of Gleason 9 with evidence of spread to local lymph nodes (see profile). Has had IMRT concurrent with 3 years of lupron. Latest PSA 0.03, <0.02 6 months prior. Original plan from MO was to do Lupron for 3 years which would end 2/23. His recent appointment
mooman80
in
Advanced Prostate Cancer
2 years ago
Pain, exercise and weight gain
Hi I have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Hi I have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Awwy
in
LUPUS UK
2 years ago
Pain, exercise and weight gain
HiI have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
HiI have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Awwy
in
Endometriosis UK
2 years ago
High risk treatment - go conventional or experimental?
Hello Folks, Lots of great posts and discussions on this site. I thought I'd come aboard and get some feedback. 58 yrs old great health except for Gleason 4+4 = 8, in 3/6 biopsy cores (one side of prostate). Not sure why they only took 6 cores. PSA 24.1 back in November. Did a bone scan and a question
Hello Folks, Lots of great posts and discussions on this site. I thought I'd come aboard and get some feedback. 58 yrs old great health except for Gleason 4+4 = 8, in 3/6 biopsy cores (one side of prostate). Not sure why they only took 6 cores. PSA 24.1 back in November. Did a bone scan and a question
LongTimeRunning
in
Prostate Cancer Network
2 years ago
Anyone in Clinical Trail NRG-GU009?
My RO says I am a candidate for this but I am not positive I want to participate. I am leaning toward ADT+IMRT+LDR PB Boost for a G9 contained to the prostate. Help me with my analysis: Positives: 1. If I ended up being a high DECIPHER risk gives me access to Apalutimide right away. Negatives:
My RO says I am a candidate for this but I am not positive I want to participate. I am leaning toward ADT+IMRT+LDR PB Boost for a G9 contained to the prostate. Help me with my analysis: Positives: 1. If I ended up being a high DECIPHER risk gives me access to Apalutimide right away. Negatives:
OldVTGuy
in
Advanced Prostate Cancer
2 years ago
Salvage Radiation Repost
I'm reposting this bc earlier post had a crucial typo and I left out some important info. Corrected/updated post is below with changes bolded. I really appreciate all the thoughtful replies I've received so far. I had robot RP 2/2022. Gleason 7.
PSAs post-RP <0.4.
In October, PSA was 0.06.
I'm reposting this bc earlier post had a crucial typo and I left out some important info. Corrected/updated post is below with changes bolded. I really appreciate all the thoughtful replies I've received so far. I had robot RP 2/2022. Gleason 7.
PSAs post-RP <0.4.
In October, PSA was 0.06.
ElRanchoDePoisonIvy
in
Advanced Prostate Cancer
2 years ago
BATMAN
Yesterday, when I complained of the apparent lack of interest in using BAT to prevent CRPC, I should have briefly mentioned the old BATMAN study (2016). Although BATMAN involved hormone-sensitive men, there was no castration phase. Therefore, the BATMAN protocol was not designed to prevent CRPC.
Yesterday, when I complained of the apparent lack of interest in using BAT to prevent CRPC, I should have briefly mentioned the old BATMAN study (2016). Although BATMAN involved hormone-sensitive men, there was no castration phase. Therefore, the BATMAN protocol was not designed to prevent CRPC.
pca2004
in
Fight Prostate Cancer
2 years ago
Salvage Radiation Question
I had robot RP 2/2022. Gleason 7. In October, PSA was 0.06, on 12/28/22 it was 1.0. I saw two ROs. One said there was no surgical benefit to radiation before 2.0. The other said it’s better to do it now as there’s a good chance of avoiding hormone therapy later. To me, it seems like my doubling time
I had robot RP 2/2022. Gleason 7. In October, PSA was 0.06, on 12/28/22 it was 1.0. I saw two ROs. One said there was no surgical benefit to radiation before 2.0. The other said it’s better to do it now as there’s a good chance of avoiding hormone therapy later. To me, it seems like my doubling time
ElRanchoDePoisonIvy
in
Advanced Prostate Cancer
2 years ago
Calcium supplements
ON ADT for 18 months, very active, no issues. MO recommended Calcium + Vit D. I read somewhere that this supplement has been shown to INCREASE the cancer. Comments??
ON ADT for 18 months, very active, no issues. MO recommended Calcium + Vit D. I read somewhere that this supplement has been shown to INCREASE the cancer. Comments??
alperk
in
Advanced Prostate Cancer
2 years ago
Ouch! Santa only left me lumps of coal. Still digesting my latest DX and any input would be welcome.
At my wellness checkup, the first thing my PCP said was that I looked pale then told me I was anemic and my blood numbers were mostly bad. Off to the hematologist and was told I also had hemochromatosis (too much iron) and need to do a bone marrow biopsy. Knew this wasn't just to fill a square and
At my wellness checkup, the first thing my PCP said was that I looked pale then told me I was anemic and my blood numbers were mostly bad. Off to the hematologist and was told I also had hemochromatosis (too much iron) and need to do a bone marrow biopsy. Knew this wasn't just to fill a square and
SpencerBoy11
in
Advanced Prostate Cancer
2 years ago
Michael T Schweizer & BAT [Bipolar Androgen Therapy
I was looking at BAT-related studies involving Dr. Schweizer. The first was as lead author for Denmeade (2015). Most BAT research has been performed on men with CRPC [Castrate-Resistant Prostate Cancer]. The U.S. statistics for 2022 were 268,490 new cases, with 34,500 deaths. The deaths being largely
I was looking at BAT-related studies involving Dr. Schweizer. The first was as lead author for Denmeade (2015). Most BAT research has been performed on men with CRPC [Castrate-Resistant Prostate Cancer]. The U.S. statistics for 2022 were 268,490 new cases, with 34,500 deaths. The deaths being largely
pca2004
in
Fight Prostate Cancer
2 years ago
BIOCHEMICAL RECURRENCE -NOW WHAT?
I was Gleason 5+4 with PSA of 253 in May 2019. PSMA Pet CT showed tumour in the prostrate, seminal vesicles and MRI showed one ECE. Started ADT in Jun 19 and continued for 30 months. Had RT (IMAT) in Oct to Dec 2019. PSA came down to 0.04 by Jun 2020. Then from Sep 2021 PSA started increasing slowly.
I was Gleason 5+4 with PSA of 253 in May 2019. PSMA Pet CT showed tumour in the prostrate, seminal vesicles and MRI showed one ECE. Started ADT in Jun 19 and continued for 30 months. Had RT (IMAT) in Oct to Dec 2019. PSA came down to 0.04 by Jun 2020. Then from Sep 2021 PSA started increasing slowly.
binati
in
Advanced Prostate Cancer
2 years ago
Link for non advanced prostate cancer
I have a friend who has. Gleason 6 PC, non metastatic, and getting radiation. No ADT or surgery. All the bio I have. I have learned so much from this forum I wanted to introduce him too it but thought a different site might be another option? I know there was a link to PC patients with watch and wait
I have a friend who has. Gleason 6 PC, non metastatic, and getting radiation. No ADT or surgery. All the bio I have. I have learned so much from this forum I wanted to introduce him too it but thought a different site might be another option? I know there was a link to PC patients with watch and wait
runtrails
in
Advanced Prostate Cancer
2 years ago
Radiation a second time? Recurrent PC
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
wat380bjw
in
Advanced Prostate Cancer
2 years ago
Can I ask what to expect during the initial hormone therapy + five to eight weeks of radiation?
Hi All, My father has just completed two weeks of radiation and I thought he was handling it very well but today seemed to be a really bad day. It has me a bit shaken up as it seemed to have come out of no where. Wondering if these symptoms are normal and how much worse we can expect this to get. Along
Hi All, My father has just completed two weeks of radiation and I thought he was handling it very well but today seemed to be a really bad day. It has me a bit shaken up as it seemed to have come out of no where. Wondering if these symptoms are normal and how much worse we can expect this to get. Along
FormulaRob
in
Advanced Prostate Cancer
2 years ago
The Thymus & ADT
New paper below [1]. The thymus has an important immunological role during childhood, but strangely, shrivels up at puberty. A PubMed search of gives 1,753 hits, going back 100 years. Many years ago, I discovered that castration could cause the thymus to regenerate. I wondered what that meant for
New paper below [1]. The thymus has an important immunological role during childhood, but strangely, shrivels up at puberty. A PubMed search of gives 1,753 hits, going back 100 years. Many years ago, I discovered that castration could cause the thymus to regenerate. I wondered what that meant for
pca2004
in
Fight Prostate Cancer
2 years ago
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