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success on ADT / viagara
Daily use ? Or " as needed "? in maintaining tissue perfusion and thus, longer term success.
Daily use ? Or " as needed "? in maintaining tissue perfusion and thus, longer term success.
warrior22
in
Advanced Prostate Cancer
2 years ago
Another week of complete agony
Over the past couple months I have had 3 episodes of extreme pain that last 2-3 days and they magically go away as fast as the came. The pain is most always in areas where I have bone mets, so I don't know if it is directly because of the mets, or maybe caused by Lupron and/or Zytiga. This past Tuesday
Over the past couple months I have had 3 episodes of extreme pain that last 2-3 days and they magically go away as fast as the came. The pain is most always in areas where I have bone mets, so I don't know if it is directly because of the mets, or maybe caused by Lupron and/or Zytiga. This past Tuesday
bglendi53
in
Advanced Prostate Cancer
2 years ago
Debulking Radiation Options
Short version (bio has more detail): omHSPC, started ADT (Lupron + Darolutamide - ARASEC Trial) in September 2022. MO has me scheduled for a consultation with RO for a planned debulking IMRT/IGRT to the prostrate and pelvis in Nov/Dec. My question for this group - is IMRT/IGRT the best option here
Short version (bio has more detail): omHSPC, started ADT (Lupron + Darolutamide - ARASEC Trial) in September 2022. MO has me scheduled for a consultation with RO for a planned debulking IMRT/IGRT to the prostrate and pelvis in Nov/Dec. My question for this group - is IMRT/IGRT the best option here
Heykm01
in
Advanced Prostate Cancer
2 years ago
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Need help finding studies
I’m trying to arm myself as we go to see my husband’s MO on 10/12, so hoping for a little help. I’ve tried to search this site, but I don’t really know what I’m looking for. I think I filled out the profile with my husband’s info, and I’m sorry if it is too much information. We have been tossed around
I’m trying to arm myself as we go to see my husband’s MO on 10/12, so hoping for a little help. I’ve tried to search this site, but I don’t really know what I’m looking for. I think I filled out the profile with my husband’s info, and I’m sorry if it is too much information. We have been tossed around
Tigger2022
in
Advanced Prostate Cancer
2 years ago
Blood in the urine
Two months ago I noticed blood in my Urine. It only happened once but then in September, it happened again so my Urologist performed a cystoscopy in his office and saw some irritation in the bladder that may have been a result of the IMRT I had last year. . He ordered a CT scan of my groin area that
Two months ago I noticed blood in my Urine. It only happened once but then in September, it happened again so my Urologist performed a cystoscopy in his office and saw some irritation in the bladder that may have been a result of the IMRT I had last year. . He ordered a CT scan of my groin area that
old64horn
in
Advanced Prostate Cancer
2 years ago
Confused. What is considered disease free for RT and or ADT at 6 months without removal of prostate
https://www.oncolink.org/oncolink-library/journal-scans/prostate-cancer/post-treatment-psa-0.2-ng-ml-defines-disease-freedom-after-radiotherapy-for-prostate-cancer-using-modern-techniques#:~:text=According%20to%20this%20study%2C%20the%20vast%20majority%20of,cure%20at%20a%20given%20interval%20after%20completing
https://www.oncolink.org/oncolink-library/journal-scans/prostate-cancer/post-treatment-psa-0.2-ng-ml-defines-disease-freedom-after-radiotherapy-for-prostate-cancer-using-modern-techniques#:~:text=According%20to%20this%20study%2C%20the%20vast%20majority%20of,cure%20at%20a%20given%20interval%20after%20completing
anony2020
in
Advanced Prostate Cancer
2 years ago
Androgel for bipolar androgen therapy
Androgel
(I use cernos) at 150 mg/day gets my testosterone up to 1598 ng/dl. Half-life is less than a day. So clears very fast compared to injectable esters (even propionate). I had to do a mass spectrometry test to get my actual T value.
Androgel
(I use cernos) at 150 mg/day gets my testosterone up to 1598 ng/dl. Half-life is less than a day. So clears very fast compared to injectable esters (even propionate). I had to do a mass spectrometry test to get my actual T value.
Hidden
in
Advanced Prostate Cancer
2 years ago
Recurrence after radiation.
I was diagnosed with prostate cancer and completed radiation treatment in 2017. Recently my PSA number has increased to 2.4 and my urologist scheduled a pylarify test. The results identified two lymph nodes and the left seminal vessel as areas of concern. An appointment with an oncologist was scheduled
I was diagnosed with prostate cancer and completed radiation treatment in 2017. Recently my PSA number has increased to 2.4 and my urologist scheduled a pylarify test. The results identified two lymph nodes and the left seminal vessel as areas of concern. An appointment with an oncologist was scheduled
Yacky
in
Prostate Cancer Network
2 years ago
What PSA # indicates bio chemical re-occurrence in Stage4 metastatic patients who still have prostate and did not have radiation or chemo?
In my case I went straight to adt. what PSA values indicate BCR in a man with metastatic disease who still has a prostate? I'm having a difficult time finding this information. My MO just says that they look for trends (dblng) but does an increase albeit in a normal range indicate BCR?
In my case I went straight to adt. what PSA values indicate BCR in a man with metastatic disease who still has a prostate? I'm having a difficult time finding this information. My MO just says that they look for trends (dblng) but does an increase albeit in a normal range indicate BCR?
No_stone_unturned
in
Advanced Prostate Cancer
2 years ago
Seeking Data ???
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
ragnar2020
in
Advanced Prostate Cancer
2 years ago
Seeking Data ????
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
I am trying to collect information from men in a specific category. That category is men who have had a radical prostatectomy (RP) and thereafter experienced biochemical recurrence (BCR) and used proton beam therapy (PBT) radiation as the treatment following that BCR. I’d like to know several things
ragnar2020
in
Prostate Cancer Network
2 years ago
I'm just tired
I'm tired of the hormone therapy which doesn't seem to work for me. I'm tired of the exhaustion and then having someone tell me to exercise more. I'm tired of stress incontinence. I'm tired of nausea and feeling like nothing matters. Im tired of not knowing where I'm going, but know where I'm going
I'm tired of the hormone therapy which doesn't seem to work for me. I'm tired of the exhaustion and then having someone tell me to exercise more. I'm tired of stress incontinence. I'm tired of nausea and feeling like nothing matters. Im tired of not knowing where I'm going, but know where I'm going
bglendi53
in
Advanced Prostate Cancer
2 years ago
Anyone on Nubeqa ? on triplicate therapy, Firmagon, Zytiga & Prednisone Started Docetaxel Chemotherapy no mention of Nubeqa DX 07/2022
currently doing docetaxel had second infusion on 09/13/22 suffers from plaque psoriasis Nubeqa has been shown to be an effective therapy August 5, 2022, the Food and Drug Administration approved darolutamide (Nubeqa, Bayer HealthCare Pharmaceuticals Inc.) tablets in combination with docetaxel
currently doing docetaxel had second infusion on 09/13/22 suffers from plaque psoriasis Nubeqa has been shown to be an effective therapy August 5, 2022, the Food and Drug Administration approved darolutamide (Nubeqa, Bayer HealthCare Pharmaceuticals Inc.) tablets in combination with docetaxel
Shorehousejam
in
Fight Prostate Cancer
2 years ago
Is Pluvicto worth pursuing?
Diagnosed April 2021, original PSA 19.59. Gleason Grade 4 + 4, oligometastatic with mets to ribs. Started ADT with Firmagon April, 2021, and Xtandi May, 2021. Didn't tolerate ADT well with extreme fatigue, weight loss, muscle loss, food tastes bad, chronic sinus inflammation. PSMA PET scan in March
Diagnosed April 2021, original PSA 19.59. Gleason Grade 4 + 4, oligometastatic with mets to ribs. Started ADT with Firmagon April, 2021, and Xtandi May, 2021. Didn't tolerate ADT well with extreme fatigue, weight loss, muscle loss, food tastes bad, chronic sinus inflammation. PSMA PET scan in March
Battle_on
in
Advanced Prostate Cancer
2 years ago
Ruminating on Extending ADT&Zytiga beyond 18 months
Please see my profile for details but I am T3bn1m0 with pni, SVI, BRCA2 positive with Intraductal histology. I am 15 months post HDR Brachytherapy with EBRT. PSA Continues to slowly decrease and currently is 0.06 last week. Last scans did not detect bone Mets or soft tissue Mets and suspected node no
Please see my profile for details but I am T3bn1m0 with pni, SVI, BRCA2 positive with Intraductal histology. I am 15 months post HDR Brachytherapy with EBRT. PSA Continues to slowly decrease and currently is 0.06 last week. Last scans did not detect bone Mets or soft tissue Mets and suspected node no
TylexGP
in
Advanced Prostate Cancer
2 years ago
Second phase with Zytiga....then what?
Well hello again my friends. As mentioned before, I had previous PC 2010, Proton RT in 2016. In May my PSA went to 2.0. Recurrence in two obturator lymph nodes. Im 64 years of age. Started Lupron in May, Zytiga this month. Met with some radiologists and they are ready to "go nuclear" on my lymph
Well hello again my friends. As mentioned before, I had previous PC 2010, Proton RT in 2016. In May my PSA went to 2.0. Recurrence in two obturator lymph nodes. Im 64 years of age. Started Lupron in May, Zytiga this month. Met with some radiologists and they are ready to "go nuclear" on my lymph
icanwintwice
in
Advanced Prostate Cancer
2 years ago
Change in orgasm feeling after PCa treatment?
Gents, Curious: are you able to orgasm after PCa treatment? If so, is the feeling different than pre-treatment? How is it different? I had IMRT, ADT, and brachyboost. Definitely different for me pre/post- treatment. Sensation is not as intense now. Location of pleasure seems to be more concentrated
Gents, Curious: are you able to orgasm after PCa treatment? If so, is the feeling different than pre-treatment? How is it different? I had IMRT, ADT, and brachyboost. Definitely different for me pre/post- treatment. Sensation is not as intense now. Location of pleasure seems to be more concentrated
EdinBmore
in
Prostate Cancer And Gay Men
2 years ago
Endo - struggling with hormonal contraception as a treatment
Hi, I’m really hoping someone can offer help/ experience of what to do when you cannot tolerate hormonal contraception as an endo treatment. I’ve had to give up on the idea of having any more children, we tried for a long time and nothing happened, even after I had endo treated in a laparoscopy. My
Hi, I’m really hoping someone can offer help/ experience of what to do when you cannot tolerate hormonal contraception as an endo treatment. I’ve had to give up on the idea of having any more children, we tried for a long time and nothing happened, even after I had endo treated in a laparoscopy. My
Sevennationarmy
in
Endometriosis UK
2 years ago
Will Medicare pay for ADT treatment?
I’m 62 and still working with good insurance. I recently started Lupron and Zytiga. I plan on retiring at 65. Will Medicare pick up the cost for that treatment? Thanks
I’m 62 and still working with good insurance. I recently started Lupron and Zytiga. I plan on retiring at 65. Will Medicare pick up the cost for that treatment? Thanks
OldGuysRule
in
Advanced Prostate Cancer
2 years ago
Relevant study comparing RP patients to men who choose watch and wait ? High quality studies?
It seems that most people would want to undergo a particular medical procedure only if there were proven benefits when compared to doing nothing and waiting for additional symptoms to appear before then moving ahead with medical treatments. With that in mind, while doing a search for something else PCa
It seems that most people would want to undergo a particular medical procedure only if there were proven benefits when compared to doing nothing and waiting for additional symptoms to appear before then moving ahead with medical treatments. With that in mind, while doing a search for something else PCa
maley2711
in
Prostate Cancer Network
2 years ago
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