Search
Search
About
Log in
Join
Experiences with
AndroGel
Posts
Communities
5,593 public posts
Filter results
Cabazitaxel Versus Docetaxel
Hi, I joined my father this week for his most recent appointment. He is 5 years post diagnosis and his PSA has started to rise after 2.5 years of stability on enzalutamide and before that 6 rounds of doxetaxel + ADT. His recent scans have showed some enlargement of pelvic lymph nodes which is most
Hi, I joined my father this week for his most recent appointment. He is 5 years post diagnosis and his PSA has started to rise after 2.5 years of stability on enzalutamide and before that 6 rounds of doxetaxel + ADT. His recent scans have showed some enlargement of pelvic lymph nodes which is most
fmoser
in
Advanced Prostate Cancer
2 years ago
2 yr since DX
Today is one of those dates a person remembers but really doesn't want to remember - it was 2 years ago today when my urologist's nurse called me to say "you have mets. I'm sorry". those two small sentences are burned into my memory, i can remember exactly where i was, what direction i was facing,
Today is one of those dates a person remembers but really doesn't want to remember - it was 2 years ago today when my urologist's nurse called me to say "you have mets. I'm sorry". those two small sentences are burned into my memory, i can remember exactly where i was, what direction i was facing,
Tonwantonga
in
Advanced Prostate Cancer
2 years ago
My Onco says he only looks at the PCa, bone health is not his department, I say he couldn't be more wrong.
I am now 54, dx Dec 2019 PSA 160 and up to 300 by March 2020. Extensive bone Mets. Started ADT with Zytiga and Prednisone, marvelous results. PSA down to 0.03 in 8 months, and has stayed very low since . Onco recons everything is going great, disease under control, no further action is needed, just
I am now 54, dx Dec 2019 PSA 160 and up to 300 by March 2020. Extensive bone Mets. Started ADT with Zytiga and Prednisone, marvelous results. PSA down to 0.03 in 8 months, and has stayed very low since . Onco recons everything is going great, disease under control, no further action is needed, just
CSHobie
in
Advanced Prostate Cancer
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Workouts and ADT
I typically swim, bike, run 3 days a week and lift 3 others. For example Saturday I ran 6.2 mile race and today I swam up and back 30 laps (our gym pool is not olympic sized). Lifting is where I need help, Specifically related to ADT. I have PSMA test coming in a couple weeks, then ADT/Radiation. I
I typically swim, bike, run 3 days a week and lift 3 others. For example Saturday I ran 6.2 mile race and today I swam up and back 30 laps (our gym pool is not olympic sized). Lifting is where I need help, Specifically related to ADT. I have PSMA test coming in a couple weeks, then ADT/Radiation. I
runtrails
in
Advanced Prostate Cancer
2 years ago
ADT Holiday Unexpected Consequences
After stopping Lupron and then, 5 months later abiraterone/dexamethasone, I began to experience what I believe to be arthritis joint pains. Not only in my hips (previously diagnosed with degenerative osteoarthritis) but other joints as well. I did a two week taper-off from the dex but I believe, and
After stopping Lupron and then, 5 months later abiraterone/dexamethasone, I began to experience what I believe to be arthritis joint pains. Not only in my hips (previously diagnosed with degenerative osteoarthritis) but other joints as well. I did a two week taper-off from the dex but I believe, and
6357axbz
in
Advanced Prostate Cancer
2 years ago
PSA is relatively low, but I am having bone pain in my pelvis and spine
So here is my background: Dx in May 2020 Stage 4 with widespread mets from skull to knees, Gleason 9. PSA in the 800s. Started out with Firmagon and 5 rounds of Taxotere. PSA went to 0.1. We switched from Firmagon to Orgovyx in August 2021. In January 2022 we added Nubeqa. PSA has held pretty steady
So here is my background: Dx in May 2020 Stage 4 with widespread mets from skull to knees, Gleason 9. PSA in the 800s. Started out with Firmagon and 5 rounds of Taxotere. PSA went to 0.1. We switched from Firmagon to Orgovyx in August 2021. In January 2022 we added Nubeqa. PSA has held pretty steady
Pianodude
in
Advanced Prostate Cancer
2 years ago
Current PCa treatment options in the UK do NOT include Triplet Therapy!
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Is ADT beneficial after castration resistance sets in?
If PSA is rising at the same doubling time (3 weeks) as it was without ADT (when I was Castration sensitive and did intermittent ADT breaks), then is it useful to keep taking ADT? If so, why? Is that because the ADT would be slowing some castration sensitive cancer, even though the castration resistant
If PSA is rising at the same doubling time (3 weeks) as it was without ADT (when I was Castration sensitive and did intermittent ADT breaks), then is it useful to keep taking ADT? If so, why? Is that because the ADT would be slowing some castration sensitive cancer, even though the castration resistant
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
OVM-200 clinical trial
Back from a great holiday now and had my 4th non detectable PSA result last Friday so 11th Degarelix injection followed plus Apalutamide pick up. Online consult today with MO so have asked his thoughts on this vaccine trial. He clearly wasn’t aware of it though knew the lead guy ( saying he doesn’t
Back from a great holiday now and had my 4th non detectable PSA result last Friday so 11th Degarelix injection followed plus Apalutamide pick up. Online consult today with MO so have asked his thoughts on this vaccine trial. He clearly wasn’t aware of it though knew the lead guy ( saying he doesn’t
Brysonal
in
Fight Prostate Cancer
2 years ago
Legal action against all this medical negligence... How to go about it?
Has anyone ever tried to take legal action against medical negligence?? I was never mentioned the possibility that my ovarian cyst and fibroid might have been endometriosis. Was never diagnosed with it despite my many years of suffering with PMS and heavy bleeding etc. I was totally against surgery
Has anyone ever tried to take legal action against medical negligence?? I was never mentioned the possibility that my ovarian cyst and fibroid might have been endometriosis. Was never diagnosed with it despite my many years of suffering with PMS and heavy bleeding etc. I was totally against surgery
CofG
in
Endometriosis UK
2 years ago
PSMA PET agents
Hi all- I'm a yearand 1/4 out from RARP for intermediate grade PCA with 'low risk' genomics on the[u] [/u]tumor After 9 months of 'undetectable PSA', I've now started to rise and am at .09 now. So looking at PSMA PET down the road. There are 2 agents in common use- Gd68 and 'Pylarify' F18. Sounds
Hi all- I'm a yearand 1/4 out from RARP for intermediate grade PCA with 'low risk' genomics on the[u] [/u]tumor After 9 months of 'undetectable PSA', I've now started to rise and am at .09 now. So looking at PSMA PET down the road. There are 2 agents in common use- Gd68 and 'Pylarify' F18. Sounds
Thomkin
in
Prostate Cancer And Gay Men
2 years ago
XGEVA
I was receiving Xgeva every 4 weeks for 2 years, and suddenly my Oncologist cut it back to every 3 months......can anyone explain why? Does it even do any good to have that much time between injections? I thought it had a 28 day half-life Help!! Also my care team no longer accepts my insurance and I'll
I was receiving Xgeva every 4 weeks for 2 years, and suddenly my Oncologist cut it back to every 3 months......can anyone explain why? Does it even do any good to have that much time between injections? I thought it had a 28 day half-life Help!! Also my care team no longer accepts my insurance and I'll
Hidden
in
Advanced Prostate Cancer
2 years ago
Xtandi Superior to Zytiga? Maybe Yes? Xtandi prevents resistance to Testosterone because it upregulates the AR while inhibiting its activity
[i]"Xtandi (but not Zytiga or other advanced antiandrogens) prevents acquired resistance to T because it upregulates the AR while it inhibits its activity." Tall_Allen[/i] [i]https://healthunlocked.com/advanced-prostate-cancer/posts/148603819/why-does-bat-work-in-so-few[/i] Does this mean you should
[i]"Xtandi (but not Zytiga or other advanced antiandrogens) prevents acquired resistance to T because it upregulates the AR while it inhibits its activity." Tall_Allen[/i] [i]https://healthunlocked.com/advanced-prostate-cancer/posts/148603819/why-does-bat-work-in-so-few[/i] Does this mean you should
cesanon
in
Advanced Prostate Cancer
2 years ago
Docetaxel, Chemotherapy
Hi, Have you tried Docetaxel before the Zytiga? My dad did the Docetaxel (6 rounds) before the Zytiga and it killed a TON of the cancer. He was only on ADT for 2.5 years after the chemotherapy. Wishing you the very best, Karyn
Hi, Have you tried Docetaxel before the Zytiga? My dad did the Docetaxel (6 rounds) before the Zytiga and it killed a TON of the cancer. He was only on ADT for 2.5 years after the chemotherapy. Wishing you the very best, Karyn
Kcski
in
Advanced Prostate Cancer
2 years ago
12 months hormone therapy done.
I have just completed 12 month ADT and have my annual meeting with Consultant on Monday. Had RP 2 years ago with recurrence 12 months ago in one lymph node. Origonal plan was radio therapy and 12 to 18 months of ADT. Following previous advice on here it seems 2 years ADT offers best outcome. I have
I have just completed 12 month ADT and have my annual meeting with Consultant on Monday. Had RP 2 years ago with recurrence 12 months ago in one lymph node. Origonal plan was radio therapy and 12 to 18 months of ADT. Following previous advice on here it seems 2 years ADT offers best outcome. I have
Runner1957
in
Prostate Cancer Network
2 years ago
What can I expect from chemo?
I will be starting Docetaxel (Taxotere) near the end of the month. PC has become castrate resistant and oncologist says I should not wait for a trial of LU 177 that does not require prior chemo since it is unsure when it will start and has had a few delays already. So I am wondering what to expect
I will be starting Docetaxel (Taxotere) near the end of the month. PC has become castrate resistant and oncologist says I should not wait for a trial of LU 177 that does not require prior chemo since it is unsure when it will start and has had a few delays already. So I am wondering what to expect
spencoid2
in
Advanced Prostate Cancer
2 years ago
Poem (sort of)
( I’m not so good at Rhyming) But my PSA is climbing , HealthUnlocked and MaleCare Make a new post – Do I Dare? R.A.L.P. - I got 5 cuts Now ADT, “gyneco..” what? Denied insurance now more debts Lupron with some Casodex ., Lost my T, got hot flashes Radiation gave me rashes, P.S.M.A. another
( I’m not so good at Rhyming) But my PSA is climbing , HealthUnlocked and MaleCare Make a new post – Do I Dare? R.A.L.P. - I got 5 cuts Now ADT, “gyneco..” what? Denied insurance now more debts Lupron with some Casodex ., Lost my T, got hot flashes Radiation gave me rashes, P.S.M.A. another
runtrails
in
Advanced Prostate Cancer
2 years ago
Did not get baseline testosterone level at start of my Eligard shots.
Just diagnosed in May, 2022 with potentially very aggressive PCa. Dechipher very high, 0.88. Uptake on PSMA PET heterogeneous.MO waiting until Nov. for CT and bone scan to confirm mets to pubic bone. Started ADT (3 mo. Eligard shot) on August 11, also I was sent to lab for PSA test and baseline testosterone
Just diagnosed in May, 2022 with potentially very aggressive PCa. Dechipher very high, 0.88. Uptake on PSMA PET heterogeneous.MO waiting until Nov. for CT and bone scan to confirm mets to pubic bone. Started ADT (3 mo. Eligard shot) on August 11, also I was sent to lab for PSA test and baseline testosterone
Danskor
in
Advanced Prostate Cancer
2 years ago
Should I seek radiation treatment to my spine will undergoing ADT. There is pain.
I started Lupron about a month ago and will start Zytiga next week so maybe I’m just being impatient but, man I’m having very real dull pain in my T2 vertebrae where the cancer lit up. The Radiologist wants to zap it but there is disagreement among the ranks that say in time the cancer on the spine will
I started Lupron about a month ago and will start Zytiga next week so maybe I’m just being impatient but, man I’m having very real dull pain in my T2 vertebrae where the cancer lit up. The Radiologist wants to zap it but there is disagreement among the ranks that say in time the cancer on the spine will
OldGuysRule
in
Advanced Prostate Cancer
2 years ago
Localized High Risk Pca (G9 4+5) questions
Greetings, Current Status: 66 yo, Gleason 9 (4+5) Latest update: I got the results from my PSMA Pet Scan yesterday, and it was ALL CLEAR! No evidence of metastatic disease. Very relieved to see this finding but also realize we are nowhere near done, but now we have the data to take action. I'm trying
Greetings, Current Status: 66 yo, Gleason 9 (4+5) Latest update: I got the results from my PSMA Pet Scan yesterday, and it was ALL CLEAR! No evidence of metastatic disease. Very relieved to see this finding but also realize we are nowhere near done, but now we have the data to take action. I'm trying
SierraSix
in
Prostate Cancer Network
2 years ago
1
...
75
76
77
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4013 results
Prostate Cancer Network
431 results
Endometriosis UK
325 results
View top 10 communities
Sort by
Most Relevant
Newest