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Prostatectomy 2012, Oligometastatic 2021. Metabolic approach ,no ADT, no chemo. Interested in Lutetium 177, Dr. Kwon Mayo patient
Born in 1947. As a1969 college graduation present, complements of a low draft number, I served a tour in Vietnam, on river patrol duty. I was surrounded by defoliated trees due to the use of Agent Orange and I imagine I drank a lot of AO contaminated water. Fast forward to 2012 to discover I had
Born in 1947. As a1969 college graduation present, complements of a low draft number, I served a tour in Vietnam, on river patrol duty. I was surrounded by defoliated trees due to the use of Agent Orange and I imagine I drank a lot of AO contaminated water. Fast forward to 2012 to discover I had
roman44
in
Advanced Prostate Cancer
11 months ago
PSA reading
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
Formosan
in
Advanced Prostate Cancer
11 months ago
18 vs 24 mos ADT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
Oceankayaker
in
Advanced Prostate Cancer
11 months ago
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Prednisone side effects
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
jmarsh
in
Advanced Prostate Cancer
11 months ago
Can cancer grow while PSA stays undetectable ?
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
mynacho
in
Advanced Prostate Cancer
11 months ago
Inspiration
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
Gym-rat
in
Advanced Prostate Cancer
11 months ago
Xgeva side effects?????
I started ADT a little over a year ago. I'm on Trelstar and my PSA is < 0.04. In March of this year I started taking Erleada. The side effects from both drugs have been minimal, some hot flashes and fatigue. Two months ago my doctor started me on Xgeva. The first dose I felt no ill effects, but
I started ADT a little over a year ago. I'm on Trelstar and my PSA is < 0.04. In March of this year I started taking Erleada. The side effects from both drugs have been minimal, some hot flashes and fatigue. Two months ago my doctor started me on Xgeva. The first dose I felt no ill effects, but
MydogisTed
in
Advanced Prostate Cancer
11 months ago
SBRT to Prostate and Lymph node ?
Hi All, My Father was diagnosed as stage 4 PCa with widespread bone mets in Nov 2021. Since then he has been on ADT + Enza + Denosumab regimen (details on my profile) His PSA had increased slightly in the last few readings but he has largely been asymptomatic 12/22 - 0.81 03/23 - 0.83 06/23 -
Hi All, My Father was diagnosed as stage 4 PCa with widespread bone mets in Nov 2021. Since then he has been on ADT + Enza + Denosumab regimen (details on my profile) His PSA had increased slightly in the last few readings but he has largely been asymptomatic 12/22 - 0.81 03/23 - 0.83 06/23 -
dudubaya
in
Advanced Prostate Cancer
11 months ago
Metastatic PC
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
saniku
in
Advanced Prostate Cancer
11 months ago
Weight LOSS on ADT
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
LessPaul
in
Advanced Prostate Cancer
11 months ago
Goserelin - side effects profile variability between implants
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
SimMartin
in
Advanced Prostate Cancer
11 months ago
ADT Prostaplan
I have been on this with an implant every 3 months, What is the usa equivalent? I have never seen this mentioned in any discussions and need to know more from anyone on the same treatment. pros and cons
I have been on this with an implant every 3 months, What is the usa equivalent? I have never seen this mentioned in any discussions and need to know more from anyone on the same treatment. pros and cons
Stevegr
in
Advanced Prostate Cancer
11 months ago
Darolutimide as monotherapy
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
RugbyVLS
in
Advanced Prostate Cancer
11 months ago
On vacation!
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
SpencerBoy11
in
Advanced Prostate Cancer
11 months ago
bone strength
Here’s a good detailed explanation of how exercise works to strengthen bones. I’ve always concentrated on muscle building and muscle strength and endurance, but an important part is the bone strengthening that also occurs. Even more important now that I’m on ADT. https://youtu.be/1gToyjm4NNA
Here’s a good detailed explanation of how exercise works to strengthen bones. I’ve always concentrated on muscle building and muscle strength and endurance, but an important part is the bone strengthening that also occurs. Even more important now that I’m on ADT. https://youtu.be/1gToyjm4NNA
Gym-rat
in
Advanced Prostate Cancer
11 months ago
Are PSMA negative mets usually castrate resistant?
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
V10fanatic
in
Advanced Prostate Cancer
11 months ago
3 years Post-VRMAT-RT & ADT
After 3 years my PSA went from
20.3 μg/L
down to <
0.01 μg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
🙈🙉🙊. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
After 3 years my PSA went from
20.3 μg/L
down to <
0.01 μg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
🙈🙉🙊. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
doc1947g
in
Advanced Prostate Cancer
11 months ago
Hello everyone...
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
PC-In-NC
in
Prostate Cancer Network
11 months ago
3 years Post-VRMAT-RT & ADT
After 3 years my PSA went from
20.3 μg/L
down to
0.02 μg/L
and Testosterone from
438.04ng/dL
down to
60.57 ng/dL
🙈🙉🙊. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently I fell and broke
After 3 years my PSA went from
20.3 μg/L
down to
0.02 μg/L
and Testosterone from
438.04ng/dL
down to
60.57 ng/dL
🙈🙉🙊. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently I fell and broke
doc1947g
in
Prostate Cancer Network
11 months ago
mCRPC. Total PSA is up from 1.2 to 2.1 in 2 months, but free PSA went to 14% from 5%. Can this be hyperplasia, or in ADT any PSA up is PCa?
mCRPC. Total PSA is up from 1.2 to 2.1 in 2 months, but free PSA went to 14% from 5%. Can this be hyperplasia, or in ADT any PSA up is PCa regardless of free to total PSA ratio ?
mCRPC. Total PSA is up from 1.2 to 2.1 in 2 months, but free PSA went to 14% from 5%. Can this be hyperplasia, or in ADT any PSA up is PCa regardless of free to total PSA ratio ?
Manilo
in
Advanced Prostate Cancer
11 months ago
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