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Moving on to Provenge/Sipuleucel-t
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
Lavender22
in
Advanced Prostate Cancer
2 months ago
Dry scalp
I have recently noticed increasingly dry scalp. Can anyone recommend any shampoo/ conditioner to help? No expense (at this scale) spared. I have very fine hair, and dont want this to have further effects. I've looked at all the commercially available ones, dont have any way to judge which work and are
I have recently noticed increasingly dry scalp. Can anyone recommend any shampoo/ conditioner to help? No expense (at this scale) spared. I have very fine hair, and dont want this to have further effects. I've looked at all the commercially available ones, dont have any way to judge which work and are
cathie
in
NRAS
7 months ago
Rising T Bili on Xeloda
Hi ladies!! my mom has been on xeloda and her T bili continues to go up last few weeks. Her last scans showed shrinking lesions on liver. Her Tumor Markers went up 28 points this month. Her scan is bumped up to next week . She s checking for blockage that would require a stent in the liver I guess
Hi ladies!! my mom has been on xeloda and her T bili continues to go up last few weeks. Her last scans showed shrinking lesions on liver. Her Tumor Markers went up 28 points this month. Her scan is bumped up to next week . She s checking for blockage that would require a stent in the liver I guess
Flower1513
in
SHARE Metastatic Breast Cancer
2 months ago
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Need help with cancer pain
Hello my fellow thrivers, May I consult with you all for advice on how to manage cancer pain please? My cancer recently progressed again and the pain is getting worse and more intense. I am currently taking oxycodone 5mg IR every 5-6 hours but it greatly upsets my stomach and the constipation is killing
Hello my fellow thrivers, May I consult with you all for advice on how to manage cancer pain please? My cancer recently progressed again and the pain is getting worse and more intense. I am currently taking oxycodone 5mg IR every 5-6 hours but it greatly upsets my stomach and the constipation is killing
hopeoflife
in
SHARE Metastatic Breast Cancer
2 months ago
What's on at Ovacome next week? (week commencing Monday 22 April 2024)
Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 23 April - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Our stories
Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 23 April - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Our stories
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
What are my options?
My bio is not necessarily up to date. I will update it but her is my most recent history and questions: I was getting Pluvicto treatments. Was supposed to get 6 but foe some reason that is not entirely clear at this point it was decided (i have three oncologist and do not know which one or combination
My bio is not necessarily up to date. I will update it but her is my most recent history and questions: I was getting Pluvicto treatments. Was supposed to get 6 but foe some reason that is not entirely clear at this point it was decided (i have three oncologist and do not know which one or combination
spencoid2
in
Advanced Prostate Cancer
2 months ago
New to IBS struggling to find a pattern
Hi All,I have recently joined this community after I have spent the last 10 days in pain and after my doctor suggested that it could be IBS and as far as I can tell I tick all the boxes for IBS-C. I have gone to the hospital where all checks were negative but haven't done a colonoscopy because they said
Hi All,I have recently joined this community after I have spent the last 10 days in pain and after my doctor suggested that it could be IBS and as far as I can tell I tick all the boxes for IBS-C. I have gone to the hospital where all checks were negative but haven't done a colonoscopy because they said
Liquido
in
IBS Network
11 months ago
Easyhaler vs salamol
Ive been on easyhaler for years but when I picked up my last prescription they gave me salamol.I don't feel as though it's helped as I've been a bit short of breath the past few days.Also I got changed from foxtail to luforbec a few months ago.I feel as though my asthma is flaring up at the moment.Anybody
Ive been on easyhaler for years but when I picked up my last prescription they gave me salamol.I don't feel as though it's helped as I've been a bit short of breath the past few days.Also I got changed from foxtail to luforbec a few months ago.I feel as though my asthma is flaring up at the moment.Anybody
Asthma1973
in
Asthma Community Forum
7 months ago
colonoscopy and endoscopy concerns
I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonoscopy was 8 years ago and the two colonoscopies before that found nothing but hemorrhoids ( all colonoscopies were pre CLL diagnosis in Oct of 2017). I have never had an endoscopy but I do have a cough that seems to start after
I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonoscopy was 8 years ago and the two colonoscopies before that found nothing but hemorrhoids ( all colonoscopies were pre CLL diagnosis in Oct of 2017). I have never had an endoscopy but I do have a cough that seems to start after
Claybuster
in
CLL Support
2 months ago
In vivo & in vitro: CRISPR 9 new approach to attack PCa proof of concept
The idea is to use the CRISPR technology to tweak prostate cancer cells so that they build up a specific type of compound (called porphyrins) that is usually harmless unless exposed to certain types of light. In people with a condition called porphyria, these porphyrins naturally build up because of
The idea is to use the CRISPR technology to tweak prostate cancer cells so that they build up a specific type of compound (called porphyrins) that is usually harmless unless exposed to certain types of light. In people with a condition called porphyria, these porphyrins naturally build up because of
Maxone73
in
Advanced Prostate Cancer
2 months ago
gallstones?
I am 68 year old lady. Lots of digestive issues over the years, including perforated bowel from diverticulitis5 years ago . I am currently experiencing a pain on my bra line, right hand side, , almost feel like this area swells up , tender to touch, , bloating, upset tummy , and nausea. My doc thinks
I am 68 year old lady. Lots of digestive issues over the years, including perforated bowel from diverticulitis5 years ago . I am currently experiencing a pain on my bra line, right hand side, , almost feel like this area swells up , tender to touch, , bloating, upset tummy , and nausea. My doc thinks
Gardeningbuff
in
British Liver Trust
7 months ago
Taking Meds in the AM vs PM
Hi I’m newly on Kisqali and Letrozole and I am wondering if anyone has feedback about whether it seems better to take these during the day or at night before bed. I’ve heard that some people prefer a nighttime dosage to sleep through any nausea or fatigue Interested in any and all experiences Thanks
Hi I’m newly on Kisqali and Letrozole and I am wondering if anyone has feedback about whether it seems better to take these during the day or at night before bed. I’ve heard that some people prefer a nighttime dosage to sleep through any nausea or fatigue Interested in any and all experiences Thanks
CatLoverinthe206
in
SHARE Metastatic Breast Cancer
2 months ago
Anyone participated in AMG 509 Clinical trial? - NCT04221542
Hello Please update us if you are participate in AMG 509. Anything you know about AMG 509 ? Study of AMG 509 in Participants With Metastatic Castration-Resistant Prostate Cancer
Hello Please update us if you are participate in AMG 509. Anything you know about AMG 509 ? Study of AMG 509 in Participants With Metastatic Castration-Resistant Prostate Cancer
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
Anybody experience post treatment bowel issues after being ok prior ?
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Yokohama2023
in
Prostate Cancer Network
2 months ago
9 year old is so fed up
Hi. My 9 year old is so fed up. He has been diagnosed with CC and has had problems with soiling for years. Gp has been involved and i managed to get him to poop twice a day and no soiling for 6 weeks. Doing very gentle clean out with senna and docusate fir 3 days. Nothing watery. He was great fir 6
Hi. My 9 year old is so fed up. He has been diagnosed with CC and has had problems with soiling for years. Gp has been involved and i managed to get him to poop twice a day and no soiling for 6 weeks. Doing very gentle clean out with senna and docusate fir 3 days. Nothing watery. He was great fir 6
Mumanddad1
in
ERIC
11 months ago
9 years - first detectable .012
Hi everyone, I’ve always been <.008. This time same lab I am .012. RP 2015, Gleason 7, not sure which primary number, no surgical margins, cancer in 2 quadrants, no lymph node invasion. I always go to the same lab here in Canada, LifeLabs. Have Uro appointment on Thursday. Any thoughts on what I might
Hi everyone, I’ve always been <.008. This time same lab I am .012. RP 2015, Gleason 7, not sure which primary number, no surgical margins, cancer in 2 quadrants, no lymph node invasion. I always go to the same lab here in Canada, LifeLabs. Have Uro appointment on Thursday. Any thoughts on what I might
Philosophy165
in
Advanced Prostate Cancer
2 months ago
Elizabeth
Are there any support (face to face) in Glasgow? And do members find it difficult to lose weight after a thyroidectomy? Mine was removed 6 years ago dye to cancer. Regards
Are there any support (face to face) in Glasgow? And do members find it difficult to lose weight after a thyroidectomy? Mine was removed 6 years ago dye to cancer. Regards
Etblue
in
Thyroid UK
2 months ago
Losing so much weight
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
LaRue44
in
Advanced Prostate Cancer
2 months ago
What happens when CT scan and ultrasound can't verify if it's an ovarian mass or not?
I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to verify. Turns out it was diverticulitis, but on the CT scan they noticed a a complex cyst on my left ovary, however they couldn't be sure if
I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to verify. Turns out it was diverticulitis, but on the CT scan they noticed a a complex cyst on my left ovary, however they couldn't be sure if
starrynight5626
in
My Ovacome
2 months ago
It wont be long
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
Hi All I have seen my Consultant today and she said it is time to start thinking about treatment. Not what I wanted to hear but after 14 years W&W I guessed it would come one day. She will arrange a CT Scan to check on Tumour burden (I think thats right) then just waiting on this. TP53 - deletion
TheFlyer
in
CLL Support
2 months ago
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