Search
Search
About
Log in
Join
Experiences with
Anaemia
Posts
Communities
9,870 public posts
Filter results
Finger prick blood test - gentle squeeze finger top before stabbing - gamechanger for me?
[u]
Stop press
[/u] - risk
Anaemia
test may fail - [u]
MMH said I should not have done it
[/u] as may cause Haemolysis is where the red blood cells in the collection tube start to break down and release their contents.
[u]
Stop press
[/u] - risk
Anaemia
test may fail - [u]
MMH said I should not have done it
[/u] as may cause Haemolysis is where the red blood cells in the collection tube start to break down and release their contents.
Sleepman
in
Thyroid UK
2 months ago
Acalabrutinib to treat CLL & AIHA
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic
Anaemia
, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb.
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic
Anaemia
, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb.
Wen_dy
in
CLL Support
4 months ago
Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Haematologists consultant
, my dr didn’t even tell me it was pernicious
anaemia
just that I had autoimmune issues after testing positive for parietal cell antibody , intrinsic factor was ok apparently, it was the gastroenterologist who confirmed I had pernicious
anaemia
6 months after the test !
, my dr didn’t even tell me it was pernicious
anaemia
just that I had autoimmune issues after testing positive for parietal cell antibody , intrinsic factor was ok apparently, it was the gastroenterologist who confirmed I had pernicious
anaemia
6 months after the test !
Windyway
in
Pernicious Anaemia Society
27 days ago
Iron deficiency
In the meantime I'd started taking ferrous bisglycinate anyway, off my own back, both to help with
anaemia
and RLS. So the GP gave me a prescription for ferrous Fumarate (1 x 210mg once daily) and said to review in 4 months.
In the meantime I'd started taking ferrous bisglycinate anyway, off my own back, both to help with
anaemia
and RLS. So the GP gave me a prescription for ferrous Fumarate (1 x 210mg once daily) and said to review in 4 months.
50568789
in
Restless Legs Syndrome
2 months ago
Haematologist’s unsupportive B12 response
My own research brings up haemolytic
anaemia
, another autoimmune disease where the immune system attacks red blood cells. Thank you all in advance 🙏☺️
My own research brings up haemolytic
anaemia
, another autoimmune disease where the immune system attacks red blood cells. Thank you all in advance 🙏☺️
GoneWithTheWind1972
in
Pernicious Anaemia Society
2 days ago
advice needed please re iron and thyroxine
I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have
Anaemia
and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid?
I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have
Anaemia
and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid?
Poppyqueen
in
Thyroid UK
2 months ago
frustrating!!
I have advised my son not to take any meds until we get the pernicious
anaemia
results back. Should we also ask to see another Gp and throw the nice guidelines at them? Thankyou
I have advised my son not to take any meds until we get the pernicious
anaemia
results back. Should we also ask to see another Gp and throw the nice guidelines at them? Thankyou
Blister4
in
Pernicious Anaemia Society
7 months ago
feeling depressed and disheartened
So I'm having my 2 weeks loading injections (6 injections) for pernicious
anaemia
at the GP I had no relief of symptoms until yesterday my 4th injection I had it at 4pm and by 8 that night I was absolutely wired all my symptoms went off for the first time in 3 years ( I have multiple spinal lesions
So I'm having my 2 weeks loading injections (6 injections) for pernicious
anaemia
at the GP I had no relief of symptoms until yesterday my 4th injection I had it at 4pm and by 8 that night I was absolutely wired all my symptoms went off for the first time in 3 years ( I have multiple spinal lesions
mully
in
Pernicious Anaemia Society
1 month ago
Iron Panel Results
Medichecks said "Often, at the beginning of iron deficiency
anaemia
, your ferritin levels may be low but your iron levels are normal; this is because in early
anaemia
, your body will deplete the iron stores first, whilst iron levels will still be sufficient" - so I'm guessing maybe this is what's happening
Medichecks said "Often, at the beginning of iron deficiency
anaemia
, your ferritin levels may be low but your iron levels are normal; this is because in early
anaemia
, your body will deplete the iron stores first, whilst iron levels will still be sufficient" - so I'm guessing maybe this is what's happening
katyy94x
in
Thyroid UK
19 days ago
GP visit!
When I mentioned pernicious
anaemia
, she said ‘oh you would be anaemic’ if you had that! One thing I managed to get was a blood test for intrinsic factor antibody. Will probably come back negative so she will put ‘within range, no action required’. Again.
When I mentioned pernicious
anaemia
, she said ‘oh you would be anaemic’ if you had that! One thing I managed to get was a blood test for intrinsic factor antibody. Will probably come back negative so she will put ‘within range, no action required’. Again.
Chickens44
in
Pernicious Anaemia Society
18 days ago
At What Level Is Low B12 Treated?
Full blood count and ferritin fine, I had iron deficiency
anaemia
and have been successful treated for that and all those levels looking good. My question is, at what level should low B12 be treated?
Full blood count and ferritin fine, I had iron deficiency
anaemia
and have been successful treated for that and all those levels looking good. My question is, at what level should low B12 be treated?
Hidden
in
Pernicious Anaemia Society
3 months ago
Anaemia anyone?
So the latest is diagnosed with
anaemia
. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
So the latest is diagnosed with
anaemia
. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
gillsky8
in
PMRGCAuk
8 months ago
No improvement to tiredness after B12 injections
I have been having B12 injections since being diagnosed with pernicious
anaemia
18 years ago.
I have been having B12 injections since being diagnosed with pernicious
anaemia
18 years ago.
Suesue246
in
Pernicious Anaemia Society
7 months ago
High B12 - more tests needed?
My SO has several
anaemia
symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range.
My SO has several
anaemia
symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range.
AnotherEarlyRiser
in
Pernicious Anaemia Society
6 months ago
World Mental Health Day
One of the most notable deaths that has occurred most probably as a consequence of Pernicious
Anaemia
was Mary Todd Lincoln. However, symptoms of Pernicious
Anaemia
/B12D can mimick ‘[i]schizophrenia[/i]’ or ‘[i]bipolar[/i]’ formerly known as ‘[i]manic depression.’
One of the most notable deaths that has occurred most probably as a consequence of Pernicious
Anaemia
was Mary Todd Lincoln. However, symptoms of Pernicious
Anaemia
/B12D can mimick ‘[i]schizophrenia[/i]’ or ‘[i]bipolar[/i]’ formerly known as ‘[i]manic depression.’
Narwhal10
in
Pernicious Anaemia Society
7 months ago
Blood test iron results
Recent blood test looking at iron levels / potential
anaemia
. Iron level, serum 9.0 umol/L, transferrin level, blood 2.88 g/L, transferrin saturation 14%, ferritin level, serum 12 ug/L ( Mar 2021 54 ug/L). Not had a clear assessment yet, anybody able to give an interpretation?
Recent blood test looking at iron levels / potential
anaemia
. Iron level, serum 9.0 umol/L, transferrin level, blood 2.88 g/L, transferrin saturation 14%, ferritin level, serum 12 ug/L ( Mar 2021 54 ug/L). Not had a clear assessment yet, anybody able to give an interpretation?
50568789
in
Restless Legs Syndrome
5 months ago
B12 Deficiency or Underactive Thyroid at Play?
On labs test online it states it could be
anaemia
or as a result of underactive thyroid. See here https://labtestsonline.org.uk/tests/full-blood-count-fbc at least I think MCV is the same as the above result. Grateful for any thoughts. I’m curious.
On labs test online it states it could be
anaemia
or as a result of underactive thyroid. See here https://labtestsonline.org.uk/tests/full-blood-count-fbc at least I think MCV is the same as the above result. Grateful for any thoughts. I’m curious.
HealthStarDust
in
Thyroid UK
6 months ago
Membership of the Pernicious Anaemia Society
We are an established charity representing more than 8,000 patients who have Pernicious
Anaemia
or malabsorption of vitamin B12. The more members we have the bigger our voice will be in getting the way in which Pernicious
Anaemia
is diagnosed and treated thoroughly reviewed.
We are an established charity representing more than 8,000 patients who have Pernicious
Anaemia
or malabsorption of vitamin B12. The more members we have the bigger our voice will be in getting the way in which Pernicious
Anaemia
is diagnosed and treated thoroughly reviewed.
PAScomms
in
Pernicious Anaemia Society
6 months ago
Iron deficiency anaemia
As my thyroid levels have been checked I’m wondering if I have iron deficiency
anaemia
…seeing GP next week but would like some idea of what blood tests to ask for please?
As my thyroid levels have been checked I’m wondering if I have iron deficiency
anaemia
…seeing GP next week but would like some idea of what blood tests to ask for please?
davina70
in
Pernicious Anaemia Society
9 months ago
1
2
3
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
4203 results
Thyroid UK
3066 results
Restless Legs Syndrome
348 results
View top 10 communities
Sort by
Most Relevant
Newest