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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Dr Brownstein's New Article re the dangers of Statins
Statin Use and Amyotrophic Lateral Sclerosis—
ALS
I found it disturbing to read this new article but we've seen quite a number of members given statins for their higher cholesterol levels (which should reduce as levo is increased).
Statin Use and Amyotrophic Lateral Sclerosis—
ALS
I found it disturbing to read this new article but we've seen quite a number of members given statins for their higher cholesterol levels (which should reduce as levo is increased).
shaws
Administrator
in
Thyroid UK
6 years ago
Just beginning the confirmation and staging of my PBC diagnosis.
Hi All, I see from this site that I stumbled upon that I am not alone. My Alk Phos was rising each time I visited my Endo ( IDDM), so he referred me to G.I. in Manhattan. I was told that the IDDM was probably an autoimmune response. This PBC most likely the same. Lucky me! Another challenge. Tomorrow
Hi All, I see from this site that I stumbled upon that I am not alone. My Alk Phos was rising each time I visited my Endo ( IDDM), so he referred me to G.I. in Manhattan. I was told that the IDDM was probably an autoimmune response. This PBC most likely the same. Lucky me! Another challenge. Tomorrow
FranSP
in
PBC Foundation
6 years ago
Aggressive metastic Very high alk phos
Hi I am new here. Diagnosed March 2018. Bone mets in skull, jaw, arms, spine, ribs, pelvic, hips. Too many to count. No Gleason score just says treat as high grade. Alk phos level 4038. 58% from bones 42% from liver. Has anyone had alk phos this high? Firmagon 03-26 and Lupron 04-09-2018.
Hi I am new here. Diagnosed March 2018. Bone mets in skull, jaw, arms, spine, ribs, pelvic, hips. Too many to count. No Gleason score just says treat as high grade. Alk phos level 4038. 58% from bones 42% from liver. Has anyone had alk phos this high? Firmagon 03-26 and Lupron 04-09-2018.
Br1950
in
Advanced Prostate Cancer
6 years ago
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New to this..MSA versus ALS
Does MSA and
ALS
have the same symptoms?
Does MSA and
ALS
have the same symptoms?
Schoolpatrollady
in
Multiple System Atrophy Trust
7 years ago
All about ALS: The disease that Stephen Hawking defied for decades
All about
ALS
: The disease that Stephen Hawking defied for decades https://economictimes.indiatimes.com/magazines/panache/all-about-
als
-the-disease-that-stephen-hawking-defied-for-decades/articleshow/63298089.cms?
All about
ALS
: The disease that Stephen Hawking defied for decades https://economictimes.indiatimes.com/magazines/panache/all-about-
als
-the-disease-that-stephen-hawking-defied-for-decades/articleshow/63298089.cms?
rvmasalvad
Star
in
Diabetes India
7 years ago
Stomach flu symptoms.
That's because my fear of
ALS
started on Sunday, and went on till Thursday. It was like a living hell. I ate practically nothing, and when I could get something in my mouth, I'd feel like throwing up.
That's because my fear of
ALS
started on Sunday, and went on till Thursday. It was like a living hell. I ate practically nothing, and when I could get something in my mouth, I'd feel like throwing up.
HelloPanda23
in
Anxiety Support
6 years ago
New to the group
I am
als
on oxygen. Has anyone else been on oxygen and managed to either get off of it or lower the amount needed as the cancer shrinks?
I am
als
on oxygen. Has anyone else been on oxygen and managed to either get off of it or lower the amount needed as the cancer shrinks?
Pattie1951
in
SHARE Metastatic Breast Cancer
7 years ago
After ventilation
I am back home now but emotionally I am all over the place with my temper, the smallest thing annoys me and
als
, how I feel and this is not what I am like normally. I have read your emotions go walkabout for a while after you have been on a ventilator. Can anyone advise on this please
I am back home now but emotionally I am all over the place with my temper, the smallest thing annoys me and
als
, how I feel and this is not what I am like normally. I have read your emotions go walkabout for a while after you have been on a ventilator. Can anyone advise on this please
Gsh100
in
Asthma Community Forum
7 years ago
Biotin-B7- may be helpful for Parkinsons
, and some of the symptoms they report improvement of are a lot like Parkinsons so it might be helpful for that also. in a patent on
ALS
, and MS they use up to 700mg a day To treat biotin genetic diseases they use up to 1,000mg a day but usually between 5, and 300mg.
, and some of the symptoms they report improvement of are a lot like Parkinsons so it might be helpful for that also. in a patent on
ALS
, and MS they use up to 700mg a day To treat biotin genetic diseases they use up to 1,000mg a day but usually between 5, and 300mg.
John112233
in
Cure Parkinson's
7 years ago
Novel Non-Bile FXR Agonist Promising in PBC Patients
This is from PBCers news feed. Sounds exciting. https://www.medpagetoday.com/meetingcoverage/easl/72355 PARIS -- Tropifexor, a non-bile acid FXR agonist, had a dose-dependent effect on gamma-glutamyl transferase (GGT) levels in patients with primary biliary cholangitis (PBC) compared with placebo,
This is from PBCers news feed. Sounds exciting. https://www.medpagetoday.com/meetingcoverage/easl/72355 PARIS -- Tropifexor, a non-bile acid FXR agonist, had a dose-dependent effect on gamma-glutamyl transferase (GGT) levels in patients with primary biliary cholangitis (PBC) compared with placebo,
JaneIng
in
PBC Foundation
6 years ago
Help with Blood test result please
I am going to the GP as I have not been feeling well since the new year. The blood tests results are all marked as "No action required" but I don't feel OK. I seem to be almost permanently tired and now have pins and needles in my feet and occassional cramps in my hands when writing. I am taking alternating
I am going to the GP as I have not been feeling well since the new year. The blood tests results are all marked as "No action required" but I don't feel OK. I seem to be almost permanently tired and now have pins and needles in my feet and occassional cramps in my hands when writing. I am taking alternating
carer999
in
Pernicious Anaemia Society
6 years ago
Update on my IU visit
Happy to say that I made it to Indianapolis safely & to my appointment as well. Dr Masuoka said my numbers are great, pretty stable compared to my past numbers. But, he said he would still like for my ALK Phos to come down more. I spent the day today calling & scheduling three orders to have done closer
Happy to say that I made it to Indianapolis safely & to my appointment as well. Dr Masuoka said my numbers are great, pretty stable compared to my past numbers. But, he said he would still like for my ALK Phos to come down more. I spent the day today calling & scheduling three orders to have done closer
Shulsey
in
PBC Foundation
7 years ago
Recent labs.... with a surprise! (not a good one) ☹️
Hello PBC family, Not a whole lot to report with my labs. Alk-phos still fluctuates between 140's and 170's. Interestingly, the less I weigh, the better the Alk-phos number. I'm in an RA flare right now and I've been on steroids. Needless to say I'm gaining weight!! My Alk-phos did come down from
Hello PBC family, Not a whole lot to report with my labs. Alk-phos still fluctuates between 140's and 170's. Interestingly, the less I weigh, the better the Alk-phos number. I'm in an RA flare right now and I've been on steroids. Needless to say I'm gaining weight!! My Alk-phos did come down from
Ktltel
in
PBC Foundation
7 years ago
Blood result
Please, can anyone help to understand blood results? Serum globulin level (XE2eB) 38G/L [20.0 -34.0] Serum alanine aminotransferase level (XaL.Jx) 56 U/L [<41.0] Serum alkaline phosphatase level(XE2px) 173U/L[30.0 - 130.0] Serum gamma-glutamyl transferase level(XaES3) 726 U/L[10.0 - 71.0 I'm
Please, can anyone help to understand blood results? Serum globulin level (XE2eB) 38G/L [20.0 -34.0] Serum alanine aminotransferase level (XaL.Jx) 56 U/L [<41.0] Serum alkaline phosphatase level(XE2px) 173U/L[30.0 - 130.0] Serum gamma-glutamyl transferase level(XaES3) 726 U/L[10.0 - 71.0 I'm
ruthalem
in
Thyroid UK
6 years ago
I've just had another range of blood tests and now have the results. I'd appreciate some help with understanding them.
I've not been well for over three years, but over the last six months I've been feeling worse and worse. It's mostly the same symptoms but getting more severe and more frequent. I've had several water infections - my gp thinks it's inflammation of the stomach wall flaring up. Each time is more painful
I've not been well for over three years, but over the last six months I've been feeling worse and worse. It's mostly the same symptoms but getting more severe and more frequent. I've had several water infections - my gp thinks it's inflammation of the stomach wall flaring up. Each time is more painful
dizzy864
in
Thyroid UK
6 years ago
Possible kidney, liver, and sinus issues— still no answers
Hi All, My recent round of labs showed some elevations, specifically: ALT, Alk Phos, BUN/Creatinine, CRP, blood in urine with slightly low specific gravity. This week I had a biopsy of my nasal passage (due to inflammation and discharge); am being referred to nephrologist; and scheduled for abdominal
Hi All, My recent round of labs showed some elevations, specifically: ALT, Alk Phos, BUN/Creatinine, CRP, blood in urine with slightly low specific gravity. This week I had a biopsy of my nasal passage (due to inflammation and discharge); am being referred to nephrologist; and scheduled for abdominal
Canygirl61
in
Vasculitis UK
7 years ago
Pre-diagnosis limbo: "I knew something was wrong when..."
Many other communities have discussed their first symptoms and paths to diagnosis, including members with
ALS
, lupus, MS, and epilepsy. Please share your story here or in your own condition forum. What was your first symptom? How long was it before doctors correctly diagnosed your condition?
Many other communities have discussed their first symptoms and paths to diagnosis, including members with
ALS
, lupus, MS, and epilepsy. Please share your story here or in your own condition forum. What was your first symptom? How long was it before doctors correctly diagnosed your condition?
rvmasalvad
Star
in
Diabetes India
7 years ago
Hashimotos - Stopped Levothyroxine + Prescribed Chinese Herbs + Sleeping Earlier
Hiya, Was told a couple of years ago that I have hashimotos and have NEVER had symptoms known for it. I stopped taking Levothyroxin a month ago as it was making me feel horrible - stressed along with crazy weird vivid dreams. Since stopping am feeling great and still not experiencing these effects. Just
Hiya, Was told a couple of years ago that I have hashimotos and have NEVER had symptoms known for it. I stopped taking Levothyroxin a month ago as it was making me feel horrible - stressed along with crazy weird vivid dreams. Since stopping am feeling great and still not experiencing these effects. Just
Jouleskeys
in
Thyroid UK
6 years ago
Clonzepam aka klonopin my story
who prescribes medications and is an MP I’m pretty sure that’s medical practitioner not too sure don’t quote me on that but I just know the abbreviation MP anyway I asked her if it was a safe drug and I know she would never steer me in the wrong direction especially since she’s One of our greatest
ALS
who prescribes medications and is an MP I’m pretty sure that’s medical practitioner not too sure don’t quote me on that but I just know the abbreviation MP anyway I asked her if it was a safe drug and I know she would never steer me in the wrong direction especially since she’s One of our greatest
ALS
kevoreally
in
Anxiety Support
6 years ago
Als help-relief
Any information available with herbs? Green House Herbal Clinic touts cures. They are in Pretoria, Johannesburg, South Africa. Can't find any feedback. H e l p. Please.
Any information available with herbs? Green House Herbal Clinic touts cures. They are in Pretoria, Johannesburg, South Africa. Can't find any feedback. H e l p. Please.
01Sisi47
in
Cure Parkinson's
7 years ago
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