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Experiences with
Amyotrophic lateral sclerosis (ALS)
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This could potentially shed light on PSP as well 🙏
https://www.google.com/amp/s/www.news-medical.net/amp/news/20210223/Scientists-identify-new-compound-that-reverses-
ALS
-neuron-damage.aspx
https://www.google.com/amp/s/www.news-medical.net/amp/news/20210223/Scientists-identify-new-compound-that-reverses-
ALS
-neuron-damage.aspx
Aslin
in
PSP Association
3 years ago
Stage 4 Metastatic Prostate Cancer AND NOW also Parkinsonism and PSP
He's gettting tested for
ALS
next month. Either way, these diseases are progressive, terminal and there is nothing they can do to stop it's progression. Have any of you also received the diagnosis of PSP or
ALS
?
He's gettting tested for
ALS
next month. Either way, these diseases are progressive, terminal and there is nothing they can do to stop it's progression. Have any of you also received the diagnosis of PSP or
ALS
?
kick-prostate-cancer
in
Advanced Prostate Cancer
3 years ago
ALT and AST?
I noticed my liver hurting more than usual in the past month, my abdomen more bloated, and generally feeling not well. I am always severely fatigued and when diagnosed in January 2017, I was already in Stage 2-3 fibrosis, shown on an MRE. My liver numbers were never particularly elevated, the worst my
I noticed my liver hurting more than usual in the past month, my abdomen more bloated, and generally feeling not well. I am always severely fatigued and when diagnosed in January 2017, I was already in Stage 2-3 fibrosis, shown on an MRE. My liver numbers were never particularly elevated, the worst my
claygi
in
PBC Foundation
3 years ago
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Need Help Interpreting Results
Hello all, My husband (GL 9, several bone mets-diagnosed 8/19-Casodex, Eligard, Zytiga/prednisone, plus radiation) had a bone scan today, along with routine three month blood work and an Eligard shot. He was scheduled for a CAT scan as well, but the MO postponed it as he was recently vaccinated for Covid
Hello all, My husband (GL 9, several bone mets-diagnosed 8/19-Casodex, Eligard, Zytiga/prednisone, plus radiation) had a bone scan today, along with routine three month blood work and an Eligard shot. He was scheduled for a CAT scan as well, but the MO postponed it as he was recently vaccinated for Covid
Dett
in
Advanced Prostate Cancer
3 years ago
PBC and Autoimmune Hepatitis
Diagnosed with PBC 2012 last biopsy 3yrs ago stage 2. Labs not improving over the years dispite using Urso and Ocaliva combined. Now trying steroids and bone marrow suppressants incase I have autoimmune hepatitis. My Alt and Ast stabalized but still have elevated alk phos. Any body out there with
Diagnosed with PBC 2012 last biopsy 3yrs ago stage 2. Labs not improving over the years dispite using Urso and Ocaliva combined. Now trying steroids and bone marrow suppressants incase I have autoimmune hepatitis. My Alt and Ast stabalized but still have elevated alk phos. Any body out there with
Q8Cooper
in
PBC Foundation
3 years ago
Iron panel, CRP, ESR?
Hi all, so after having a Medichecks full thyroid test in April my result were: TSH 1.39 mIU/L (0.27-4.2)F Freethyroxine 19.4pmol/l (12-22) Yesterday my GP repeated a TSH only test which came back as follows: 0.62 mIU/L (0.38-5.5). Could I be going slightly hyper now? I wasnt expecting the GP to repeat
Hi all, so after having a Medichecks full thyroid test in April my result were: TSH 1.39 mIU/L (0.27-4.2)F Freethyroxine 19.4pmol/l (12-22) Yesterday my GP repeated a TSH only test which came back as follows: 0.62 mIU/L (0.38-5.5). Could I be going slightly hyper now? I wasnt expecting the GP to repeat
Minimouse1
in
Thyroid UK
3 years ago
How long does PSA stay down after chemo?
Just finished my tenth session of taxotere. It dropped my PSA over 80% to under 5 and my alk Phos over 80% to 61. The doc wants me to take a few months off the have my body recover. The last two sessions kicked the stuffing out of me. For those that have had Taxotere how long did you see your drop
Just finished my tenth session of taxotere. It dropped my PSA over 80% to under 5 and my alk Phos over 80% to 61. The doc wants me to take a few months off the have my body recover. The last two sessions kicked the stuffing out of me. For those that have had Taxotere how long did you see your drop
Newyork6264
in
Advanced Prostate Cancer
3 years ago
Could I Have Cirrhosis?
In 2018 I was drinking a lot, woke up with right upper quadrant pain and went to the ER. They said my liver was fine after blood work and ultrasound. I followed up with a gastroenterologist and got labs for everything under the sun and he thought my liver was ok too, but I wasn’t convinced but after
In 2018 I was drinking a lot, woke up with right upper quadrant pain and went to the ER. They said my liver was fine after blood work and ultrasound. I followed up with a gastroenterologist and got labs for everything under the sun and he thought my liver was ok too, but I wasn’t convinced but after
Guitarlife91
in
British Liver Trust
3 years ago
Ovarian cancer metastasis to liver.
Hello Everyone! My mother was diagnosed with ovarian cancer stage 3c last year. Initially she had 6 cycles of chemo and the they did hysterectomy and omentectomy . Doctor said it’s not spread to the intestines which is a great news. And we were happy that mom would be fine. But after 6 months she had
Hello Everyone! My mother was diagnosed with ovarian cancer stage 3c last year. Initially she had 6 cycles of chemo and the they did hysterectomy and omentectomy . Doctor said it’s not spread to the intestines which is a great news. And we were happy that mom would be fine. But after 6 months she had
Angel86
in
SHARE Ovarian Cancer Support
3 years ago
Puried food- How long can one survive on it?
My father-in law had
ALS
20 years ago and I’m trying to remember his last months . Yes, our family has been hit twice with these 2 similar diseases Cindy her daughter
My father-in law had
ALS
20 years ago and I’m trying to remember his last months . Yes, our family has been hit twice with these 2 similar diseases Cindy her daughter
jamrog846
in
PSP Association
3 years ago
Help with Lab Results
Hello wonderful people, I would be really grateful for some help interpreting my Blue Horizon thyroid test results. I'm wondering how significant it is that my anti-TPO result is high, while the rest of the results seem perfectly normal. (Took test at 8am, after 12 hour fast with no iron or other vitamin
Hello wonderful people, I would be really grateful for some help interpreting my Blue Horizon thyroid test results. I'm wondering how significant it is that my anti-TPO result is high, while the rest of the results seem perfectly normal. (Took test at 8am, after 12 hour fast with no iron or other vitamin
Aurell
in
Thyroid UK
3 years ago
Blood report
Okay I want your guys view's on my report any suggestion or piece of mind would be appreciated And will my B12 & iron medication help me with my RBC's and WBC's ? My haemoglobin has always been below 10 since I'm born as I was born unhealthy :'( My other test reports are as follows *IMMUNOLOGY TEST
Okay I want your guys view's on my report any suggestion or piece of mind would be appreciated And will my B12 & iron medication help me with my RBC's and WBC's ? My haemoglobin has always been below 10 since I'm born as I was born unhealthy :'( My other test reports are as follows *IMMUNOLOGY TEST
Akashrajput
in
Pernicious Anaemia Society
3 years ago
Tongue twitcher here
The twitching really worries me and I’ve read too much about
als
. I feel like I’m slurring my words and my voice is definitely getting tired
The twitching really worries me and I’ve read too much about
als
. I feel like I’m slurring my words and my voice is definitely getting tired
Cm22
in
Anxiety Support
3 years ago
Lu 177 update 1 month post infusion number 1
It has been over a month now since my wife and I traveled to England to get a dose of Lu 177. I thought I would give an update on what it did for me. That intense bone metastasis pain completely disappeared after about 2 weeks. It was rough going and I needed 24/7 opiates to get any relief. I weened
It has been over a month now since my wife and I traveled to England to get a dose of Lu 177. I thought I would give an update on what it did for me. That intense bone metastasis pain completely disappeared after about 2 weeks. It was rough going and I needed 24/7 opiates to get any relief. I weened
Cleodman
in
Advanced Prostate Cancer
3 years ago
PSP communication devices
My main question is....Are there any mechanisms/devices out there to help PSP patients communicate, such as the augmented communication (AAC) devices that
ALS
patients use?? Thank you so much in advance!!
My main question is....Are there any mechanisms/devices out there to help PSP patients communicate, such as the augmented communication (AAC) devices that
ALS
patients use?? Thank you so much in advance!!
backyardchicken
in
PSP Association
3 years ago
Blood test results.
Hi wonder workers! following my blood test of 2 weeks ago at 9.20 am I was surprised to find a printout in mailbox from the Endocrinologist. So basically many tests that were low or below range are now high. I will mostly include those tests that are now low or high. There is no blood sugar or cholesterol
Hi wonder workers! following my blood test of 2 weeks ago at 9.20 am I was surprised to find a printout in mailbox from the Endocrinologist. So basically many tests that were low or below range are now high. I will mostly include those tests that are now low or high. There is no blood sugar or cholesterol
Jenny583
in
Thyroid UK
3 years ago
Liver and Kidney Ultra-sound Results
I have a call with my doctor later today to discuss my results. I was sent for an ultra sound scan back in September 2020, and I had this done on 11th February 2021 some 5 months later. I think the delay must have been due to covid! My recent bloods have shown : ......................................
I have a call with my doctor later today to discuss my results. I was sent for an ultra sound scan back in September 2020, and I had this done on 11th February 2021 some 5 months later. I think the delay must have been due to covid! My recent bloods have shown : ......................................
jon22
in
British Liver Trust
3 years ago
ALK PHOS keeps going up
Hi everybody! I was diagnosed with PBC in 2016. At the time my ALK PHOS was 375. I started on URSO right away. 1000mg a day (500 mg twice a day). ALK PHOS started steadily coming down. A year ago it was down to 116, which was the borderline with the high limit of the range. However, in 6 months after
Hi everybody! I was diagnosed with PBC in 2016. At the time my ALK PHOS was 375. I started on URSO right away. 1000mg a day (500 mg twice a day). ALK PHOS started steadily coming down. A year ago it was down to 116, which was the borderline with the high limit of the range. However, in 6 months after
iagra
in
PBCers Organization
3 years ago
Internal vibration
Hi, I've been quiet on here as mostly plodding on and getting through my days as best as possible but am popping back with a question in the hope that someone can share some insight. For reference I'm 51, was diagnosed with Fibromyalgia in 2010 (and have a lot of associated issues with that) additionally
Hi, I've been quiet on here as mostly plodding on and getting through my days as best as possible but am popping back with a question in the hope that someone can share some insight. For reference I'm 51, was diagnosed with Fibromyalgia in 2010 (and have a lot of associated issues with that) additionally
Wispymisty
in
Thyroid UK
3 years ago
Docetaxel not working
I have had 2 docetaxel infusions so far with 3rd infusion scheduled this Thursday. Psa has increased from 120 to 174 and alk phos has increased from 590 to 617 since last infusion. Should I even go for 3rd infusion since docetaxel seems to be ineffective ?
I have had 2 docetaxel infusions so far with 3rd infusion scheduled this Thursday. Psa has increased from 120 to 174 and alk phos has increased from 590 to 617 since last infusion. Should I even go for 3rd infusion since docetaxel seems to be ineffective ?
Peterd110
in
Advanced Prostate Cancer
3 years ago
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