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Uveitis treatment opinion please
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
Udupik
in
Vasculitis UK
1 year ago
This looks interesting :) I know people with PTSD who have benefited from EMDR ...
... so hope it will be beneficial to p/w FND too :) https://doi.org/10.1136/bmjopen-2023-073727
... so hope it will be beneficial to p/w FND too :) https://doi.org/10.1136/bmjopen-2023-073727
210272
in
Functional Neurological Disorder - FND Hope
1 year ago
Glaucoma patient
I have started using Collide silver to alleviate irritation I suffer using Glaucoma meds. I also use Optaze heat mask and wipes. I was using Hylo drops but get more relief using Collide silver. Any opinions?
I have started using Collide silver to alleviate irritation I suffer using Glaucoma meds. I also use Optaze heat mask and wipes. I was using Hylo drops but get more relief using Collide silver. Any opinions?
Stringwells
in
Glaucoma UK
1 year ago
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Questions on PMR & GCA
The visit to my new Rheumatologist was unusual, she looked at me and just said, you don't have PMR or GCA within 5 minutes of consultation. No poking or touching. I presume because she had no results to go with we wait for tests to come back. So as to my previous post on the tests that I have just had
The visit to my new Rheumatologist was unusual, she looked at me and just said, you don't have PMR or GCA within 5 minutes of consultation. No poking or touching. I presume because she had no results to go with we wait for tests to come back. So as to my previous post on the tests that I have just had
Triumph650
in
PMRGCAuk
1 year ago
Vision Issues
I'm a GCA patient since AUG 2022, having started with 60 MG PRED and decreased slowly to 20 MG PRED at this time. Ever since starting the PRED, I have noticed that my vision is fuzzy, blurry, etc. I thought it was a side effect of the PRED. But after slowly decreasing PRED for 7 months, my vision
I'm a GCA patient since AUG 2022, having started with 60 MG PRED and decreased slowly to 20 MG PRED at this time. Ever since starting the PRED, I have noticed that my vision is fuzzy, blurry, etc. I thought it was a side effect of the PRED. But after slowly decreasing PRED for 7 months, my vision
montebello
in
PMRGCAuk
1 year ago
Glaucoma, sight loss, and dyslexia
Hi, I would appreciate it if anyone has come across information or support about having the above issues. š
Hi, I would appreciate it if anyone has come across information or support about having the above issues. š
Maltakitty
in
Glaucoma UK
1 year ago
Hello from Manchester
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
ancoats23
in
LUPUS UK
1 year ago
Short course of Prednisone
I have developed some ringing in my ears and exploring all kinds of reasons for why. Had an episode of Nystagmus (dizziness) in Feb but it went away. Also seeing an eye doc to make sure eyes not related to ear ringing. Still on W&W 2.5 years. WBC is at 20. Primary care doc wants me to take a 6 day
I have developed some ringing in my ears and exploring all kinds of reasons for why. Had an episode of Nystagmus (dizziness) in Feb but it went away. Also seeing an eye doc to make sure eyes not related to ear ringing. Still on W&W 2.5 years. WBC is at 20. Primary care doc wants me to take a 6 day
CBME
in
CLL Support
1 year ago
SLT for Glaucoma
I had SLT a few years ago as my pressures were in the high 20's . An easy process done in a few minutes. My pressures dropped within days and settled at around 12/14 ever since. I later had Cataracts removed which had the additional benefit of maintaining low pressures. Ganfort drops had worked
I had SLT a few years ago as my pressures were in the high 20's . An easy process done in a few minutes. My pressures dropped within days and settled at around 12/14 ever since. I later had Cataracts removed which had the additional benefit of maintaining low pressures. Ganfort drops had worked
Safehaven23
in
Glaucoma UK
1 year ago
Gel nails & UV lamps
Hope this post finds you well šš½ My younger sister has recently been diagnosed with SLE and retinal vasculitis. As itās very new to her, we are trying to adhere to any doās and donāts for her condition. She recently had gel nails done, forgetting about the need to not be exposed to UV rays, and is
Hope this post finds you well šš½ My younger sister has recently been diagnosed with SLE and retinal vasculitis. As itās very new to her, we are trying to adhere to any doās and donāts for her condition. She recently had gel nails done, forgetting about the need to not be exposed to UV rays, and is
Gooner786
in
LUPUS UK
1 year ago
Lupus Eyes
Its been sometime since I have contacted Health unlocked about My BP/Asthma and also about my wife having Lupus. Can anyone please tell me about the medication causing red eyes and little hard bits around the eye lids. Thankyou in advance
Its been sometime since I have contacted Health unlocked about My BP/Asthma and also about my wife having Lupus. Can anyone please tell me about the medication causing red eyes and little hard bits around the eye lids. Thankyou in advance
just-typing
in
LUPUS UK
1 year ago
Epsom Salt and essential oils foot soak query
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. š¤¦āāļø I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
just a quick enquiry. I bought these lovely Epsom salts to give myself a relaxing foot soak but then read the list of essential oils and thought they might not be so good after all. š¤¦āāļø I take flecainide, bisoprolol, warfarin and levothyroxine. Do foot soaks mean you absorb a lot of the essential
Gilli54
in
AF Association
1 year ago
Intramuscular Depo Injection resulting in Flare From Hell 3 days laterā¦..
ā¦..anyone else? Excruciating pain from actual injection site after 3 days accompanied by worse flare Iāve ever had. Maybe tomorrow will be better? PSā¦first couple of days my awful spinal pain lessened, also inflammation in hands. This is just completely debilitatingā¦..and after so many many months
ā¦..anyone else? Excruciating pain from actual injection site after 3 days accompanied by worse flare Iāve ever had. Maybe tomorrow will be better? PSā¦first couple of days my awful spinal pain lessened, also inflammation in hands. This is just completely debilitatingā¦..and after so many many months
CallMeSunny
in
NRAS
1 year ago
Posterior vitreous detachment
Yesterday feeling great for the first time in ages. Did yoga with no impact on shoulders and then a bit of weeding. Then in the evening I noticed quite a prominent floater. It was still here this morning and joined by a cloud of tiny floaters that were hardly visible. It felt wrong so I got an emergency
Yesterday feeling great for the first time in ages. Did yoga with no impact on shoulders and then a bit of weeding. Then in the evening I noticed quite a prominent floater. It was still here this morning and joined by a cloud of tiny floaters that were hardly visible. It felt wrong so I got an emergency
Viveka
in
PMRGCAuk
1 year ago
itchy eyes
Hi, I have itchy eyes on and off and wondered if it was to do with my thyroid or maybe an allergy. Any help would be much appreciated.
Hi, I have itchy eyes on and off and wondered if it was to do with my thyroid or maybe an allergy. Any help would be much appreciated.
suetatt68
in
Thyroid UK
1 year ago
GCA Flareup
I hope someone can help me, as I feel like I've been thrown to the wolves and I don't know what to do. I am having a major flare up of PMR and GCA, I have blurred vision and head pains every day for the past 2 weeks but have been feeling awful since February. My body is so sore, plus Iam so tired all
I hope someone can help me, as I feel like I've been thrown to the wolves and I don't know what to do. I am having a major flare up of PMR and GCA, I have blurred vision and head pains every day for the past 2 weeks but have been feeling awful since February. My body is so sore, plus Iam so tired all
Sally001
in
PMRGCAuk
1 year ago
Glaucoma, prednisolone and anxiety supplements
Good morning all I am being treated for GCA and at the moment Iām on 20mg of of prednisilone, I am coping ok and trying to stay as healthy as possible, I already have glaucoma and sadly the steroids have pushed my eye pressure up, I saw my eye consultant yesterday, he is quite concerned, the operation
Good morning all I am being treated for GCA and at the moment Iām on 20mg of of prednisilone, I am coping ok and trying to stay as healthy as possible, I already have glaucoma and sadly the steroids have pushed my eye pressure up, I saw my eye consultant yesterday, he is quite concerned, the operation
Mumdadlove
in
PMRGCAuk
1 year ago
Has anyone had orbital decompression for graves eye disease?
Hi I have Graves eye disease and I am considering orbital decompression. I also have Graves. Will it leave scars? Will it cause numbness due to nerve damage on my face? I am told this is likely. I would like to hear from anyone who has had this surgery. Do you recommend? Thanks
Hi I have Graves eye disease and I am considering orbital decompression. I also have Graves. Will it leave scars? Will it cause numbness due to nerve damage on my face? I am told this is likely. I would like to hear from anyone who has had this surgery. Do you recommend? Thanks
Naples21
in
Thyroid UK
1 year ago
Short synathecen test
Hi i have m.e cfs used to be severe was in wheelchair and bedridden now able to walk doctor wants to synathecyn test because i have symptoms of congenital adrenal hyperplasia im scared of a relapse in the m.e and was wondering if there alternative blood test anyone with cfs have this test and what was
Hi i have m.e cfs used to be severe was in wheelchair and bedridden now able to walk doctor wants to synathecyn test because i have symptoms of congenital adrenal hyperplasia im scared of a relapse in the m.e and was wondering if there alternative blood test anyone with cfs have this test and what was
Ester467
in
Thyroid UK
1 year ago
Collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
hunkyd0ry
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
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