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"Dry skin" and Pegasys
Many people here report that Pegasys gives them dry skin. No doubt this is often true because Pegasys has a GIGANTIC range of side-effects. But I wanted to call attention to something else Pegasys does which could be confused with dry skin. Pegasys is a recombinant alpha interferon (IFN-α) and as
Many people here report that Pegasys gives them dry skin. No doubt this is often true because Pegasys has a GIGANTIC range of side-effects. But I wanted to call attention to something else Pegasys does which could be confused with dry skin. Pegasys is a recombinant alpha interferon (IFN-α) and as
pnArt
in
MPN Voice
5 years ago
Graves and eye surgery
Hello I’m looking for anyone who has Graves’ disease and knows anything about the subsequent eye surgery. I was diagnosed with Graves’ disease in February this year. It also affects my eyes, with them being a bit starey. Not bulgy but definitely appear “wide”. I have seen an eye specialist and am on
Hello I’m looking for anyone who has Graves’ disease and knows anything about the subsequent eye surgery. I was diagnosed with Graves’ disease in February this year. It also affects my eyes, with them being a bit starey. Not bulgy but definitely appear “wide”. I have seen an eye specialist and am on
Hidden
in
Thyroid UK
5 years ago
Uniform
For years I used to pipe on an honor guard. I was asked by the local VFW to pipe a military funeral Wednesday; the first time I've piped for anyone outside of family since I was injured, left the service, and got sick. As uniforms left too long unworn in closets have a tendency to shrink, I found myself
For years I used to pipe on an honor guard. I was asked by the local VFW to pipe a military funeral Wednesday; the first time I've piped for anyone outside of family since I was injured, left the service, and got sick. As uniforms left too long unworn in closets have a tendency to shrink, I found myself
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Heal My PTSD
5 years ago
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Tapering
Since my first post I have been following all recent posts with interest and would be grateful for further advice. After initial dose of Pred, 20 mgs daily for 2 weeks, then 15 mgs daily for 2 weeks, my GP advised me to reduce to 14 mg daily for the 5th week, then 13 mg daily for a week and so on, reducing
Since my first post I have been following all recent posts with interest and would be grateful for further advice. After initial dose of Pred, 20 mgs daily for 2 weeks, then 15 mgs daily for 2 weeks, my GP advised me to reduce to 14 mg daily for the 5th week, then 13 mg daily for a week and so on, reducing
Billswife
in
PMRGCAuk
5 years ago
What are the odds?
I've been dealing with late stage PSP with my husband who has had the misfortune to have not one but two rare diseases! When he was born he had Hirschprung's disease and had most of his bowel removed (wore a bag for a year until they reattached his plumbing) So as you can imagine he has been plagued
I've been dealing with late stage PSP with my husband who has had the misfortune to have not one but two rare diseases! When he was born he had Hirschprung's disease and had most of his bowel removed (wore a bag for a year until they reattached his plumbing) So as you can imagine he has been plagued
Jkhakh2
in
PSP Association
5 years ago
Sicca Symptoms
Hi there everyone, I recently went to a rheumatologist because my GP suspected sjogrens syndrome, as far as I know the blood tests are not back yet but from what I have read they aren't 100% for diagnosing sjogrens anyway. The reason for my post, I had the letter back from their department and it says
Hi there everyone, I recently went to a rheumatologist because my GP suspected sjogrens syndrome, as far as I know the blood tests are not back yet but from what I have read they aren't 100% for diagnosing sjogrens anyway. The reason for my post, I had the letter back from their department and it says
vicky_24
in
The Australian Sjögren's Syndrome Association
5 years ago
Blepharitis
Any one on here suffer from Blepharitis? What started off as gritty sore eyes has now become Blepharitis. Any comments as to how you deal with it welcome. I am using the baby shampoo to clean my eyes, and awaiting eye heat mask to arrive, the clinitas drops worked for my eyes, but not for the surrounding
Any one on here suffer from Blepharitis? What started off as gritty sore eyes has now become Blepharitis. Any comments as to how you deal with it welcome. I am using the baby shampoo to clean my eyes, and awaiting eye heat mask to arrive, the clinitas drops worked for my eyes, but not for the surrounding
Callabag64
in
NRAS
5 years ago
Anyone doing Euro Lupus protocol? (Low dose cyclophosphamide)
Hello to everyone out there! I’m new to the group - seeking advice from those who have undergone the Euro Lupus Protocol? This is cytoxan (cyclophosphamide) treatments by IV every other week. I understand infusion treatment takes approximately 6 hrs. Sounds very looong to me! What does one do all
Hello to everyone out there! I’m new to the group - seeking advice from those who have undergone the Euro Lupus Protocol? This is cytoxan (cyclophosphamide) treatments by IV every other week. I understand infusion treatment takes approximately 6 hrs. Sounds very looong to me! What does one do all
Tired-in-Toronto
in
LUPUS UK
5 years ago
? BFP
Hi All, After two failed rounds of ISCI we had some pretty good improvement in sperm count but motility still wasn't up to scratch. We thought we'd give it one last proper try last month prior to my husbands renal transplant as we aren't sure if the sperm will take a nose dive. I had really mild spotting
Hi All, After two failed rounds of ISCI we had some pretty good improvement in sperm count but motility still wasn't up to scratch. We thought we'd give it one last proper try last month prior to my husbands renal transplant as we aren't sure if the sperm will take a nose dive. I had really mild spotting
Hidden
in
Fertility Network UK
5 years ago
Disabled badge
I am looking into applying for a disabled badge. I have only just turned 20 and I have systemic Lupus. I was diagnosed in 2014. I was wondering does that make me eligible for it? What are they looking for? I can walk but I have fatigue constantly, but to me i just see it as an everyday thing, alot of
I am looking into applying for a disabled badge. I have only just turned 20 and I have systemic Lupus. I was diagnosed in 2014. I was wondering does that make me eligible for it? What are they looking for? I can walk but I have fatigue constantly, but to me i just see it as an everyday thing, alot of
Ash2394
in
LUPUS UK
5 years ago
B12 deficiency : tongue, mouth (and apologies !)
I did say that I would show what the lovely ENT consultant described as [i]"clearly B12 deficiency"[/i] - and also said that I was doing absolutely the right thing by self-injecting every other day, that it would take time and that I must be persistent. He also agreed with me that salivary gland infection
I did say that I would show what the lovely ENT consultant described as [i]"clearly B12 deficiency"[/i] - and also said that I was doing absolutely the right thing by self-injecting every other day, that it would take time and that I must be persistent. He also agreed with me that salivary gland infection
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
5 years ago
Raction after Pegasys injection
I inject 135 mg Pegasys every 3 weeks. Even though I feel very tired I find it hard to get to sleep (and stay asleep) the night of the injection. Does anyone else feel really jangly and agitated? It feels like I’ve drunk far too much coffee.
I inject 135 mg Pegasys every 3 weeks. Even though I feel very tired I find it hard to get to sleep (and stay asleep) the night of the injection. Does anyone else feel really jangly and agitated? It feels like I’ve drunk far too much coffee.
Marossi
in
MPN Voice
5 years ago
Eye problems is it PMR?
Hi, I recently read a post from koalajane to do with dry eyes and PMR. I have woken up many times with red eyes, my vision is blurred and I sometimes have a bit of watery pus. I'd be interested to know if PMR or steroids may be causing this. After around 10 minutes my eyes begin to clear. Thank you
Hi, I recently read a post from koalajane to do with dry eyes and PMR. I have woken up many times with red eyes, my vision is blurred and I sometimes have a bit of watery pus. I'd be interested to know if PMR or steroids may be causing this. After around 10 minutes my eyes begin to clear. Thank you
Hidden
in
PMRGCAuk
5 years ago
Diagnosis update for you all nearly a year on
Hi guys, so I promised I would update my journey here with how I got on after needing a second opinion and attending The Kellgren Centre at Manchester. Well over the last few months I’ve been having other various tests and then saw Dr Parker again a few weeks ago. He said he’s even more certain now that
Hi guys, so I promised I would update my journey here with how I got on after needing a second opinion and attending The Kellgren Centre at Manchester. Well over the last few months I’ve been having other various tests and then saw Dr Parker again a few weeks ago. He said he’s even more certain now that
Littlemisssunshine87
in
LUPUS UK
5 years ago
Friendship advice needed
Hi everyone, In need of some advice.. Recently my friend gave birth to her second little girl, but it was a traumatic delivery resulting in some brain damage to her daughter. We communicated back & forth in those first few difficult days, and I sent her daily messages of love and support and also a
Hi everyone, In need of some advice.. Recently my friend gave birth to her second little girl, but it was a traumatic delivery resulting in some brain damage to her daughter. We communicated back & forth in those first few difficult days, and I sent her daily messages of love and support and also a
Emska77
in
Fertility Network UK
5 years ago
Bell’s palsy diagnosed this week
After a horrible year I’ve now got this to deal with 😪 but having read more I wonder if it’s Ramsay hunt syndrome? I went to a&e on Tuesday with my face drooping and had extensive tests for a stroke. My ear was seemingly very red inside but not bad enough for antibiotics. I had to go to out of hours
After a horrible year I’ve now got this to deal with 😪 but having read more I wonder if it’s Ramsay hunt syndrome? I went to a&e on Tuesday with my face drooping and had extensive tests for a stroke. My ear was seemingly very red inside but not bad enough for antibiotics. I had to go to out of hours
Weejenny
in
Facial Palsy UK
5 years ago
Bladder Issues
Hi to you all! I saw a urologist the other day and she recommended either Myrbetriq, tibial nerve stimulation or Botox for incontinence issues Do any of you have experience with any of these treatments? Any advice would be appreciated! Thank you!
Hi to you all! I saw a urologist the other day and she recommended either Myrbetriq, tibial nerve stimulation or Botox for incontinence issues Do any of you have experience with any of these treatments? Any advice would be appreciated! Thank you!
jsb0410
in
My MSAA Community
5 years ago
Transparent membrane Eye
I have noticed this transparent membrane in December last year. I went to a eye test and was told it was nothing, there was nothing in my eyes. Both eyes have the membrane. I was told not to worry about. Last week I checked my eyes again to see if the membrane was still there, and the membrane has grown
I have noticed this transparent membrane in December last year. I went to a eye test and was told it was nothing, there was nothing in my eyes. Both eyes have the membrane. I was told not to worry about. Last week I checked my eyes again to see if the membrane was still there, and the membrane has grown
Catherines03
in
Cure Arthritis Community
5 years ago
Hashimotis frequency of blood testing . I'd like your advice please.
How often should blood be tested if you have Hashimotis? I have been on Levothyroxine for 6 years now. 200mg at present. Last year I felt awful. Dry skin. Swollen eyes . Swollen tongue. My GP test said 'borderline retest in 6 months. I used a private test the remarks which came with the result suggested
How often should blood be tested if you have Hashimotis? I have been on Levothyroxine for 6 years now. 200mg at present. Last year I felt awful. Dry skin. Swollen eyes . Swollen tongue. My GP test said 'borderline retest in 6 months. I used a private test the remarks which came with the result suggested
A1Amber
in
Thyroid UK
5 years ago
Spacey
Anyone else ever get really spacey from the anxiety? Or maybe depression or dissociation?
Anyone else ever get really spacey from the anxiety? Or maybe depression or dissociation?
Lindsey14
in
Anxiety Support
5 years ago
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