Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
941 public posts
Filter results
Blood test results. Help please.
After two days of chasing round in ever decreasing circles I've finally managed to obtain a copy of my last blood test results. As you all suspected, the only thyroid test was TSH. These bloods were taken at 1:40pm after breakfast, coffee, and lunch. No one mentioned needing to have them taken first
After two days of chasing round in ever decreasing circles I've finally managed to obtain a copy of my last blood test results. As you all suspected, the only thyroid test was TSH. These bloods were taken at 1:40pm after breakfast, coffee, and lunch. No one mentioned needing to have them taken first
Horsey07
in
Thyroid UK
3 years ago
What to expect
I had my first rheumatology appointment last week and I'm happy that I've been seen and will hopefully be finding out more! I was referred because of a positive ANA (speckled, 1:1280 titre) and general aches and pains and feeling tired. I had a bunch more blood tests taken and a urine sample (which
I had my first rheumatology appointment last week and I'm happy that I've been seen and will hopefully be finding out more! I was referred because of a positive ANA (speckled, 1:1280 titre) and general aches and pains and feeling tired. I had a bunch more blood tests taken and a urine sample (which
josee94
in
LUPUS UK
3 years ago
Amazing what you discover on the NHS app
My hubby and I have been very worried about how bad my mobility has got in the last year. There has been a marked decline but the pain in my spine and joints have become horrendous. I now have to use an electric chair to get about and have had to order a wheelchair access vehicle. I received a letter
My hubby and I have been very worried about how bad my mobility has got in the last year. There has been a marked decline but the pain in my spine and joints have become horrendous. I now have to use an electric chair to get about and have had to order a wheelchair access vehicle. I received a letter
jillydabrat
in
MPN Voice
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anyone got experience of rosacea versus lupus?
Hi, since 2018, after taking a brief course of steroids, I have suffered with a facial rash. Initially I had it round my eyes (under brow, and under eye) down my cheeks, round my collarbone and on my nipple. I also had a small flare of it on my belly button. It was treated with hydrocortisone cream,
Hi, since 2018, after taking a brief course of steroids, I have suffered with a facial rash. Initially I had it round my eyes (under brow, and under eye) down my cheeks, round my collarbone and on my nipple. I also had a small flare of it on my belly button. It was treated with hydrocortisone cream,
Chancery
in
LUPUS UK
3 years ago
ACA & Anti CENP B
Hey all, Hope you are doing well - and a big thank you to those who took time to reply to my first post. Follow on from my neurologist nightmare (where he dismissed my ANA result as insignificant and spurious & said males don’t get lupus) , I had my bloods redone and they came back ANA positive for a
Hey all, Hope you are doing well - and a big thank you to those who took time to reply to my first post. Follow on from my neurologist nightmare (where he dismissed my ANA result as insignificant and spurious & said males don’t get lupus) , I had my bloods redone and they came back ANA positive for a
Northerner1
in
LUPUS UK
3 years ago
Platelet count 492 ESR & CRP elevated
.....Hello new here! Does anybody have elevated platelets along with elevated crp and esr? Usually my platelets are 420 ( for around the past 4 1/2 years) my esr and crp have been up and down. Also positive ANA. I see a rheumatologist, but we are still investigating for autoimmune disease etc. Saw
.....Hello new here! Does anybody have elevated platelets along with elevated crp and esr? Usually my platelets are 420 ( for around the past 4 1/2 years) my esr and crp have been up and down. Also positive ANA. I see a rheumatologist, but we are still investigating for autoimmune disease etc. Saw
Hidden
in
MPN Voice
3 years ago
I feel lost
Hello everyone, I am new here, my name is Anne and I am a 50 year old female. About a year ago I started to slow down, physically and mentally, I wrote it off to turning 50 and pushed myself to maintain my normal routine. I started to lose the hair on my arms and legs (there are some very fine hairs
Hello everyone, I am new here, my name is Anne and I am a 50 year old female. About a year ago I started to slow down, physically and mentally, I wrote it off to turning 50 and pushed myself to maintain my normal routine. I started to lose the hair on my arms and legs (there are some very fine hairs
jaspdt
in
LUPUS UK
3 years ago
Why won’t my GP prescribe lupus drug treatment?
Hi, I have lots of lupus symptoms dismissed by a useless rheumatologist who didn’t understand the word I was saying, I have been having a very bad flare with lots of GI issues to,GP took bloods very anaemic positive ana 1/400 positive DS DNA over 40. She was originally thinking inflammatory bowel disease
Hi, I have lots of lupus symptoms dismissed by a useless rheumatologist who didn’t understand the word I was saying, I have been having a very bad flare with lots of GI issues to,GP took bloods very anaemic positive ana 1/400 positive DS DNA over 40. She was originally thinking inflammatory bowel disease
Buffer
in
LUPUS UK
3 years ago
Is this Raynaud's?
Hello! I've been having some issues with swelling of my fingers, it started in april last year with one finger and gradually moved to others, my ring and pinky ones are not affected, visible swelling is only in my index fingers, thumbs and middle ones just give me a feeling but cannot be seen. I did
Hello! I've been having some issues with swelling of my fingers, it started in april last year with one finger and gradually moved to others, my ring and pinky ones are not affected, visible swelling is only in my index fingers, thumbs and middle ones just give me a feeling but cannot be seen. I did
MNE4
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
After a long search I think I have found my answer...pbc
I found this list of symptoms and I check almost all the boxes. And I have checked almost all the boxes for about 20 years. See at the bottom. I was pretty bad off 3 years ago. My joints were so sore and my feet were so swollen I couldn't get up the stairs without a railing. I had a wicked pain between
I found this list of symptoms and I check almost all the boxes. And I have checked almost all the boxes for about 20 years. See at the bottom. I was pretty bad off 3 years ago. My joints were so sore and my feet were so swollen I couldn't get up the stairs without a railing. I had a wicked pain between
sleepingbeautycan
in
PBC Foundation
3 years ago
confused and anxious
After several phone calls to my GP and Rheumatology department, I had a phone call from one of the registrars from the Rheumatology department this morning. Thanks to you all , I knew about the importance of making some notes before my appointment so that I could report my symptoms and ask further
After several phone calls to my GP and Rheumatology department, I had a phone call from one of the registrars from the Rheumatology department this morning. Thanks to you all , I knew about the importance of making some notes before my appointment so that I could report my symptoms and ask further
April2018
in
LUPUS UK
3 years ago
advice please
so I was diagnosed with sero-negative APS by proff D'cruz with demyelinating syndrome in 2002. 4mths ago I had a stroke I have since been diagnosed with white matter disease However all the APS tests are negative but I have ANA result1:640 and have been referred to a local Rheumatologist here in Cornwall
so I was diagnosed with sero-negative APS by proff D'cruz with demyelinating syndrome in 2002. 4mths ago I had a stroke I have since been diagnosed with white matter disease However all the APS tests are negative but I have ANA result1:640 and have been referred to a local Rheumatologist here in Cornwall
mully
in
Hughes Syndrome APS Forum
3 years ago
Greater Understanding of PV, ET Drives Potential New Treatment Options
“Continued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,” they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
“Continued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,” they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
Manouche
in
MPN Voice
3 years ago
ANA negative but tested positive for LA and smooth muscle antibodies
Hi all, After 5 years of going back and forth to rheumy with joint and muscle pain, loss of hair leading to patches of baldness and a discoid looking rash called jesners lymphocytic infiltrate and extreme fatigue and being told I am ana negative after three times was really disheartening. It took
Hi all, After 5 years of going back and forth to rheumy with joint and muscle pain, loss of hair leading to patches of baldness and a discoid looking rash called jesners lymphocytic infiltrate and extreme fatigue and being told I am ana negative after three times was really disheartening. It took
Anothermember11
in
LUPUS UK
3 years ago
ANA question
Hello, I hope you don't mind me butting in, but I'm trying to understand my ANA test result and this seemed like the best place to ask! I was just wondering if anyone could help me in decoding? I had an ANA test last week which has come back positive, with a titre of 1/1280. I'm aware of what the ANA
Hello, I hope you don't mind me butting in, but I'm trying to understand my ANA test result and this seemed like the best place to ask! I was just wondering if anyone could help me in decoding? I had an ANA test last week which has come back positive, with a titre of 1/1280. I'm aware of what the ANA
josee94
in
LUPUS UK
3 years ago
Inflammatory markers - auto immune?
Just wondering if anyone has had a positive ANA test as a result of PRD ie proctitis, colitis etc? My gp has recalled me to discuss this result and I'm a bit freaked out as I've been feeling awful. I finished chemorad for stage 1b3 cervical cancer in Dec 2019 and am in remission as far as I know.
Just wondering if anyone has had a positive ANA test as a result of PRD ie proctitis, colitis etc? My gp has recalled me to discuss this result and I'm a bit freaked out as I've been feeling awful. I finished chemorad for stage 1b3 cervical cancer in Dec 2019 and am in remission as far as I know.
Ladyparts
in
Pelvic Radiation Disease Association
3 years ago
rheumatoid arthritis
Hi I am new here, I was just referred to a Rheumatologist because my rhfactor came back at 32 and my ana test was 320 but all other tests were normal. Is this similar to anyone else? My doctor thinks I have rheumatoid arthritis
Hi I am new here, I was just referred to a Rheumatologist because my rhfactor came back at 32 and my ana test was 320 but all other tests were normal. Is this similar to anyone else? My doctor thinks I have rheumatoid arthritis
Hurting2012
in
NRAS
3 years ago
Roxadustat and thyroid-stimulating hormone suppression
Just posting this so that it has been posted. I have my doubts it will be relevant to more than a handful - but I could be wrong. [i]
Roxadustat and thyroid-stimulating hormone suppression
Atsuyuki Tokuyama, Hiroyuki Kadoya, Atsushi Obata, Takahiro Obata, Tamaki Sasaki, Naoki Kashihara Clinical
Just posting this so that it has been posted. I have my doubts it will be relevant to more than a handful - but I could be wrong. [i]
Roxadustat and thyroid-stimulating hormone suppression
Atsuyuki Tokuyama, Hiroyuki Kadoya, Atsushi Obata, Takahiro Obata, Tamaki Sasaki, Naoki Kashihara Clinical
helvella
Thyroid UK
in
Thyroid UK
3 years ago
CIDP *look it up* could MASK LUPUS
I have 1) CIDP (link following) 2) anemia and 3) positive ANA However my neurologist say NO LUPUS (NOT enough symptoms) CIDP is also a complex neurological condition https://www.gbs-cidp.org/ Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare disorder of the peripheral nerves
I have 1) CIDP (link following) 2) anemia and 3) positive ANA However my neurologist say NO LUPUS (NOT enough symptoms) CIDP is also a complex neurological condition https://www.gbs-cidp.org/ Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare disorder of the peripheral nerves
dawiz
in
LUPUS UK
3 years ago
Undiagnosed and positive ANA
I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schleroderma. I had follow up tests and no diagnosis. I’ve had 3 failed Endoscopes, as I woke up from sedation grabbing the camera, so Gastro has never found out, why I choke when eating, barium swallow confirmed GERD, I have
I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schleroderma. I had follow up tests and no diagnosis. I’ve had 3 failed Endoscopes, as I woke up from sedation grabbing the camera, so Gastro has never found out, why I choke when eating, barium swallow confirmed GERD, I have
angelharley
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
1
...
7
8
9
...
48
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
498 results
Thyroid UK
77 results
Scleroderma & Raynaud's UK (SRUK)
46 results
View top 10 communities
Sort by
Most Relevant
Newest