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Hello - can you help?
Hello I'm new to this site. I have had Lupus for a few years now but I'm now thinking that I might also have Fibromyalgia. I have asked to see my doctor to talk about this. The last time I saw my Rheumatologist in June he told me my blood tests showed negative for lupus at the moment - and I asked '
Hello I'm new to this site. I have had Lupus for a few years now but I'm now thinking that I might also have Fibromyalgia. I have asked to see my doctor to talk about this. The last time I saw my Rheumatologist in June he told me my blood tests showed negative for lupus at the moment - and I asked '
Maya23
in
Fibromyalgia Action UK
9 years ago
Three 'mild' positive Anti DsDNA tests, negative ANA, low C4.. Literally losing my hair!
Hi all, I've posted previously regarding my two positive DsDNA tests, but with negative ANA tests. I was informed by the nurse at Guys that the bloods are likely a bit of a fluke or an issue with the lab, because typically they would see a positive ANA with Lupus not just DsDNA and I'd probably be referred
Hi all, I've posted previously regarding my two positive DsDNA tests, but with negative ANA tests. I was informed by the nurse at Guys that the bloods are likely a bit of a fluke or an issue with the lab, because typically they would see a positive ANA with Lupus not just DsDNA and I'd probably be referred
jp83
in
LUPUS UK
9 years ago
Plaquenil withdrawal
Hi, Jules! I have just reinstated my full dose of plaquenil after six weeks of being put on half dose. The instant flaring I got in those six weeks was scary...my fingers "blew up" and my fatigue increased enormously. I have been back on the full dose for a few days and already am less tired, so I think
Hi, Jules! I have just reinstated my full dose of plaquenil after six weeks of being put on half dose. The instant flaring I got in those six weeks was scary...my fingers "blew up" and my fatigue increased enormously. I have been back on the full dose for a few days and already am less tired, so I think
Musicteach
in
LUPUS UK
9 years ago
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Sun shine
Hi all, was diagnosed with lupus about 18 months ago all the symptoms aches, fatigue, mouth and nose ulcers, positive ana and other blood results. Since diagnosis have avoided the sun like the plague. A couple of weeks ago I was doing a bit of weeding in the garden and got sun burn on the back of my
Hi all, was diagnosed with lupus about 18 months ago all the symptoms aches, fatigue, mouth and nose ulcers, positive ana and other blood results. Since diagnosis have avoided the sun like the plague. A couple of weeks ago I was doing a bit of weeding in the garden and got sun burn on the back of my
KarenC
in
LUPUS UK
9 years ago
ANA now negative but still ill
I was diagnosed with Lupus SLE 5 years ago now with several positive ANA results over 2 years. Yesterday I went to my appointment to see the Rheumatologist. I told him how poorly I'd been feeling - I've been flaring since Feb when the joint pain was so bad I could barely dress myself, then the fluey
I was diagnosed with Lupus SLE 5 years ago now with several positive ANA results over 2 years. Yesterday I went to my appointment to see the Rheumatologist. I told him how poorly I'd been feeling - I've been flaring since Feb when the joint pain was so bad I could barely dress myself, then the fluey
Maya23
in
LUPUS UK
9 years ago
Lupus
Hi please help I had ANA TEST and it was positive blood level 640 now 3 months later it show negative and also have cyst on my liver and kidney
Hi please help I had ANA TEST and it was positive blood level 640 now 3 months later it show negative and also have cyst on my liver and kidney
aqeela
in
LUPUS UK
9 years ago
May's Blog - Lynne's experience of her first rheumatology appointment
For May and June we have invited people to share their experiences about their first rheumatology appointment for our blog. This month's story comes from Lynne who fortunately had a very good experience. Thank you Lynne for taking the time to share your story.
My first appointment with my rheumatologist
For May and June we have invited people to share their experiences about their first rheumatology appointment for our blog. This month's story comes from Lynne who fortunately had a very good experience. Thank you Lynne for taking the time to share your story.
My first appointment with my rheumatologist
Paul_Howard
LUPUS UK
in
LUPUS UK
9 years ago
Newly diagnosed...
Hi, I do hope you all don't mind me joining you as I am in the UK but have recently been diagnosed with Sjögren's and been trying to find a bit more information. This is my 3rd autoimmune illness and I was diagnosed following a positive ANA with speckled pattern, positive anti Ro and anti La autoantibodies
Hi, I do hope you all don't mind me joining you as I am in the UK but have recently been diagnosed with Sjögren's and been trying to find a bit more information. This is my 3rd autoimmune illness and I was diagnosed following a positive ANA with speckled pattern, positive anti Ro and anti La autoantibodies
Toodlepip
in
The Australian Sjögren's Syndrome Association
9 years ago
ANA 1:100
I was diagnosed ANA(HEP 2) Note 3 + Higher Intensity , Strongly Positive I was diagnosed with above analysis . Just recovered from Dengue and i got rashes when visited a dermatologist we asked me to perform ANA test and later asked me to consult a Gastro. Is this dangerous , do we have a cure ?
I was diagnosed ANA(HEP 2) Note 3 + Higher Intensity , Strongly Positive I was diagnosed with above analysis . Just recovered from Dengue and i got rashes when visited a dermatologist we asked me to perform ANA test and later asked me to consult a Gastro. Is this dangerous , do we have a cure ?
siva-kothari
in
Liver4Life
9 years ago
Sar
Hi, I am waiting diagnosis for Lupus and seeing GP on Thursday. I have had 1 out of the 4 autoimmune test but not confirmed what one yet (GP is contacting hospital) not sure if it is the Lupus one. I have migrating arthritis - swollen and painful, thinning hair, sores in the nose and mouth, fatigue
Hi, I am waiting diagnosis for Lupus and seeing GP on Thursday. I have had 1 out of the 4 autoimmune test but not confirmed what one yet (GP is contacting hospital) not sure if it is the Lupus one. I have migrating arthritis - swollen and painful, thinning hair, sores in the nose and mouth, fatigue
SMabey
in
LUPUS UK
9 years ago
I need some urgent help and advice
I have always been told I have lupus coz I got ana positive blood but had loads ana positive blood tests but had biopsy come out negative now he put on letter of diagnosed of neurological weakness due to implegic migraines and scoliosis and chronic pain syndrome and benign joint hyper mobility and speckled
I have always been told I have lupus coz I got ana positive blood but had loads ana positive blood tests but had biopsy come out negative now he put on letter of diagnosed of neurological weakness due to implegic migraines and scoliosis and chronic pain syndrome and benign joint hyper mobility and speckled
shakylove
in
LUpus Patients Understanding and Support
9 years ago
My LFT readings versus normal
Hello again, Hope you are all well as can be. I have had a copy of the letter from my consultant and need help understanding the readings. My readings have gone from abnormal to deranged! Tests done on 16/04/2015 ALT 828 marginally better than original reading on 5/3/2015 ALP232 Total bilirubin 36
Hello again, Hope you are all well as can be. I have had a copy of the letter from my consultant and need help understanding the readings. My readings have gone from abnormal to deranged! Tests done on 16/04/2015 ALT 828 marginally better than original reading on 5/3/2015 ALP232 Total bilirubin 36
Teatotal
in
British Liver Trust
9 years ago
Discoid lupus
Hi everyone I was diagnosed with discoid lupus about 8 weeks ago I have a bald patch about 1" in diameter and also noticed last week another swelling on scalp my dermatologist has given me demovate scalp application so I'm hoping this works. I have also noticed my fringe is getting thin and the hair
Hi everyone I was diagnosed with discoid lupus about 8 weeks ago I have a bald patch about 1" in diameter and also noticed last week another swelling on scalp my dermatologist has given me demovate scalp application so I'm hoping this works. I have also noticed my fringe is getting thin and the hair
Niamh45
in
LUPUS UK
9 years ago
Anti-dsDNA numbers
Can anyone tell me what their Anti-dsDNA numbers were at when diagnosed? I've had a positive ANA with two positive Anti-dsDNA until my last round of blood work, they both came back normal. Is that normal? Does that mean I have nothing to worry about? With that I have high ph levels in my urine, and
Can anyone tell me what their Anti-dsDNA numbers were at when diagnosed? I've had a positive ANA with two positive Anti-dsDNA until my last round of blood work, they both came back normal. Is that normal? Does that mean I have nothing to worry about? With that I have high ph levels in my urine, and
CMP027
in
LUPUS UK
9 years ago
Need help desperately
Guys I'm 40 and my health has been decking for over a year now. It really started getting bad in Oct. I have had every test you could think of and seen numerous doctors. I have 2 doctors who say Lupus. I saw a Rhuemy yesterday. I left there so upset. He didn't take my symptoms seriously! All he did was
Guys I'm 40 and my health has been decking for over a year now. It really started getting bad in Oct. I have had every test you could think of and seen numerous doctors. I have 2 doctors who say Lupus. I saw a Rhuemy yesterday. I left there so upset. He didn't take my symptoms seriously! All he did was
djpotter1975
in
LUPUS UK
9 years ago
still not diagnosed
Hello all, I am new here. Don't really know where to turn at this point. I know when I had surgery these blogs helped me through it so here I am! I guess I will start at the beginning...about 6 years ago I had a bout with extreme digestive issues, rash and fatigue. I was working a lot and summed it up
Hello all, I am new here. Don't really know where to turn at this point. I know when I had surgery these blogs helped me through it so here I am! I guess I will start at the beginning...about 6 years ago I had a bout with extreme digestive issues, rash and fatigue. I was working a lot and summed it up
tsizzle
in
LUPUS UK
9 years ago
Joining the dots. Hospital multi disciplinary meeting?
Hi I am a 46 year old male . 2 years ago I had a nasty infection following minor surgery, since then I have not been right. I have had fatigue , joint pain, pins and needles, tendon pain and developed a gluten intolerance and Reynauds. I am ANA positive with both SCL70 (scleroderma) and Anti SM antibody
Hi I am a 46 year old male . 2 years ago I had a nasty infection following minor surgery, since then I have not been right. I have had fatigue , joint pain, pins and needles, tendon pain and developed a gluten intolerance and Reynauds. I am ANA positive with both SCL70 (scleroderma) and Anti SM antibody
butch54
in
LUPUS UK
9 years ago
Interesting research on antibodies
Was very interested by this research into how autoimmune disorders (AD) arise. My mother has rheumatoid arthritis and I have psoriasis and LS. This falls in line with the article I'm pasting from, 'When the immune system goes on the attack'. "Hal Scofield, Professor of Medicine at the University of Oklahoma's
Was very interested by this research into how autoimmune disorders (AD) arise. My mother has rheumatoid arthritis and I have psoriasis and LS. This falls in line with the article I'm pasting from, 'When the immune system goes on the attack'. "Hal Scofield, Professor of Medicine at the University of Oklahoma's
Shezian
in
Vasculitis UK
9 years ago
Discoid lupus
Hi I have recently been diagnosed with discoid lupus and now having Ana test done to check for systemic. I already have a scar and bald patch on the side of my head and I'm afraid of what the future will bring. Has anybody got any advice. Thanks
Hi I have recently been diagnosed with discoid lupus and now having Ana test done to check for systemic. I already have a scar and bald patch on the side of my head and I'm afraid of what the future will bring. Has anybody got any advice. Thanks
Niamh45
in
LUPUS UK
9 years ago
Is this related to Lupas
Hi have come up with little red dots on my skin all sudden like bit blood there. Anyone with Lupas have this? I have another autoimmune disease called ankylosing spondylitits. My doctors think I have Lupas but rhematolgists don't. Tested ana positive and double standed dna posive also with blood pattern
Hi have come up with little red dots on my skin all sudden like bit blood there. Anyone with Lupas have this? I have another autoimmune disease called ankylosing spondylitits. My doctors think I have Lupas but rhematolgists don't. Tested ana positive and double standed dna posive also with blood pattern
Katrinapidd
in
LUpus Patients Understanding and Support
9 years ago
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