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Hospital docs reading notes after I've left!!!
Went for routine rheumatology appointment a few weeks ago. The doc dropped something on the floor as I walked in. She went down on hands and knees to pick it up but was down there for a few minuets to the point I asked if I should help, no she replied. I'm not used to doctors waving their bums at me
Went for routine rheumatology appointment a few weeks ago. The doc dropped something on the floor as I walked in. She went down on hands and knees to pick it up but was down there for a few minuets to the point I asked if I should help, no she replied. I'm not used to doctors waving their bums at me
avtargill31
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Dr Graham RV Hughes Blog Post, May 2018
May 2018 by Professor Graham R V Hughes MD FRCP At last, successive days of hot sunny weather! Last week’s royal wedding in Windsor was bathed in glorious sunshine and clear blue skies. My plane home from Lisbon descended into Heathrow directly over Windsor Castle – we could make out the dwindling
May 2018 by Professor Graham R V Hughes MD FRCP At last, successive days of hot sunny weather! Last week’s royal wedding in Windsor was bathed in glorious sunshine and clear blue skies. My plane home from Lisbon descended into Heathrow directly over Windsor Castle – we could make out the dwindling
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
New here: AMA + GGT?
Hello, I'm a 30 year old female. Months ago I saw my family doctor about a range of symptoms and he did a bunch of tests. Initially the results showed ANA positive at 1:640 cytoplasmic reticular and AMA positive 1:320. I've seen a rheumatologist who referred me to a gastroenterologist, I'm still waiting
Hello, I'm a 30 year old female. Months ago I saw my family doctor about a range of symptoms and he did a bunch of tests. Initially the results showed ANA positive at 1:640 cytoplasmic reticular and AMA positive 1:320. I've seen a rheumatologist who referred me to a gastroenterologist, I'm still waiting
Hidden
in
PBC Foundation
6 years ago
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ANA positive can turn negative ANA
I had a severe allergy reaction and found ANA positive 4 months ago. Had a lot of issues joint and muscles pain. Breathing difficulties and chest pain etc. Now my Dr asked to repeat the test. It is negative. But my issues never went off. I am badly suffering with body pains, blood sugar up and down time
I had a severe allergy reaction and found ANA positive 4 months ago. Had a lot of issues joint and muscles pain. Breathing difficulties and chest pain etc. Now my Dr asked to repeat the test. It is negative. But my issues never went off. I am badly suffering with body pains, blood sugar up and down time
DGHL
in
LUPUS UK
6 years ago
Broken bones, vertebrae, loss of calcium
Hello I'm asking for help, we are losing hope. My sister, who is 54 years old since november 2017 has broken 11 vertebrae it was not caused by fall or some injury. To this day, doctors do not now how to diagnose the illness or find the cause. The calcium is losing and is not saving to the bones. The
Hello I'm asking for help, we are losing hope. My sister, who is 54 years old since november 2017 has broken 11 vertebrae it was not caused by fall or some injury. To this day, doctors do not now how to diagnose the illness or find the cause. The calcium is losing and is not saving to the bones. The
nataly2237
in
Bone Health and Osteoporosis UK
6 years ago
Just looking for some advice!
I suffer from Juevenile Rheumatoid Arthritis, but was diagnosed with Lupus last year by my GO. Circumstances have forces me to stop working and recently in trying to get treatment the ANA test result came back normal. I know the symptoms from RA, and although they are similar, there has to be something
I suffer from Juevenile Rheumatoid Arthritis, but was diagnosed with Lupus last year by my GO. Circumstances have forces me to stop working and recently in trying to get treatment the ANA test result came back normal. I know the symptoms from RA, and although they are similar, there has to be something
chellykm
in
LUPUS UK
6 years ago
Sick and tired of feeling sick and tired 😓
Hi all I’ve never posted before but really wanted some advice - I know no one here is a doctor but I really appreciate your opinions. I think that I may have lupus but despite having a positive ANA and P-ANCA the GP told me the results were TOO WEAKLY positive to be a concern despite me being symptomatic
Hi all I’ve never posted before but really wanted some advice - I know no one here is a doctor but I really appreciate your opinions. I think that I may have lupus but despite having a positive ANA and P-ANCA the GP told me the results were TOO WEAKLY positive to be a concern despite me being symptomatic
Bahmum
in
LUPUS UK
6 years ago
Rheumatoid Factor of 96 but Negative ANA test...what does that mean?
My name is Katherine and I am a 33 year old female. I have moving joint pain in pretty much every joint in my body (elbows, fingers, back, hips, knees, feet etc). My RF came back 96 but my ANA test came out negative. Can anyone explain what that means? Thanks so much!
My name is Katherine and I am a 33 year old female. I have moving joint pain in pretty much every joint in my body (elbows, fingers, back, hips, knees, feet etc). My RF came back 96 but my ANA test came out negative. Can anyone explain what that means? Thanks so much!
stevevdh
in
NRAS
6 years ago
Professor Graham Hughes Blog: April 2018
April 2018
01 April 2018
by Professor Graham R V Hughes MD FRCP
April, at least here in the South East of England, has continued the long, dark, wet winter. Even Scotland is doing better than us! The good news is that our website (www.ghic.world) is now fully up and running.
April 2018
01 April 2018
by Professor Graham R V Hughes MD FRCP
April, at least here in the South East of England, has continued the long, dark, wet winter. Even Scotland is doing better than us! The good news is that our website (www.ghic.world) is now fully up and running.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Awaiting Diagnosis
Hi, I am a newbie here. I am currently having numerous tests for autoimmune disease. My consultant wrote to me saying possible connective tissue disease alongside possible PBC. My AMA antibodies were positive at 100 and positive ANA at 3200. Im am undergoing muscle biopsies this week and nerve conduction
Hi, I am a newbie here. I am currently having numerous tests for autoimmune disease. My consultant wrote to me saying possible connective tissue disease alongside possible PBC. My AMA antibodies were positive at 100 and positive ANA at 3200. Im am undergoing muscle biopsies this week and nerve conduction
Tallulah73
in
PBC Foundation
6 years ago
First Actemra infusion today
A bit nervous, today I will be having my first Actemra infusion. In January I started on 60 mg of prednisone, am down to 30 mg currently. My Rheumatologist wants me to start the Actemra so I can titrate off of the prednisone faster due to my experiencing so many negative side effects from prednisone
A bit nervous, today I will be having my first Actemra infusion. In January I started on 60 mg of prednisone, am down to 30 mg currently. My Rheumatologist wants me to start the Actemra so I can titrate off of the prednisone faster due to my experiencing so many negative side effects from prednisone
CRW-68
in
PMRGCAuk
6 years ago
Negative ANA?
I've not been diagnosed with Lupus, but I do have many of its symptoms. I've had a few blood tests and the ANA keeps coming back as negative. Has anyone had several negative ANA results and after several years get a positive? They seem to use this as the main diagnostic to confirm if you have Lupus
I've not been diagnosed with Lupus, but I do have many of its symptoms. I've had a few blood tests and the ANA keeps coming back as negative. Has anyone had several negative ANA results and after several years get a positive? They seem to use this as the main diagnostic to confirm if you have Lupus
chriscarter
in
LUPUS UK
6 years ago
Long wait is finally over
Today’s the day I’ve been waiting for months. My rheumatologist appointment after receiving the letter stating my Ana test came back strongly positive with an ANA of 1:640 with a homogeneous pattern. Firstly I know I’ll be asking what the hell that means?!?? Cause I haven’t a clue. But what am I supposed
Today’s the day I’ve been waiting for months. My rheumatologist appointment after receiving the letter stating my Ana test came back strongly positive with an ANA of 1:640 with a homogeneous pattern. Firstly I know I’ll be asking what the hell that means?!?? Cause I haven’t a clue. But what am I supposed
lisa___s
in
LUPUS UK
6 years ago
Positive ANA with Fibro diagnosis?
Have many symptoms of Lupus saw new Rheumatologist my last one retired i have most of the symptoms listed for Lupus which seem to be the same as Lupus i got my test results back and all negative except tge ANA is positive with speckled pattern and highest titer it can go up to. Anyone else have this
Have many symptoms of Lupus saw new Rheumatologist my last one retired i have most of the symptoms listed for Lupus which seem to be the same as Lupus i got my test results back and all negative except tge ANA is positive with speckled pattern and highest titer it can go up to. Anyone else have this
Michiganpbc
in
Fibromyalgia Action UK
6 years ago
Someone please help.
My wife had a positive ana of 1:100 last month. Then a kidney biopsy was performed due to hematuria. The biopsy results says iga nephropath non active non chronic. Her blood test for dsdna and other auto immune indicators are negatuve. She had a rash in her nose and her cheek this past week. Went to
My wife had a positive ana of 1:100 last month. Then a kidney biopsy was performed due to hematuria. The biopsy results says iga nephropath non active non chronic. Her blood test for dsdna and other auto immune indicators are negatuve. She had a rash in her nose and her cheek this past week. Went to
donnyray
in
LUPUS UK
6 years ago
Please help me understand
I am very confused and worried. My babyboy (10 years) may or may not at this point have lupus. We received lab results back with a positive Ana ifa... and a speckled Ana pattern 1.... as you can imagine none of this makes any sense to me at all. We have an appt in June for a emg/nerve conduction
I am very confused and worried. My babyboy (10 years) may or may not at this point have lupus. We received lab results back with a positive Ana ifa... and a speckled Ana pattern 1.... as you can imagine none of this makes any sense to me at all. We have an appt in June for a emg/nerve conduction
Dominobob
in
LUPUS UK
6 years ago
Positive ana 1.8 speckled neurologist ordered ana panel positive 19 high anti double stranded dna homogenous I don't understand is it lupus
Hello, my name is Kelly an I'm 40 years old. I'm exhausted all the time some days I can barely hold my head up. I hurt consistently. I have a red under the skin lacy like rash started My upper chest right under neck an has spread under skin up neck an across cheeks an nose gets worse in sun light.My
Hello, my name is Kelly an I'm 40 years old. I'm exhausted all the time some days I can barely hold my head up. I hurt consistently. I have a red under the skin lacy like rash started My upper chest right under neck an has spread under skin up neck an across cheeks an nose gets worse in sun light.My
KellyRenai
in
LUPUS UK
6 years ago
Worried for my 19 year old daughter!
I have SLE and was diagnosed in 2001 although I had been experiencing symptoms since 1991. My Aunty had rheumatoid arthritis and my father had raynauds syndrome. My daughter has IBS and I have suspected, Lupus for a while due to some mild symptoms. She had an ANA Test done which was negative and a blood
I have SLE and was diagnosed in 2001 although I had been experiencing symptoms since 1991. My Aunty had rheumatoid arthritis and my father had raynauds syndrome. My daughter has IBS and I have suspected, Lupus for a while due to some mild symptoms. She had an ANA Test done which was negative and a blood
Nokuse
in
LUPUS UK
6 years ago
Positive ENA screening test - Help I don't understand
I have just come back from an appointment with my GP who wanted to speak to me regarding my recent blood test. Unfortunately, I saw a different GP from usual who did not understand the results anymore than I did! She is going to write to the rheumatologist. So I have a positive ANA 1:320 (I have had
I have just come back from an appointment with my GP who wanted to speak to me regarding my recent blood test. Unfortunately, I saw a different GP from usual who did not understand the results anymore than I did! She is going to write to the rheumatologist. So I have a positive ANA 1:320 (I have had
HedgeEnd
in
LUPUS UK
6 years ago
Blood results
Hi all, I've been poorly, for around 4 years now, seen lots of different specialists, had loads different tests etc & last week I had my bloods done again & they found I have a positive ANA, SSA & Smooth Muscle, but when I'm tested for Lupus, it's inconclusive, this will be my 2 test, now need testing
Hi all, I've been poorly, for around 4 years now, seen lots of different specialists, had loads different tests etc & last week I had my bloods done again & they found I have a positive ANA, SSA & Smooth Muscle, but when I'm tested for Lupus, it's inconclusive, this will be my 2 test, now need testing
Angellealea1
in
LUPUS UK
6 years ago
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