Hey everybody, I’m back again with more results and more confusion!
My neck swelling and other pain symptoms have been getting worse, I’ve had loads more bloods for various things and after a definite positive ANA (autoimmune profile) have been told likely Lupus SLE so awaiting a rheumatology appointment.... however!!
I got my latest thyroid bloods today. For 20 years my tsh was relatively stable, hovering around 1, settled on 125mcg levo for the last 8 years. My results from this year as follows
then July 2.39! This seems like a leap!!
The GP refused for the second time today to consider that my thyroid is the problem. She flat out refused an ultrasound for my neck for the sensation of swelling and trouble swallowing, insisting I’m within range (0.35-4.94) so must be another reason for my aches, pains, restless legs, muscle twitching etc etc. My vitamin D was tested and now great for last 2 months at 129, B12 improved a lot, been carefully supplementing and these levels fine. Ferritin good, folate a touch low but mid range. Now GF and digestion is better but now constipated instead of the runs!!
My question really is am I taking an appropriate dose? Could this be some sort of thyroid flare? (Definitely Hashimoto, antibodies 154) What else can I try?? I’m now facing a wait until Jan 2019 for a rheumatology appointment that I don’t think I even need.
This is so frustrating, I’d really appreciate some guidance from wiser people than me, please help.