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Any help would be appreciated
I am new to this site although have been reading some of your posts over the last week or so and would be very grateful for some advice as I don't really know what fibromyalgia is...I will try to make this as short as possible. A couple of years ago I was diagnosed with hashimoto's and sent to a rheumy
I am new to this site although have been reading some of your posts over the last week or so and would be very grateful for some advice as I don't really know what fibromyalgia is...I will try to make this as short as possible. A couple of years ago I was diagnosed with hashimoto's and sent to a rheumy
puffyface
in
Fibromyalgia Action UK
8 years ago
Positive ANA. Getting Rheumatologist referral.
Hi everyone :) I haven't been on for a while- last post I was waiting for the results of blood tests. Got tested for - C Reactive Protein - Connective tissue ANA screen - Rheumatoid factor - Coeliac (Tissue transglutaminase IgA) GP called and said that my ANA came back positive and I've to go down to
Hi everyone :) I haven't been on for a while- last post I was waiting for the results of blood tests. Got tested for - C Reactive Protein - Connective tissue ANA screen - Rheumatoid factor - Coeliac (Tissue transglutaminase IgA) GP called and said that my ANA came back positive and I've to go down to
Nat1291
in
LUPUS UK
8 years ago
Letter with Diagnosis - Unsure what Tests mean?
So I had my letter from the Lupus Clinic today with a Diagnosis of Hughes Syndrome/Sjogrens and Lupus although some of my antibody tests were negative. What does a ANA Positive 1:320 Speckled and Diffused mean? Strange as in the biggest flare of my life but CRP and ESR were normal but WBC/Neutrophils
So I had my letter from the Lupus Clinic today with a Diagnosis of Hughes Syndrome/Sjogrens and Lupus although some of my antibody tests were negative. What does a ANA Positive 1:320 Speckled and Diffused mean? Strange as in the biggest flare of my life but CRP and ESR were normal but WBC/Neutrophils
riannabri
in
LUPUS UK
8 years ago
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First GP Appt at New GP Practice
I found the GP Practice I had been with for nearly 25yrs becoming more amd more disorganised, so I registered with another in January. I had my first appt today - not an emergency, just a hello and can you enlighten me to what is going on with the Rheumy who has appeared to dump me? A delightful GP
I found the GP Practice I had been with for nearly 25yrs becoming more amd more disorganised, so I registered with another in January. I had my first appt today - not an emergency, just a hello and can you enlighten me to what is going on with the Rheumy who has appeared to dump me? A delightful GP
Lupiknits
in
LUPUS UK
8 years ago
Update from my last post... 1 slightly positive Ana and 2 negative ones, no symptoms... NO Lupus!
I am finally been tested third time for the ANA, and the results were negative. From the past 2 months since I saw my last rheumatologist, I haven't had any new symptoms, and I actually feel way better than before. Doctor told me that I don't need to worry about it anymore because he assured me I don't
I am finally been tested third time for the ANA, and the results were negative. From the past 2 months since I saw my last rheumatologist, I haven't had any new symptoms, and I actually feel way better than before. Doctor told me that I don't need to worry about it anymore because he assured me I don't
guis
in
LUPUS UK
8 years ago
Wrong diagnosis??
I'm normally quite positive..and normally feel much better than I have done for the last few weeks. I definitely don't suffer as much as some of the poor people on this site...but today I'm feeling let down (again) by my NHS GP, aching all over, exhausted...and a bit teary. I went to see him a couple
I'm normally quite positive..and normally feel much better than I have done for the last few weeks. I definitely don't suffer as much as some of the poor people on this site...but today I'm feeling let down (again) by my NHS GP, aching all over, exhausted...and a bit teary. I went to see him a couple
puffyface
in
LUPUS UK
8 years ago
Should I go to A&E ?
Hello , I would be very grateful for people's thoughts on this. I have just been referred to rheumatology following a positive ANA test and symptoms that to me , point towards lupus. These include joint pain , eyebrow hairloss loss and burning rash which comes and goes over my face. Last week I suddenly
Hello , I would be very grateful for people's thoughts on this. I have just been referred to rheumatology following a positive ANA test and symptoms that to me , point towards lupus. These include joint pain , eyebrow hairloss loss and burning rash which comes and goes over my face. Last week I suddenly
aries67
in
LUPUS UK
8 years ago
Inflammatory mystery
So Ive been having horrible muscular aches and joint pain for months since last September and saw a dermatologist for a skin rash I had who told me it was a sun allergy (Solar urticaria). I was still continuing to get pain and fatigue, headaches and tingling in my toes and hands. I then as referred to
So Ive been having horrible muscular aches and joint pain for months since last September and saw a dermatologist for a skin rash I had who told me it was a sun allergy (Solar urticaria). I was still continuing to get pain and fatigue, headaches and tingling in my toes and hands. I then as referred to
lizd121
in
LUPUS UK
8 years ago
Multiple symptoms
Hello, I'm new to this forum but have been a subscriber of health unlocked for a while. I was wondering whether anyone may have experienced autoimmune symptoms but don't have a positive Ana.? I have raynaurds, or at least a type or circulation / vascular disorder. I constantly feel light headed/ slightly
Hello, I'm new to this forum but have been a subscriber of health unlocked for a while. I was wondering whether anyone may have experienced autoimmune symptoms but don't have a positive Ana.? I have raynaurds, or at least a type or circulation / vascular disorder. I constantly feel light headed/ slightly
Chillybilly
in
Thyroid UK
8 years ago
Scleroderma in a 22 yr male????????
Hi,everyone....I am a 22 year old male....I was having Raynaud's like symptoms since last two winters though I didn't get it this winter perhaps bcoz of a warmer climate....I am having shortness of breath since last two years even at rest which I have noticed getting aggravated after talking food and
Hi,everyone....I am a 22 year old male....I was having Raynaud's like symptoms since last two winters though I didn't get it this winter perhaps bcoz of a warmer climate....I am having shortness of breath since last two years even at rest which I have noticed getting aggravated after talking food and
Fick
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Disappointing news
I was really pleased to be able to report that I had been told that there was now no inflammation in my liver, it was the Research nurse that told me a message from the doctor as I was not eligible for the RESOLVE-IT trial. My bloods were all within normal range and I was feeling over the moon. I had
I was really pleased to be able to report that I had been told that there was now no inflammation in my liver, it was the Research nurse that told me a message from the doctor as I was not eligible for the RESOLVE-IT trial. My bloods were all within normal range and I was feeling over the moon. I had
annew272
in
British Liver Trust
8 years ago
Sjrogens/Lupus/May be/Help
Anyone with ANA positive homogenous pattern titre 1:1280 as well as a lupus anticoagulant which was detected. Often have aching episodes flu like symptoms and feel very unwell especially on waking after lying on my back and bottom. Often have bouts of faecal urgency and now incomplete evacuation. This
Anyone with ANA positive homogenous pattern titre 1:1280 as well as a lupus anticoagulant which was detected. Often have aching episodes flu like symptoms and feel very unwell especially on waking after lying on my back and bottom. Often have bouts of faecal urgency and now incomplete evacuation. This
Sandra2468
in
Arthritis Action
8 years ago
Blood tests
Hi, I'm looking for some help with interpreting my blood test results. I feel that everything is being looked at separately and no connections are being made. I had Laryngeal cancer last year and was treated with radical radiotherapy, my treatment finished in January 2016. I was diagnosed hypothyroid
Hi, I'm looking for some help with interpreting my blood test results. I feel that everything is being looked at separately and no connections are being made. I had Laryngeal cancer last year and was treated with radical radiotherapy, my treatment finished in January 2016. I was diagnosed hypothyroid
Jackie-2124
in
Thyroid UK
8 years ago
New Here - Working on a Diagnosis
Hello everyone! I just thought I'd share an introduction. I am Chelsea, almost 39 married with four kiddos (1, 6, 11, & 14). I have had high platelets since at least 2006. I did have two normal counts in 2005 but I was pregnant at that time which sometimes lowers them so we are searching for earlier
Hello everyone! I just thought I'd share an introduction. I am Chelsea, almost 39 married with four kiddos (1, 6, 11, & 14). I have had high platelets since at least 2006. I did have two normal counts in 2005 but I was pregnant at that time which sometimes lowers them so we are searching for earlier
ChelseaF
in
MPN Voice
8 years ago
Only you will get how exciting this is...
Ok, so we are taking our 7 year old away for the night to stay near a hotel near Longleat for a half term treat (in a vague attempt to beat the crowds in the morning). I take the usual deep breath (as am aware that eating out 9 times out of 10 has resulted in some unwanted symptoms reappearing). Plans
Ok, so we are taking our 7 year old away for the night to stay near a hotel near Longleat for a half term treat (in a vague attempt to beat the crowds in the morning). I take the usual deep breath (as am aware that eating out 9 times out of 10 has resulted in some unwanted symptoms reappearing). Plans
Hidden
in
Gluten Free Guerrillas
8 years ago
Please help!
Hello APS family. How is everyone doing? I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it. I need some help and some advice from you guys! About two weeks ago I went to the ER, because of a scotoma on my left eye vision and some zig zag
Hello APS family. How is everyone doing? I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it. I need some help and some advice from you guys! About two weeks ago I went to the ER, because of a scotoma on my left eye vision and some zig zag
Textra88
in
Hughes Syndrome APS Forum
8 years ago
Tingling Lips
Does anyone else have tingling or numb lips, fingers or toes? Or burning arms and legs as if the blood in your veins is red hot and enlarged? I've had a very awkward doctor who for the last 4 years has hinted that all my symptoms, crippling fatigue and brain fog being the most debilitating, are in my
Does anyone else have tingling or numb lips, fingers or toes? Or burning arms and legs as if the blood in your veins is red hot and enlarged? I've had a very awkward doctor who for the last 4 years has hinted that all my symptoms, crippling fatigue and brain fog being the most debilitating, are in my
HRW2017
in
LUPUS UK
8 years ago
Looking for KIND Rheumatologist in Essex
So my journey has been a long painful one, I am not yet officially diagnosed but have positive ANA, Anti DNA and am totally disabled by what I and a few other docs think is Lupus or a connective Tissue Disease, I also have Hashimotos and lots of other high Autoimmune Antibodies. My positive tests go
So my journey has been a long painful one, I am not yet officially diagnosed but have positive ANA, Anti DNA and am totally disabled by what I and a few other docs think is Lupus or a connective Tissue Disease, I also have Hashimotos and lots of other high Autoimmune Antibodies. My positive tests go
riannabri
in
LUPUS UK
8 years ago
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with ..
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
Wendy39
in
LUPUS UK
8 years ago
Tests
Hi, Last year I started feeling poorly, red rash, joint pain and feeling extremely tired. At first I thought it was just a reaction to something until I started to feel very poorly, Like having the flu. I went to see several doctors who were not sure what was wrong so they sent me to a rheumatologist
Hi, Last year I started feeling poorly, red rash, joint pain and feeling extremely tired. At first I thought it was just a reaction to something until I started to feel very poorly, Like having the flu. I went to see several doctors who were not sure what was wrong so they sent me to a rheumatologist
Larny
in
LUPUS UK
8 years ago
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