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Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Can it be done?
Hi all, I wanted to ask . Thyroid has been removed and been on thyroxine 10 years. Is there a way to stop , take a natural form? Feel ita not good for my body.. feel weaker each year. Love to hear some thoughts or personal expirience 🥲
Hi all, I wanted to ask . Thyroid has been removed and been on thyroxine 10 years. Is there a way to stop , take a natural form? Feel ita not good for my body.. feel weaker each year. Love to hear some thoughts or personal expirience 🥲
Contra21
in
Thyroid UK
6 months ago
Latest blood results
No wonder I’m feeling unwell again. TSH up, T4 and T3 down. So glad I have started on 75mcgs Levo now. Hopefully I’ll start to feel better again soon.
No wonder I’m feeling unwell again. TSH up, T4 and T3 down. So glad I have started on 75mcgs Levo now. Hopefully I’ll start to feel better again soon.
MsWhistledown
in
Thyroid UK
2 months ago
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Why do I suddenly feel terrible but still taking Armour?
I have been happy as a clam and able to function and be part of the world since I started Armour two grains a day in Sept 2022. This was after a year on levo that did nothing for me. Around Xmas 2023, I started feeling sluggish and constipated. Bloods were done mid Feb through my private thyroid doctor
I have been happy as a clam and able to function and be part of the world since I started Armour two grains a day in Sept 2022. This was after a year on levo that did nothing for me. Around Xmas 2023, I started feeling sluggish and constipated. Bloods were done mid Feb through my private thyroid doctor
lauraleeds666
in
Thyroid UK
2 months ago
My TSH level is under the range.
I value this knowledgeable forum very much, thank you for all your help. I had my blood tested last week. The draw was at 9.30am and my last Levo medication was taken the previous morning at 8am. I am currently on 125 mg Levothyroxine which I take on waking up and only drink water for the first 2
I value this knowledgeable forum very much, thank you for all your help. I had my blood tested last week. The draw was at 9.30am and my last Levo medication was taken the previous morning at 8am. I am currently on 125 mg Levothyroxine which I take on waking up and only drink water for the first 2
Rezzar
in
Thyroid UK
2 months ago
Official trial for patients to stop their thyroxine for 6 weeks. Has anyone done this?
Have any members done this trial? This trial run by Newcastle Hospitals Trust ends in November 2024. It involves hypothyroid patients stopping their thyroxine for 6 weeks - to see how they felt when not taking thyroxine, and if they'd recommend a friend doing the same. ITT Improve Thyroid Treatment
Have any members done this trial? This trial run by Newcastle Hospitals Trust ends in November 2024. It involves hypothyroid patients stopping their thyroxine for 6 weeks - to see how they felt when not taking thyroxine, and if they'd recommend a friend doing the same. ITT Improve Thyroid Treatment
TaraJR
in
Thyroid UK
6 months ago
Study
Apologies if I’m way behind and have missed a thread or two on this topic. Has anyone heard of the current study in Newcastle where patients stop their T4 for 6 weeks so doctors can see if they really need it?
Apologies if I’m way behind and have missed a thread or two on this topic. Has anyone heard of the current study in Newcastle where patients stop their T4 for 6 weeks so doctors can see if they really need it?
Milkyway88
in
Thyroid UK
6 months ago
thyroid s supplier
I’ve been on t3 for 18 months (non converter). Had severe hair loss & itchy eyes. Wasn’t sure why - thot menopause! After everyone talking about TR NDT I was going through nhs files & found 3 months worth (at time my adrenals were smashed so thought non working TR was dodgy stopped taking it). In 6
I’ve been on t3 for 18 months (non converter). Had severe hair loss & itchy eyes. Wasn’t sure why - thot menopause! After everyone talking about TR NDT I was going through nhs files & found 3 months worth (at time my adrenals were smashed so thought non working TR was dodgy stopped taking it). In 6
joydot
in
Thyroid UK
6 months ago
PMR Flare
So I think I might be in full flare. Last September, I was told to taper off pred. I ignored what I was told about being down to zero by the end of the year as I considered it unrealistic and went at my own pace. By mid Feb, I was hovering around 3/2.5/2 mg and by then, my legs, hips and back were
So I think I might be in full flare. Last September, I was told to taper off pred. I ignored what I was told about being down to zero by the end of the year as I considered it unrealistic and went at my own pace. By mid Feb, I was hovering around 3/2.5/2 mg and by then, my legs, hips and back were
Gimme
in
PMRGCAuk
3 months ago
ANA & Connective Tissue Disorder results Graves
Hoping for some help. I got called into the doctors on Monday to discuss my latest bloods & my continued weight loss, I had already discussed my thyroid bloods with the endocrine nurse so was not really sure what is was about. My GP said that I had tested positive for ANA & connective tissue disease
Hoping for some help. I got called into the doctors on Monday to discuss my latest bloods & my continued weight loss, I had already discussed my thyroid bloods with the endocrine nurse so was not really sure what is was about. My GP said that I had tested positive for ANA & connective tissue disease
Mah43
in
Thyroid UK
2 months ago
blood pressure
Hi, Has anyone experienced high blood pressure and do you know if this is from too much medication or a hypo symptom? I am homozygous dio2 and T4 on last bloods was 15 (10-22) and t3 was 6.6 (3.1-6.8). At the time I was on 87.5 T4 and 20 T3 but I had only been on the 20 T3 for a few weeks when my
Hi, Has anyone experienced high blood pressure and do you know if this is from too much medication or a hypo symptom? I am homozygous dio2 and T4 on last bloods was 15 (10-22) and t3 was 6.6 (3.1-6.8). At the time I was on 87.5 T4 and 20 T3 but I had only been on the 20 T3 for a few weeks when my
Denny39
in
Thyroid UK
6 months ago
I have appt booked with endocrinologist re my low T3 level, what should I be pushing for? Advice for best outcome from this consultation.
My free T3 level is 4.2 (range 3.1 - 6.8) , T4 is 20.50 (range 12 - 22) and TSH is 0.311 (range 0.27 - 4.20) Taking 75mg levothyroxine currently I have made an appointment with an Endocrinologist privately, but he also is an NHS consultant at Ipswich hospital . I am going there to ask for
My free T3 level is 4.2 (range 3.1 - 6.8) , T4 is 20.50 (range 12 - 22) and TSH is 0.311 (range 0.27 - 4.20) Taking 75mg levothyroxine currently I have made an appointment with an Endocrinologist privately, but he also is an NHS consultant at Ipswich hospital . I am going there to ask for
Alternatively
in
Thyroid UK
2 months ago
Thyroid test results
I have had an underactive thyroid for 30 years. My Levothyroxine dose is now 100mcg daily and was reduced from the 125 mcg during the pandemic after I lost 3 stones in weight. I have never been given my full annual thyroid test results in the past but they have now been made accessible online. When
I have had an underactive thyroid for 30 years. My Levothyroxine dose is now 100mcg daily and was reduced from the 125 mcg during the pandemic after I lost 3 stones in weight. I have never been given my full annual thyroid test results in the past but they have now been made accessible online. When
Manycrafts
in
Thyroid UK
2 months ago
Is there any correlation between low thyroid hormones & spinal stenosis
Hi, Just curious. Was just diagnosed with severe spinal stenosis. I believe it has been going on for years & reasons to believe possibly not acquired but congenital. I know thyroid issues do not cause it & if there is a congenital aspect to mine of course it is not the reason. But researching any links
Hi, Just curious. Was just diagnosed with severe spinal stenosis. I believe it has been going on for years & reasons to believe possibly not acquired but congenital. I know thyroid issues do not cause it & if there is a congenital aspect to mine of course it is not the reason. But researching any links
Litatamon
in
Thyroid UK
6 months ago
Hopefully getting closer to just a bit more tweaking...?
Right, over the speed bump that happened around Feb. After speaking to endo, reduced Levo to 50mcg and am back up to 5mcg x3/ day T3. I have been feeling more stable and a bit more alert, more energy for about 4 weeks. Just recently started slowing down again, sluggish bowels, cold intolerance, dry skin
Right, over the speed bump that happened around Feb. After speaking to endo, reduced Levo to 50mcg and am back up to 5mcg x3/ day T3. I have been feeling more stable and a bit more alert, more energy for about 4 weeks. Just recently started slowing down again, sluggish bowels, cold intolerance, dry skin
Caffeinefreezone
in
Thyroid UK
2 months ago
Add more t4 and quit t3 ?
I just got my test results back , I'm on levothyroxine 75mcg/ 5 days a week and 100mcg 2/days a week. I also take 3mcg of Cytomel. My body can't handle a higher dose of Cytomel. It makes me very anxious. I am wondering if I should go back to T4 only, maybe a bit more? (I must add that there were
I just got my test results back , I'm on levothyroxine 75mcg/ 5 days a week and 100mcg 2/days a week. I also take 3mcg of Cytomel. My body can't handle a higher dose of Cytomel. It makes me very anxious. I am wondering if I should go back to T4 only, maybe a bit more? (I must add that there were
Sofie007
in
Thyroid UK
2 months ago
Sky high hba1c
I was diagnosed May/June 23. I had just had my diabetes check and all was OK. Fast forward to December check and definitely not ok! I had been eating low carb and had lost weight. Life became very difficult from October with a nasty fall, mental heath crisis for our grandson while we were looking
I was diagnosed May/June 23. I had just had my diabetes check and all was OK. Fast forward to December check and definitely not ok! I had been eating low carb and had lost weight. Life became very difficult from October with a nasty fall, mental heath crisis for our grandson while we were looking
Noideas
in
PMRGCAuk
6 months ago
Important caveat regarding estrogen therapy
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
janebob99
in
Prostate Cancer Network
6 months ago
reposting - sweet spot missed advice needed on dosing
I messed up my last post so trying again (sorry to greygoose and Beads who replied to my first attempt! After my previous results, at my annual thyroid check with GP, of extremely low TSH and v high T4 I was told to reduce my levothyroxine. I’ve retested with Monitor My Health and looking at my new
I messed up my last post so trying again (sorry to greygoose and Beads who replied to my first attempt! After my previous results, at my annual thyroid check with GP, of extremely low TSH and v high T4 I was told to reduce my levothyroxine. I’ve retested with Monitor My Health and looking at my new
Slowrunner1208
in
Thyroid UK
2 months ago
Weak positive
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Demilouise
in
LUPUS UK
6 months ago
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