Study: Apologies if I’m way behind and have... - Thyroid UK

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Study

Milkyway88 profile image
9 Replies

Apologies if I’m way behind and have missed a thread or two on this topic.

Has anyone heard of the current study in Newcastle where patients stop their T4 for 6 weeks so doctors can see if they really need it?

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Milkyway88 profile image
Milkyway88
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9 Replies
PurpleNails profile image
PurpleNailsAdministrator

Another member has just posted about this.

(Your posts are 3 minutes apart)

healthunlocked.com/thyroidu...

helvella profile image
helvellaAdministratorThyroid UK

I've replied on the other post!

Only because I had to choose one to reply to.

TiggerMe profile image
TiggerMe

I've just replied on the other post.... If they think this is a goer why don't they try it on people that have a functioning thyroid first? 6 weeks of Levo and then cold turkey to see how that pans out 😱

Is this a joke or have we gone back to Dickensian times... surely they could just disappear people from the workhouse or prisons to try this torture on?!

serenfach profile image
serenfach

What next? A study of how long diabetics can go without insulin?

sidneymark70 profile image
sidneymark70

what a good idea. I have been thinking about this for ages. Is there any chance it could make one ill without taking levo

humanbean profile image
humanbean in reply to sidneymark70

If you are hypothyroid and you stop taking thyroid hormones for long enough the results can be catastrophic.

Look into the condition known as "myxedema coma" or "myxedema crisis" caused by severe hypothyroidism that is untreated. It can be fatal.

ncbi.nlm.nih.gov/books/NBK5...

mauschen profile image
mauschen in reply to humanbean

I have experienced myxoedema sidneymark70 and it wasn’t pleasant.

I think it’s a scary experiment however, they must have a trick up their sleeves or they would not have gained ethics approval.

Milkyway88 profile image
Milkyway88 in reply to mauschen

Sorry to hear you’ve been that unwell.

I’d love to know what the trick is.

mauschen profile image
mauschen in reply to Milkyway88

Perhaps a new drug to trial which comes under a different category?

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