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Experiences with
Aicardi-goutieres syndrome (AGS)
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Not the most pleasant of questions
I have cirrhosis and along with a multitude of other medication I take lactulose daily. Now as you may be aware one of the nice side effects of lactulose is flatulence, and I mean pretty much none stop. This is both embarrassing to me and irritating to my family, is there anything I can do? is it ok
I have cirrhosis and along with a multitude of other medication I take lactulose daily. Now as you may be aware one of the nice side effects of lactulose is flatulence, and I mean pretty much none stop. This is both embarrassing to me and irritating to my family, is there anything I can do? is it ok
Chris-harris
in
British Liver Trust
5 years ago
Gabapentin with Ropinirole
I have been through 2 different neurologists over the last 10 years, as they keep moving elsewhere. I ended up seeing a PA, who of all things, recommended that I continue with Ropinirole and drink more tonic water! You'd think that she would have read my charts and see that I've been through all the
I have been through 2 different neurologists over the last 10 years, as they keep moving elsewhere. I ended up seeing a PA, who of all things, recommended that I continue with Ropinirole and drink more tonic water! You'd think that she would have read my charts and see that I've been through all the
wcp2008
in
Restless Legs Syndrome
5 years ago
Friend took my story to his doctor
Friend of mine went to the doctors today he has struggled with RSL but never taken any meds , just all the natural alternatives hot water bottles , magnesium etc . Cutting a long story short he told the doctor my story and he was prescribed temgesic which is .2 or 200 micrograms of Buprenorphine straight
Friend of mine went to the doctors today he has struggled with RSL but never taken any meds , just all the natural alternatives hot water bottles , magnesium etc . Cutting a long story short he told the doctor my story and he was prescribed temgesic which is .2 or 200 micrograms of Buprenorphine straight
Shumbah
in
Restless Legs Syndrome
5 years ago
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Pramipexole
I am in a war with pramipexole it really is a battle and I feel I'm being tortured. I was on .78mg per day but now I have knocked off the .26mg pramipexole I'm down to .52mg extended release formula per day but my neurologist put me on Gabapentin 100mg capsules taken three times per day morning,afternoon
I am in a war with pramipexole it really is a battle and I feel I'm being tortured. I was on .78mg per day but now I have knocked off the .26mg pramipexole I'm down to .52mg extended release formula per day but my neurologist put me on Gabapentin 100mg capsules taken three times per day morning,afternoon
Hoochybaby
in
Restless Legs Syndrome
5 years ago
Hey all looking like I have Eds
Please can you tell me if you can have brain lesions with eds xx
Please can you tell me if you can have brain lesions with eds xx
Buckley123
in
Ehlers-Danlos Support UK
5 years ago
Is a combination of drugs the answer?
Having been on Prami for years, I tried Ropinerole which did not work for me so the Rotigotine (3mg) Neupropatch was great for a while until this summer when clearly augmentation set in again. I had a lot of sleepless nights until I discovered it worked well with 2 co-dydramol (plus one Senekot to help
Having been on Prami for years, I tried Ropinerole which did not work for me so the Rotigotine (3mg) Neupropatch was great for a while until this summer when clearly augmentation set in again. I had a lot of sleepless nights until I discovered it worked well with 2 co-dydramol (plus one Senekot to help
Felicity21
in
Restless Legs Syndrome
5 years ago
Ubiquinol (pure form)
Hi Ladies I read it starts with the egg in June so I bought one of the recommended brands (Jarrow Formula) and took 400mg per day for just under 3 months before ivf egg collection. In that cycle, 8 eggs were collected and 5 fertilised. All fertilised eggs made it to day 5 but just one blastocyst, which
Hi Ladies I read it starts with the egg in June so I bought one of the recommended brands (Jarrow Formula) and took 400mg per day for just under 3 months before ivf egg collection. In that cycle, 8 eggs were collected and 5 fertilised. All fertilised eggs made it to day 5 but just one blastocyst, which
LadyM2019
in
Fertility Network UK
5 years ago
Vitex and Myo inositol
Hi I have SLE over the past 9 years. I have PCOD and hormonal imbalance. I am trying to conceive for the past 3 years. But all the treatments failed. I tried IUI also. Now I am planning to take vitex and Myo Inositol supplements to cure hormonal imbalance. Is it good or bad to try them with lupus?
Hi I have SLE over the past 9 years. I have PCOD and hormonal imbalance. I am trying to conceive for the past 3 years. But all the treatments failed. I tried IUI also. Now I am planning to take vitex and Myo Inositol supplements to cure hormonal imbalance. Is it good or bad to try them with lupus?
Vinodha
in
LUPUS UK
5 years ago
Help :(
So I applied this lidocaine gel that I got prescribed to see if it would help my vaginal Itching. Well I woke up an hour later with the worst itching and sensitivity of my life. Then it turned into my vagina burning. But the part thats bothering me the most is I'm having bad clitoral discomfort, its
So I applied this lidocaine gel that I got prescribed to see if it would help my vaginal Itching. Well I woke up an hour later with the worst itching and sensitivity of my life. Then it turned into my vagina burning. But the part thats bothering me the most is I'm having bad clitoral discomfort, its
Ambernicole
in
Pelvic Pain Support Network
5 years ago
What next on this awful rollercoaster
Interesting to read the post just put up on Levodopa (Co-Careldopa) I have just been prescribed 1to 2 nightly12.5 mg. I argumented on ropinerole almost a year ago and have been on pregabalin but there is a good chance that this has caused me to lose my peripheral vision. I have just weened of that
Interesting to read the post just put up on Levodopa (Co-Careldopa) I have just been prescribed 1to 2 nightly12.5 mg. I argumented on ropinerole almost a year ago and have been on pregabalin but there is a good chance that this has caused me to lose my peripheral vision. I have just weened of that
Operabab
in
Restless Legs Syndrome
5 years ago
BP meds interference?
I'm taking Losartan Potasium, Lerconidipine and Atenolol for very high blood pressure, and cannot have the surgery I need until it's normal. I've been taking Dihydrocodeine for severe, full body RLS for nearly 20 years, but recently, the bed-time dose I take around 12.30am is only lasting for about two
I'm taking Losartan Potasium, Lerconidipine and Atenolol for very high blood pressure, and cannot have the surgery I need until it's normal. I've been taking Dihydrocodeine for severe, full body RLS for nearly 20 years, but recently, the bed-time dose I take around 12.30am is only lasting for about two
lorrinet
in
Restless Legs Syndrome
5 years ago
Levodopa
Hi I have just been given via tel message a prescription for levodopa 25mg but not told if I should take it along with my pramipexole. I have just been told to take 1 tablets at night hopefully it will help my insomnia
Hi I have just been given via tel message a prescription for levodopa 25mg but not told if I should take it along with my pramipexole. I have just been told to take 1 tablets at night hopefully it will help my insomnia
Hoochybaby
in
Restless Legs Syndrome
5 years ago
Does L-Tyrosine also cause augmentation
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good, Neupro, good leaves bu
Carbidopa Levodopa Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good,
Carbidopa Levodopa Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good,
Elijah5
in
Restless Legs Syndrome
5 years ago
Opiate use and sleep.
This is a link to a study/ warning of the dangers of opiate use. Related to sleep quality and breathing problems. It is not a major problem for the low doses used for refractory rls. It is really interesting that it recognises the use of opiates for rls and the distinction between that and the much higher
This is a link to a study/ warning of the dangers of opiate use. Related to sleep quality and breathing problems. It is not a major problem for the low doses used for refractory rls. It is really interesting that it recognises the use of opiates for rls and the distinction between that and the much higher
Madlegs1
in
Restless Legs Syndrome
5 years ago
DIL vs SLE - Anti Histone Antibody
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
katidid
in
LUPUS UK
5 years ago
GCA
Hi, another newbie. Had mild pain in temples for around 8 days and been to hospital for bloods. They think could be GCA and have prescribed 50mg steroid which I will get to tomorrow. Biopsy is TBC Bit scared to be honest. I’m 46yr male usually fit and healthy? Any feedback would be greatly appreciated
Hi, another newbie. Had mild pain in temples for around 8 days and been to hospital for bloods. They think could be GCA and have prescribed 50mg steroid which I will get to tomorrow. Biopsy is TBC Bit scared to be honest. I’m 46yr male usually fit and healthy? Any feedback would be greatly appreciated
Jc554
in
PMRGCAuk
5 years ago
Detective Work
After having repeated exacerbations, my consultant has discovered from sputem sampleas that I am suffering from "entrerobacter" and "pseudomonas". She has prescribed Ciproflaxin for the latter and in the meantime is arranging for me to have nebulised Gentamycin, the other drug Tazocin can only be administered
After having repeated exacerbations, my consultant has discovered from sputem sampleas that I am suffering from "entrerobacter" and "pseudomonas". She has prescribed Ciproflaxin for the latter and in the meantime is arranging for me to have nebulised Gentamycin, the other drug Tazocin can only be administered
Bobfirmin
in
Lung Conditions Community Forum
5 years ago
RLS
Hi .. this site is the best, thank you My question is: I am now completely off sifrol, having weened down from 0.75, withdrawal was horrendous 🥴 I am now taking tramadol to help with this how long before sifrol is completely out of your body? I want to get down to baseline to see if I can do without
Hi .. this site is the best, thank you My question is: I am now completely off sifrol, having weened down from 0.75, withdrawal was horrendous 🥴 I am now taking tramadol to help with this how long before sifrol is completely out of your body? I want to get down to baseline to see if I can do without
Ladro
in
Restless Legs Syndrome
5 years ago
Plaquenil and dry mouth
Plaquenil is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
Plaquenil is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
loopy4me
in
LUPUS UK
5 years ago
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