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Experiences with
Aicardi-goutieres syndrome (AGS)
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Fatty Liver Disease
I was diagnosed two years ago with Ehlers Danlos, and just learned I have NALD—I rarely drink and have a relatively good diet. I asked this question to my local support group and around 1/4 of 20 responded they have it. EDS can affect any systems in multiple ways because connective tissue is throughout
I was diagnosed two years ago with Ehlers Danlos, and just learned I have NALD—I rarely drink and have a relatively good diet. I asked this question to my local support group and around 1/4 of 20 responded they have it. EDS can affect any systems in multiple ways because connective tissue is throughout
Mahala1
in
Ehlers-Danlos Support UK
4 years ago
Might work for you too!
I've had five nights now without RLS. Quit taking Sertraline and with MDs' okay I'm taking .25 mg of Alprazolam each evening. I also started twice daily on 28 mg of Iron supplement and 500 mg of Magnesium. RLS Symptoms are just about totally gone...Just a slight twinge once in a while, easy to ignore
I've had five nights now without RLS. Quit taking Sertraline and with MDs' okay I'm taking .25 mg of Alprazolam each evening. I also started twice daily on 28 mg of Iron supplement and 500 mg of Magnesium. RLS Symptoms are just about totally gone...Just a slight twinge once in a while, easy to ignore
9642birss
in
Restless Legs Syndrome
4 years ago
Can you do intense exercise with RLS?
Hi, I’m wondering if anyone in this forum has looked into the relationship between high levels of exercise (e.g. running, mountaineering and cycling) and the intensity of RLS, or has any experience they’d like to share? I have RLS which can vary from Mild to Severe (using the Restless Legs Syndrome Rating
Hi, I’m wondering if anyone in this forum has looked into the relationship between high levels of exercise (e.g. running, mountaineering and cycling) and the intensity of RLS, or has any experience they’d like to share? I have RLS which can vary from Mild to Severe (using the Restless Legs Syndrome Rating
Munroist
in
Restless Legs Syndrome
4 years ago
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Ropinirole dependency
I've just been diagnosed with RLS and have been advised to start taking ropinirole. Will I then become dependent on it for the rest of my life? Can you ever stop taking ropinirole once you start?
I've just been diagnosed with RLS and have been advised to start taking ropinirole. Will I then become dependent on it for the rest of my life? Can you ever stop taking ropinirole once you start?
Hidden
in
Restless Legs Syndrome
4 years ago
Day 3 transfer of 2 embryos IVF
Hi. I've been told I can do a day 3 transfer of 2 embryos. I'm worried about the risks and complications that come with twin pregnancy. What should I do? 1 embryo or 2?
Hi. I've been told I can do a day 3 transfer of 2 embryos. I'm worried about the risks and complications that come with twin pregnancy. What should I do? 1 embryo or 2?
EasterBunny7
in
Fertility Network UK
4 years ago
RLS
Hi everyone, I’ve been suffering for severe RSL for 5 years now, I have uncontrollable leg twitches, have been to the GP multiple times about it as it usually takes be 1-3 hours to get to sleep because of my leg feels like it’s getting electrocuted! I just don’t know what to do now, I’ve tried herbal
Hi everyone, I’ve been suffering for severe RSL for 5 years now, I have uncontrollable leg twitches, have been to the GP multiple times about it as it usually takes be 1-3 hours to get to sleep because of my leg feels like it’s getting electrocuted! I just don’t know what to do now, I’ve tried herbal
Tilzz
in
Restless Legs Syndrome
4 years ago
Beta hcg at 28 on 7.5DP5DT. Help ?
Hi everyone. My clinic likes to test for beta hcg 9DP5DT. Unfortunately my clinic is closed on 9 days past hence they ordered a blood test the previous day. My transfer was late evening so I was technically 7.5 days past my 5 day transfer at the time of drawing blood and my result was 28. I am retesting
Hi everyone. My clinic likes to test for beta hcg 9DP5DT. Unfortunately my clinic is closed on 9 days past hence they ordered a blood test the previous day. My transfer was late evening so I was technically 7.5 days past my 5 day transfer at the time of drawing blood and my result was 28. I am retesting
Pre92
in
Fertility Network UK
4 years ago
Leg pain in thigh.
Dont know if anybody can help had to go to local hospital last night as had alot of leg pain. Dr said it could be to R.A. never heard this before but he said the tissue can come away from bone in thigh has anybody had this please. Dont know what yo do as in alot of pain with it. Thanks.
Dont know if anybody can help had to go to local hospital last night as had alot of leg pain. Dr said it could be to R.A. never heard this before but he said the tissue can come away from bone in thigh has anybody had this please. Dont know what yo do as in alot of pain with it. Thanks.
gillpalmer
in
NRAS
4 years ago
Advice on accessing NHS help after private diagnosis
Hi, I have just received my diagnosis of Hypermobile EDS with Marfanoid phenotype via a private consultation with Dr Mittal. I had previously been diagnosed by an NHS Rheumatologist with Joint Hypermobility 3 years ago but the Rheumy point blank refused to consider EDS as I "wasn't in a wheelchair",
Hi, I have just received my diagnosis of Hypermobile EDS with Marfanoid phenotype via a private consultation with Dr Mittal. I had previously been diagnosed by an NHS Rheumatologist with Joint Hypermobility 3 years ago but the Rheumy point blank refused to consider EDS as I "wasn't in a wheelchair",
m1ms
in
Ehlers-Danlos Support UK
4 years ago
Average of 17mm follicles at time of trigger, success stories?? IVF
Hello, I have 13 follicles ranging between 13-20mm and am triggering tonight. Will the follicles continue to grow after triggering with Lupron and Novarel. Also~~ Are the follicles that are 13, 14, 15 and 16mm too small to produce mature eggs? Is there a chance of finding more eggs? Would love to
Hello, I have 13 follicles ranging between 13-20mm and am triggering tonight. Will the follicles continue to grow after triggering with Lupron and Novarel. Also~~ Are the follicles that are 13, 14, 15 and 16mm too small to produce mature eggs? Is there a chance of finding more eggs? Would love to
junglequeensheen
in
Fertility Network UK
4 years ago
Hi new here. Is pain in lower back/hips normal with PMR. Sometimes I can't stand for more that 10-15 minutes at a time.
Sometime I can't stand for more that 10-15 minutes at a time before having to sit down.. Diagnosed February of 2020. Started at 30mg with one reset in May. Currently tapering at 1mg per month-now at 7mg starting today. Love your website-comforting to know there are people out there willing to sharing
Sometime I can't stand for more that 10-15 minutes at a time before having to sit down.. Diagnosed February of 2020. Started at 30mg with one reset in May. Currently tapering at 1mg per month-now at 7mg starting today. Love your website-comforting to know there are people out there willing to sharing
SARose
in
PMRGCAuk
4 years ago
COLOFAC
I wonder whether anyone else has experienced problems with Colofac. Although it was helpful with the pain and distension it always culminated in faecal impaction. Merbentyl was found to be more satisfactory but it was removed from my list of medications because of its inhibitive cost. I have managed
I wonder whether anyone else has experienced problems with Colofac. Although it was helpful with the pain and distension it always culminated in faecal impaction. Merbentyl was found to be more satisfactory but it was removed from my list of medications because of its inhibitive cost. I have managed
theomus
in
IBS Network
4 years ago
Anyway to counteract sleepiness from ropinirole?
I am taking ropinirole for restless legs. I am having the side effect of feeling sleepy all the time. Has anyone found a way to counteract this?
I am taking ropinirole for restless legs. I am having the side effect of feeling sleepy all the time. Has anyone found a way to counteract this?
SueJohnson
in
Restless Legs Syndrome
4 years ago
Does anyone take both Madopar and Sertraline ?
I take Zoloft for my Bipolar and have taken many other medications in the past. The sertraline actually works without most of the horrid side effects of other things. I've had RLS for a while but it's become extremely bad over the last 6 months and my insomnia is causing a range of problems for me. My
I take Zoloft for my Bipolar and have taken many other medications in the past. The sertraline actually works without most of the horrid side effects of other things. I've had RLS for a while but it's become extremely bad over the last 6 months and my insomnia is causing a range of problems for me. My
dali76
in
Restless Legs Syndrome
4 years ago
PGS tested and no more embies to transfer
Evening ladies, With my recent miscarriages we decided to have our 3 embryos pgs tested. One of the embryo stopped growing as as all 3 blastocyst needed another day to reach full blastocyst. This was a grade 1 2, better grade than the other two. The other 2 embryos were grade 2 2. Yesterday I received
Evening ladies, With my recent miscarriages we decided to have our 3 embryos pgs tested. One of the embryo stopped growing as as all 3 blastocyst needed another day to reach full blastocyst. This was a grade 1 2, better grade than the other two. The other 2 embryos were grade 2 2. Yesterday I received
Sammy246
in
Fertility Network UK
4 years ago
Here we go again!
Trying a long down regulation cycle this time around to see if it helps with egg quality. I’m excited, nervous and strangely optimistic all tied in to one! Here’s hoping the change in protocol and donor sperm is just want we need for myself and hubby to get our BFP! I had bloods and picked up my
Trying a long down regulation cycle this time around to see if it helps with egg quality. I’m excited, nervous and strangely optimistic all tied in to one! Here’s hoping the change in protocol and donor sperm is just want we need for myself and hubby to get our BFP! I had bloods and picked up my
Ajplus1
in
Fertility Network UK
4 years ago
The following has given me relief from restless legs
I am posting this as a sufferer but I am not a doctor or any health specialist but the following has worked for me for the last 2-months. I am a 75 year old with type 2 diabetes and have suffered with severe restless legs for 20-years, I am on 3 Ropinirole tablets a day (1 in morning and 2 at tea time
I am posting this as a sufferer but I am not a doctor or any health specialist but the following has worked for me for the last 2-months. I am a 75 year old with type 2 diabetes and have suffered with severe restless legs for 20-years, I am on 3 Ropinirole tablets a day (1 in morning and 2 at tea time
Hidden
in
Restless Legs Syndrome
4 years ago
I'm new here
Have had RLS for approx 25 years with varying degrees of discomfort. Experienced rebound and possibly augmentation with sinemet, Took pramipexole for about ten years and switched to ropinirole three years ago when pramipexole was no longer effective. Am now definitely experiencing augmentation with
Have had RLS for approx 25 years with varying degrees of discomfort. Experienced rebound and possibly augmentation with sinemet, Took pramipexole for about ten years and switched to ropinirole three years ago when pramipexole was no longer effective. Am now definitely experiencing augmentation with
goonerguy
in
Restless Legs Syndrome
4 years ago
Augmenting on everything
Hi, I've been on codeine phosphate 60mg for the past 6 months and it's been fantastic but once again I seem to be augmenting on it, I've augmented on everything, tramadol, dopamine agonists, etc.. I really thought codeine was going to work this time, iron supplements really helped over the past 2 years
Hi, I've been on codeine phosphate 60mg for the past 6 months and it's been fantastic but once again I seem to be augmenting on it, I've augmented on everything, tramadol, dopamine agonists, etc.. I really thought codeine was going to work this time, iron supplements really helped over the past 2 years
Loopylegs
in
Restless Legs Syndrome
4 years ago
Duloxetine query
Hi All - I commenced Duloxetine x3 weeks ago come next Fri. and I am struggling with sleep. Has anyone else experienced this? I generally sleep well for the first 3-4 hrs and then wake go to sleep wake go to sleep - last night I think I woke about x8. My sleep seems really light. I am normally a very
Hi All - I commenced Duloxetine x3 weeks ago come next Fri. and I am struggling with sleep. Has anyone else experienced this? I generally sleep well for the first 3-4 hrs and then wake go to sleep wake go to sleep - last night I think I woke about x8. My sleep seems really light. I am normally a very
Gypsy2220
in
NRAS
4 years ago
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