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Paperback now available via Amazon
Hi everyone, This is just to let you know that the book "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available in paperback via Amazon. The link is http://www.amazon.co.uk/Polymyalgia-Rheumatica-Giant-Cell-Arteritis/dp/1500713406/ref=sr_1_12?s=books&ie=UTF8&qid=1409228415&
Hi everyone, This is just to let you know that the book "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available in paperback via Amazon. The link is http://www.amazon.co.uk/Polymyalgia-Rheumatica-Giant-Cell-Arteritis/dp/1500713406/ref=sr_1_12?s=books&ie=UTF8&qid=1409228415&
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Tiredness
Please can you good folk tell me whether extreme tiredness is linked to reduction of preds. It has taken a while but I am now down to 12.5 with no problems with pain. Fluid retention is not good (maybe due somewhat to the heat) and my hot flushes are worse. But my main concern is that I keep falling
Please can you good folk tell me whether extreme tiredness is linked to reduction of preds. It has taken a while but I am now down to 12.5 with no problems with pain. Fluid retention is not good (maybe due somewhat to the heat) and my hot flushes are worse. But my main concern is that I keep falling
patdencass
in
PMRGCAuk
10 years ago
Rapid Generation of Virus-Specific T Cells Helps Fight Off Infection in Immunocompromised Patients
The lengthy, complex, and costly process required to produce target specific T-Cells to fight cancers and viruses is a huge barrier that needs to be overcome if this technique is ever going to be more than a laboratory curiosity that benefits only a select few patients. Despite this, researchers continue
The lengthy, complex, and costly process required to produce target specific T-Cells to fight cancers and viruses is a huge barrier that needs to be overcome if this technique is ever going to be more than a laboratory curiosity that benefits only a select few patients. Despite this, researchers continue
AussieNeil
Partner
in
CLL Support
10 years ago
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Learning to swim the crawl
I didn't learn until I was 23 but now I really love swimming and it is part of my 'go away, premature
ageing
' plan, A physiotherapist has suggested I learn the crawl as
well
.
I didn't learn until I was 23 but now I really love swimming and it is part of my 'go away, premature
ageing
' plan, A physiotherapist has suggested I learn the crawl as
well
.
Nuala12
in
Living Positively with Cerebral Palsy
10 years ago
Neurologist saying B12 is a 'red herring' - what should I do? :/
Sorry if this seems a bit too much repeated info on my case, but wanted to include some past info, so I could ask an opinion on the problem I have .... In march I started to experience strong numbness and tingling in my left hand to the point it was hard to feel things - (have had multiple occurrences
Sorry if this seems a bit too much repeated info on my case, but wanted to include some past info, so I could ask an opinion on the problem I have .... In march I started to experience strong numbness and tingling in my left hand to the point it was hard to feel things - (have had multiple occurrences
laurabeebee
in
Pernicious Anaemia Society
10 years ago
Bone marrow transplant with MF
I have been recently diagnosed with MF and am in the initial phase (being treated with PEGASYS). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease). My hermatologist here in France appears to want
I have been recently diagnosed with MF and am in the initial phase (being treated with PEGASYS). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease). My hermatologist here in France appears to want
crapaud
in
MPN Voice
10 years ago
Plymouth & Cornwall Support
Dear All Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area The next support meeting for PMR and PMRGCA for the Devon & Cornwall area will be held on the following date? The nearest meeting so far has been Taunton so we have now started
Dear All Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area The next support meeting for PMR and PMRGCA for the Devon & Cornwall area will be held on the following date? The nearest meeting so far has been Taunton so we have now started
Hidden
in
PMRGCAuk
10 years ago
GvHD of the lungs
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
elliemh
in
Lung Conditions Community Forum
10 years ago
Plymouth Cornwall & South Devon Support Meeting.
The next meeting of the Plymouth, West Devon and Cornwall Support Group for Polymyalgia Rheumatica and Giant Cell Arteritis. is to be held at Community room No 7 Pendeen Close Southway Plymouth PL6 6SB on the 30th July at 2pm Wendy from PMRGCA will be coming as well to offer her support. For more details
The next meeting of the Plymouth, West Devon and Cornwall Support Group for Polymyalgia Rheumatica and Giant Cell Arteritis. is to be held at Community room No 7 Pendeen Close Southway Plymouth PL6 6SB on the 30th July at 2pm Wendy from PMRGCA will be coming as well to offer her support. For more details
Hidden
in
PMRGCAuk
10 years ago
Hello everyone I have been away for 4 weeks so am catching up at the moment. I have had PMR for 7 yrs am on 10g pred, propranolol , thyroxin
and amitriptilyne 20gs. However recently I find that if I take amitryptiline after 7 30pm I wake in the night having hallucinations which is quite disturbing. Is any one else taking this med and getting the same problem I am fine if I take it on time.Thank you all for your helpful tips in the past Kathy
and amitriptilyne 20gs. However recently I find that if I take amitryptiline after 7 30pm I wake in the night having hallucinations which is quite disturbing. Is any one else taking this med and getting the same problem I am fine if I take it on time.Thank you all for your helpful tips in the past Kathy
lucky12
in
PMRGCAuk
10 years ago
Why do doctors keep refering to 'temporal' arteritis instead of using the term 'giant cell' arteritis?
I read that giant cells can inflame any artery, causing lesions, blockages and damage to vital organs which can result in disability or death. This title is a misnomer and should be challenged! My very ignorant GP said I need only be concerned about having GCA headaches. When I said I had heart pain
I read that giant cells can inflame any artery, causing lesions, blockages and damage to vital organs which can result in disability or death. This title is a misnomer and should be challenged! My very ignorant GP said I need only be concerned about having GCA headaches. When I said I had heart pain
Hidden
in
PMRGCAuk
10 years ago
Am I just just b12 deficient or PA? So confused what to do next :(
Can anyone help me please, I am so confused as what to do next.... Over the years I have had periods of numbness, pins and needles in my hands and feet, tiredness, mind fog etc which drs tests usually brought down to iron/folate deficiency. However this time was the worst it's been. In march I started
Can anyone help me please, I am so confused as what to do next.... Over the years I have had periods of numbness, pins and needles in my hands and feet, tiredness, mind fog etc which drs tests usually brought down to iron/folate deficiency. However this time was the worst it's been. In march I started
laurabeebee
in
Pernicious Anaemia Society
10 years ago
Another Front Against Leukemia: Using Stem Cells to Make Bone Marrow Transplants Low-Risk
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
zevkalman
in
CLL Support
10 years ago
colonoscopy
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
kingharold11
in
PMRGCAuk
10 years ago
Has any one been told to prepare themselves for the possibility of a bone marrow transplant. I've had ET for 14years taking Hydrox in variou
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
softail
in
MPN Voice
10 years ago
Misleading headlines - "Breakthrough cure" for MS
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
Sorrel_MS_Society
MS Society
in
Healthy Evidence
10 years ago
Bone marrow transplant
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Nicolas
in
AMN EASIER
10 years ago
I have Giant Cell Arteritis and am reducing Prednisolone. Does anyone have terrible 'hot flushes' and itchy patches on skin?
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
sookiesue
in
PMRGCAuk
10 years ago
Book is now available in print form
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
I contacted the Justice Department about Missing GP Notes.
I contacted the Justice department about missing GP notes. They say it's the Department for Health responsibility. Talk about passing the buck. There was a post about the Freedom of Information Act on thyroid UK a few days ago. GP's passing notes on to insurance companies. The NHS refusing to install
I contacted the Justice department about missing GP notes. They say it's the Department for Health responsibility. Talk about passing the buck. There was a post about the Freedom of Information Act on thyroid UK a few days ago. GP's passing notes on to insurance companies. The NHS refusing to install
carolr
in
Thyroid UK
10 years ago
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