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Experiences with
Androgen deprivation therapy (ADT)
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Advice please on blood results
Thyroglobulin 86.3ng/ml High Ref. range 3.5-77 I have hypothyroidism and these are my recent results. Any suggestions please on how I can reduce my thyroid globulin antibodies and TSH? I take 1 NDT per day with a range of vitamins
Thyroglobulin 86.3ng/ml High Ref. range 3.5-77 I have hypothyroidism and these are my recent results. Any suggestions please on how I can reduce my thyroid globulin antibodies and TSH? I take 1 NDT per day with a range of vitamins
Peppermints123
in
Thyroid UK
10 months ago
NDT info request
Dear all, I would be extremely grateful for private messages with information about trustworthy sources of reliable-quality NDT in the UK (non-prescription). Many thanks in advance!
Dear all, I would be extremely grateful for private messages with information about trustworthy sources of reliable-quality NDT in the UK (non-prescription). Many thanks in advance!
lutepavan
in
Thyroid UK
10 months ago
Best use of Psa to guide intermittent hormone therapy
presently on relugolix + Darolutamide for local reccurrence and will go off these drugs if Psa is less than .65 three months ago tested and go back on when Psa reaches 3-5.. Seems it will be about 6months and hopefully 6 months off, Tentative protocol so far. Input from all and for all welcomed. Thanks
presently on relugolix + Darolutamide for local reccurrence and will go off these drugs if Psa is less than .65 three months ago tested and go back on when Psa reaches 3-5.. Seems it will be about 6months and hopefully 6 months off, Tentative protocol so far. Input from all and for all welcomed. Thanks
rococo
in
Advanced Prostate Cancer
1 year ago
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How to add adrenal support (on NDT)
I think I need to add adrenal support to my NDT but looking for some help on the practicalities and open to ideas about whether this is my problem. Specifically, do I need to stop NDT first? If so, how slowly should I taper off? I'd really like to spend as little time as necessary feeling so hypo!
I think I need to add adrenal support to my NDT but looking for some help on the practicalities and open to ideas about whether this is my problem. Specifically, do I need to stop NDT first? If so, how slowly should I taper off? I'd really like to spend as little time as necessary feeling so hypo!
FoggyThinker
in
Thyroid UK
10 months ago
ADT and radiation
The doctor has recommended me for
ADT
and radiation, probably a 6 month course. The reading I've done has shown that men who have a test level of less than 400 going into
ADT
have a tougher time recovering their natural testosterone production post
ADT
.
The doctor has recommended me for
ADT
and radiation, probably a 6 month course. The reading I've done has shown that men who have a test level of less than 400 going into
ADT
have a tougher time recovering their natural testosterone production post
ADT
.
NYCHiker
in
Prostate Cancer And Gay Men
2 years ago
Xtandi
Pet scan Aug 8, 2022 showed 5 lymph nodes with CA. Urologist started me on Xtandi and referred me to an Oncologist who started Degarelix injections. Oct 25, 2022 stopped taking Xtandi due to intolerable side effects; started Bicalutamide. PSA was 0.47 in Oct with gradual increase to 4.8 in Apr. Oncologist
Pet scan Aug 8, 2022 showed 5 lymph nodes with CA. Urologist started me on Xtandi and referred me to an Oncologist who started Degarelix injections. Oct 25, 2022 stopped taking Xtandi due to intolerable side effects; started Bicalutamide. PSA was 0.47 in Oct with gradual increase to 4.8 in Apr. Oncologist
racoonwar
in
Advanced Prostate Cancer
1 year ago
Improvement then worsening thyroid
I'm on 3.5 Grain NDT. I get a improment in sleep and depression. In the 5 week my depression worsen and i got daily nightmares. Now I reached week 6 and the worsening is still there.What does this mean? On levo 162 i had the worsening also in week 5 and in week 8 the depression (nightmares and interupted
I'm on 3.5 Grain NDT. I get a improment in sleep and depression. In the 5 week my depression worsen and i got daily nightmares. Now I reached week 6 and the worsening is still there.What does this mean? On levo 162 i had the worsening also in week 5 and in week 8 the depression (nightmares and interupted
charley123
in
Thyroid UK
10 months ago
The ABCs of ADTs
Hi all, Here's a short video that explains the ABCs of
ADT
. It's easy to understand and is in laymans terms but quite informative. https://www.youtube.com/watch?v=tAVyG_r94NE
Hi all, Here's a short video that explains the ABCs of
ADT
. It's easy to understand and is in laymans terms but quite informative. https://www.youtube.com/watch?v=tAVyG_r94NE
MrG68
in
Advanced Prostate Cancer
2 years ago
Endocrinologists and NDT Lancashire
Good morning I wonder if anyone could message me please regarding any endocrinologists who deal with NDT in the Lancashire area and advise me of their experiences. Many thanks
Good morning I wonder if anyone could message me please regarding any endocrinologists who deal with NDT in the Lancashire area and advise me of their experiences. Many thanks
Joeybobs
in
Thyroid UK
10 months ago
Endocrinologists and NDT Lancashire
Good morning I'm just wondering if anyone has any recomendations for endocrinologists preferably East Lancashire otherwise Lancashire in general who have an understanding of NDT. I see Simon Howell a Consultant at Preston is on the list - if anyone could advise me I would be grateful Julie
Good morning I'm just wondering if anyone has any recomendations for endocrinologists preferably East Lancashire otherwise Lancashire in general who have an understanding of NDT. I see Simon Howell a Consultant at Preston is on the list - if anyone could advise me I would be grateful Julie
Joeybobs
in
Thyroid UK
10 months ago
ART Do-Over List for PCa Patients - What Would You Do Different if Only you Could; My Personal Journey
I will never go back on full time
ADT
again and if needed will go back on intermittent
ADT
.
I will never go back on full time
ADT
again and if needed will go back on intermittent
ADT
.
RMontana
in
Active Surveillance - Prostate Cancer
2 years ago
12 or 81 months ADT?
I had a recurrence last year in 1 pelvic lymph node.treated with 37 radiotherapy sessions ot all apelvis lymph nodes nplys prostate bed with
ADT
, zolodex every 3months,prescribed for 12 to 18 months.
ADT
went well early on but have some side effects as things progress.
I had a recurrence last year in 1 pelvic lymph node.treated with 37 radiotherapy sessions ot all apelvis lymph nodes nplys prostate bed with
ADT
, zolodex every 3months,prescribed for 12 to 18 months.
ADT
went well early on but have some side effects as things progress.
Runner1957
in
Prostate Cancer Network
2 years ago
Dental problems
I have over the past couple of years had trouble with a dry burning mouth , which has caused gum problems which I have never had before also just recently my eyes have been very dry and itchy does anyone else suffer with these symptoms are they another Fibromyalgia gift !
I have over the past couple of years had trouble with a dry burning mouth , which has caused gum problems which I have never had before also just recently my eyes have been very dry and itchy does anyone else suffer with these symptoms are they another Fibromyalgia gift !
Thornthorpe
in
Fibromyalgia Action UK
9 months ago
NDT or porcine thyroid
Hello I have had Hashies for about 2 years now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I've had constipation, bloating and gas for many years. Muscle and
Hello I have had Hashies for about 2 years now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I've had constipation, bloating and gas for many years. Muscle and
ChickieBaker
in
Thyroid UK
10 months ago
First results after switching to NDT. Help pls ...
Hi beautiful people, I shared a number of posts here about my thyroid journey. I switched to Erfa brand NDT 2 weeks ago after being on levo for 2 decades. I started from 0.5 grain, increased to 1 grain and then to 1,5 grains. I've been on 1,5 grains for about 5 days now. I checked my bloods 2 weeks
Hi beautiful people, I shared a number of posts here about my thyroid journey. I switched to Erfa brand NDT 2 weeks ago after being on levo for 2 decades. I started from 0.5 grain, increased to 1 grain and then to 1,5 grains. I've been on 1,5 grains for about 5 days now. I checked my bloods 2 weeks
Juliet_22
in
Thyroid UK
10 months ago
Porcine supplements or NDT ?
Hello I have had Hashies for about a year now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I’ve just bought some 40mg porcine thyroid tablets but only because
Hello I have had Hashies for about a year now. I am completely gluten free. My TSH levels hover around 4.8 so doctor won’t give me Levo. My antibodies are well out of range My CRP is just over 5. My ferritin is also way out of range. I’ve just bought some 40mg porcine thyroid tablets but only because
ChickieBaker
in
Thyroid UK
10 months ago
Is it useful to get a PSMA-PET scan with low volume cancer, newly castration resistant and PSA below 1?
I was not taking
ADT
at the time of those two scans. I was castration sensitive at the time of all those scans. I am now castration resistant and psa six weeks ago was .33 (up from .14&.20 in August). I don't mind doing the PSMA-PET scan again if it is of value.
I was not taking
ADT
at the time of those two scans. I was castration sensitive at the time of all those scans. I am now castration resistant and psa six weeks ago was .33 (up from .14&.20 in August). I don't mind doing the PSMA-PET scan again if it is of value.
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
A whole bunch of crap happening and does it add up?
That and the
ADT
SEs seem to mask each other. Think that at times our medical specialization prevents looking at the big picture. Or maybe it needs to start earlier. Make sure you tell your doctors every thing you can think. Make a list of questions or symptoms.
That and the
ADT
SEs seem to mask each other. Think that at times our medical specialization prevents looking at the big picture. Or maybe it needs to start earlier. Make sure you tell your doctors every thing you can think. Make a list of questions or symptoms.
SpencerBoy11
in
Advanced Prostate Cancer
2 years ago
Triplet Regimen vs Clinical Trial (Pluvicto)
I was recently diagnosed with advanced prostate cancer with diffuse bone metastases (March 20th). I met with my oncologist at Sloan Kettering on March 23rd and received my first hormone treatment (Degarelix). My PSA has already dropped from 189 to 23.89, and I had my second hormone treatment, which was
I was recently diagnosed with advanced prostate cancer with diffuse bone metastases (March 20th). I met with my oncologist at Sloan Kettering on March 23rd and received my first hormone treatment (Degarelix). My PSA has already dropped from 189 to 23.89, and I had my second hormone treatment, which was
Bruce98
in
Advanced Prostate Cancer
1 year ago
Mum with CBD
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Bobbiejo21
in
PSP Association
9 months ago
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