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Actemra enroute soonish?
I spoke to a rheumatologist the other day who has been in touch with Genentech, the drug company that makes
Actemra
. She said they are pushing for
Actemra
to be approved, for PMR by the FDA and are hoping to get the approval fast tracked, within a year or so.
I spoke to a rheumatologist the other day who has been in touch with Genentech, the drug company that makes
Actemra
. She said they are pushing for
Actemra
to be approved, for PMR by the FDA and are hoping to get the approval fast tracked, within a year or so.
Hindags
in
PMRGCAuk
7 years ago
Actemra (Tocilizumab) questions
Hello all other Tocilizumab patients. A coupe of question for you all. Have you noticed since being on Tocilizumab that your appetite has diminished yet you are gaining weight? Have you noticed that your hair is growing in finer or you are losing hair? That your finger and toe nails seem to be growing
Hello all other Tocilizumab patients. A coupe of question for you all. Have you noticed since being on Tocilizumab that your appetite has diminished yet you are gaining weight? Have you noticed that your hair is growing in finer or you are losing hair? That your finger and toe nails seem to be growing
dwsurquhart
in
NRAS
7 years ago
Vasculitis Relaspse after Injury?
I am now treated on low dose steroid , methotrexate and
Actemra
Alti IL6 and Angina medicines. Recently after a remission I am having a relapse after I had a fall and injured my spine. My
Actemra
dose went back to one per week and all my cardiac medicines are now doubled. I am 46 yrs old Female .
I am now treated on low dose steroid , methotrexate and
Actemra
Alti IL6 and Angina medicines. Recently after a remission I am having a relapse after I had a fall and injured my spine. My
Actemra
dose went back to one per week and all my cardiac medicines are now doubled. I am 46 yrs old Female .
PriyaSomasundaran
in
Vasculitis UK
7 years ago
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To PMRPro or anyone knows my crazy history feel free to pop in
I am hoping the
Actemra
will not bring on numerous infections and all the other things you can acquire before I can get down to 10. Any thoughts?
I am hoping the
Actemra
will not bring on numerous infections and all the other things you can acquire before I can get down to 10. Any thoughts?
Nap1
in
PMRGCAuk
7 years ago
Where from here PRO
Together we decided I need to try
Actemra
. Have lots of skin cancer just diagnosed and need surgery. Also never had my eye surgery and everything is on hold. Have been trying to get down to 10 and it's not happening. If blood tests ok for
Actemra
that's my next step.
Together we decided I need to try
Actemra
. Have lots of skin cancer just diagnosed and need surgery. Also never had my eye surgery and everything is on hold. Have been trying to get down to 10 and it's not happening. If blood tests ok for
Actemra
that's my next step.
Nap1
in
PMRGCAuk
7 years ago
Actemra injections. USA
I'm going to start these injections for PMR/GCA. I have been on prednisone for six years; have had to have IV prednisone last year for GCA symptoms; down to 15 mg prednisone now, tapering every two weeks down to ten and then one mg a month below that. I'm at the point that prednisone is damaging me
I'm going to start these injections for PMR/GCA. I have been on prednisone for six years; have had to have IV prednisone last year for GCA symptoms; down to 15 mg prednisone now, tapering every two weeks down to ten and then one mg a month below that. I'm at the point that prednisone is damaging me
EmmaLaura
in
PMRGCAuk
7 years ago
Flat after Rheumy today
Then came the plan B if Pred "isn't cutting it" such as Methotrexate/
Actemra
. I said, "but they can have bad side effects as well" to which he said people with GCA do better.
Then came the plan B if Pred "isn't cutting it" such as Methotrexate/
Actemra
. I said, "but they can have bad side effects as well" to which he said people with GCA do better.
SnazzyD
in
PMRGCAuk
7 years ago
Are you/have you been on Actemra for GCA? Feedback required
There is a request on the VasculitisUK forum looking for patient experiences: https://healthunlocked.com/vasculitis-uk/posts/135990337/giant-cell-arteritis-and-tocilizumab-patient-experience-needed Suzy and John would be delighted if you would have a look and contribute. I have told her that many of
There is a request on the VasculitisUK forum looking for patient experiences: https://healthunlocked.com/vasculitis-uk/posts/135990337/giant-cell-arteritis-and-tocilizumab-patient-experience-needed Suzy and John would be delighted if you would have a look and contribute. I have told her that many of
PMRpro
Ambassador
in
PMRGCAuk
7 years ago
Actemra being sued???
Why is
actemra
being sued?
Why is
actemra
being sued?
Buddyk
in
PMRGCAuk
7 years ago
Actemra and effects?
Hello I am new here and would like to know has anyone tried
Actemra
. I have only been taking Neproxen 500mg 2x a day until my second appointment with my Rheumatoligist. He sai d that since I have a history of non-Hodgkins Lymphoma I could not start on the normal mexotrexate and DMARDS.
Hello I am new here and would like to know has anyone tried
Actemra
. I have only been taking Neproxen 500mg 2x a day until my second appointment with my Rheumatoligist. He sai d that since I have a history of non-Hodgkins Lymphoma I could not start on the normal mexotrexate and DMARDS.
rbeams11
in
NRAS
7 years ago
Actemra FDA approved
For those of us in the US, it is great to note that the FDA has expanded the use of
Actemra
(tocilizumab) to treat giant cell arteritis in adults. This is the first FDA-approved therapy for GCA, granted under a breakthrough therapy designation and priority review.
For those of us in the US, it is great to note that the FDA has expanded the use of
Actemra
(tocilizumab) to treat giant cell arteritis in adults. This is the first FDA-approved therapy for GCA, granted under a breakthrough therapy designation and priority review.
Nruble
in
PMRGCAuk
7 years ago
Itching
After five years i did not blame the ptednisone ... i blamed the
actemra
shot and was told to take benadryl. That did work. I have changed to the coated tablet of prednisone tho and even though i am not taking The actema right now i still itch.
After five years i did not blame the ptednisone ... i blamed the
actemra
shot and was told to take benadryl. That did work. I have changed to the coated tablet of prednisone tho and even though i am not taking The actema right now i still itch.
30048
in
PMRGCAuk
7 years ago
Back to square one with GCA
I don't know what he has in mind and perhaps it is
Actemra
. But from what I understand I would still have to go up on the steroids again and then begin
Actemra
I seem to get stuck at 12 whether I do the slow method and it takes me a year or this quick method.
I don't know what he has in mind and perhaps it is
Actemra
. But from what I understand I would still have to go up on the steroids again and then begin
Actemra
I seem to get stuck at 12 whether I do the slow method and it takes me a year or this quick method.
Nap1
in
PMRGCAuk
7 years ago
Tocilizumab/Actemra - and biosimilars
I thought with all the discussion about using
Actemra
in GCA people might find this article interesting: https://scrip.pharmamedtechbi.com/-/media/Supporting-Documents/Scrip-Issue-PDFs/2017/scrip_3852.pdf?
I thought with all the discussion about using
Actemra
in GCA people might find this article interesting: https://scrip.pharmamedtechbi.com/-/media/Supporting-Documents/Scrip-Issue-PDFs/2017/scrip_3852.pdf?
PMRpro
Ambassador
in
PMRGCAuk
7 years ago
Diet instead of meds
I take several meds including an infusion of
actemra
on a monthly basis. I would like to buy the Clint paddison book and try the program but I'm not sure if the book has the whole diet program. If there is anyone who has bought the book please let me know. Thanks
I take several meds including an infusion of
actemra
on a monthly basis. I would like to buy the Clint paddison book and try the program but I'm not sure if the book has the whole diet program. If there is anyone who has bought the book please let me know. Thanks
Mbestaunt
in
NRAS
7 years ago
Actemra uodate
Have had three shots of
Actemra
and have been denied by the insurance company who would like me to try Remicade ? I can get the infusion but not the shot . Doesn't make sense to me . I have begun to itch all over which is a side effect of the
actemra
.
Have had three shots of
Actemra
and have been denied by the insurance company who would like me to try Remicade ? I can get the infusion but not the shot . Doesn't make sense to me . I have begun to itch all over which is a side effect of the
actemra
.
30048
in
PMRGCAuk
7 years ago
RA and teeth
The only medication that he is on for the RA is
Actemra
. My question is...Does this seem like the RA is preventing him from healing?
The only medication that he is on for the RA is
Actemra
. My question is...Does this seem like the RA is preventing him from healing?
bobbnlady
in
NRAS
7 years ago
Pray and ra
What are your concerns about
actemra
infusions?
What are your concerns about
actemra
infusions?
Buddyk
in
PMRGCAuk
7 years ago
gca patients that are on infusions
Is there a place where only giant cell arteritis patients post that are done with prednisone and on
actemra
infusions? I only know one other person in that position in 15 months...I need to talk to someone else. Buddyk
Is there a place where only giant cell arteritis patients post that are done with prednisone and on
actemra
infusions? I only know one other person in that position in 15 months...I need to talk to someone else. Buddyk
Buddyk
in
PMRGCAuk
7 years ago
Sho sho
But am on
actemra
infusions and am wondering how others on the infusions feel. It is wonderful to find others who have gca....in 15 months I only know one other person.
But am on
actemra
infusions and am wondering how others on the infusions feel. It is wonderful to find others who have gca....in 15 months I only know one other person.
Buddyk
in
PMRGCAuk
7 years ago
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