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Actemra
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actemra
rheumatologist wants me to put me on
Actemra
since I’m not tolerating prednisone that well, what has everyone’s experience been?
rheumatologist wants me to put me on
Actemra
since I’m not tolerating prednisone that well, what has everyone’s experience been?
GivenUp24
in
PMRGCAuk
11 hours ago
testing for IL6
Is it possible to test for the IL 6 factor before starting
Actemra
to see if
Actemra
will work for you?
Is it possible to test for the IL 6 factor before starting
Actemra
to see if
Actemra
will work for you?
Mstiles
in
PMRGCAuk
3 months ago
GCA-Diagnosis
Have been on
Actemra
shot weekly for 16 months now with no flare. Has anyone gotten of
Actemra
as well as Prednisone with no problems?
Have been on
Actemra
shot weekly for 16 months now with no flare. Has anyone gotten of
Actemra
as well as Prednisone with no problems?
LRevell
in
PMRGCAuk
2 months ago
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GCA..Actemra.
Put on 40mg of Prednisolone and since March of this year have been on
Actemra
once a week.
Put on 40mg of Prednisolone and since March of this year have been on
Actemra
once a week.
Hidden
in
PMRGCAuk
3 days ago
Continue Forever on Low Dose Prednisone?
Started again on 60 mg prednisone and
Actemra
injections . Right now I’m taking 1.5 mg prednisone and
Actemra
every other week. I see a great rheumatologist and a neuro ophthalmologist.
Started again on 60 mg prednisone and
Actemra
injections . Right now I’m taking 1.5 mg prednisone and
Actemra
every other week. I see a great rheumatologist and a neuro ophthalmologist.
Pamk1949
in
PMRGCAuk
10 hours ago
Giant Cell Arteritis
Started with 60 mg Prednisone and slowly decreased after 2 months added
Actemra
injections once a week. Now done with Prednisone and on
Actemra
only. I’m doing well thus far and wondering if anyone is doing well on
Actemra
only. Thank you, looking forward to hearing back from you.
Started with 60 mg Prednisone and slowly decreased after 2 months added
Actemra
injections once a week. Now done with Prednisone and on
Actemra
only. I’m doing well thus far and wondering if anyone is doing well on
Actemra
only. Thank you, looking forward to hearing back from you.
LRevell
in
PMRGCAuk
4 months ago
Jaw locking while tapering for GCA
I have had three
Actemra
infusions thus far. The second and third doses of
Actemra
mostly eliminated my headaches. I am currently taking 40 mg. of Prednisone. Advice?
I have had three
Actemra
infusions thus far. The second and third doses of
Actemra
mostly eliminated my headaches. I am currently taking 40 mg. of Prednisone. Advice?
Bummed24
in
PMRGCAuk
3 months ago
giant Cell
I’m off Prednisone and on
Actemra
only now. I inject it once a week. Lately been feeling a little light headed and woozy. My blood pressure is fine!
I’m off Prednisone and on
Actemra
only now. I inject it once a week. Lately been feeling a little light headed and woozy. My blood pressure is fine!
LRevell
in
PMRGCAuk
3 months ago
Trip to the Er/ED
Things I'm nervous about:
Actemra
-induced MS,
Actemra
-induced diabetes,
Actemra
-induced damage to liver and/or kidneys. And that there might be something on the MRI that indicated further testing, but was dismissed.
Things I'm nervous about:
Actemra
-induced MS,
Actemra
-induced diabetes,
Actemra
-induced damage to liver and/or kidneys. And that there might be something on the MRI that indicated further testing, but was dismissed.
Lenore58
in
PMRGCAuk
3 months ago
Tyenne /Tocilizumab
Hi just to say I be just received a letter to say I’m changing from
actemra
to this brand. Hopefully a lower price will make it an option for more people.
Hi just to say I be just received a letter to say I’m changing from
actemra
to this brand. Hopefully a lower price will make it an option for more people.
Devoid
in
PMRGCAuk
3 months ago
Antibiotic and Actemra
If I'm understanding the guidelines for
Actemra
correctly, apparently, I am supposed to stop my
Actemra
injection (which is every two weeks) while I am on an antibiotic. My question is, is that really necessary? What if I had just given myself the injection yesterday?
If I'm understanding the guidelines for
Actemra
correctly, apparently, I am supposed to stop my
Actemra
injection (which is every two weeks) while I am on an antibiotic. My question is, is that really necessary? What if I had just given myself the injection yesterday?
ILbbHpmr
in
PMRGCAuk
3 months ago
Melanoma Surgery while taking Actemra and Prednisone
My question is: should I increase/decrease prednisone or
Actemra
for this? I’ll have two incisions for this, and wear machine that helps healing for a week? 🤨 I would be great full for your experiences and opinions
My question is: should I increase/decrease prednisone or
Actemra
for this? I’ll have two incisions for this, and wear machine that helps healing for a week? 🤨 I would be great full for your experiences and opinions
Pamk1949
in
PMRGCAuk
4 months ago
Ongoing headaches
Second question, in looking ahead in hopes of the headaches going away.....my rheumy who advocates for shared decision making, suggests I be able to wean quicker off the Pred because I am starting on monthly
Actemra
infusions. What is your advice for weaning with
Actemra
?
Second question, in looking ahead in hopes of the headaches going away.....my rheumy who advocates for shared decision making, suggests I be able to wean quicker off the Pred because I am starting on monthly
Actemra
infusions. What is your advice for weaning with
Actemra
?
Bummed24
in
PMRGCAuk
5 months ago
Actemra and Extremely Fast Taper off of Prednisone
It seems that her thoughts are that
Actemra
be used in lieu of Prednisone not in conjunction with, and from what I've read
Actemra
is a steroid reducing drug (at least at first) that will allow for a gradual but quicker taper off of Prednisone until such time that one would only be using
Actemra
.
It seems that her thoughts are that
Actemra
be used in lieu of Prednisone not in conjunction with, and from what I've read
Actemra
is a steroid reducing drug (at least at first) that will allow for a gradual but quicker taper off of Prednisone until such time that one would only be using
Actemra
.
newsusy
in
PMRGCAuk
4 months ago
actemra, kevzara, tocillizumab, sarilumab
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of
actemra
, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too….
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of
actemra
, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too….
Kaaswinkel
in
PMRGCAuk
1 month ago
Facial Numbness
I am wondering if this could be associated with GCA or a side effect of
Actemra
or prednisone?
I am wondering if this could be associated with GCA or a side effect of
Actemra
or prednisone?
Lenore58
in
PMRGCAuk
29 days ago
GCA flair?
I am also on
Actemra
infusions once a month. This past week, on two occasions I was eating and my jaw made hard cracking sound. I have never experienced anything like it. Reading about GCA flairs, could this be an issue for me. No other symptoms. Thank you
I am also on
Actemra
infusions once a month. This past week, on two occasions I was eating and my jaw made hard cracking sound. I have never experienced anything like it. Reading about GCA flairs, could this be an issue for me. No other symptoms. Thank you
Plains
in
PMRGCAuk
11 days ago
Any advice to get back on track please?
(apart from cost and LFTs) PMR and DL both gave good advice as always and one of the other kind responses I had was from a gentleman who was having
Actemra
every 5 weeks, and someone else was on 3.5mg pred daily and no
Actemra
so it all seemed doable.
(apart from cost and LFTs) PMR and DL both gave good advice as always and one of the other kind responses I had was from a gentleman who was having
Actemra
every 5 weeks, and someone else was on 3.5mg pred daily and no
Actemra
so it all seemed doable.
Happyexplorer
in
PMRGCAuk
4 months ago
Speedy taper after relapse - safe?
I'm still on weekly
Actemra
. My symptoms have cleared on the 40mg, but I'm wondering if anyone has insights regarding this proposed pace of pred reduction here. Is the taper for a relapse approached differently than the original illness? Many thanks,
I'm still on weekly
Actemra
. My symptoms have cleared on the 40mg, but I'm wondering if anyone has insights regarding this proposed pace of pred reduction here. Is the taper for a relapse approached differently than the original illness? Many thanks,
Optim11
in
PMRGCAuk
18 days ago
IV infusion Actemra vs. SQ
/kg. )
Actemra
infusions which have helped a bit, but I still have scalp tenderness, intermittent headaches, ear and jaw soreness, tongue just a bit sore, and elevated tinnitus. One rheumatologist thought irregular absorption rates with SQ would make it less potent than the infusion.
/kg. )
Actemra
infusions which have helped a bit, but I still have scalp tenderness, intermittent headaches, ear and jaw soreness, tongue just a bit sore, and elevated tinnitus. One rheumatologist thought irregular absorption rates with SQ would make it less potent than the infusion.
Bummed24
in
PMRGCAuk
29 days ago
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