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Tapering with ACTEMRA (TCZ)
We are looking to start using TCZ as a method to taper & putting GCA into remission. My wife is at 35mg of Pred. Does anyone have experience on how fast we can taper using TCZ?
We are looking to start using TCZ as a method to taper & putting GCA into remission. My wife is at 35mg of Pred. Does anyone have experience on how fast we can taper using TCZ?
Jim-CJ
in
PMRGCAuk
7 years ago
MRSA & RA??
So she knew of my history with MRSA and said I am sending a RX in for
Actemra
, a biologic. I just called my infection disease control doctor and he said no to the biologic. WHAT? What do I do for the RA?
So she knew of my history with MRSA and said I am sending a RX in for
Actemra
, a biologic. I just called my infection disease control doctor and he said no to the biologic. WHAT? What do I do for the RA?
AnnaRay
in
NRAS
7 years ago
Actemra quit working - now what?
I have been on
Actemra
for nine months but the last three I've been flaring nonstop. I don't see the point in continuing if I'm waking in agony. I'm running out of things to try. Perhaps Xeljanz? I'm meeting with my rheumatologist next week to discuss this latest development.
I have been on
Actemra
for nine months but the last three I've been flaring nonstop. I don't see the point in continuing if I'm waking in agony. I'm running out of things to try. Perhaps Xeljanz? I'm meeting with my rheumatologist next week to discuss this latest development.
Nitrobunny
in
NRAS
7 years ago
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Finally made the move back to New Jersey.
He is one of the few rheumatologist that were involved with the trials for
Actemra
. Which by the way got final approval this past week.
He is one of the few rheumatologist that were involved with the trials for
Actemra
. Which by the way got final approval this past week.
Nap1
in
PMRGCAuk
7 years ago
Question ?
I have been through four DMARD's, Humira, Orencia, will not risk
Actemra
due to diverticulosis. I am allergic to Naproxen, Sulla, Chlorpromazine, Imitrex, Lefludamide, Clindamycin and Asprin so far.. I am torn.
I have been through four DMARD's, Humira, Orencia, will not risk
Actemra
due to diverticulosis. I am allergic to Naproxen, Sulla, Chlorpromazine, Imitrex, Lefludamide, Clindamycin and Asprin so far.. I am torn.
Damaged
in
NRAS
7 years ago
Lefluomide...reactions?
After a long road of MTX , Humira,
Actemra
biological, I popped a stage1 breast cancer. Switched to Lefluomide. $28 , not $500 copay. Any experiences? Indigestion mostly, but surprised it gives me good relief. Talk to me!
After a long road of MTX , Humira,
Actemra
biological, I popped a stage1 breast cancer. Switched to Lefluomide. $28 , not $500 copay. Any experiences? Indigestion mostly, but surprised it gives me good relief. Talk to me!
rooney2011
in
Cure Arthritis Community
7 years ago
CHA PAR are back..
Both the sed rate & CPR were very hi, Dr called & started My
Actemra
infusions again, by the next day I felt so much better. I took 20 mg preds for 3 days, once
Actemra
started, I stopped the preds... by My next treatment I will be feeling great again.. I love
Actemra
!!! Don't know how long Dr.
Both the sed rate & CPR were very hi, Dr called & started My
Actemra
infusions again, by the next day I felt so much better. I took 20 mg preds for 3 days, once
Actemra
started, I stopped the preds... by My next treatment I will be feeling great again.. I love
Actemra
!!! Don't know how long Dr.
beringer
in
PMRGCAuk
7 years ago
Flare up
Hi woke up this morning with red knuckles seem to be having a flare up all my joints hurt.This seems to be my worst flate up sonce starting roactemra in september.Feel crapy and down today with pain.Hoping will pass so i dont have to go to gp.
Hi woke up this morning with red knuckles seem to be having a flare up all my joints hurt.This seems to be my worst flate up sonce starting roactemra in september.Feel crapy and down today with pain.Hoping will pass so i dont have to go to gp.
Trace1974
in
NRAS
7 years ago
Actemra Effective at Maintaining Steroid-Free Remission In GCA
https://globalgenes.org/raredaily/genentech-phase-iii-study-shows-
actemra
-effective-at-maintaining-steroid-free-remission-in-patients-with-giant-cell-arteritis/
https://globalgenes.org/raredaily/genentech-phase-iii-study-shows-
actemra
-effective-at-maintaining-steroid-free-remission-in-patients-with-giant-cell-arteritis/
Marie1479
in
PMRGCAuk
7 years ago
Tocilizumab
Has anyone experienced infusions of this drug (
Actemra
) ? I don't believe I've seen it mentioned here. Have a wonderful Easter weekend everyone! Chris
Has anyone experienced infusions of this drug (
Actemra
) ? I don't believe I've seen it mentioned here. Have a wonderful Easter weekend everyone! Chris
8080
in
NRAS
7 years ago
Actemra issues
Actemra
has brought it down to below 0.2mg/l. Anyhow, my knees, feet and hips have felt like I have hot fireplace pokers stuck in them when i move around for the past week.
Actemra
has brought it down to below 0.2mg/l. Anyhow, my knees, feet and hips have felt like I have hot fireplace pokers stuck in them when i move around for the past week.
dwsurquhart
in
NRAS
7 years ago
actemra
The FDA also granted priority review designation for
Actemra
/RoActemra for the treatment of GCA. The designation is based on the positive outcome of the Phase III GiACTA study evaluating
Actemra
/RoActemra in people with GCA.
The FDA also granted priority review designation for
Actemra
/RoActemra for the treatment of GCA. The designation is based on the positive outcome of the Phase III GiACTA study evaluating
Actemra
/RoActemra in people with GCA.
mamacline
in
PMRGCAuk
7 years ago
GCA FLARE WITH PLUS NEW AUTOIMMUNE DISORDER
I was put back on Prednisone 40mg, and have restarted the
Actemra
monthly infusions. I am now on Prednisone 30mg and tapering. I have also been recently diagnosed with ocular myasthenia travis. This autoimmune disorder is causing my right eyelid to droop, plus blurred and sometime double vision.
I was put back on Prednisone 40mg, and have restarted the
Actemra
monthly infusions. I am now on Prednisone 30mg and tapering. I have also been recently diagnosed with ocular myasthenia travis. This autoimmune disorder is causing my right eyelid to droop, plus blurred and sometime double vision.
Joyful13
in
PMRGCAuk
7 years ago
Actemra
Ask this question months ago if anyone is on at
Actemra
now wondering how they are doing. See rheumatologist tomorrow and I Dr are all pushing it. Just can't seem to get off of 40 mg. Seem to spike when I get down to 33 or 32 are symptoms and CRP elevated.
Ask this question months ago if anyone is on at
Actemra
now wondering how they are doing. See rheumatologist tomorrow and I Dr are all pushing it. Just can't seem to get off of 40 mg. Seem to spike when I get down to 33 or 32 are symptoms and CRP elevated.
casse
in
PMRGCAuk
8 years ago
GCA FLAREUP
I have been off the
Actemra
of which I had monthly IV infusions for 10 months. I stopped the
Actemra
in October. During those 10 months, I slowly reduced the Prednisone to 4 mg. Several weeks ago, I began having severe frontal and temporal headaches, along with some painful jaw claudication.
I have been off the
Actemra
of which I had monthly IV infusions for 10 months. I stopped the
Actemra
in October. During those 10 months, I slowly reduced the Prednisone to 4 mg. Several weeks ago, I began having severe frontal and temporal headaches, along with some painful jaw claudication.
Joyful13
in
PMRGCAuk
8 years ago
Will GCA return?
Was on a monthly infusion of
Actemra
, I've been drug free for 8 months now & doing fine. My Husband of 59 years passed away 1 week ago & I've been a total depressed crying lump since. Do You think this could cause everything to return?
Was on a monthly infusion of
Actemra
, I've been drug free for 8 months now & doing fine. My Husband of 59 years passed away 1 week ago & I've been a total depressed crying lump since. Do You think this could cause everything to return?
beringer
in
PMRGCAuk
8 years ago
Increased shoulder, buttocks and thigh pain- PMR relapse?
I was taken off
Actemra
for the GCA in November due to severe GI problems, although we are not sure if they are related. What I have been thinking is Restless Leg Syndrome, could the severe pain with the restless legs be PMR relapse.
I was taken off
Actemra
for the GCA in November due to severe GI problems, although we are not sure if they are related. What I have been thinking is Restless Leg Syndrome, could the severe pain with the restless legs be PMR relapse.
Joyful13
in
PMRGCAuk
8 years ago
Frightening news - White CBC of 22,000 and liver panels elevated - RA, PMR and GCA with an ALL leukemia history
Secondly, if all is good on that front I do not want to have to go off of
Actemra
. It's the only thing that has worked for me in 14 years. My rheumatologist wants to do labs again in two weeks.
Secondly, if all is good on that front I do not want to have to go off of
Actemra
. It's the only thing that has worked for me in 14 years. My rheumatologist wants to do labs again in two weeks.
Nitrobunny
in
NRAS
8 years ago
Worst Pleurisy of my lifetime - Does anyone have any wisdom for getting through this?
I'm also due to have my
Actemra
infusion Tuesday. I don't know how this latest development will play into if they will proceed with the infusion or not. I will call my rheumatologist in the morning to see if I need to cancel the infusion or not.
I'm also due to have my
Actemra
infusion Tuesday. I don't know how this latest development will play into if they will proceed with the infusion or not. I will call my rheumatologist in the morning to see if I need to cancel the infusion or not.
Nitrobunny
in
NRAS
8 years ago
Rituxan
I refused to start
Actemra
, because of Diverticulosis and hypertension. The nurse tried to have me schedule it but I refused. My Rheumy then sent me to an Internist who refused to approve it without repeating the scope. Hence the switch to Rituxan. I review all data on drugs prior to taking them.
I refused to start
Actemra
, because of Diverticulosis and hypertension. The nurse tried to have me schedule it but I refused. My Rheumy then sent me to an Internist who refused to approve it without repeating the scope. Hence the switch to Rituxan. I review all data on drugs prior to taking them.
Damaged
in
Arthritis Action
8 years ago
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