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Acetohydroxamic acid
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Bit of a ramble but this is the only place that I can .....
Bit of a ramble but this is the only place that I can ......... I am down to 4mgms pred. When I last saw my Rheumatologist 6 weeks ago I told him that I thought I had sciatica .Been suffering pains down leg and lower back pain and was generally aching all over. awake at night He said that the pains
Bit of a ramble but this is the only place that I can ......... I am down to 4mgms pred. When I last saw my Rheumatologist 6 weeks ago I told him that I thought I had sciatica .Been suffering pains down leg and lower back pain and was generally aching all over. awake at night He said that the pains
Teekay2
in
PMRGCAuk
1 day ago
blood tests and zoledronic acid infusions
I recently asked for a blood test in-between my zoledronic acid infusions to see how my calcium levels are, I got a text from a gp to say that I only need a blood test 2-7 days prior to my infusion, it's good to know if I am still absorbing calcium I do not take a calcium supplement,
I recently asked for a blood test in-between my zoledronic acid infusions to see how my calcium levels are, I got a text from a gp to say that I only need a blood test 2-7 days prior to my infusion, it's good to know if I am still absorbing calcium I do not take a calcium supplement,
Radars
in
Bone Health and Osteoporosis UK
3 days ago
blood tests while on zoledronic acid infusion.
I recently asked for regular blood tests while on zoledronic acid infusions, a gp sent me a text to say that I only need blood tests a week before the next infusion, I wanted to see if my calcium levels were ok in-between infusions, but no.
I recently asked for regular blood tests while on zoledronic acid infusions, a gp sent me a text to say that I only need blood tests a week before the next infusion, I wanted to see if my calcium levels were ok in-between infusions, but no.
Radars
in
Advanced Prostate Cancer
3 days ago
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questions about Ursodiol medication.
I take 300mg of ursodiol 3 times a day and I’ve been taking this for 6 years. My only one problem is that I have never been able to swallow pills before and still can’t get it right. I been getting complaints from my dentist about cavities popping up often when I visit for fillings. I try to rinse
I take 300mg of ursodiol 3 times a day and I’ve been taking this for 6 years. My only one problem is that I have never been able to swallow pills before and still can’t get it right. I been getting complaints from my dentist about cavities popping up often when I visit for fillings. I try to rinse
TurtleLuv
in
PBC Foundation
4 days ago
Alendronic Acid. Making my own choices.
Just an offload really: I woke up today (AA day) and decided not to take it. I’ve just been reading previous posts on here and ive found it pretty scary to read that once stopping taking it, it can stay in your system for 10 yrs. That’s frightening stuff. I was diagnosed over the phone withPMR
Just an offload really: I woke up today (AA day) and decided not to take it. I’ve just been reading previous posts on here and ive found it pretty scary to read that once stopping taking it, it can stay in your system for 10 yrs. That’s frightening stuff. I was diagnosed over the phone withPMR
Doraflora
in
PMRGCAuk
5 days ago
vision problems taking alendronic acid
Took alendronic acid for 5 months,then teriparitide injection 2 years,then back on alendronic acid since june 2024. Noticed visual disturbance whilst driving last week. seen by optician yesterday ,who is contacting consultant today. Realised on reflection had one episode when taking first time around
Took alendronic acid for 5 months,then teriparitide injection 2 years,then back on alendronic acid since june 2024. Noticed visual disturbance whilst driving last week. seen by optician yesterday ,who is contacting consultant today. Realised on reflection had one episode when taking first time around
h1h1h1h1
in
Bone Health and Osteoporosis UK
5 days ago
Mefenamic Acid, Lansoprazole & Cyclizine Hydrochloride
Hi, I’ve been prescribed these two by the GP to treat my pain. Can you please tell me if I understand well - so the landoprazole I should take like after food together with mefenamic acid at the same time or leave some period inbetween? I’m trying to figure out how am I going to sort an order o taking
Hi, I’ve been prescribed these two by the GP to treat my pain. Can you please tell me if I understand well - so the landoprazole I should take like after food together with mefenamic acid at the same time or leave some period inbetween? I’m trying to figure out how am I going to sort an order o taking
senselessmind
in
Endometriosis UK
8 days ago
tooth extraction
I came off of alendronic acid over 7 years ago and now need a tooth extracted. Has anyone had this done that long after treatment and had any problems? My dentist is referring me to the hospital to have it extracted, but I am concerned it may be too risky.
I came off of alendronic acid over 7 years ago and now need a tooth extracted. Has anyone had this done that long after treatment and had any problems? My dentist is referring me to the hospital to have it extracted, but I am concerned it may be too risky.
Harveymum
in
Bone Health and Osteoporosis UK
10 days ago
Positive case studies
Literature trawl - copy the text and paste into Google search to find papers. This is just the best bits. Jo 9 yearWe present a case of a patient with castration-resistant prostate cancer with proven bone lesions 2 years after the onset of the disease and the current survival of over 9 years. In 2013
Literature trawl - copy the text and paste into Google search to find papers. This is just the best bits. Jo 9 yearWe present a case of a patient with castration-resistant prostate cancer with proven bone lesions 2 years after the onset of the disease and the current survival of over 9 years. In 2013
TomsD1
in
Advanced Prostate Cancer
10 days ago
calcium supplements
I have been on zoledronic acid infusion for 1yr 3 months, are you supposed to take a calcium supplement while I am on it.
I have been on zoledronic acid infusion for 1yr 3 months, are you supposed to take a calcium supplement while I am on it.
Radars
in
Advanced Prostate Cancer
10 days ago
Alendronic Acid side effects
Took Evenity for 11 months, then Actonel low does caused bad migraine, then Raloxifine caused 5 day migraine now Alendronic Acid at only 20mg and non stop migraine for nearly a week, plus swollen feet, sleeping heavy and low mood. Has anyone come off Alendronic Acid after bad migraine, how long for
Took Evenity for 11 months, then Actonel low does caused bad migraine, then Raloxifine caused 5 day migraine now Alendronic Acid at only 20mg and non stop migraine for nearly a week, plus swollen feet, sleeping heavy and low mood. Has anyone come off Alendronic Acid after bad migraine, how long for
cmoc
in
Bone Health and Osteoporosis UK
12 days ago
hiatus hernia
I have been on prednisone since January 2017…it seems a lifetime ago☹️ I was put on Alendronic Acid which in turn gave me a hiatus hernia/GERD (2019) ...the consultant I saw said he was positive it happened because of the AA…☹️ It has undoubtedly had a major affect on my life making PMR almost acceptable
I have been on prednisone since January 2017…it seems a lifetime ago☹️ I was put on Alendronic Acid which in turn gave me a hiatus hernia/GERD (2019) ...the consultant I saw said he was positive it happened because of the AA…☹️ It has undoubtedly had a major affect on my life making PMR almost acceptable
PamJCam
in
PMRGCAuk
12 days ago
Chemotherapy Induced Peripheral Neuropathy
If you develop CIPN during chemotherapy, and it becomes permanent, can you subsequently find it has progressed to another site some years after the original diagnosis? I finished 6 cycles of Docetaxel in October 2019. Once the stabbing pains and feeling of being electrocuted had worn off, I was left
If you develop CIPN during chemotherapy, and it becomes permanent, can you subsequently find it has progressed to another site some years after the original diagnosis? I finished 6 cycles of Docetaxel in October 2019. Once the stabbing pains and feeling of being electrocuted had worn off, I was left
Dastardly
in
Advanced Prostate Cancer
12 days ago
seborrheic keratosis management
Hi Everyone, I was hoping to get some guidance on managing Seborrheic Keratosis. I'm 53 and I have a seborrheic keratosis under my eye, on my forehead, right side of my face and left ear. Is there any proven ways of managing them? I started washing my face with a wash that has salicylic acid and
Hi Everyone, I was hoping to get some guidance on managing Seborrheic Keratosis. I'm 53 and I have a seborrheic keratosis under my eye, on my forehead, right side of my face and left ear. Is there any proven ways of managing them? I started washing my face with a wash that has salicylic acid and
Ziggy88
in
MY SKIN
13 days ago
Change of medication or stay with existing regime?
I have been diagnosed with psoriatic arthritis/axial and peripheral spondlyarthritis seems to vary. I've been taking COSENTYX 300 for about 3 years, plus MTX currently 15mg. This was working well at the beginning of the year. I started on Alendronic acid in Feb and had a big flare. Stopped Alendronic
I have been diagnosed with psoriatic arthritis/axial and peripheral spondlyarthritis seems to vary. I've been taking COSENTYX 300 for about 3 years, plus MTX currently 15mg. This was working well at the beginning of the year. I started on Alendronic acid in Feb and had a big flare. Stopped Alendronic
Gilliancheche
in
NRAS
21 days ago
New guidelines to prevent skeletal events in metastatic prostate cancer
They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html
They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html
Maxone73
in
Advanced Prostate Cancer
23 days ago
root canal work while on zoledronic acid infusions
I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in March. A week ago I started getting intermittent pains in the right side of my jaw, both bottom and top. GP ruled out PMR and recommended I visit
I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in March. A week ago I started getting intermittent pains in the right side of my jaw, both bottom and top. GP ruled out PMR and recommended I visit
Angel_doll
in
PMRGCAuk
23 days ago
ALENDRONIC ACID
Thanks everyone for your replies to my previous post re taking Alendronic Acid. All the information posted has been very helpful and answered things I was not told or aware of. Result it my Surgery is giving me a Telephone Consultation next Thursday to my Sister and Carer. Christine Bettany x
Thanks everyone for your replies to my previous post re taking Alendronic Acid. All the information posted has been very helpful and answered things I was not told or aware of. Result it my Surgery is giving me a Telephone Consultation next Thursday to my Sister and Carer. Christine Bettany x
Purple4710
in
NRAS
23 days ago
Ask Your Questions
Prof David Jones is our guest for tomorrows #PBC Q&A joined by the #PBCTeam live from the obeticholic acid protest in Brussels! Click here for the privacy of the room: https://www.pbcfoundation.org.uk/events/qa-pbc/ or watch us on Facebook Live at 2pm UK time.#PBCQuestions #PBCAnswers #SupportForLife
Prof David Jones is our guest for tomorrows #PBC Q&A joined by the #PBCTeam live from the obeticholic acid protest in Brussels! Click here for the privacy of the room: https://www.pbcfoundation.org.uk/events/qa-pbc/ or watch us on Facebook Live at 2pm UK time.#PBCQuestions #PBCAnswers #SupportForLife
DonnaBoll
Administrator
in
PBC Foundation
24 days ago
I haven't posted for a while....
Hello everyone, I haven't posted for a while, but have been reading the daily updates coming into my email account. I'm not too good at the moment, lots going on that I won't bore you with, a quick summary: After paying for MRIs which showed florid synovitis, bone erosions and more I was switched
Hello everyone, I haven't posted for a while, but have been reading the daily updates coming into my email account. I'm not too good at the moment, lots going on that I won't bore you with, a quick summary: After paying for MRIs which showed florid synovitis, bone erosions and more I was switched
Mmrr
in
NRAS
25 days ago
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