Experiences with

Acetohydroxamic acid

I have PBC and started ursodiol in August 2022. It’s in the early stages and my liver enzymes are now normal. But my skin is extremely dry, what do I do? I’m going to ask the specialist but I was wondering if anyone else has this issue. I’ve tried many different lotions and take vitamins but still very

Hi I've recently been diagnosed with osteoporosis Spine -3.5 I'm 60 and have many autoimmune conditions and have been offered zoledronic acid once yearly infusion If I don't think I can manage the oral bisphosphonates, I already suffer from joint and muscle pain and I feel absolutely terrified of

Hi what pain relief is good please. First period after lap and the usual ibuprofen and tranexamic acid ain't cutting it. Tried mefanamic acid too but previously didn't find it an improvement on the ibuprofen. Any advice greatly appreciated

Dear friends, I am finishing 2 years of Forsteo at the end of July. In preparation for the possibility of having ZA Infusion as follow on treatment, I have been attending dental appointments . Having been passed to the practise surgeon to have an extraction, we were both shocked to discover I may

Hi everyone, I haven't been on here for quite a while. I have at last got down to 1mg of pred which 6 months ago I thought it would never happen. I stumbled on 5mgs for ages but eventually I was able to keep lowering and being at 1mg after 22months from my diagnosis of Poly mialgia, I think I 've been

I would appreciate your guidance on the importance of which kind of shingles vaccine to have, i.e. live or not? I am on medication for GCA, 5.5mg Prednisolone, plus Levothyroxine, Bisoprolol, Amlodipine, Rosuvastatin, Ursodeoxycholic Acid, Famotidine, Losartan. With many thanks.

My brother has CRPC and is receiving Cabazitaxel+Relugolix. Denosumab and Zoledronic acid don't work for him. I suggested an Estrogen patch to both maintain bone density and ameliorate hot flashes. His oncologist said that an Estrogen patch would interfere with the Cabazitaxel. I can't find any literature

hi everyone. I’ve been on here before but now I am really stressing out. Just over a year ago I incurred 4 vertebrae fractures, incredibly painful, but I gradually recovered. Sadly I lost 2” in height. Subsequently I was sent for an MRI and, after, I received a letter from the hospital strongly

I am trying to work out whether or not Lansaprazole is upsetting my tummy/digestive system. I have been taking Pred fro three years now, getting down from 15mg to 4mg last year, falring and returning to 10mg now back to 4mg a year later. I started on the standard precautionary Alendronic Acid, Ad-Cal

I realised too late and am now concerned about it. I’m currently on holiday and always drink bottled water while away but I remembered that the instructions say it must be tap water. Any advice would be helpful. Thanks

I am 30 years old. I started menstruating at the age of 10. When I was around 14, I would have these random "attacks" of abdominal pain that left me crippled. There have been occasions my mum had to lift me out of the bath, because I felt like my insides had totally twisted. Now, I shower. But there

Xerostomia (dry mouth) is associated with an increased incidence of dental decay (cavities), oral fungal infections (candidiasis), halitosis, burning mouth, gingivitis and periodontal disease. Dry mouth may also cause dysphagia (difficulty in swallowing), dysgeusia (altered or loss of taste), and difficulty

Hello, I was first informed I had Osteoporosis 8 years ago after a Dexa at age 63. I was prescribed a few years of Alendronic Acid, and Adcal which I still takeI took steps to improve by taking up various activities and in 2022 started running regular 5ks. I eat healthily and enjoy lots of veg, in fact

I was diagnosed just after the start of the pandemic. It was lockdown = pandemonium. All the same it sticks in my mind that all I was told about Pred was when to take it and to reduce.. Really, they seemed most concerned about alendronic acid and how I must sit upright. Do people risk death if they

New study below [1]. Long-term vilification of saturated fats have led us to be afraid of longer-chain fats, such as (the innocent) stearic acid (C16:0). The short & medium chain fats don't get much press. "Caprylic acid {C8:0} (from Latin capra 'goat') ... is a saturated, medium-chain fatty acid"

does anyone know whats the best thing for constipation after having zoledronic acid infusion, I am eating a lot of Fibre but it's not doing any good.

Hi all, I'm a GCA patient, having started at 60 MG in AUG 2022. I'm down to 12.5 MG today. I have felt lousy in so many respects including fatigue, vision issues, and GI problems since day 1. When the rheumy put me on Alendronic Acid a month of so ago, that was the "last straw." It made me feel

Hi All, I stumbled upon multiple videos when reading about the cause of peripheral neuropathy, its causes and how it can be kept it control, if not cured. The hero of this read was Alpha Lipoic Acid (ALA in short). So, I would like to summarize what I have listened so far. The main functions of the

Briefly, I had PMR from 2016 - 2019. It didn’t show up on blood test and I was started on 15mg of pred. Within 48 hours I was pain free and quickly reduced to 10mg then dead slow method. After having very painful shoulders and top of arms for the last 3 months (which did not respond to painkillers

Dear friends, Once again I’m going to ask some questions on behalf of my dear wife. If you can share your experiences or give advice, we would be most grateful. Our first question is, if you have completed a course of Teriparatide injections, how long did you wait before your next course of treatment