Good news!: After 10 years of... - SHARE Metastatic ...

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Good news!

2Hopeful profile image
31 Replies

After 10 years of babysitting a small tumor in my brachial plexus area, I got the best news ever yesterday during my visit to M D Anderson. My MRI showed no tumor! I’m still in disbelief. I asked if this means I’m NED and they said yes. I never thought it would happen. I’ve been on Ibrance 100 and Letrozole for the last 4 1/2 years after some progression on tamoxifen. First diagnosed back in 2001 and had mastectomy, chemo, radiation and hormone therapy. Thought I was ok until 2015 when it came back. So will continue on my meds and be scanned again in 6 months. So there’s always hope!

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2Hopeful
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31 Replies
Saltandlight profile image
Saltandlight

Praise the Lord-that is wonderful news!! So happy for you and prayers your treatment continues to work well! 🙏🏻

Aprilfoolz1 profile image
Aprilfoolz1

fantastic news ! Thank you for posting :)

Fight2016 profile image
Fight2016

Great News! Thanks for posting. I’m curious, have you always been with MD Anderson? I am considering a consult with them but it’s several states away for me. Just curious.

2Hopeful profile image
2Hopeful in reply toFight2016

I’ve been with M D Anderson for 10 years. Started going there when I had my recurrence since I was told it was very unusual to have it come back in that area. I hoped at first that it could be removed surgically but after seeing about 6 of their specialists it was decided to be too risky since the tumor was in a bundle of nerves. So it’s been treated systemically instead. I’m about a 6 hour drive away but for me the trip is worth it. After initial visits I’ve only had to go twice a year. I also have a local oncologist.

Dragonfighter profile image
Dragonfighter

That is great news. Gives us all hope!

Zebra2018 profile image
Zebra2018

I am so happy for you

2Hopeful profile image
2Hopeful

Thank you all!

Totheriver profile image
Totheriver

Great news, so happy for you!!

Suite1000 profile image
Suite1000

Always encouraging to hear news like that. It's interesting to know that disease can continue to disappear at four years plus. I sure wish that this had been explained to me in the beginning of my treatment. After about 6 months my oncologist was "Well I was hoping for more.."

like there wasn't going to be any "more". No proof yet, but I believe my bones have continued to hear two years in. Scans in a few weeks.

2Hopeful profile image
2Hopeful in reply toSuite1000

I’ve just been hoping to be stable or even have my tumor a millimeter or 2 smaller. Did not even know there was any chance it would disappear. I’m still in a state of disbelief!

Cocoacandy profile image
Cocoacandy in reply toSuite1000

What scans do you get and how often ?

2Hopeful profile image
2Hopeful in reply toCocoacandy

I have MRI twice a year and PET once a year.

Cocoacandy profile image
Cocoacandy in reply to2Hopeful

Thank you

KarenandLinda profile image
KarenandLinda

absolutely fantastic news. God bless

Cazzandraus profile image
Cazzandraus

That is amazing news! Congratulations and thank you for sharing that. It’s helpful to know that after all these years, the medication is still effective and resolved those tumors. 🩷

omg so much hope for us all! Thankyou for sharing your amazing news, long may it continue xxx

love2golfwell profile image
love2golfwell

So happy for your good news! Hope you continue to have good scans. Sending hugs and prayers.

Artesa profile image
Artesa

Yay!! Congratulations, what fantastic news!! so very happy for you and cheering you on.. thanks for giving me hope too!! 👍

Kcap430 profile image
Kcap430

🙌🏻🙌🏻🙌🏻

Nocillo profile image
Nocillo

Fantastic! What a relief!

AvidBooklover profile image
AvidBooklover

Wonderful news!!! Yep NED are three brilliant letters when put together. Celebrate!!

fancydog profile image
fancydog

10 must be your lucky number! But just wow after so many years!

Justme153 profile image
Justme153

Wonderful !! TIME to CELEBRATE🎉🎉🎉🎉🎉🎉

HelenWi profile image
HelenWi

How fabulous! So happy for you. ❤️

DinNorCal profile image
DinNorCal

That is awesome news. It’s always great to see there is hope in this battle.

May you me blessed and remain NED for a very long time.

Debbie

mkrienke55 profile image
mkrienke55

congratulations! Wonderful news to hear!

Shellyn profile image
Shellyn

congratulations!!! Thank you for sharing!

Lulis profile image
Lulis

This is wonderful news! Thanks for sharing hope!

WhippetX2 profile image
WhippetX2

I'm so happy for you. Congratulations!

RLN-overcomer profile image
RLN-overcomer

Yesssss, Yayyyy , and Amen!!!! Celebrate good times with your loved ones. We pray😇✝️🙏 for many more great results for our Sister. Warrior Thrivers Amen

Mumberly profile image
Mumberly

thanks for sharing your good news! This is great to hear. Inspiring 🩷

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