I THINK THAT TRUQAP IS WORKING!

[jersey-jazz]

Finally, there is good news. The blood results show an amazing swerve to normal or much closer to normal than for many many months. So, I can endure the severe exhaustion with a smile on my face. Thank you for the support from you all who "know".

[Tmbj]

That's great news do happy for you xx 😁

[jersey-jazz in reply to Tmbj]

Thank you! It's funny how a little "normal" result warrants cheers, smiles and huge relief.

[Tmbj in reply to jersey-jazz]

Yes it's wonderful to hear your good news gives hope for us all when sharing your positive news 😁 sending hugs and positive energy to you xxx 🤗🤗🤗

[Lilywallytootsie]

Doing the happy dance for you. Blessings, Hannah

[jersey-jazz in reply to Lilywallytootsie]

I am dancing with you, only in my head, these days. -----maybe soon for real.

[bikebabe]

brilliant news.

[jersey-jazz in reply to bikebabe]

Yes, it is brilliant news. I am lapping it up.

[LibraryGeek]

Wonderful! Long may it continue x

[jersey-jazz in reply to LibraryGeek]

Thank you!

[Adele_Julia]

outstanding ! I just started last

Month. How long have you been on it ?

[jersey-jazz in reply to Adele_Julia]

I have been on it for six weeks. I am dreadfully exhausted but expect that eventually my body will get used to it and I will feel better. I need to keep moving when I would much rather lay in bed.

[Artesa]

Great news!! Very happy for you.. by blood results do you mean your CBC or complete blood count which include the Absolute Neutrophil count, white cell count, hemoglobin and platelets or did you mean the cancer markers?

[jersey-jazz in reply to Artesa]

I mean the comprehensive metabolic panel. It is not perfect but it is so much better than it had been. There is definite improvement and a way to go.

[BorisCarloff]

Mazel Tov..and knowing it's working may find you less tired!!!

[jersey-jazz in reply to BorisCarloff]

I think you may have hit upon something. My mood is definitely better. My energy level lags behind my mood. Maybe, just maybe I will be more inclined to work harder on physical exercise. I fact, I intend to. How are you doing?

[BorisCarloff in reply to jersey-jazz]

My dose got lowered last week, having rested it for a month. And after 4 days kidney and glucose numbers went nuts! BUT they are not going to pull it, just watch the numbers like a hawk. BUT I feel great except diarrhea that is handled by immodium. My side effects are silent. Hearing lots of good results from this baby!!!

[MettavivorDS]

That’s so good to hear! I’m glad the Truqap is working for you.

[jersey-jazz in reply to MettavivorDS]

Thank you for you good wishes!

[HelenWi]

so happy for you!

[jersey-jazz in reply to HelenWi]

Thank you, HelenWi!

[fancydog]

So good to hear, its been a hard journey of late for you!

[jersey-jazz in reply to fancydog]

All of us that are on this special forum have hard journeys and it makes us stronger to be part of this solid web of shared experiences and free flow of love, acceptance and knowledge.

[mariootsi]

So. Happy it's working! Continued success!

[jersey-jazz in reply to mariootsi]

Thank you and to you too!

[sancarlos]

Thanks for the encouraging news! I was just taken off Piqray because I have been getting so sick from it. They will start me on Truquap, next week. Hopefully it will work 🤞

[jersey-jazz in reply to sancarlos]

I hope you have much better luck with Truqap than with Piqray. As you know, Truqap is newer and supposedly has less side effects. Let us know how you get on with it.

[Kateds]

I am so glad it is working. God bless you! Kate

[jersey-jazz in reply to Kateds]

Thank you for the blessings! All blessings and good wishes help tremendously for me. I wish the same to you.

[Kcap430]

Doing the happy dance right beside you! Baby steps are still steps! Moving around as best and as often as you can is so important mentally and physically. So happy for you!!

[SKoter]

I love hearing happy news! I’m so happy for you!! XOXO

[Criggybear]

so glad your doing so well on Trugap! How new is this drug? I’m on Ibrance and this Friday I have a pet scan to see if the cancer has progressed. If so I think the doctor will put me on another drug because Ibrance is not working.

So happy for you and Good Luck with the new medicine!

[Praising in reply to Criggybear]

How long have you been on it. A little over a year for me. Neutropenic every month on low dose.

[jersey-jazz in reply to Praising]

The treatment with Truqap began in February at a low dose. I take one pill with breakfast and one pill with dinner. I weigh eighty three so that is plenty. Faslodex is once a month for me as with others. It has been relatively easy. I dry heave a lot which is unimportant. The important side effect which does affect my life but is not painful is this severe exhaustion. The treatment has made it worse if that were possible.I don't really care because the blood results are so good. Noted elsewhere, I go for the PET scan on 4//7/25 which will reveal the true results. I think that it will show cancer stopping dead in it's fast tracks. Good luck to you!

[jersey-jazz in reply to Criggybear]

Truqap was approved by the FDA in very late in 2023.

[jersey-jazz]

On April 7, I go for a PET scan and am hopeful that things have shrink or at least not got worse. Thank you!

[jersey-jazz in reply to jersey-jazz]

Criggybear-----Good luck with your Pet scan, this Friday! Please report to all of us.

[Criggybear]

I will!

[love2golfwell]

I am so very happy that this treatment is working for you. Sending hugs and prayers for continued good news.

[jersey-jazz in reply to love2golfwell]

I just gave a card to a friend of mine that said that hugs were so good because you always get one when you give one. So, I am sending you another hug back to you and I get one because it is reciprocal. So we are set for all the hugs today. Enjoy! XXX OOO

[love2golfwell in reply to jersey-jazz]

Thank you so much! Hugs are awesome and I appreciate getting them, too! Praying for good news on your PET scan. I have one this coming Monday and and am also hoping for good news.

[jersey-jazz in reply to love2golfwell]

I will pray for good news to you delivered in the form of results of your PET scan on Monday. Please let us all know how it goes.

[Totheriver]

That is awesome news💕. So happy for you.

[jersey-jazz]

Thank you, Totheriver! Now, I am waiting to go for the PET scan on Monday, the 7th of April. This time, it is a big deal. Hopefully it will confirm that the cancers are reacting favorably to the targeted therapy, Truqap.

[Shalive]

Hi I hope that the treatment is working and you’ll be able to stay on your current meds . It sounds like other than fatigue you are feeling well Please let us know your PET results!

[jersey-jazz]

The extreme exhaustion is completely affecting my life. I also have pain but, luckily, it is not constant. It is every night until I take pain pills. Sorry to complain. There are so many of you younger and in worse trouble with this monster illness. I am so sorry for you.