I don't normally post "my business" here, because I know we all have stuff we're going through. But, then I thought that maybe this could be a little light for some people and offer some hope. So, here goes.
I got the CT and nuclear bone density scan results today and the bone scan showed nothing, after having numerous bone mets for a couple of years, including one fracture on my c-spine. And, the CT showed that the liver lesions have all shrunk and as the report says "difficult to measure" because they are so small. (I've been stage IV since my diagnosis in 2012).
My treatment regimen has been taxol and Keytruda since January and all the tumors have been diminishing since I started this treatment. I'm not sure it's a cure-all, but I'm sure getting a good response. I'm very grateful.
The takeaway here, I believe, is let's keep on keeping on, ladies and gentlemen. There are more treatments out there everyday and there is light at the tunnel and it's not an oncoming train!
Things can change in an instant, as we know, but for now, I'm very grateful and wanted to share that with all of you. I was told last October that I might not live to see another birthday (in Oct.) and that I'd be on some form of chemotherapy the rest of my life. Now, my oncologist is re-thinking this approach depending on what the next set of scans show in 3 months, it could change. Whew!
Many well wishes to all of you,
Lynn
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lynnhbtb
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This is wonderful news Lynn, thank you for sharing. It gives us all hope. I too have bone and liver mets, currently doing well on Xeloda. My cancer is strongly estrogen positive, HER2 negative. I haven't been offered Keytruda yet as a future option, do you know what types of breast cancer it is being used for? Thanks so much and enjoy this "ahhhhhhhhhhhhhhhhhhh" moment!
As far as I know keytruda hasn’t been officially approved for breast cancer in the U.S. My liver Mets were typed as triple negative, so that’s why my oncologist got me on keytruda. I was strong hormone positive in bones and original breast tumors, but then it changed type. That was very scary. I got compassionate use from the manufacturer for keytruda because insurance wouldn’t pay for it. But, I do know that keytruda is being used for all types of cancers. Might be worth a mention to your doctor.
Thanks for the support. And, you’re so right about the ahhhhh moment. I realized I was waiting to exhale, as the saying goes. Glad you are tolerating xeloda. Best to you.
Lynn, I'm 73 and have no cancer as of yet, ( I hope ) but I just wanted to share with you that I read every word you had to say and I think it's great that you shared all this info. I hope all is well for you. Bless your ❤
I mean no disrespect, but this site is a support network for ladies who have metastatic breast cancer. I'm just wondering why you are on this site if you do not have this disease.
Thank you for sharing Lynn. We all need to hear that good news is a real possibility in our lives. I am thrilled for you that the threat of only having one more year has disappeared. Having a chronic disease sounds much better! Start making some plans! Elaine
Thank you! I've been a vegetarian for 30+ years and have started intermittent fasting in April. Most days I fast for about 15 hours and then eat sensibly. I take supplements of Magnesium, Tumeric, Vitamin D, general multi, B12, CoQ10, Alpha Lipoic Acid and B6 (for neuropathy). I also have acupuncture, do self Reiki and meditate. I figure it can all help.
So good to hear good news!!! It gives us all hope!! I like to read the not so good news also because it lets me know I'm not the only one feeling the way I feel. Good luck on those next scans keep us posted!!!
Hi Lynn,
That is wonderful news! I am really happy to hear of how the tumours have been shrinking and also how your oncologist is pleased with your progress. You must feel overjoyed by the news. It is also encouraging to learn that you have been thriving for seven years. Long may that continue, for many, many more years to come!
I would go out and celebrate if I were you! That's what I do with every good result. Stable? OK, it's time for lunch with my husband! Tumour regression? Let's go out for the day! Just want an excuse to celebrate?! I'll ask a friend out for lunch or arrange to meet for a cup of tea.
Beautiful note to wake up too! Thank you for sharing the great news and positivity! Hapoy for you. Enjoy the good news and keep up whatever you are doing! Faith
What wonderful news particularly with what you were told last year. Moral of the story is never give up hope. Thankyou for sharing its a massive boost to us all 💕 . Xx
Thanks- me too started out positive than bone showed Triple Negative- having labs drawn Wednesday to see if the Afinitor is working- nice to know about the Keytruda-
YESSSSSSSSSS sister/warrior This is a time of c*e*l*e*b*r*a*t*i*o*n for you, and your loved ones. This one post you made has given some sister/warrior who may have been struggling hope. My Oncologist in 2007 said I would not live to see 2009. What year is it now ??????????, and I am NED, as of a year ago. Gods continued blessings XoXoXo C-e-l-e-b-r-a-t-e
The cancer changed quickly from er/PR+ to triple negative, which has been notoriously difficult to treat effectively. Also several tumors appeared quite quickly on my liver after never having organ involvement for 7 years, just bones (and, of course breast and lymph).
Good morning, Lynn. I'm so glad to hear your doing well. I just read through your thread of two years ago where you were started on Taxol and Keytruda. I find myself in a very similar situation to yours at that time. May I ask what has been your treatment since those posts?
Sure. I was on Taxol and Keytruda for several months, then because of worsening side effects, mostly neuropathy in feet, I stopped Taxol and moved to Taxotere. I continued with the Keytruda and Taxotere for several months (sorry don't remember exactly) and then had a scan. It showed liver mets reducing and everything else stable, so I dropped Taxotere after a while and stayed on just Keytruda for several months. Then, mid 2020 I had progression on Keytruda so we stopped that. I started on Abraxane and Carboplatin in Dec. 2020 and remain on that to date. Actually just had a treatment yesterday. Side effects are manageable but the fatigue does get to me. I'll have another scan here in a couple of weeks and we'll see where we go from here. What's you situation, if you don't mind sharing?
Thank you. Primary BC in 2011. Stage 3b. ER/PR +, HER2-. Both lobular and ductile. Mastectomy and chemo.I was diagnosed MBC with bone and lymph node involvement in Feb of 2019. Began treatment with Ibrance and aromasin. In 90 days I was declared NED, but just 60 days later I had new lesions on my spine. SBRT resolved those lesions in December. By May I had a nodule in my liver. Moved to everolimus and letrozole in July and developed 2 new liver lesions in October. Was moved to Xeloda. In January, one lesion disappeared and the other 2 had shrank. Here I am in May, and they have tripled in size. I have a consultation with an interventional radiologist on Thursday. Not sure about next systemic treatment as my Gaurdant 360 results are different than my Foundation One results from the tumor biopsy. Ugh
Thank you for sharing your experience. It's helpful to know. All the very best to you as you continue your battle! Andi
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