Good news day....no a GREAT news day! - SHARE Metastatic ...

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Good news day....no a GREAT news day!

Julesdubai profile image
44 Replies

So I had a PET scan this week's and yesterday I got my results! After only 4 months on Ibrance, faslodex and xgeva and 10 rounds of radiation my tumours in my sternum, spine and ribs are inactive! My oncologist said it's this best result he's had for such a short time! To say I'm pleased is a huge understatement. To celebrate my husband and I are flying to our beautiful holiday home in Cyprus for some much needed fresh air (we live in Dubai☀️☀️). So hang in there ladies treatments do work. Love and positive healing vibes to you all 😘🌈😎

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Julesdubai
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44 Replies
Sunnydrinking profile image
Sunnydrinking

Fabulous news, so pleased for you. Enjoy Cyprus, it’s a really beautiful country. 😎

Jo xx

JPutt profile image
JPutt

Brilliant! x

Congratulations!!! Enjoy every minute! 💐🎈💕!

Joannaaaa profile image
Joannaaaa

Delighted to read your good news

Bettybuckets profile image
Bettybuckets

Jules, I am a few months ahead of you.. I have had 2 scans and stable disease... I have hips sternum spine snd ribs... my dr wants to ‘save’ radiation in reserve... but I just wonder why not do earlier to stop growth so we can all stay on Ibrance longer? Did you have bad pain or what was the trigger to get radiation?

Mary115 profile image
Mary115

Can't sleep tonight. Checked in and read your good news.. Lovely.

Gramat profile image
Gramat

Wonderful news

Beryl71 profile image
Beryl71

That's wonderful, enjoy your break. Still not possible to go anywhere in or from UK!

Teddielottie profile image
Teddielottie in reply toBeryl71

Carolyn , (and all adults in England ), we can now get free weekly Covid rapid lateral flow tests posted to our home . I just registered online today on gov.uk /order-coronavirus -rapid-lateral-flow-tests Useful to have if travelling in the U.K. ! (Or can collect two packs of 7 tests , from some pharmacies , if prefer). Worth doing even if we have had both our Covid vaccines (these don’t give us as much protection as others if we are immunocompromised ).

Beryl71 profile image
Beryl71 in reply toTeddielottie

Yes I heard that. I've had monthly tests through ons survey. I'm less concerned about me,more concerned that all those around me have got tested!😂 If you register do you then have to do them regularly or when you feel the need?

Teddielottie profile image
Teddielottie in reply toBeryl71

It says to take a test twice a week and report the results online or on the phone , on the same day you take the test . But not sure how strict they will be with it ? I will let you know when I receive my first pack in a couple of days time . I have my first hairdresser appointment on Thursday and a hospital mammogram the week after , as well as bloods at GP, and maybe will get out a little more once restrictions lift on Monday , so just thought it’s best to keep a close check on things . I agree I am more concerned about others around me being tested ! x

Covid rapid tests England
Beryl71 profile image
Beryl71 in reply toTeddielottie

Good idea, I'm having my eyebrows done next week and hair the week after! I'll have a look at the website.

Teddielottie profile image
Teddielottie in reply toBeryl71

Have never had eyebrows done but might consider now as mine are blond and very fine . I normally use Clinique brush on eye brow colour to make them stand out more .

Beryl71 profile image
Beryl71 in reply toTeddielottie

It's a little treat but apparently now we've had covid vaccine they have to redo a patch test.

Absolutely fantastic news. Go enjoy lifeClare

Gingerann1 profile image
Gingerann1

So happy to hear your great news! Enjoy your holiday and all the opportunities you have to celebrate! May there be many more....

8576 profile image
8576

Wow! Great news and you live in one of the most beautiful cities in the world. May I ask did you come here just for treatment? It would be lovely to see some pictures of Cypress however you probably want to leave all this behind and not think about it.

Take care,

Cheers, June S.

Julesdubai profile image
Julesdubai in reply to8576

I live in Dubai and that is where my treatment is. I am very fortunate to have a holiday home in Cyprus which we will eventually retire to x

8576 profile image
8576 in reply toJulesdubai

Oh I see. I thought you were from the UK. My mistake. Anyhow, you are fortunate I think. I always hear nice things about Dubai and how it was built so modern but beautiful. Thanks for the reply.

Cheers, June S.

AvidBooklover profile image
AvidBooklover

Fabulous news! Celebrate!

Phillipians4and6 profile image
Phillipians4and6

Awesome news. Praise God!!!

Brooks225 profile image
Brooks225

how wonderful!

That is great news , enjoy !

SeattleMom profile image
SeattleMom

Have a wonderful, joyful time in Cyprus, Jules! May you remain stable for years to come!!💗💗🙏🏻🙏🏻

Linda

love2golfwell profile image
love2golfwell

I have had 2 bone mets, one to ischium and one to sacrum. Neither one was causing pain but it was recommended by my oncologist and radiation oncologist to have 5 high dose treatments on each while they were small so I did, even though I was upset about having to do this. I did some research on these treatments and it sounded promising but after reading your post, perhaps I should have pushed back on this and not agreed to it. I told them I don't want to be having radiation every time a new lesion pops up.

love2golfwell profile image
love2golfwell

Such great news! Hope you have a wonderful time in Cyprus and keep getting good reports.

Jpl5036608 profile image
Jpl5036608

Amazing!!! 👍👍👍

mariootsi profile image
mariootsi

Amazing news! Enjoy your holiday.

ChrisVict profile image
ChrisVict

Congratulations on your progress. I have a question on the need for radiation what did your oncologist say was the reason for this? I keep asking mine do I need that and she keeps telling me to hold off.

Julesdubai profile image
Julesdubai in reply toChrisVict

I had radiation because the pain in my sternum was debilitating. Helped so much and although it was painful when having it daily it definitely outweighed the relief I got in the end x

ChrisVict profile image
ChrisVict in reply toJulesdubai

Oh I am glad your pain has gone and you areNED!

ChrisVict profile image
ChrisVict

Sandra thank you for that explanation because it is the same my onc said but some get such great results! I didn’t see your reply until after I responded to this post. The reassurance helps.

Tolife_18 profile image
Tolife_18

In my case, spine mets and 3 compression fractures were the initial findings, and only after they’re biopsied it was determined that the primary malignancy is breast. I had a lot of pain, but the primary reason for radiation of the largest mets (T4-T6) was a concern for neurological complications. Following 5 radiation sessions the the pain decreased significantly, but all my spine mets are still there and mostly unchanged. But 3 months later I developed radiation related pneumonitis. So in retrospective, perhaps starting with spine radiation wasn’t the best decision, but given the timing of events I understand why it was done.

MaryCos profile image
MaryCos

YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

SoulJourney profile image
SoulJourney

Congratulations!! That is excellent news - enjoy your time of rest and renewal. We need those breaks to face the next mountain! Hope your break and stable period lasts a long time!!

DinNorCal profile image
DinNorCal

Fantastic results. I’m thrilled for you. I have also had great success with Ibrance. Ibrance and Letrozole. Then Ibrance and Faslodex has kept my progression very minimal for almost four years.

Have an enjoyable vacation.

💕

Debbie

stardust1965 profile image
stardust1965

Julesdubai, Congratulations on your treatment results. That’s great news and a break away to Cypress is an excellent way to celebrate. You can escape the heat for a while too. I lived in the UAE 🇦🇪 for six years and left in May 2018. I was diagnosed with de novo MBC six months later. I have fond memories of living in “the sandpit”. Dubai was a white knuckle ride from start to finish. 🤣 Vicki

debbiedo2063 profile image
debbiedo2063

Wow.Amazing , have a fab time in Cyprus.Debra ❤️

Teddielottie profile image
Teddielottie

Great news after only four months on this treatment! Long may it continue! Have a great break in Cyprus ! x

Justme153 profile image
Justme153

WOO HOO🎉🎊 Enjoy your trip ! Sounds amazing!

Bettybuckets profile image
Bettybuckets

Sandra- that now makes sense to me. I didn’t know that it ultimately weakens the bones. I am managing with Tylenol most now snd CBD oil so might not be my time.

AnnaP668 profile image
AnnaP668

Wonderful news!

MBCinIowa profile image
MBCinIowa

Great news!

hurricaneheather profile image
hurricaneheather

it makes the heart happy to read this news. even happier to know that you are celebrating you, as well as the news.

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