Pseudomyxoma Survivor | HealthUnlocked

I am in various FB groups for PSEUDOMYXOMA Peritonei but was wondering if g in there is much activity or questions in this forum for PMP/Appendix Cancer

Kia Ora from Aotearoa New Zealand I am so pleased to have found this group for PMP. I was diagnosed with PMP in Oct/Nov of 2024 and I am waiting on my...

Hello,im going to try & keep this short at this stage,i need some advice hopefully from a member who has gone through the same as me but has been diagnosed...

Hi everyone! Does anyone know about spleen cysts? I have one. 1st surgery in 2013. 2nd in 2022. Please help. Thank you.

I've had CT angiography (scan with dye injection) that showed low-grade appendiceal mucinous tumor with small volume periappendiceal tumor. I went for a 2nd...

so I had my CRS/HIPEC operation on 21-Feb-2022 and was classed as CC1 after the op. I know it’s a 37% chance of reoccurrence but was still disappointed to be...

Has anyone one had any success with mistletoe therapy in the early stages of PMP?

I had a 5cm tumour removed from my appendix in August. It had ruptured. It was identified as LAMN (low grade). The surgeon couldn't see any signs of PMP, the...

Hello - I’m new to this site and hoping to get information and awareness from others who are on the same journey. I’ve been NED since HIPEC in May 2022 having...

Hi everyone, I am based in the USA. I had papillary thyroid cancer (BRAF V600 E mutation) and a neuroendocrine cancer. I am in the thyroid cancer community...

Hi, Has anyone explored alternative approaches to treat PMP? If so, what have you tried and what has been your experience? Best to you!

Good evening, my mum had appendix cancer and last Sep (2021) had surgery in Basingstoke. Now she has a abdomen full of what they thought was fluid but...

My wife is a pseudomyoma survivor from appendix removal in 1997. Is it possible for recurrance after 25 years? She is displaying similar symptoms.

Pseudomyxoma Survivor has been contacted by a research assistant at the Peritoneal Malignancy Unit at Basingstoke Hospital who is conducting an NIHR funded...

Anxiety is a very common issue in people (and friends/family members) with cancer. Triggers for this anxiety are wide-ranging. Anything from scanxiety to fear...

Hi. I had CRS / Hipec/ hemicolectomy at Basingstoke in July this year. CT in December shows recurrence and now waiting for chemotherapy at local Trust. Can't...

How do you all cope with waiting for results? I’ve been waiting for my first ct scans after my op and diagnosis ,it’s been 14 weeks!!! I’ve rang and emailed...

It's the start of our awareness month and we will be sharing information about the disease and survivors' stories throughout the month,

We're excited to share Paul's story with you. After cytoreduction and HIPEC, he challenged himself to something most of us would never even consider before...

We know that pseudomyxoma peritonei (PMP) is a rare disease, we anecdotally hear of patients who already know another patient or know of another patient. Did...

I was invited to join by Angela. I had Cytoreductive surgery (MOAS) and Hyperthermic Intraperitoneal Chemotherapy (HIPEC) at Basingstoke in 2017 and since...

Hello We have been thinking about you during these very strange times and we hope this little card from us might make you smile. j.mp/pmpsgreeting The team at...

I’m so excited, I almost can’t believe these results from my latest CT!!!

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like. Feel free to ask your own questions here:...

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