Posts - Pseudomyxoma Survivor | HealthUnlocked

Pseudomyxoma Survivor

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MOAS - Surgery on Friday 14th Feb.

Hi Everyone. My surgery has been brought forward to Friday 14th. Being admitted on Thursday. Surgery being carried out at Waikato Hospital, Hamilton,...

Hi Everyone. My surgery has been brought forward to Friday 14th. Being admitte...

•2 months ago

Diagnosed Nov 2024

Hi All, I’m very new to this. Diagnosed with LAMN II. Recovering from surgery, complete hysterectomy, omenectomy and peritonectomy. No HIPEC. Under ‘watch and...

Hi All, I’m very new to this. Diagnosed with LAMN II. Recovering from surgery, ...

•2 months ago

is there much on HealthUnlocked re PSEUDOMYXOMA Peritonei (PMP / Appendix Cancer.

I am in various FB groups for PSEUDOMYXOMA Peritonei but was wondering if g in there is much activity or questions in this forum for PMP/Appendix Cancer

I am in various FB groups for PSEUDOMYXOMA Peritonei but was wondering if g in t...

•3 months ago

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My first post

Kia Ora from Aotearoa New Zealand I am so pleased to have found this group for PMP. I was diagnosed with PMP in Oct/Nov of 2024 and I am waiting on my...

Kia Ora from Aotearoa New Zealand I am so pleased to have found this group for ...

•3 months ago

Appendix tumour question

Hello,im going to try & keep this short at this stage,i need some advice hopefully from a member who has gone through the same as me but has been diagnosed...

Hello,im going to try & keep this short at this stage,i need some advice hopeful...

•4 months ago

Poptart211

Hi everyone! Does anyone know about spleen cysts? I have one. 1st surgery in 2013. 2nd in 2022. Please help. Thank you.

Hi everyone! Does anyone know about spleen cysts? I have one. 1st surgery in 201...

•9 months ago

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Diagnostic laparoscopy vs CT angiography

I've had CT angiography (scan with dye injection) that showed low-grade appendiceal mucinous tumor with small volume periappendiceal tumor. I went for a 2nd...

I've had CT angiography (scan with dye injection) that showed low-grade appendic...

•10 months ago

recurrence after 2 years

so I had my CRS/HIPEC operation on 21-Feb-2022 and was classed as CC1 after the op. I know it’s a 37% chance of reoccurrence but was still disappointed to be...

so I had my CRS/HIPEC operation on 21-Feb-2022 and was classed as CC1 after the ...

•1 year ago

Mistletoe and PMP

Has anyone one had any success with mistletoe therapy in the early stages of PMP?

Has anyone one had any success with mistletoe therapy in the early stages of PMP...

•1 year ago

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Do appendix tumours always develop into PMP?

I had a 5cm tumour removed from my appendix in August. It had ruptured. It was identified as LAMN (low grade). The surgeon couldn't see any signs of PMP, the...

I had a 5cm tumour removed from my appendix in August. It had ruptured. It was i...

•1 year ago

Dealing with NED in this stage 4 appendix cancer journey

Hello - I’m new to this site and hoping to get information and awareness from others who are on the same journey. I’ve been NED since HIPEC in May 2022 having...

Hello - I’m new to this site and hoping to get information and awareness from ot...

•2 years ago

Asking for my sister: appendix adenocarcinoma w/KRAS G12V mutation

Hi everyone, I am based in the USA. I had papillary thyroid cancer (BRAF V600 E mutation) and a neuroendocrine cancer. I am in the thyroid cancer community...

Hi everyone, I am based in the USA. I had papillary thyroid cancer (BRAF V600 E ...

•2 years ago

Alternative approaches for treatment

Hi, Has anyone explored alternative approaches to treat PMP? If so, what have you tried and what has been your experience? Best to you!

Hi, Has anyone explored alternative approaches to treat PMP? If so, what have y...

•2 years ago

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Is it back?

Good evening, my mum had appendix cancer and last Sep (2021) had surgery in Basingstoke. Now she has a abdomen full of what they thought was fluid but...

Good evening, my mum had appendix cancer and last Sep (2021) had surgery in ...

•3 years ago

Can pseudomyxoma return after 25 years?

My wife is a pseudomyoma survivor from appendix removal in 1997. Is it possible for recurrance after 25 years? She is displaying similar symptoms.

My wife is a pseudomyoma survivor from appendix removal in 1997. Is it possible...

•3 years ago

Help improve understanding of Quality of Life issues in Pseudomyxoma Peritonei (PMP)

Pseudomyxoma Survivor has been contacted by a research assistant at the Peritoneal Malignancy Unit at Basingstoke Hospital who is conducting an NIHR funded...

Pseudomyxoma Survivor has been contacted by a research assistant at the Peritone...

Partner•3 years ago

Anxiety management in pseudomyxoma peritonei and appendix cancer

Anxiety is a very common issue in people (and friends/family members) with cancer. Triggers for this anxiety are wide-ranging. Anything from scanxiety to fear...

Anxiety is a very common issue in people (and friends/family members) with cance...

Partner•4 years ago

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Ups and downs

Hi. I had CRS / Hipec/ hemicolectomy at Basingstoke in July this year. CT in December shows recurrence and now waiting for chemotherapy at local Trust. Can't...

Hi. I had CRS / Hipec/ hemicolectomy at Basingstoke in July this year. CT in Dec...

•4 years ago

Waiting for results

How do you all cope with waiting for results? I’ve been waiting for my first ct scans after my op and diagnosis ,it’s been 14 weeks!!! I’ve rang and emailed...

How do you all cope with waiting for results? I’ve been waiting for my first ct ...

Beachesinsummer

•4 years ago

What do you know about PMP?

It's the start of our awareness month and we will be sharing information about the disease and survivors' stories throughout the month,

It's the start of our awareness month and we will be sharing information about t...

Partner•5 years ago

Dead Man to Ironman - Paul's Story

We're excited to share Paul's story with you. After cytoreduction and HIPEC, he challenged himself to something most of us would never even consider before...

We're excited to share Paul's story with you. After cytoreduction and HIPEC, he ...

Partner•5 years ago

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Were you aware of pseudomyxoma peritonei before you were diagnosed?

We know that pseudomyxoma peritonei (PMP) is a rare disease, we anecdotally hear of patients who already know another patient or know of another patient. Did...

We know that pseudomyxoma peritonei (PMP) is a rare disease, we anecdotally hear...

Partner•5 years ago

New member

I was invited to join by Angela. I had Cytoreductive surgery (MOAS) and Hyperthermic Intraperitoneal Chemotherapy (HIPEC) at Basingstoke in 2017 and since...

I was invited to join by Angela. I had Cytoreductive surgery (MOAS) and Hyperth...

•5 years ago

Thinking of you

Hello We have been thinking about you during these very strange times and we hope this little card from us might make you smile. j.mp/pmpsgreeting The team at...

Hello We have been thinking about you during these very strange times and we hop...

Partner•5 years ago

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CT results!!!

I’m so excited, I almost can’t believe these results from my latest CT!!!

I’m so excited, I almost can’t believe these results from my latest CT!!!

Partner•5 years ago

Introduce yourself!

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like. Feel free to ask your own questions here:...

Why not leave a short comment below and introduce yourselves. Give as much or as...

•5 years ago

Welcome to HealthUnlocked

We are the world’s largest online support network, connecting you to others with the same health needs and long-term conditions. Our network is made up of...

We are the world’s largest online support network, connecting you to others wit...

HealthUnlocked•5 years ago

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