Posts - Pseudomyxoma Survivor | HealthUnlocked

Pseudomyxoma Survivor

Sort posts by:

Poptart211

Hi everyone! Does anyone know about spleen cysts? I have one. 1st surgery in 2013. 2nd in 2022. Please help. Thank you.

Hi everyone! Does anyone know about spleen cysts? I have one. 1st surgery in 201...

•5 months ago

Be the first to reply

Diagnostic laparoscopy vs CT angiography

I've had CT angiography (scan with dye injection) that showed low-grade appendiceal mucinous tumor with small volume periappendiceal tumor. I went for a 2nd...

I've had CT angiography (scan with dye injection) that showed low-grade appendic...

•5 months ago

recurrence after 2 years

so I had my CRS/HIPEC operation on 21-Feb-2022 and was classed as CC1 after the op. I know it’s a 37% chance of reoccurrence but was still disappointed to be...

so I had my CRS/HIPEC operation on 21-Feb-2022 and was classed as CC1 after the ...

•8 months ago

Want to take advantage of all our features? Just log in!

or

Mistletoe and PMP

Has anyone one had any success with mistletoe therapy in the early stages of PMP?

Has anyone one had any success with mistletoe therapy in the early stages of PMP...

•11 months ago

Be the first to reply

Do appendix tumours always develop into PMP?

I had a 5cm tumour removed from my appendix in August. It had ruptured. It was identified as LAMN (low grade). The surgeon couldn't see any signs of PMP, the...

I had a 5cm tumour removed from my appendix in August. It had ruptured. It was i...

•11 months ago

Dealing with NED in this stage 4 appendix cancer journey

Hello - I’m new to this site and hoping to get information and awareness from others who are on the same journey. I’ve been NED since HIPEC in May 2022 having...

Hello - I’m new to this site and hoping to get information and awareness from ot...

•1 year ago

Asking for my sister: appendix adenocarcinoma w/KRAS G12V mutation

Hi everyone, I am based in the USA. I had papillary thyroid cancer (BRAF V600 E mutation) and a neuroendocrine cancer. I am in the thyroid cancer community...

Hi everyone, I am based in the USA. I had papillary thyroid cancer (BRAF V600 E ...

•1 year ago

Alternative approaches for treatment

Hi, Has anyone explored alternative approaches to treat PMP? If so, what have you tried and what has been your experience? Best to you!

Hi, Has anyone explored alternative approaches to treat PMP? If so, what have y...

•2 years ago

Be the first to reply

Is it back?

Good evening, my mum had appendix cancer and last Sep (2021) had surgery in Basingstoke. Now she has a abdomen full of what they thought was fluid but...

Good evening, my mum had appendix cancer and last Sep (2021) had surgery in ...

•2 years ago

Can pseudomyxoma return after 25 years?

My wife is a pseudomyoma survivor from appendix removal in 1997. Is it possible for recurrance after 25 years? She is displaying similar symptoms.

My wife is a pseudomyoma survivor from appendix removal in 1997. Is it possible...

•2 years ago

Help improve understanding of Quality of Life issues in Pseudomyxoma Peritonei (PMP)

Pseudomyxoma Survivor has been contacted by a research assistant at the Peritoneal Malignancy Unit at Basingstoke Hospital who is conducting an NIHR funded...

Pseudomyxoma Survivor has been contacted by a research assistant at the Peritone...

Partner•3 years ago

Anxiety management in pseudomyxoma peritonei and appendix cancer

Anxiety is a very common issue in people (and friends/family members) with cancer. Triggers for this anxiety are wide-ranging. Anything from scanxiety to fear...

Anxiety is a very common issue in people (and friends/family members) with cance...

Partner•4 years ago

Be the first to reply

Ups and downs

Hi. I had CRS / Hipec/ hemicolectomy at Basingstoke in July this year. CT in December shows recurrence and now waiting for chemotherapy at local Trust. Can't...

Hi. I had CRS / Hipec/ hemicolectomy at Basingstoke in July this year. CT in Dec...

•4 years ago

Waiting for results

How do you all cope with waiting for results? I’ve been waiting for my first ct scans after my op and diagnosis ,it’s been 14 weeks!!! I’ve rang and emailed...

How do you all cope with waiting for results? I’ve been waiting for my first ct ...

Beachesinsummer

•4 years ago

What do you know about PMP?

It's the start of our awareness month and we will be sharing information about the disease and survivors' stories throughout the month,

It's the start of our awareness month and we will be sharing information about t...

Partner•4 years ago

Dead Man to Ironman - Paul's Story

We're excited to share Paul's story with you. After cytoreduction and HIPEC, he challenged himself to something most of us would never even consider before...

We're excited to share Paul's story with you. After cytoreduction and HIPEC, he ...

Partner•4 years ago

Be the first to reply

Were you aware of pseudomyxoma peritonei before you were diagnosed?

We know that pseudomyxoma peritonei (PMP) is a rare disease, we anecdotally hear of patients who already know another patient or know of another patient. Did...

We know that pseudomyxoma peritonei (PMP) is a rare disease, we anecdotally hear...

Partner•5 years ago

New member

I was invited to join by Angela. I had Cytoreductive surgery (MOAS) and Hyperthermic Intraperitoneal Chemotherapy (HIPEC) at Basingstoke in 2017 and since...

I was invited to join by Angela. I had Cytoreductive surgery (MOAS) and Hyperth...

•5 years ago

Thinking of you

Hello We have been thinking about you during these very strange times and we hope this little card from us might make you smile. j.mp/pmpsgreeting The team at...

Hello We have been thinking about you during these very strange times and we hop...

Partner•5 years ago

Be the first to reply

CT results!!!

I’m so excited, I almost can’t believe these results from my latest CT!!!

I’m so excited, I almost can’t believe these results from my latest CT!!!

Partner•5 years ago

Introduce yourself!

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like. Feel free to ask your own questions here:...

Why not leave a short comment below and introduce yourselves. Give as much or as...

•5 years ago

Welcome to HealthUnlocked

We are the world’s largest online support network, connecting you to others with the same health needs and long-term conditions. Our network is made up of...

We are the world’s largest online support network, connecting you to others wit...

HealthUnlocked•5 years ago

Be the first to reply

Write a post or ask a question

Search posts

Pinned Posts

Introduce yourself!

Latest poll

We'd love to run some other sessions that look at improving wellbeing and want to know what interests you as a community.

Topics

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan

Feb

Apr

May

Jul

Aug

Sep

Oct

Nov

Dec

2023

Feb

Mar

Apr

May

Jun

Jul

Nov

2022

Jan

Feb

Mar

Jun

Aug

Sep

Oct

Nov

2021

Mar

Apr

May

Jun

Jul

Sep

Oct

Nov

Dec

2020

Jan

Feb Mar Apr May Jun Jul Aug

Sep

Dec