My first post

[MzMarble]

Kia Ora from Aotearoa New Zealand

I am so pleased to have found this group for PMP. I was diagnosed with PMP in Oct/Nov of 2024 and I am waiting on my surgery date which was given as early 2025. I was somewhat shocked to receive this diagnosis and to learn what a rare illness it is. I work in allied health and none of my colleagues had heard of it. Very happy to have made the connection here and with the Facebook group to communicate with other PMP people. The more we are informed, the less scary it will be.

[SusanPMPS Partner PMPS Volunteer]

Hi MzMarble - glad you have found this group as well as our FB group. Not many people have heard of it, which makes raising awareness really important for us all. I was originally diagnosed in 2003 and remember well that feeling of shock and uncertainty. Fingers crossed that you operation goes well. xx

[MzMarble in reply to SusanPMPS]

Hi Susan. I feel like I've struck gold by finding these groups! 😊 I had been wondering of my chances of survival and reading through so many PMP survival stories has given me significant hope and positive affirmation. Thank you xx