Is it back?: Good evening, my mum... - Pseudomyxoma Surv...

Pseudomyxoma Survivor

Is it back?

Riri3232 profile image
6 Replies

Good evening,

my mum had appendix cancer and last Sep (2021) had surgery in Basingstoke.

Now she has a abdomen full of what they thought was fluid but scans have since confirmed are not.

She has been told the cancer is back. What happens now? Is it normal to come back within a year? Is it treatable the second time around?

Thank you in advance.

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Riri3232 profile image
Riri3232
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6 Replies
SusanPMPS profile image
SusanPMPSPartnerPMPS Volunteer

What an uncertain time for you all and I am sorry to hear that your mum's cancer is back. We are not medical professionals but patients ourselves, I can only speak from personal experience and I had a few reoccurrences before they managed to get it all out with more operations. I was originally diagnosed in 2003 and had my final operation in 2009.

MaryAppendixCancer profile image
MaryAppendixCancer in reply to SusanPMPS

Thank you so much for your comment concerning your personal experience and still being on the site to help others. That is very generous of you and much appreciated. Your experience has given me hope and inspiration to fight again if my appendix cancer is back (which I may find out to be the case when I am re-tested in January 2024). Wishing you continuing good health.

JennyOSullivan profile image
JennyOSullivan

I am sorry to hear about your mum’s reoccurrence, I do know that if it’s going to come back it’s most commonly in the first two years. My consultant at the Christie has had success treating PMP reoccurrence with further doses of HIPEC. Not sure if this is with surgery as well but guess it could be chemo alone .Hope all goes well for your Mum.

MaryAppendixCancer profile image
MaryAppendixCancer in reply to JennyOSullivan

Thank you for your comments. My own potential recurrence would fit that timeframe. My oncologist did mention that, depending on my next results in January 2024, he would contact the consultant who did my CRS/HIPEC and see what he recommends including whether something new called PIPAC might be an option.

Riri3232 profile image
Riri3232

Thank you. This is very helpful to know 😊

MaryAppendixCancer profile image
MaryAppendixCancer

Wishing your Mum all the very best. Please keep us updated. It is so good to know that she and I have options💕