Call for Nominations for the 2019-2020 OPTN/UNOS Board of Directors
Rmassi20 days ago
The OPTN/UNOS Nominating Committee is seeking nominations for the 2019-2020 Board of Directors.
For full details on positions and instructio...
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The whole finding a living donor process is a JOKE!!!
RUKIDNEYME3 months ago
What I guess aggravates me the most about being in the position that I am in, is that when you are looking for a donor it is all up to the P...
Rules for liver transplant
Pjmr10193 months ago
Need to know how long stopping smoking brings nicotine to zero in nicotine blood test.
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Liver transplant rules
My medi-Cal was Deferred for liver transplant due to past depression and smoking. How long does nicotine take to get to 0 in a nicotine bloo...
3 Replies1 Like
Feeling very frustrated today
This is my problem with the whole heath care system and putting the responsibility on the patient to find a living donor. As I am being work...
mscush4 months ago
Good Afternoon Guys:
I have been a part of this community since its inception. I have thoroughly enjoyed reading your stories and sharing eve...
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Kidney Transplant Issues
RUKIDNEYME4 months ago
I am excited to join this community where us kidney transplant recipients are able to discuss the problems and frustrations that we encounte...
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Did you and your family celebrate Blue Green Day last Friday?
SCovington4 months ago
Happy Donate Life Month! Friday the 13th was National Blue Green Day. Did you or your family do anything to celebrate the day or honor your ...
Educational webinars for Pediatric Transplant Week
cobaltjacket4 months ago
Hi all. I would appreciate it if those of you in pediatric circles could share this out to those groups. Of course, if this is of interest t...
1 Reply1 Like
Wellness through alternative applications
BetterKidney4Me4 months ago
I have a question for transplant recipients. Wondering how many of you out there have used alternative wellness applications like yoga, Rei...
justinskidney4 months ago
Hello members, my name is Justin Iorii a double kidney transplant patient and a dialysis survivor. If anyone has any questions or concerns o...
2 Replies2 Likes
Intro & Peds transplant week
cobaltjacket5 months ago
Hi all! I just wanted to introduce myself, and also take the opportunity to tell you all about something new this year.
I am Joseph Hillenbur...
3 Replies4 Likes
shanika5555 months ago
I am Shanika. This is for my friend who is suffering from a kidney disease. She is Maria who is a mother of two kids and she is 36 years ...
5 Replies1 Like
World Kidney Day - Broadcast courtesy of SUNY Dowstate Medical Center
BetterKidney4Me5 months ago
Wanted to share the following information and link that was a live broadcast courtesy of SUNY Downstate Medical Center in Brooklyn, NY. Thi...
UAB Comprehensive Transplant Institute
janiverse5 months ago
Check out the 50th Anniversary of the UAB Comprehensive Transplant Institute...I'm so proud to be a part of the family. My short video is fo...
4 Replies3 Likes
AST March 2018 Washington Round-Up Posted
SCovington5 months ago
Want to know what the AST is doing on Capitol Hill? Take a moment to read the latest Washington Round-Up. myast.org/public-policy/ast...
Check it out - video stories from transplant community members
Rmassi6 months ago
We were recently lucky enough to invite local individuals from the transplant community to come into our offices for a day of filming. Check...
Who plans on attending the Transplant Games this summer in Salt Lake City?
SCovington6 months ago
Power2Save is excited about being a part of the Transplant Games in August. Are any of you planning to attend?
Living Donors Meeting to Attempt Guinness World Record
LaurieDickinsonLee7 months ago
Join us as we gather living organ donors from around the world at the Cloud Gate in Chicago to set a Guinness World Record!
April is National...
Live Kidney Donation Advocacy
jllewisville7 months ago
My writer friend, Janice Crago, is creating a new website to help with live kidney donation advocacy.
She is looking for donors to tel...
5 Replies2 Likes
Lmauceri7 months ago
During the Transplant Patient Summit conference in DC, I listened, shared stories, and embraced others like me, whose lives were changed by ...
My Gift, My Hero
LivLife077 months ago
Our Transplant Living Community group got together in 2013 and created a video titled "My Gift, My Hero" to try to explain how we, as transp...
2 Replies3 Likes
VIDEO - Because of my Transplant...
Rmassi7 months ago
We were lucky enough to have some of our attendees at last year's Transplant Patient Summit participate in an amazing video project. Check i...
3 Replies3 Likes
rileytuck7 months ago
My story was published in the transplant 2 save community. I will be two years post in the coming days!
2 Replies1 Like
My Living Donation Journey
jcjohnson7778 months ago
Was blessed and honored that Emory Transplant Center published an article about my transplant journey. My hope is that others might be inspi...
April 21, 2018-Living Donors Attempt a World Record in Chicago! Come Join in!
Rmassi8 months ago
Learn more about this very exciting attempt to break a World Record here: transplantgifts.com/april-2...
"Our Medicare policy for kidney transplants is totally irrational"
Check out an article in the Washington Post written by AST Board member Dr. John Gill and his colleague Dr. Marcello Tonelli:...
Wellness through Yoga Practice
BetterKidney4Me9 months ago
Hi all, as a follow up to Jim's question on how do we describe our overall health, I have to add in that wellness, for me, has come through ...
Do meds change your taste buds?
rosie_strong9 months ago
My daughter was transplanted at 9 months. She is now almost 4. I have heard that Prograf and other drugs can affect how food tastes. She is...
3 Replies2 Likes
Dirty Air and Kidney Disease
Greetings all. BetterKidney4Me here. Read an article that was published in the Science Section of the New York Times entitled Dirty Air an...
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