This article and the comments may be of interest
What a great article! I met up with a male friend of mine recently and when I described, in clear terms how the pain would feel and how it would impact on him in terms of his anatomy his eyes nearly popped out of his head People have no idea how this sort of pain takes over your life no matter how hard you try to be positive. I feel like I'm on a mission to spread the word about pudendal neuralgia and the risks. Even down to checking my friends bike saddle Thanks for posting this judy
Thanks Judy. The problems of having pelvic pain and getting a correct diagnosis are almost legendary. If we could dilute the problem of embarrassment with the correct medical language and answers to tricky terminology that would make things a lot easier.
Just had another thought. I have joked about practising saying words like 'vagina' out loud (until people may think I had tourettes rather than any thing else) so that I could more easily manage the telling of the tale to someone who isn't in my circle of friends, I am comfortable saying 'vagina' to I still struggle.
Maybe there should be the ability to write it all down? Not only because of the embarrassment of the 'language barrier' but also in relation to pelvic nerve pain, it often sounds too bonkers, so people are loath to tell them. Symptoms like 'I feel as if I have a sharp knife inserted in my rectum' (mine is a stiletto btw about 3 inches long if you really want to know ) I can't bring myself to actually say, as I feel as if I would just be carted off by the white coat brigade but I do have that symptom (thankfully only sometimes) all the same.
I love your comments here. They also made me smile !