I have suffered from heavy periods for years and have had ovarian cysts, fibroids, prolapse and endometriosis. I have had many awful things like flooding in public situations, constant pain and a general degradation of my self confidence which has pushed me to my limits. One of the worst symptoms I’ve had is being unable to sit comfortably due to the pressure in my pubic bone making work and life in general really hard. This one symptom is driving me crazy and I can’t take the pain anymore. After years of different treatments I had a radical hysterectomy 2 weeks ago in the hope of being able to move forward without pain. I know I’m still healing but the pain I’m experiencing when sitting feels the same as before the op and I’m desperate that it’s never going to go away. I’ve never posted on any forums before but feel really lonely today.
pelvic pain post hysterectomy - Pelvic Pain Suppo...
pelvic pain post hysterectomy
I'm sorry for your suffering. I have experienced much of what you're talking about. I had ovarian cysts, instead of endometriosis, I had adenomyosis, which is very painful, my uterus was enlarged from it and I had varicose veins to the uterus. I flooded at the mall, and know what that feels like. I suffered from ovarian cysts that would come every month, some got as large as a grapefruit, before they would burst, very painful. I had a hysterectomy, then 2 oophorectomies (removing the ovaries). Then I was injured by a transvaginal mesh sling, which was to help incontinence. It caused so much pain! I've had over 22 surgeries getting it out and I'm finally getting back to myself after 15 years of pain and suffering. The mesh caused pelvic pain, piriformis pain, pudendal neuralgia, obturator neuralgia, and other pain. I know the pressure of the public bone pain you're talking about. It sounds like pudendal neuralgia - the not being able to sit. I have gotten great relief from it through a procedure - pulsed radiofrequency ablation of the pudendal nerve.
You can google pudendal neuralgia and see if your symptoms match up. I hope you find your answer quick! Hang in there.
Where do you live? If it is pudendal neuralgia I might be able to give you the names of doctors who could possibly help.
Have you been offered any Amytriptyline? It helps with nerve pain.
Hello to you both and so sorry to read of all the pain you are experiencing. My husband had pelvic pain, and there is a doctor near Philadelphia Pa in Bethlehem Pa that is retiring but he has 3 female doctors taking over for him. My husband was diagnosed with pudendal neuralgia, levator ani, proctal flugax, etc. It has been very difficult and this doctor by God's mercy has really really helped him. He does Botox to the pelvic floor. It is non invasive and by God's mercy it helped my husband so much. He also does nerve blocks that really help and trigger points injections. So much of the pain we experience are muscle and nerve related. I can give you his contact info and they are still seeing patients and they do over the phone consultation first. His name is Dr Echenberg and he is the kindest gentlest doctor and friend we have ever met. We met the one female doctor from KY that is taking over for him. The other 2 are from NJ and FL. They will be operating in those areas once Dr Echenberg retires. It is called the Echenberg institute for pelvic and sexual pain . May God bless you and help you both. Eomin.org - yellow box for internet church
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Pelvic Floor / Nerve / Too tight muscles 
