Post hysterectomy pelvic pain

[ncoplin]

I had a hysterectomy 2 years ago which left me with chronic pelvic pain. I have been to 13 doctors, pt, exploratory lap, epidurals, lots of narcotics, interstim implant, etc, etc.

I watched a news video about a woman in Detroit Mich. USA who went for special physical therapy. Turns out she had muscle spasms in her pelvic floor muscles. Her trouble started after her hysterectomy just like me! That will be my next mission to find someone that will do that in my area. Does anyone have any information about this?

[PPSN_JudyB Pelvic Pain Support Netwo]

Did you see this on a US website ? I think i may have been in touch with this person - can you remember her name ?

Judy

[ncoplin]

The Pelvic Messenger Online Radio by PelvicMessenger | Blog Talk Radio

blogtalkradio.com This is the website I found it on. I will have to do some searching to find the report again.

It's one more resource for us.

[helenlegs11 Volunteer]

The only name I remember is Ruth Love-Jones who is in Southampton I believe, second hand info but I'm sure she has a web site or contact details on internet at least. In the back of my mind two more names are there 1 in Manchester I think and there was talk about Dr Baranowski in London hoping to set up some pelvic physio for patients. Will try and find out who the others are.

Judy, Elizabeth Oas from blogtalkradio.com mentioned you in an e to me She gets some very good people on her show. Have a few to catch up on tho'.

[ncoplin]

I have been searching her site for the show that spoke about the physical therapist. I will email her. I am going to try it again. I won't give up!

[helenlegs11 Volunteer]

A recentish one was Stephanie Predergast (I thought was v good) blogtalkradio.com/pelvicmes...

and Amy Stein (haven't listened yet, ooops) blogtalkradio.com/pelvicmes....

[helenlegs11 Volunteer]

I have seen the name Camilla Bouverie at Six Physio.

Maria Elliott at White Hart clinic in Barnes

and uk.linkedin.com/in/ruthlove...

[ncoplin]

Thank you all for your input, I live in the USA so it would be difficult to see someone in the UK although I hope to visit your great country some day! At least if the economy here ever gets better!!!

Thank you all

[PPSN_JudyB Pelvic Pain Support Netwo]

There are quite a lot of pelvic pain phyios in the US - in which part of the states are you based ? We know of Uk patients who have been to the states for physio.

The radio programmes make some good points but there are a few things I want to check out, thanks Helen. Stephanie talks a bit about the Istanbul meeting - I was there with Julia, one of our trustees and have met Stephanie on a few occasions at other meetings.

[ncoplin]

Atlanta Georgia.

[jackytap]

I keep asking about Botox for this internal muscle spasm but no-one replies to me. Is there anyone that has had this treatment please let me know.

[PPSN_JudyB Pelvic Pain Support Netwo in reply to jackytap]

What country do you live in ? I had this in France and don't know of anyone in the UK who is doing it for pain.

[jackytap]

Hi, I live in Gosport nr Portsmouth,Hampshire

[PPSN_JudyB Pelvic Pain Support Netwo in reply to jackytap]

Are you going to ask about it at QA ? would be interested to hear the response

[jackytap]

Yes,will let you know.

[Vicknb]

This happened to me botox saved me. Spasms gone took 10 days! Need a good dr a plastic surgeon who understands vaginiumus.

Im still left with pain pressure amd tingling but at least the horrible spasms are gone. Botox did in 10 days what pt would have taken months to do

I live in the states

drjaimeschwartz.com/List/Te...

[kalecolbe12 in reply to Vicknb]

Hi yes I am in pt for 4 months once a week so far and pain is about 50 percent gone ...spasms were gone withins 2 or 3 sessions...I am also on a small dose of muscle relaxer which is all part of the help...I may try Botox if pt doesn't completely work and I am hearing mostly good on botox