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return to running?

Duckface45 profile image
7 Replies

Has anyone on here suffered from chronic PID and been able to return to running?

I had sudden onset PID in April and had a laparoscopy. After numerous scans and all the usual tests, I’m of the opinion that my copper IUD coil caused the disorder, it was not probably not fit for use beyond 5 years (i was told it was good for 10 years).

I’ve now got a few lingering infections and my Fallopian tubes are distorted & filled with fluid and stuck to my bowel (adhesions).

I’ve made a reasonable recovery, not on painkillers and feel ok but not ‘normal’ if that makes sense. Varying degrees of tenderness in my abdomen which makes anything faster than a walk feel uncomfortable.

I’m 45 years old. Should I abandon hope of a return to normality? I’m so missing my weekly runs but wonder if I should just be grateful that I did not die from sepsis in April.

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Duckface45
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7 Replies
pizon profile image
pizon

Hello…well I do not have PID however I have pudendal neuralgia a corrective surgery left me with this condition about 5 1/2 years ago and I have had to change my exercise program..my advise is to find something else that you enjoy to do..as with aging you have to find new ways to stay in shape…sorry this is probably to the advise you were looking for however in my case if I do not pay attention I will be in uncontrollably pain for a week…some people with my condition are on prescription drugs, on the sofa or even in a wheel chair so we have to take our blessings where we can try to look at it as an adventure..it will only be worse if you let it depress you I hope you find your way quickly ❤️

AuntieH profile image
AuntieH in reply topizon

Excellent advice, Pizon! 👍

Desperateforrelief profile image
Desperateforrelief in reply topizon

I have pudendal neuralgia too, amongst other issues from transvaginal mesh complications. I had the interstim for awhile and it helped. I found pulsed radiofrequency ablation of the pudendal nerve about a year ago. An absolute game changer. The first time they did it I was pain free for 3 months. It was unbelievable. Just like anything it seems, it wore off some. But going from 8-10 pain daily to 0-5 pain has been a God send. Just wanted to let you know.

pizon profile image
pizon in reply toDesperateforrelief

Thank you and I am so glad you found something…as I said I use yoga and meditation along with some herbal treatments I will not let the medical field touch me for anything other then a check up…the more they did to me the worse I got …pain isn’t to bad I have a feeling of a ball in side but am able to live a pretty full life

Sounds to me like you had a foreign body reaction to the IUD. I had foreign body reaction to mesh, but it wasn't until 2 years later. That can cause infection and sepsis. I understand the not normal feeling too well, though my cause is different. It has taken me 12 years, but I am finally doing better. I have adhesions, pelvic floor disorder, pudendal and obturator neuralgia and coccyxdynia. I think you do what you can, keep searching for answers to things that are really bothering you and make the best of it. Just like the previous woman said. I started out at 10 pain, pelvic spasms everywhere. I very rarely get pelvic floor spasms now. I have issues, but have mostly an enjoyable life. Adhesions can be very painful, but a good PT can break them up. I've had mine broken up, which increased my mobility. They used to remove them surgically, but then they found out that surgery just creates more than you started with. So they offer PT. Activity is actually good. It might hurt some, gets better as it goes along. I hope you are able to get back to running, since you love it.

Duckface45 profile image
Duckface45 in reply toDesperateforrelief

I would like to add how very sorry I am to read of your experience of the mesh. It sounds absolutely horrific. I think my discomfort is from lingering infection rather than adhesions but I’ll hopefully know more when I go for a scan next week. Stay strong x

Duckface45 profile image
Duckface45

Thank you for feedback from your own experiences. It’s helpful as there is not very much on the internet for my particular situation.

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