Has anyone ever gone through somethin... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,409 members5,659 posts

Has anyone ever gone through something like this ?

Acort89 profile image
92 Replies

Ok.. this might be an odd question.. but has anyone gone through this type of situation where as too even by walking it makes you want to go pee ? And also is leaking Urine ?

Written by
Acort89 profile image
Acort89
To view profiles and participate in discussions please or .
92 Replies
MyStar86 profile image
MyStar86

That sounds like a weak pelvic floor……there are lots of exercises you can do for it. If you Google it there should be lots you can try hope that helps.

Acort89 profile image
Acort89 in reply to MyStar86

Thank u for the reply..Do u know if u can be able to walk normal again and if the weak pelvic floor causes urinary problems like leakage ?

MyStar86 profile image
MyStar86 in reply to Acort89

Weak pelvic floor causes exactly that bladder leakage. If you do the exercises then it will really help you. It happens to most women after having a baby due to weakened pelvic floor from childbirth. I had a total hysterectomy this year and was given a booklet on the pelvic floor exercises to do as I had the uterus removed via the vagina everything else laparoscopic.

You can see a womens health physio my stuff was private but I’ve previously seen one via the nhs if you talk to your gp about it.

The exercises will help the nhs even does a pelvic floor exercise app called squeezey it’s only for the the kegels exercises but once you have googled the exercises that will help you bht kegels are the main ones ladies are told to do.

I hope that helps xx

Acort89 profile image
Acort89 in reply to MyStar86

Thank you 😃 I worry about it too much that I’ll stay like tha forever

MyStar86 profile image
MyStar86 in reply to Acort89

nhs.uk/common-health-questi...

This is the nhs website and it has videos in the link I think! Bless you don’t worry it happens to us all at times but the exercises do help it just won’t be instant xx if you need anything you can always message I’m always here with a mountain of health issues so if I can I will always try to help xx

Acort89 profile image
Acort89 in reply to MyStar86

Thank you for that and there’s an app u said too Right?

MyStar86 profile image
MyStar86 in reply to Acort89

squeezyapp.com

Yeah this is the link to the nhs approved app.

Acort89 profile image
Acort89 in reply to MyStar86

Downloaded thank u ☺️ May god heal you

Acort89 profile image
Acort89 in reply to MyStar86

Does it I have pelvic pain too.. sometimes bladder pain ugh I hope it’s not painful bladder syndrome .. this all started after I lifted something heavy

MyStar86 profile image
MyStar86 in reply to Acort89

Do you have a gynaecologist or gp you can talk to? I have endometriosis so I don’t know about other issues might be best to speak to your doctor or a gynaecologist so they can do some tests and diagnose if it’s something else that can be treated properly xx

Skye22 profile image
Skye22

I take vesicare tablets for overactive bladder and leakage. I still have to use pads for leakage but it is much less and I don't need to go to the bathroom multiple times. Hope you find something that will help you.

Acort89 profile image
Acort89 in reply to Skye22

Thank you for that info .. will look into it :)

CockeyMoor profile image
CockeyMoor

I had this problem very badly for several months. Had a Cystoscopy and had my bladder was stretched. I have a Rectocele which is a type of prolapse but of the bowel and not the bladder. Anyway I must tell you that all the uncontrollable weeing on standing that was very frightening for me stopped . Also recurrent UTIs have stopped after Prophylactic antibiotics too. So there may be a simple solution for you. I thought I would be incontinent for the rest of my life. It was a soon as I stood up I had to rush to the loo before I could do anything else ! Good Luck x

Acort89 profile image
Acort89 in reply to CockeyMoor

Wait so this happened to you after the cystoscope procedure? U had too pee when u stood up or number two ? Omg how scary how did they fix the problem for you ?

Acort89 profile image
Acort89 in reply to CockeyMoor

I know I’ve had this issue for a few months too and it scares me because I get that sensation and it’s only on like my right side and it just feels not numb but it just feels weird so I’m like I don’t know if I’ve pulled a muscle or something but this whole thing when I walk and pee is not normal

Acort89 profile image
Acort89 in reply to CockeyMoor

So had this problem for several months ? Are u fully healed now ? How did u handle so hard months?

CockeyMoor profile image
CockeyMoor

No it wasn’t caused by the Cystoscopy. I had the peeing on standing / urgency problem before the Cystoscopy. I had the Cystoscopy to find out why. I was also suffering recurrent UTI’s and getting blood in my pee too. I used to test my own urine with Multistix SG and it always showed high levels of Leucocytes showing underlying infections. Took me a while to get my GP to take any notice. I have had to go on antibiotics regularly for two years alternating every three months between Cefalexin and Nitrofurantion and that has helped with UTIs and needing the loo so much. Also in the Cystoscopy( bladder examination) they flushed out my bladder and stretched it . This immediately stopped the peeing incontinence. I have no No. 2 problems except constipation and the rectocele just becomes aggravated when I am constipated and presses on the bladder which can sometimes add to the urgency to nee a pee. Hope this isn’t too confusing.and hope it eases your mind your problem is probably not serious or permanent. It took me two years to get any help from any GP and I had to demand to see a Gynae/ Urologist on NHS who was amazing! I thought I had something seriously wrong and mine was forever too. I started with my symptoms in December 2018 so I guess Covid delayed my treatment. Had my Cystoscopy in March 2021 . Had my follow up 2 months late due to Covid so only started on antibiotics in August 2021. The Cystoscopy in 2021 really helped. Take care .

Acort89 profile image
Acort89 in reply to CockeyMoor

Omg that sounds like a headache! But with all of that are u better now? My anxiety has been thru the roof.. for me everything started when I lifted something heavy.. now when I walk I have to pee.. Ii mean how is that even possible … and I’m also leaking too.. I’ve noticed blood in my urine.. and my appetite has gone down hill.. I’m scared my thing might be permanent.. my pelvis area also hurts.. the urologist I’ve seen has said it’s not an oab I need to switch him because he sucks.. he ordered an mri so I’m waiting on that but I will be talking to my gp because Something is going on…

Acort89 profile image
Acort89 in reply to CockeyMoor

Question did u feel like that too every time you walked u had to pee ?

Acort89 profile image
Acort89 in reply to CockeyMoor

are u fully cured ? I hope I don’t have damage.. did u get constipated a lot ?

Acort89 profile image
Acort89 in reply to CockeyMoor

Hello so thank you so much for your response so it took you almost 2 years like you said to get the proper care were you still having like those recurrent UTI symptoms in those two years before you got the proper care?

Acort89 profile image
Acort89 in reply to CockeyMoor

Question so the uto recurring symptoms you have was for two years ? I’m in between antibiotics and still experience the symptoms… it’s been 3 months for me.. I was referred to a pelvic physical therapist and she told me I have a rotted pelvis.. I’ll have to do physical therapy for 6 weeks but still feel the uti symptoms

CockeyMoor profile image
CockeyMoor

I am totally better now. It was caused by having UTIs that got so bad the blood appeared. I think the heavy lifting is a red herring. You need a proper Uro/ Gynae specialist and you will get better.

Acort89 profile image
Acort89 in reply to CockeyMoor

I hope so for me too.. I need to stay off google because it’s making me anxious.. yeah I’m getting referred to a new one .. I’m just scared u know nerve damage etc. But I mean tht has be some really bad trauma for it to happen.. how long was ur healing process.. ?

Acort89 profile image
Acort89 in reply to CockeyMoor

I finally have an appt w a urogyno in a couple of weeks.. I hope you are well .. I have a question so the tests they’ve done no prolapse no uti but I have symptoms that mimic it.. I’ll be starting physical therapy this week because they told me my pelvic muscle was so tense my pelvic floor is weak.. is this even possible that a weak pelvic floor can cause mimicking uti symptoms and incontinance?

CockeyMoor profile image
CockeyMoor in reply to Acort89

I was only wondering how you were feeling this week. I am pleased to hear you have not got a prolapse. I have never heard of a condition of the pelvic floor muscles that mimics a UTI . I understand weak a pelvic floor can cause incontinence. It is good news because you can improve everything now with the physical therapy.

I think you didn’t cause it by lifting afterall. It seems to have been a coincidence and the lifting has just aggravated an already pre-existing condition. You have got an excellent prognosis and can really help matters.

Wonderful news .

Acort89 profile image
Acort89 in reply to CockeyMoor

Thank you but I’m still feeling lost … because I don’t know why everytime i walk or makes me pee it’s been like this for 3 months I finally got the referral for a uro gyno.. but why I don’t understand that when I walk it makes me pee I’m not going to lie if I told u I feel well..

Acort89 profile image
Acort89 in reply to Acort89

My right side of the pelvis area hurts when I walk a lot at times.. so I get the tense pelvic part diagnosis but I don’t u set stand why im still peeing and walking..

How long did it take to heal completely?

Acort89 profile image
Acort89 in reply to CockeyMoor

I mean does incontinence last forever I’d hope not 🥹.. I’m hoping the physical therapy helps.. I start this week.. I know it’s not an oab because they made try oxybutin and it didn’t help at all.

CockeyMoor profile image
CockeyMoor in reply to Acort89

I think it will improve a great deal. I couldn’t stand up without rushing to the loo. Mine is nearly back to normal. It has taken about 18 months to get feeling back to my old self. Had periods of improvement. Mine was always triggered by a UTI and then it would be bad for weeks with leakage and just getting in the bath I could not control the weeing. I was diagnosed with a weak pelvic floor about 15 years ago but on those days they didn’t give much help or advice and I think I should have acted then.I am puzzled about the right side of your pelvis. Have they not explained why. Could it be bowel related because of pressure on the bladder. Think the right side is the final bit of the bowel and just pondering about if is associated with any constipation.

Let me know how the physical therapy goes because I keep wondering about these things.

Acort89 profile image
Acort89 in reply to CockeyMoor

I mean it’s pelvic pain if I walk a lot or bothers me.. they’ve done ultrasounds etc organs look good bladder looks good but the urologist said my pelvic area/ floor was very tight that’s why I was referred to the therapist.. yeah I’ll let u know.. ong that’s how I am when I stand I have to pee And it’s scares me because I wonder if I’ll be able to walk/ run again normal.. when u stood up Dod u bidder get that I have to pee sensation and did u have lower back pain? How did u get cured ? What treatments did u do if u don’t mind me asking..And thank you for replying not a lot of ppl care and you seem like a good person I hope god blesses you 🙏 now and alwys.

CockeyMoor profile image
CockeyMoor in reply to Acort89

I definitely got the pressure/ urge to run to the loo as soon as I stood up. I particularly remember if the phone rang I would have to visit the loo before I could answer or else I would have a leakage of wee. Had to change tena pads etc.. It was a scary time. I was terrified if I was going anywhere special so I bought those fancy pull up incontinence knickers and practised weeing in them to see how much they could hold. I was really bad. I also had the backache. The backache would go after a visit to the loo for a number two so I do think the bowel was pressing on my bladder and when I stood up gravity was making things worse.If I tried to hang on before going to the loo for a wee I used to get a sharp pain over my left groin/ hip area and feel sick.

I still think mine was a deep seated UTI that has finally been cured by a year of antibiotics . I am meant to stay on another year but I have come off them and I am fine. Still have a weak pelvic floor but that is manageable.

I also think that I have improved matters by not getting constipated and I have realised I am worse when I have eaten gluten. Just a weird thing I have spotted so I have put myself on a GF diet. I also use glycerin suppositories to keep my lower bowel clear to stop pressure on my bladder. I believe that some people have their bladders in a position closer to the bowel and wonder if it is all connected.

God Bless you too🙏

Acort89 profile image
Acort89 in reply to CockeyMoor

I’m glad to know that you got better.. for me it’s when I start walking or even standing that urge to pee is alwys there.. myBack hurts at times but it’s the right side groin area I wonder if I have a pinched nerve because the discomfort goes up to my pelvis area.. I don’t have problems w bowls I do that just fine it’s the urinating part.. you don’t know how many times I’ve cried behind closed doors because I feel like time is running out in the sense of fixing the problem.. i hope I get answers w this new specialist because im praying it’s not a forger thing.. my urine tests come back negative and clean.. so I just don’t get it.. I mean is it that I have a bad bad pelvic floor ? Confused

Acort89 profile image
Acort89 in reply to Acort89

My urine culture has no infection but I wonder if I have an infection like a deep one.. I’m so confused because I get that pressure of wanting to pee.. I hope it goes away soon because it’s hard..

CockeyMoor profile image
CockeyMoor in reply to Acort89

I wonder how long they cultured for? I have had them say my samples were cultured and gave me negative results within 24 hours. All I remember from school 50 years ago is that a culture takes more than 24 hours. I had little faith in my samples being correctly analysed. Coincidentally I have had only four hours sleep because I am awake in pain from my back and in my tummy. Did a wee sample and shows leucocytes so time for me to reach for my Nitrofurantoin antibiotics. I am convinced I have an underlying long term residual infection that comes back when I get run down and then the urge to wee on standing returns. Can I ask, do you get the unbearable urge constantly or just when you stand up. Mine varies depending on the state of what I believe to be a deep seated infection. So I guess my condition isn’t 100% resolved but is more manageable.I have been reading because I never knew you could have a pelvic floor that has too high a tone and will not relax properly and therefore is a weak pelvic floor.?? That really confused me . Just read that they can’t explain it and it can be muscular. Sounds like a physical therapist can do wonders so let me know because it all sounds like you will get improvement . Also they will have a better idea and be able to tell you if it is a nerve problem. I have a rectocele ( sort of prolapse) which seems to be a part of the increase in pressure when I stand up. I am tons better but not completely satisfied with my investigations and do worry it is something more serious but like you I am all clear on scans .

Good Luck. Keep in touch.

Acort89 profile image
Acort89 in reply to CockeyMoor

did y ever feel

Like all hope is lost? I’m very scared

CockeyMoor profile image
CockeyMoor in reply to Acort89

Hope is not lost. Don’t be scared , there will be a solution but you just haven’t found it yet. Life feels bad at the moment but this is just a difficult time in your life brought about by unexpected ill health and when you come out the other side you will realise. I completely understand the feelings of hopelessness. Seven years ago I was seriously mentally unwell. Work related. Tomorrow I get an apology from the people that made me poorly. I wrote to the Government it has been so very serious. Have to go to bed now. Take care, do not give up. Life is worth living . I know it is all you can think about and all consuming but you will get better. I know you don’t believe it right now but you definitely will.

Acort89 profile image
Acort89 in reply to CockeyMoor

thank you so much I needed to hear this today.. I hope god blesses you immensely and sorry for bugging you.. I feel like you are the only one tht understands me and what it is to be going through this.. thank you may I ask what part of the world you are on? I feel like helpless because I’m like why haven’t they checked me properly etc.. it’s the uncomfortable feeling of having to pee every 20 mins it’s horrible 😞 I’m going to see the urogyno finally next week and I hope he has answers .. because antibiotics don’t seem to work..

CockeyMoor profile image
CockeyMoor in reply to Acort89

I am located in Lancashire, England. Hope your Urogynae appointment goes well. Make a list of everything that has happened. Make sure you are listened too. I had to insist on further investigations.

Sorry the antibiotics are not helping. Let me know how you get on. Hopefully the Urogynae will be able to solve the problems you are having.🤞x

Acort89 profile image
Acort89 in reply to CockeyMoor

England wow seems like a beautiful country.. I’m so sorry for the loss of your country’s queen im from the states and when the news broke out here it was just so sad…

I hope so because I don’t want to bee so constantly for the rest of my life :( I’m hoping for the best .. yes I’ve started my list w questions & like you mentioned everything that has happened w the list of antibiotics I’ve taken.. you said u had ur issue for about a year before it resolved.. the physical therapy I’m still tight like she says on the right side bit as bad but the horrid pain when I walk- discomfort isn’t there any more not that bad:) so that’s progress.. where u ever afraid you’d use the loo forever ? It’s a scary feeling.

CockeyMoor profile image
CockeyMoor in reply to Acort89

Yes, a lot is going on for us in the UK with the loss of Elizabeth 11 . Everyone is sad. The state funeral is 19th September . Our new King Charles 111 was proclaimed today. All very amazing to see.

I was also terrified of becoming incontinent and had accidents on the way to the loo and was truly scared. It has more or less all resolved. I still have occasional problems but only after I have had moments where I couldn’t find a loo and got a lot of pain in my left side/ groin. That seems to trigger a period of infection. I think my Cystoscopy( bladder examination and stretching) improved matters. Tons better and also re-assured me nothing serious was happening. The fact you are seeing some improvement already shows you will get better. I promise .

Take care x

Acort89 profile image
Acort89 in reply to CockeyMoor

I’m from California and there’s magazine articles, news coverage, billboards Honoring her.. she seemed like a beautiful human being.. it’s crazy how she at 25 had to become Queen .. they televised King Charles live speech and he handled everything with grace and poise.. he seems like he will be a good king..

May I get your name .. I have been talking to you and don’t knor your name. My name is azucena…

I finished the antibiotics and there is not more infection but I am still peeing and I feel wet and open down there TMI I know but I feel like u understand completely I just hope there’s a cure for me ..

xoxo

Acort89 profile image
Acort89 in reply to CockeyMoor

so i went to the uro gyno right.. he suspects it’s an overactive bladder they have me start on a medication it seems to work for the day and then it wears off 😔 I swear man I feel like I’ll have to just live w this .. I just started the medication so I know it takes time.. u are so lucky you got cured.. I’d give anything to be normal again.

CockeyMoor profile image
CockeyMoor in reply to Acort89

I have to be honest ... why haven’t they done further investigations? . I had the Cystoscopy and that was really re-assuring and really did help. Basically it was bladder stretching and a check around which psychologically helped too.

Mine is over active bladder and rubbish pelvic floor muscles. I have looked back at my notes and I first had problems in 2009 when I was 46. I was surprised this is a condition that has been developing 13 years. I wish I had tried pelvic floor exercises earlier and self-help. I think you are still young enough and medicines seem a bit of a drastic measure for you . I don’t think they have investigated enough and have just put you on medicines which are lifelong. I wasn’t happy to take medicines.

In the past the GP gave me Oxybutinin. I would not take that because of side effects of constipation and dry mouth.I used to be a Pharmacist and I just didn’t feel happy with this choice of medication.

After the Cystoscopy the uro/ gynae man gave me Solifenacin to take once a day. That is an excellent medicine but I still would not take it. For some reason I just felt like you do and just wanted a better outcome than relying on medication for the rest of my life.

I am not completely 100% cured but I am tons better. Long term Nitrofurantion 100mg SR seems to get rid of any contaminants in my wee and stops the incontinence being as bad.

I do still carry a little jug in my car just in case the public toilets are shut. They were shut such a lot during covid times.

I make sure I go to the loo about every 30 mins to an hour when I am at home.

I can manage to not go to the loo for 2 hours if I remain seated. As soon as I stand up I still need to go to the loo before anything else. I have cut out a lot of drinks of coffee and just have one a day. I still drink tea but trying to cut down.

I do still sometimes get the uncontrollable bit of leakage after I have finished on the loo. Like a little can be left behind if I get up too soon. I also sometimes don’t quite make it to the loo but that is rare now. I still think you have a deep seated infection that just needs the correct antibiotic to keep you on the better side.

I am definitely much improved and I think you can improve your problems without the meds.

I don’t remember how old you are but I am sure you are too young to go on medication.

I am glued to the TV and watching everything about the Queen. Very emotional time in UK . Most people are having a little cry over her.

Take care,

I think the Uro/ gynae has took the easy way out with you. Too easy to give a pill and not try other methods. They are lazy and don’t care about women’s health enough .

Beverly x

Acort89 profile image
Acort89 in reply to CockeyMoor

I have the cystocopy in two weeks

CockeyMoor profile image
CockeyMoor in reply to Acort89

Good Luck with Cystoscopy … let me know how you get on x

Acort89 profile image
Acort89 in reply to CockeyMoor

they’ve sent my urine out for culture and no infection

Acort89 profile image
Acort89 in reply to CockeyMoor

I have the camera tete in 2 weeks I’m pushing it for sooner

CockeyMoor profile image
CockeyMoor in reply to Acort89

That is good. It really is a simple procedure and you will soon recover from it. Not painful. I had General Anaesthetic but only takes about 20 minutes. It will settle your mind and probably help your symptoms. Good Luck. Let me know.

Acort89 profile image
Acort89 in reply to CockeyMoor

thank you :) I’ll let u know.. u can’t get damaged from that procedure right?

CockeyMoor profile image
CockeyMoor in reply to Acort89

really safe procedure 👍

Acort89 profile image
Acort89 in reply to CockeyMoor

thank you! Good to know! I’m getting my urine tested again..

CockeyMoor profile image
CockeyMoor in reply to Acort89

Good. Don’t let them get away with things. Keep on going until they take more notice .

Acort89 profile image
Acort89 in reply to CockeyMoor

did they numb u down there ?

CockeyMoor profile image
CockeyMoor in reply to Acort89

sorry I got it wrong way round. If they use the flexible tube it is local anaesthetic . If it is a hard tube it is General anaesthetic x

Acort89 profile image
Acort89 in reply to CockeyMoor

oh ok so ur numb down there

CockeyMoor profile image
CockeyMoor in reply to Acort89

You are totally numb down there during the Cystoscopy.

Been watching the Queen’s funeral all day. 😢

I totally trust my wee sticks more than the GP results. If your sticks are showing infection then I would believe that result. I have challenged GP about this and he backed down and admitted my results were not totally clear. I just didn’t show the markers they look for like protein and nitrites. I always show leucocytes and sometimes blood.

It is so obvious that your problems are a deep seated infection they are not spotting. Combined with weak pelvic floor. If they sorted out your infection / contaminants in your wee you would br a lot better. I was told “ mixed contaminents” causing my problems .

Good Luck. Off to bed. It has been an emotional day in UK and I think a lot of the world have seen the funeral. Never seen anything like it before in our lives .

God Bless

Acort89 profile image
Acort89 in reply to Acort89

@are at home Urine tests acurrate? I took one shows positive for an infection and when the dr tested my urine shows negative .. ugh the camera test has to help me

CockeyMoor profile image
CockeyMoor

I had the Cystoscopy in March 2021 and got a lot of relief from the symptoms straight away . The Cystoscopy only takes about 30 mins under General Anaesthetic and recovery was about four hours after Anaesthetic . The liquid they use to stretch bladder just pours back out onto pads. Had to take it easy a few days and had to bend down slowly , not lift etc.. because it felt a bit sensitive. Not painful just knew I had to rest a bit to give bladder and urethra chance to get over the procedure.I really don’t think you have nerve damage from lifting. I have had two hernias from lifting but never got nerve damage of my bladder and I was 32 and 42 when I had hernia repairs and my bladder was fine until I was 56 so try not to worry.

Acort89 profile image
Acort89 in reply to CockeyMoor

Im just worried I won’t be able to walk again without having too pee..

Acort89 profile image
Acort89 in reply to CockeyMoor

Tu j u for Ur info Im confident it’s just temporary.. wow 2 hernias that’s crazy I’m glad no damage I mean for never damage I can imagine it has to be a big blow when u got the hernias did u have blood in ur urine ?

CockeyMoor profile image
CockeyMoor

Only had blood in my urine when the UTIs were bad . The blood is not always visible to the naked eye so that is when the Multistix SG are useful because they show if you have traces. The hernias were caused by weak muscle walls after childbirth which then got bad after lifting / coughing but they never affected my bladder.

Hope you are seeing someone soon who can help.

Acort89 profile image
Acort89 in reply to CockeyMoor

Yeah I’m waiting for my appt w the specialist now.. thank you.. I’m just hoping I’ll be able to walk normal again without having to go pee.. I’m glad ur situation is better .. how long were U suffering for ?

CockeyMoor profile image
CockeyMoor in reply to Acort89

Had the problem quite badly for about a year. Sorry late reply. Had a bereavement .

Acort89 profile image
Acort89 in reply to CockeyMoor

No problem thank u for replying are u fully recovered?

CockeyMoor profile image
CockeyMoor

Absolutely , except if I get a UTI and it comes back whereby I can’t stand up or bend down without leakage . I use Multistix SG wee sticks to test my wee . Bought off the internet from the manufacturers . This always gives me a good idea if I have an infection looming and I am extra prepared to take extra antibiotics . GP is aware I double up my antibiotics as they directed me to when it happened again recently. Your’s will definitely resolve I believe. You probably have something called adverse neural tension which is creating all the other symptoms. The “ nerve” issues. A Physiotherapy friend explained that I was so frightened I was tensing muscles giving myself awful tingly feelings down my legs and shooting pains in my lower back etc... it wasn’t real. It was my reaction to the stress of worrying I was becoming incontinent( urine) . Try not to worry. I hope this helps .

Acort89 profile image
Acort89 in reply to CockeyMoor

Im so sorry for your loss my condolences to you and your family.. So I had the walking and peeing too it’s on my left side though where I feel it it’s weird.. did u experience something like that as well well? That’s what I have .. I’m also leaking Urine.. did ur uti situation cause you too leak? and omg yes the back pain and I’ve been sooo worried and stressed about it I’m not going to lie… my stress of me being incontinance have taken a toll but ur right u have too chill .. I recently got tested for a uti so it looks like my uti never cleared so on antiobiotics again for me too…

Acort89 profile image
Acort89

I feel like my bladder is full and it makes me pee it calms down when I sit.. it’s weird.. and my pelvis side hurts when I walk and that sensation when I walk.. I hope it’s goes away the first specialist tht saw me sucks so now going to another.. did u have that too where you’d feel like ur bladder is full ?

CockeyMoor profile image
CockeyMoor

Hi,Sorry for the delay in my reply.

Yes my UTIs were recurrent for two years. Even since I went on Antibiotics prophylactically I still get problems if I don’t have access to a loo. I can go 90 mins now between visits to the loo which is a miracle. As soon as I get an infection starting I pounce on it by doubling my antibiotics but the incontinence problem returns. Definitely infection related. You need a culture of your urine to get the correct antibiotic. Hope you feel better soon ... you will get there x

Acort89 profile image
Acort89 in reply to CockeyMoor

Thank you! Ir sucks because so far the antibiotics don’t seem to work.. do u know how long is it to wait to finish an antibiotic for an accurate culture test ? Because I know u can get a false positive or negative…

Acort89 profile image
Acort89 in reply to Acort89

I have that everytime I walk I have too pee.. I hope it’s not permanent… but the other thing a physical therapist and she said I have a rotated pelvis.. that my left side is not aligned so I’ll be doing pelvic therapy for 6 weeks I’m soo lost and confused

CockeyMoor profile image
CockeyMoor in reply to Acort89

That is quite interesting because my hip / pelvis was put out of position by a car crash but although it went better it still clicks in my lower back.

CockeyMoor profile image
CockeyMoor in reply to Acort89

Different antibiotics alhave different half lives so last in the body different lengths of time. You would probably need to be clear about 14 days before a culture test would be worthwhile .

Acort89 profile image
Acort89 in reply to CockeyMoor

Is that how long u had to wait when u felt that antibiotic didn’t work to re test ?

Acort89 profile image
Acort89 in reply to CockeyMoor

Sorry to bombard you w questions but the physical therapist examined me and said my issue w walking and having to pee is because of weak pelvic for muscles .. my left side of the pelvis is a little lower then the right I can even see it in the mirror… it’s crazy

Acort89 profile image
Acort89

So I went to my Drs office right because in the meantime I’m waiting for my urogyno appt I’m still having uti symptoms they took my urine and are sending it out for culture.. he checked my dr and saw that tmi - I have puss in my urine.. ugh I’m like why god why still and I fe ruin I’ve done a few antibiotics and it doesn’t go away..

Acort89 profile image
Acort89

so they did the urine test 3 times and sent it out for culture .. no infection.. they even did blood work lol just in case and it comes back clean 😣 I hope the cystoscopy sees what’s wrong ..

CockeyMoor profile image
CockeyMoor in reply to Acort89

Hi Azucena,

How did the Cystoscopy go? Did they find out why you are suffering your symptoms?

Hope it went okay. Beverly x

Acort89 profile image
Acort89 in reply to CockeyMoor

hello… it’s actually this upcoming Wednesday.. :) I’m soo happy to finally get it done.. that procedure will show why right? I’m nervous does it hurt? I’ll keep u posted next week once it’s done :)

CockeyMoor profile image
CockeyMoor in reply to Acort89

How did it go? Hope you are doing okay 👍

Acort89 profile image
Acort89 in reply to CockeyMoor

thank you for checking in on me so the procedure I mean it was fast in the sense then I was in and out maybe in like 20 minutes so the procedure itself it was uncomfortable because I literally felt that in my bladder like moving.. so the doctor literally the screen was right in front of me. He checked my bladder. She said that my bladder looked normal and he showed me on the screen normal color there was no scarring from the UTI that I’ve had. He also said that the bladder the shape looks normal there’s no scarring there’s nothing to be worried about so he pretty much is treating me right now for an overactive bladder, so my thing is is the recovery so I mean I feel weird I took the day off from work just to relax when you had it. Are you peeing a lot like I feel like honestly I feel like I’m in square one because I feel like I’m peeing a lot and as far as bleeding by not bleeding in my ear and I just like use the restroom and a little bit of blood came out on the toilet paper but as far as bleeding there’s no bleeding after the procedure I just feeling.. I’m sure I’m swollen from the inside since that camera thing was in there.. is it normal to feel what I am feeling ? I guess i worry and get scared too easily.. the Dr told me because I asked that it’s a rare thing to damage the bladder.. how long was your recovery after the procedure?

CockeyMoor profile image
CockeyMoor in reply to Acort89

I was under general anaesthetic so I was asleep when mine was done. Your’s was better in a way because you got to see your bladder which must have been re-assuring.

There is a little pain for about a day when you visit the loo. It is like a little sharp stabbing pain. You definitely need the loo a lot because they put a lot of water in the bladder and stretch it. I had a bit of blood too. It definitely gets a lot better very quickly.

That is good to hear that you have an overactive bladder and nothing more serious. Did they give you any medication ? Did they give you any advice on avoiding too much coffee etc..

Hope you feel better soon . Beverly x

Acort89 profile image
Acort89 in reply to CockeyMoor

I was given bladder medication remember I told u about well I’m a month in almost and I saw that it was beginning to work a few days ago.. I was able to walk more without having to pee so much hit now after this procedure I feel like back to square one :( I feel uncomfortable. Did u feel that way too ? I feel open if that makes sense .. did u feel like tht?

CockeyMoor profile image
CockeyMoor in reply to Acort89

Yes, please don’t worry. I did feel open and just had to wait until my bladder settled. It took about a day. Had to wear pads.

Good news that the medication was working. It will work again.

Cystoscopy is a very safe procedure. You will be fine. Are you resting? Hope you are because I remember the loose feeling and you probably should rest.

Bed-time in UK . 23.01. Keep wondering what time it is where you live? x

Acort89 profile image
Acort89 in reply to CockeyMoor

it’s 3:18 pm here.. oh this cystoscope procedure stretches the bladder? I had no idea.. yeah the medication I felt it finally start to kick in.. yeah I am resting i just feel soo weird down there . I feel like I’m starting at square one again because I felt a little better 😔 I guess I worry and think the worst too fast.. how long did it take u to reviver from the procedure ? I didn’t bleed the burning sensation lasted only like a day and it went away.. but my left is bothering me again the physical therapy was helping. I know it’s rare for this procedure to damage you.

CockeyMoor profile image
CockeyMoor in reply to Acort89

I tried to message yesterday but I think my reply didn’t send. So sorry for the delay.

Hope you are feeling a lot better now. The best news is there is nothing serious .

Sorry your left is bothering you again. Did they explain why you were getting that feeling on one side. Hopefully you can resume the physical therapy.

The procedure will not have damaged you. I know how you feel. It always takes me a few days to realise al is well.

Acort89 profile image
Acort89 in reply to CockeyMoor

well he said my bladder is in tact no damage.. there’s no scarring so there’s no scarring and he also said that the bladder the shape it has you know then a nice color no term no tumor no blockage, so I’m like OK but I feel like even before this exam I was feeling a little better I was walking more. I felt like the pills were working but now I feel like it’s back to square one I mean I understand if they put a camera in there and you know I’m gonna be sore, but I am just hoping that there’s no damage, but like you said it’s a safe procedure.. I just feel weird down there. It’s not a good feeling it feels soo gross. I’m doing the excercises at home.. how many cyatocopys have u done ? I can imagine the insides are swollen

CockeyMoor profile image
CockeyMoor in reply to Acort89

I have only had one Cystoscopy. I remember the involuntary weeing especially when I stood up. I think that has upset you making you believe you are back to the days when you were weeing excessively. It will settle.

It is wonderful news your bladder is healthy and nothing serious is wrong.

I was diagnosed with a moderate Retocele during my Cystoscopy. . I did not understand much about that condition. I have been in quite a lot of bowel/ tummy pain for 5 weeks. Had lots of tests and was worried I had cancer. Just been researching and a lot of my symptoms I think are from my Retocele. I can actually see something in my vagina that is getting bigger and I am getting incredible back pain. I understand exactly how worried you feel because I am going through that stage again with my Retocele.

Do you suffer any constipation or lower back pain? Turns out my Rectocele could have been causing my recurrent UTIs and causing me to keep wanting the loo when I stood up.

Mine seemed to get worse when I dug my Mum’s garden in early Spring. Just double check with the Uro/ Gynae specialist that you had not got a Retocele. I am sure you will not have or they would have told you but it does make me wonder when you said originally your symptoms came on after heavy work. My Retocele is aggravated by any lifting so it is just a thought to eliminate that as a cause of your ongoing issues.

I truly think you will be absolutely fine but because you are so worried you should possibly have a follow up and ask lots of questions to re-assure you.

I am angry that no one explained that my moderate Retocele is actually very uncomfortable and makes me feel like my pelvic floor is dropping. I feel really frightened this morning and in lots of pain.

Don’t end up like me. Had GPs ignoring me for 5 weeks as the pain has got worse and been waking me from sleep every morning .

Take care and let me know . Beverly x

Acort89 profile image
Acort89 in reply to CockeyMoor

omg yes! You hit the nail on head with what u first said.. yes when I stand omg the urge too pee and go to the toilet too pee is there that scares me … also I’m feeling the bladder fullness again and I feel open.. also the walking and peeing is where it orinalky started but I feel a little sore too but it has to be because I just got it done.. it’s prob definitely like you said me having the procedure done.. if you feel something coming out of your vagina you should get your gp to refer u to a specialist you might just need surgery to get better here in the states they would of done surgery esp if you gave something bulging out of ur vagina .. it came back for me the walking and peeing even just standing.. yeah they found nothing wrong with my bladder .. I’m just scared now that I’m starting over with the healing process.. sometimes I even regret getting it done but the urogyn told me it’s totally safe . I don’t suffer from lower back pain or constipation.. this cystoscopy is done they fill up ur bladder w water and it stretches right? How long did u take for your body to settle ? I’m on day 5.. he told me it’s a an oab bidder I wa worries it was intestinal cystitis but he said it was not . How long did urs settle? I knew a coworker that had the cystocopy done 4 times for them to detect what was wrong .. crazy

Acort89 profile image
Acort89 in reply to Acort89

I feel sore it’s almost been a week how long did u take to heal ??

CockeyMoor profile image
CockeyMoor

Are you having a general anaesthetic?It really doesn’t hurt. Just a funny feeling afterwards because they put a lot of water up into the bladder and that just comes back out. You do need to take it easy and not walk too far straight afterwards. Make sure someone picks you up . Good Luck !

Acort89 profile image
Acort89 in reply to CockeyMoor

I’m nervous and excite stop finally get it done so I can hopefully get some answers.. this procedure will definitely show what is going on right ? Thank you te will have my fiancé pick me up.. I hope to god it shows my problem that I am having because it’s sucks.. how are you? Are u feeling better ?

You may also like...

Has anyone had a neuroma following pelvic surgery?

cutting nerves quite severe. Does anyone have experience with this? Thank you v much!

Dry Needling for Peudendal Neuralgia? Has anyone had this?

Has anyone had this? I saw it on the pudendal hope facebook page? (Does anyone know a US Pt that...

Has anyone had to quit their job due to pelvic pain?

round my lower back, bum and legs. making it so difficult to walk. Every movement is an effort and...

Has anyone else had pudendal nerve decompression surgery?

got better or are seeing positive gains? Would anyone care to share their experiences, as I will...

Has anyone tried botox injections and/or trigger point injections to the pelvic floor?

referred by one of the levator ani muscles. Has anyone here ever had botox and/or trigger point...