Fibroids : So my wife is undergoing... - Pelvic Pain Suppo...

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Fibroids

Rlr2020 profile image
6 Replies

So my wife is undergoing test and has been told she needs an urgent hysterectomy due to the fibroid being 12cm and the images being inconclusive.

We have received a letter today saying that it’s a fibroid but could have sarcoma in it and therefore need to be removed.

I am hanging on to the word “could” and would ask if anyone else has had similar ??

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Rlr2020 profile image
Rlr2020
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6 Replies
JacqCh profile image
JacqCh

I replied to your earlier post outlining my positive experience with myomectomy. There are way too many unnecessary hysterectomies being performed. Female organs are precious and should only be removed as a last resort, I suggest you read through some articles on hormonesmatter.com.

Rlr2020 profile image
Rlr2020

Hey JacqCh thank you for your messages, I am coming to agree with your views I was supposed to hear so many are carried out each year. That being said the fear that my wife’s could be cancerous leave us with a real and present situation which I don’t think has many other options. We have discussed many.

JacqCh profile image
JacqCh in reply to Rlr2020

"Fibroids are benign growths of the muscle of the uterine wall that occur in more than 50% of women before the age of 50. They do not become a cancerous lesion and do not need to be removed for this reason. Cancer of the uterine muscle (called a leiomyosarcoma) is a very rare condition and is thought to occur by a separate pathway. That is it starts as a cancer, and does not become a cancer from a fibroid." - extracted from Alana Healthcare website.

I saw numerous gynaecologists and oncologists who offered the same solution - hysterectomy, even though they said that the chance of malignancy is only 1:1000. My primary physician and surgeon thankfully agreed that hysterectomy was an over-treatment, bucked the trend and supported me in getting myomectomy instead. I have friends who experienced early menopause post hysterectomy and regretted the procedure.

Have a read of this article: hormonesmatter.com/hysterec... before you make the final decision. The author mentioned:

I have been appalled and saddened by the number of women who were railroaded into hysterectomy and/or oophorectomy (ovary removal – castration) by being told that it was necessary. Some were misled into believing they had cancer or pre-cancer when they did not. Some were referred to oncologists unnecessarily to further instill fear. The fact that only 2% of these surgeries are done for a cancer diagnosis and most pre-cancerous conditions are treatable without organ removal, something is certainly “rotten in Denmark.”

Women need to proceed with extreme caution and not rely on their Gynecology specialists’ treatment recommendations... time constraints derail a woman’s ability to research her options... surgeons tend to rush women into surgery.

It's something that she can't undo and will affect the rest of her life. Your challenge though would be to find a surgeon who's skilled and confident in myomectomy. I'll leave you to it and all the best!

Bluelady-sing profile image
Bluelady-sing

Do not have this hysterectomy is too serious have a laparoscopy first to remove the fibroid then biopsy and find out if it is malignant or benign .

JacqCh profile image
JacqCh in reply to Bluelady-sing

Agreed! I saw 4 specialists this year alone, 3 of them proposed hysterectomy with an unsightly vertical incision, and only the 4th one agreed to perform myomectomy with horizontal incision over bikini line. Over the past 7 years, I've seen probably 10 specialists, whilst the fibroid was growing from 3cm to over 16cm. Not advisable to let it grow the way I did of course, but it's also important to seek out the right surgeon, no matter the costs and efforts.

Doctorssuck5 profile image
Doctorssuck5

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