Prolapse?

[Nonfictionreader]

Hi, I have a Prolape and have had 2 different sized Pessaries fitted 1 week appart. last on 6/4/20. In the last 2 weeks I have been having similar feelings as when each was first fitted. Things seem to have settled on being uncomfortable when sitting for a while. Apart from that the pessarie is doing its job.

My consult has decided to send me for surgery after I emailed her secretary last week. I really do not know what to do. I still have the Pessarie in place. At present my consultant refferal letter should be with me next week. I do have Benenden health insurance which I used for first 2 visits then I transfered to NHS.

Benenden will not pay for another consultation with new consultant and ask that I get a letter explaining my next treatment If treatment has more than a 6 week waiting list Benenden will concider my situation. Which is fair enough.

Has anyone any advice to pass on please?.

In these difficult times with Covid-19. Emailing my Consultants secretary has been a Godsend and I would advice anyone to do it if they are able.

[Liz_2018]

I'm in the same situation. I'm on my third one. My Gynecologist said that the pessary shouldn't hurt and if they do to get back in and have it changed. I've had two round ones and now have a cube one. The cube one I thought was going to work till I had it a couple of days then I noticed my prolapse was coming out around the cube and really making it uncomfortable to sit. She told me if needed I could pull it out but I'm afraid that my prolapse might have gotten worse or something I go back this Wednesday so I'm just suffering till then. When I read your post you talked about surgery. Please make sure they're not putting mesh in you. This is why I have my problem. I had a hysterectomy and was having small incontinence a urologist talked me into having a bladder lift to keep from having to wear incontinent products later in life I was only 49 I would had given anything to had not chose this surgery I didn't have any idea he was putting mesh in me. Now I have nerve damage and have suffered in pain I finally found a good pain doctor and got a pain pump that gives me quality of life again. Be careful what you decide to do. Do your research please. I'm trying to find a physician that will use my own tissue to fix mine. Praying for you

[Nonfictionreader in reply to Liz_2018]

Thanks liz,

I did see your from the States.

My Gynecologist gave me no advice initially not even a website. The pessarie was great at first each time and then got more and more uncomfortable. I was told each time I went back 'Well its in right' making me feel rather inadaquit.So the last time i decided I would leave thing as they were. That was on the 6/4/20.

Apart from sitting things are better. I have weak hands from CMT1A a form of muscular degenoration. So removing is not an option.

I will email a list of questions before my appointment. Although I did that last time and she took no notice. Mesh seems a no no in Britain after all the problems a few years ago.

This Covid-19 isn't helping matters.

At least we have the NHS over here.I will probably have to pay to get my initial visit to another Gynecologist.

Thanks for your time. Keep safe,

Linda

[Gjkas in reply to Liz_2018]

Hi Liz, could you tell me what a pain pump is please. I'm not looking for quantity of life anymore. Im looking for quality of life. I have been in so much pain in the past 5 years,that the only time I have left my house is to keep a hospital or Doctors appointment.

Otherwise i have not left my house .I am actually housebound.

Good Luck. Take Care and Stay Safe. Glo..

[Liz_2018 in reply to Gjkas]

I am so sorry that i didn't reply to you for some reason I quit getting my notifications from this site and I lost my link till just yesterday evening. I hope you are doing well. You ask me what a pain pump is, it's a pump that is placed in your lower abdomen on whichever side you don't mostly sleep on. The SynchroMed II programmable, implantable pump delivers drug to the intrathecal space via an implanted catheter. SynchroMed II pumps can be managed using the Control WorkflowSM approach, which is designed to help eliminate systemic opioids and provide effective pain relief. Your pain doctor can also fix a bolus to where you can give yourself extra medication in between times like mine is synchronized it delivers so much meds at a certain rate at a certain time. I usually have to go every 3 months and get my pump refilled with the medicine which contains hydromorphone and bupivacaine and if I choose to get my medicine increased where it distributes more through the catheter then it shortens my time and I have to back sooner. Then they end up having to change the cocktail of the medicine I guess in our terms meaning the ratio of the medication. I couldn't live without this pain pump this really has given me my llife back. Except last spring i ended up with a prolapse and had to have surgery and now my pain is worse so having to get extra increases and that's not working either. I'm going to have to try something else. Again I'm so sorry that it took a year to reply to you. Hopefully i can figure out what's wrong with my app.

God Bless and Take Care.

[Gjkas]

Hi there, i had a Prolapse repair operation 10 years ago. After the operation it was Great for 2 years,then it started to come back down again. I saw my Gynaecologist again and he said that he could do another repair.But when he checked my records he said that he couldn't do it because I have Osteoporosis. 🤔The operation that he was thinking of doing involved my Spine, but because of the Osteoporosis it was a No Go. Since then i have been having a Pessary fitted every 4 months. The 1st one i had fitted was too big ,but they used the next one down and I've been fine. Ive been having the Pessary fitted now for about 8 years. I sometimes have it fitted by my G.P in our Well Woman Clinic. Hope that things work out for you. Take Care and Stay Safe 🤞 Glo.