Hello Everyone,
It has been quite some time that I have been on here, my husband Bryce was suffering from a fissure for 2 months, and Praise be to God it healed! So grateful to God for that. He was still in pain and having spasms up furter in his rectum so he had his internal hemmoroids treated with Infared Heat Coagulation which the procedure is painless but the scope was a 15mm and since his internal schinter was still tight, it tore another fissure in another area. He became suicidal from the terrible and persistent pain and I kept searching online for other answers. Thankful to God for this forum and for all of you sharing your experiences and healings. From these forums I decided to call a Pelvic floor PT and she told me about the book Headache in the Pelvis by Dr. Anderson & Dr. Wise. I ordered the book and read some of it and discovered that probably a lot of my husbands pain was coming from more muscle/nerve related pain along with the anxiety/depression/insomnia he was suffering from the pain. It becomes a viscious cycle. I decided to try to call Dr. Wise since his number was in the book. To my surprise he answered the phone and he is such a great person and doctor to talk to on the phone. He said he could not advise us since he is not our doctor but he told us what he normally recommends to his patients.
1. 1% Nefidipine ointment in a neutral base (no lidocaine - can be irritating to the tissue) and diltizem can be irritating to the tissue. Apply a toothpaste size amount 3x a day if possible with finger but if not with applicator
2. Hot baths which we all know relaxes the muscle by 1/3 (3 x day)
3. Ketamine Infusions for pain
I immediately searched for ketamine places and found one in our area - Pittsburgh Ketamine in White Oak, PA, Dr. Macler. They were able to get Bryce in within a week, and we were so thankful to God to have hope again. We truly believe that God intervened and put these people in our paths, and we thank God for the chemicals that he gave people the wisdom of making and helping people. We believe it all comes from God, and Jesus Christ His Son, Our Lord & Saviour.
After the very first 4 hour ketamine infusion treatment on March 6, 2020 Bryce went from not even being able to ride in vehicle laying down without tremendous pain to driving the same vehicle the very next day. He still had some post bowel movement pain, and spasm high in the rectum, so the doctor prescribed his .1 mg clonidine for protagia flugax 2 x day and oral sublingual ketamine 20 mg 2 x day. He was also already on valium 5 mg 2x day for anxiety and to help relax the muscles. And another doctor prescribed doxepin 25 mg before bed for sleep. This really helped him with sleep after about 1 week, the valium helped with the anxiety. The same type of pain even with an active fissure. Because Bryce had active fissure pain prior to the first ketamine infusion and the next day that pain was gone. Praise be to God, Glory to God! We give God all the Glory! Bryce had another infusion 5 days later with even more improvement as ketamine also helps with depression/anxiety and suicical thoughts. Then he had another 6 days later and had 95% improvement. He had a relapse of pain and high rectal spasm 3 days later and was not able to get another infusion due to the corona virus, the one in Pittsburgh shut down. The relapse lasted a few days and he did have improvement each day but still was having some post bowel movement pain and pain throughout the day with activities. So I talked to a ketamine place in Clevland Ohio and she told me they could not get the ketamine in right away due to the virus so she suggested to call a neurologist so I did. He prescribed gabapentin 300 mg 1 x day before bed and increasing to 600 mg and then if needed 900 mg. Bryce started the gabapentin 300 mg 7 days ago and Praise be to God and we give God all the Glory he has had improvement with post bowel movement pain! Also he is using the 1% nefidipine ointment 3 x day, and 2 other ointments prescribed were the first one all of these: 6% gabapentin, 5% ketamine, 3% amitrypiline, 2% tetracaine. and the other is 3% amitrypiline. These all help with both tissue and nerve/neuropathical pain. Just wanted to pass along what has with the God's healing touch helped Bryce. He is now taking 5 mg valium usually just 1 x day, 300 mg gabapentin night + 150 mg gabapentin morning, .1 mg clonidine 1 x day, 2 - GNC Tri-Sleep product at night, 20-40 mg ketamine sublingual per day.
Pray that God will bless you all and bring all His Angels down to touch each and every one of you suffereing and please pass this on to everyone. God be with you all, with Love in the name of Our Lord & Saviour Jesus Christ,
Bryce & Sara
Anybody with confirmed pelvic congestion syndrome. If you get pain after sex how long does it last?
Ongoing undiagnosed pelvic floor/lower abdomen pain previous blog please see below
Levator ani syndrome and pudental spontaneous neuritis
