pelvic pain warrior

[kalecolbe12]

hi everyone ...this will be a longer post because of so much history of my this condition....so like a lot of you on here i have pelvic floor dysfunction.it started 10 years ago while i was going through an intensly stressful time and menopause at least thats the best i can relate it to...anyway at that time it was the feeling of a uti and numerous tests ,specialists and meds and no answers...i found a pelvic floor specialist from forums online like this and after months of pt and an overactive bladder meds as well as a hormone cream it went away ,however it wasnt the last i would experience of it...i would get stabbing pains in rectal area in next few years that took me to the er and they said proctagia...ok so that went away with relaxation and breathing...which now brings me to the worst and most recent version of my pfd.So in january of this year after another extremely stressful time i started having stabbing pains rectally again AND urinary urgency...no infection so and it didnt go away so i ended up with a colorectal surgeon and a urologist.....diagnosis is levator ani(tight and dysfunctional pelvic floor muscles)which they think is by me holding all my tension for years in my pelvic floor.....so i i got referred to a pelvic floor pt and got on cyclobenzaprine which is a muscle relaxer /anti depressant which help a lot,however the hope is that as my tension gets released and we retrain my pelvic floor muscles i will not need the muscle relaxers.. Also i key point is that my docs said i have the option of botox in pelvic floor if pt doesnt work.i have been in pt for 4 weeks once a week now (if you can do twice a week is is better but my ins only approves once a week)and just being with someone who understands it is great and she does internal and external trigger point release...i am already noticing an improvement but note that its a process and takes time to undo the tension patterns the muscles have.there are also internal muscle relaxers you can get compounded as suppositories which help some people and trigger point injections...i have not tried either yet but that is an option....my uti urgency is off and on but is a lot better....i had 5 days of normalcy last week and then a difficult bowel movement set off the muscle spasms rectally again but i took a muscle relaxer and did my breathing/excercises and much better.i am going to go another 6-8 weeks of pt and if it hasnt worked all the way i may try the internal cream/trigger point shots and lastly the botox.Another thing that is worth noting is that pelvic surgeries like c sections and any other surgery in that area can make the muscles /nerves more sensitive.I would like to hear from anyone who wants to give each other mutual support and progress reports /new ideas/things tried..what has worked and if anyone has had pt work well..thanks,Audrey...so my email is [e-mail]

[edythe]

Hello Audrey,

Sorry to hear about your repeated pelvic problems. It sounds as though you have got a good pt specialist and in your place i would definitely persevere. A little patience is required here, however, in my experience or to put it more clearly - another 6-8 weeks is probably not enough! I completely agree that any kind of invasive therapy may not provide the relief you hope for. Do take a look at some of the recent posts in the forum, maybe using the search button. Above all, don't give up!

[Pelviccrusader]

You seem to respond well to various therapies so just keep going and be vigilant. Suggestions:

1. Pay out of pocket if possible for second PT visit per week.

2. Wand to add additional internal work

3. Get your external muscles assessed by independent PT

4. Whole body external myofascial release once a week-even if you are told your external muscles are OK

5. Cupping of external pelvic muscles. Legs and back if possible as well.

6. Biofeedback helps some people

7. Anti-anxiety medication

8. Warm baths-don’t laugh-this can be huge

Good luck

[pizon]

Hello and so glad you are here....I have found this to be the best site and have learned a lot from other members I wish you all the luck and health in the world ... I would love to follow and update you..my personal email is [e-mail].... my story stared 3 yrs ago July 13th to be exact.. I was dressing and my bladder/uterus dropped all at once no warning to stage 3 with it came the worst pain I had ever had ( gave birth to 2 very large babys may I add) I went to p/t and had a wonderful experience a great woman who not only understood but helped me with the depression that came along with the pain...I had corrective surgery and it was successful how ever I had the swollen feeling of sitting on a ball and was very painful the original sergeant sent me to so many different dr.'s ( 20 in all from chiropractors to pain management) the long and short of it is I had nerve damage from the operation to correct my prolapse and although it has been corrected it doesn't feel like it I ended up going to an out of state dr. and he gave me the correct diagnoses..so before I went to the new Dr. I had hernia surgery that was suppose to take the feeling of a ball away as well as a stich removal from the original surgery I had p/t on and off for 2 yrs and it was the best thing for me....so yes if you can afford more go for it....it turns out that the nerve damage I have may be caused by a damaged psoas muscle and I am now working on this with a message therapist (note I never had any back problems before the prolapse surgery ) So sorry for the long post I just want you to know you are not alone and that I completely understand how you feel....I currently take valerian root and hop along with cbd oil for the pain...I found the more I let the Dr.'s give me meds the worse I felt again take care and I will keep you in my prayers

[kalecolbe12 in reply to pizon]

Thank you for sending me your email I will stay in touch with you if that's okay ....it helps to have other people to talk to who are going through the same thing so I appreciate it greatly

[pizon]

i look forward to keeping in touch with you again I will keep you in my prayers I go to my gyn for my annual visit this Wensday...I am not doing anything for at least 1 year to give my body a rest/break...I had 3 surgeries within 1 and 1@ yrs I will keep you posted God Bless

[pizon]

i also wanted to add I do a yoga c/d called Your pace yoga Relieving pelvic pain by Dustienne Miller....it has helped me so much I do it daily and parts of it right before bed I also can't stress enough how much the cbd oil has helped I use the brand called re-live sold by the hemp boutique I am not able to take the meds so this has seemed to help and I thing the pain is getting less...I hope and feel that my body is healing itself instead of a pill to cover up or mask the pain .... I truly do help this helps because I know how desperate I felt...again I am not 100% but at least I can sit and drive now and am able to work in the gardens this year it has been a long road and I am still climbing