Polymyalgia

[k_J53]

Has anyone heard of Polymilagya ? I have been given a course of steroids for ? This I’m suffering from severe pain and I have had my 3 rd prolia injection last month I think it’s the prolia but my consultant thinks otherwise appreciate any feedback

[Hidden]

Hi ,I myself have been having the Prolia injections for over 5yrs,I've never had a problem with it. But I did once get in touch with the Osteoperosis society,and they were really helpful. So maybe get in touch with them.

There Helpline is. Helpline@.org.uk. Or nos.org.uk. Or the phone number is 0808 800 0035. Well worth asking.

[k_J53 in reply to Hidden]

Thank you for your advice I have been in touch with a few drs here about prolia all said they had no patient that complained of side effects but I’m on the osteoporosis website and a lot of people report dreadful side effects

[Hidden in reply to k_J53]

But if you email the Osteoperosis Society website with all your concerns they are very good at giving you all the answers,far better than a Osteoperosis website . Some people put all there ailment down to medication side affects .So I wouldn't take to much notice. Your better off discussing it with experts. I think the more information you have,the better you'll find a solution.

[k_J53 in reply to Hidden]

Thank you I will do that

[Konagirl60]

My athletic American friend got it when she turned 65. She only took steroids. They made her bloat and her eyes huge but finally after three years, the pain went away completely. Yoga helped her the most.

I’m sorry you suffer this pain.

[Ciar]

I have Polymyalgia. There is an excellent and very active group on this website. I highly recommend you should join. PMR/GCAuk.

If low dose steroids help your pain, it you could have this. All my pain disappeared in about 12 hours after the first dose. If the steroids don’t help, you are much less likely to have Polymyalgia. Low dose steroids are the only effective treatment. The disease lasts at least a couple years, 5-6 years on average, and usually goes away.

[k_J53 in reply to Ciar]

Oh thank you Ciar I have started steroids waiting for an improvement I will check out the website thanks for your help sorry you have it hope you are ok

Kay