I've been operating under the misapprehension that I had Endometriosis for a year now as every doctor I saw said I was a textbook case and that had to be what I had. Well, I finally had my diagnostic lap this past Tuesday and it came back clean. (It was done by an Endo specialist so I feel confident he would have found it if it were there.)
I've been signed off of work since September due to how constant and how severe my pain has become. The more I try to do in a given day, the worse my pain will be. The only way to manage it is to stay down, keep a constant supply of awful pain meds in me, two hot water bottles always on hand, an electric blanket on the bed, and just do as little movement as possible from day to day. That keeps it from being cripplingly painful every day. It also keeps me from being beyond fatigued.
But this isn't a way to live! I'm only 34. I just got married a few years ago and I just got a great job with so much growth potential a year ago and now my life has been trainwrecked by near constant and severe pelvic pain coupled with severe fatigue, lower back pain, feeling like something inside of me has been pulled too tight, like a rubber band about to snap, if I stand up too quickly or often while walking, bloating so severe that it's uncomfortable to breathe and people frequently think I'm pregnant....
And now after cutting me open, it isn't Endo and no one has offered any suggestions as to what it could be or how to help me get my life back. All my surgical team has offered is a 20 week drug trial for gabapentin. I find it hard to believe they can know what drug will help when they can't tell me what is wrong.
I just feel like I'm back to square one. I'm way too young to be bedridden. I was a really active person and now I've lost friends, promotional opportunities at work, potentially my job if this keeps up much longer, and let's not even get into the strain on my marriage. My husband is an amazing guy, but this is hard, even for a great person.
If anyone has any suggestions about what else it might be or what else I can do to try and get my life back, I would be so deeply grateful. Thank you.