I would like to share my story and current situation via Health Unlocked in order to speak with like minded individuals who might be experiencing the same condition. Thank you in advance for taking the time to read my post. I am a new user.
I had extremely painful periods all of my life. I had a scan which showed a 10cm ovarian cyst. I I had a laparoscopy 2 years ago to remove it. The gynae drained it and the report stated she had removed small spots of endo also and found filmy adhesions on my bowel.
After lap I was discharged, placed on a hormone injection- which made me extremely ill, so I was placed on Norethisterone. It took me 3 / 4 weeks after my op before I could even get out of bed and walk.
Ever since my op I have been in constant pain for 2 years. I have had severe abdo pain, upper and lower with no respite. Smear test and gyane test are extremely painful, sex is the same. I have a tight contracting sensation outside the vaginal wall / near perianal area when aroused. For the last year I have pain in an upward motion just when I am finishing urinating. It doesn’t seem to go past my belly button and seems not to be inside the urethra but more on top. I have involuntary arousal from my cliterous that is ruining my life and seems to be persistent and constant. When I push the area around the belly button and below I get a sharp pain on the area and down below. I feel as if the centre line from belly button to cliterous is being pulled upwards and is very tight. When I lean backwards I have a sharp pain down below. When I sit up in the bath the area just before the top of the pelvis feels like there is a foreign object present / I am pressing on something.
The communication between my GP and I has broken down and it is obvious that the duty of care is no longer present. It is highly embarrassing divulging such information and I receive no help. I am at a loss as to what to do, as no one understands, nor can appreciate what it is I am going though and physically feeling.
•Can anyone offer any words of advice
•useful contact information of well learned individuals within any relevant field,
•share their own stories please.